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trying to stay calm and cool.....
Hey guy's, ok trying to stay cool.... I was closing down our pool yesterday, had to go in and vacuum the bottom, Lisa called me in for lunch, and the expression on her face was one of dread. In the area between my shoulder and neck is a golfball size lump. I have my regular maintance visit on the 27th with my oncologist,…
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Important message
Hello Dearhearts First, I want to say that you all are so dear to me and so close to my heart, which is why I now start off with my "Hello Dearhearts". Second, I really want you all to know that each and every comment or words of support you give, really mean so very much. I treasure each and every one of you. So, thank…
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Cooking girl
Hi I know I am not on much but has anyone seen a post from Cooking girl? I know she was traveling this summer to see family.
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ups and downs
i am in the second week of cycle 2 (R-CHOP on september 4 with a Neulasta shot the day afterward.) the first cycle i didn't have much in the way of side-effects at all,just a little tiredness. they had to delay my second chemo a week to give me time to build up the ol' neutrophils (that's why the Neulasta shot). people…
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Another PET Scan
My husband has had 2 rounds of R-ICE and gets another PET scan tomorrow. Waiting until the next day for the results is stressful. Since he has been feeling good and doing quite a lot of stuff and hasn't felt any lymph nodes I am hopefull the R-ICE is doing it's job. I hope to get new that he will be moving on to…
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Sunday night news
Hello Dearhearts Well, I am now home after spending Saturday night in the ER and transfered to a hospital room. Things started getting scary on Sat. around 10 pm. My chest was hurting and I didn't know if it was related to the transfusions. So we called the doc and he said to go to the ER right away. No fun! They did every…
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Checking in
Hello Dearhearts, I am home and finally awake enough to post. So sorry for the delay. I've been thinking of you all and hoping that you are not worring to much.. I am okay. Yesterday was such a long day, I think it really took a lot out of me. When I got the first unit, it was painful in my hand and arm, but with added…
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Blood Tests
Good Saturday Morning Everyone, I had my scan on early part of July and it was good. So I was so happy for that. Then at the Oncologist office they did my cbc and my white count was 4.8 which finally I was happy with. And my rbc was 4.33 and platlets were 134. I thought I was in the range of things. Well I am on blood…
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My wonderful husband diagnosed with Mantle Cell Wednesday and I am devastated
Hello to you all, My husband was diagnosed on Wednesday, via excisionsal node biopsy by an ENT, with Mantle Cell. We are scheduled to meet with an oncologist next Tuesday to begin this journey together. I know he will need a PET scan and BMB to obtain staging. He is 52, in great health (besides THIS!), no "B" symptoms…
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Elixir of life
Hello dear hearts I am now hooked up and getting my first unit. We had some initial problems with the orders, so typical. But now things are flowing smoothly. I can feel your loving support. I was a little nervous this morning, but feel a lot calmer now. Ha. Maybe it's the Pre meds working. I hope you all are having a good…
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Good news from my niece ☺
I just talked with Tosha and she had good results from all the tests today. In fact, the lump isn't there anymore. Thank you all very much for your positive thoughts and prayers! I hope we hear more good news from you folks this week! Hugs, Jim
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transplant has started
today i had the first step of the transplant procedure i had the line placed, tomorrow is retuxan and then the big guns, one week from today i get my new stem cell, i wonder if anything will be different with a new blood type if anyone has had an allo transplant i hope you will anwser a couple of questions for me
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last day of harsh chemo
today was the last day of the harsh chemo, and the 7 hours of infusion which wears me out so far its not to bad the fatigue is awful and my legs really hurt, the next two days is just blood work the countdown is closer 3 more days. i hope everyone is doing good and forme i hope you aer feeling better and thank you sue for…
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Hi all with update to fellow sojourners
Hi fellow sojourners on the NHL Trials-- I have only been on a little in the past few weeks, after hibernating for quite a while. Just passed my 1 year diagnosis anniversary--- Following 6 rounds of R/Bendamustine--last dose 12/14/2011--now in 2 yr. Rituxan maintenance every 8 weeks-- PET scans after treatment showed…
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Mantel cell lymphoma
Hello all I am new here and don't know much about what is going on. I was diagnosed with stage 3 mantel cell lymphoma May the 7th I have gone through 4 intrathecal Chemo's and 4 R-CHOP chemo's.I am doing very well with treatment not bad side effects but I woke up this morning at about 5:30 with the night sweats. Is this…
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DaddysGirl
DadysGirl, Just wondering about your dad and you? Please let us know what the Doc says... constantly thinking and praying for your dad and you! (((HUGS))) Sincerely, Liz
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Hodgkins Horsburgh Recluses
Well Hello to all. Hope everyone is doing the best they can. I have not been on the Network for a few months. I am the type of guy who may recluse a bit if things do not go well. I was getting prepped up to have a Stem Cell transplant in July. Things were rolling along pretty well. I got all the way to stem cell harvest.…
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Mediastinal Mass - NHL Chest Area
Hello, I was hoping I can get in contact with survivors. I was diagnosed in June with NHL mediastinal mass on my chest area. I had 5 r-chop therapies, my 5th one was today and it went well. Hopefully, it stays this way. I did not feel vomit or nausea as much for the first 2 treatments. My 3rd treatment was the harshest and…
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Scared
Hello Dearhearts I am scared of tomorrow. I must sound so silly, but I really could use your advice. I have had many many transfusions in the past, but with a different doc taking care of me and setting it all up. Every time I have received a unit of blood, I would receive as a pre med, tylrnol and i.v. benadryl. Then…
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I Am New Here
Hello: I am new here. I live in Southern California. I was diagnosed in May with Non-Hodgkins Lymphoma Diffuse Large B Cell. I had pain in my lower spine and hip area and that alerted me to find someone to diagnose what it was. It was a surprise because I was being diagnosed with arthritis, sciatica, and a host of other…
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Home from appointment
Hello Dearhearts I am now back home. Today was difficult again. Mini meltdown. I am really ready for some peaceful moments. I am set to get my transfusions on Friday starting at 8 am. They are not keeping me overnight. I am feeling a little scared about that, but it is what it is. The onc visit did not turn out well. I…
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Falling down and apart
Hello Dearhearts I am really having a hard time. Both physically and mentally. I still have not received the transfusions. I will be typed and crossed tomorrow after my onc appointment. It seems that I am always having the miscommunications between docs. It took till today for the onc to return the calls to the pcp. He…
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Good morning to all
Hello, I'm new to this forum and I see that the human power is greater than anything else. First of all excuse me for my English :) I'm writing so that I can get some answers to my concerns. My father in law was diagnosed with Primary Adrenal NHL with no adrenal insufficiency. A very rare case with so few incidents…
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Me and the Mouse
Hi All, Just want to let you all know that Hubby and I are taking a quick trip out of town. My daughter, son in law and the grands have planned a trip to Disneyland. They are driving there tomorrow. The kids have NO idea that they are going. They are spending the night tonight at the beach and then telling the kids that…
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Anyone hear from Maggie?
During her move I hope she didn't put her computer in the microwave ;) . Just thinking about you, Maggie. Jim
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1st day of harsh chemo...Denise
Hi Denise, Just wanted to drop you a note and say I'm thinking of you today. This being the first day of your 3 harsh chemo treatments, I'd imagine all you will want to do is rest and stay peaceful. I hope you are feeling ok and not too wiped out, or sick. The next 3 days will go fast and then you can rest on Wednesday and…
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Denise...Rituxan today...
Hi Denise, I just wanted to let you know I'm thinking good positive thoughts with your Rituxan today. I hope everything is going good with no problems. It took 7 hours on my first day of chemo because they had to set the Rituxan drip to a slow rate. Seems like that first day went on forever. Now it only takes 3 hours or…
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How did things go Aaron?
Hi Aaron, Thinking of you! How did things go for you today? Do you they check your blood counts every treatment? Hopefully you were well enough and didn't have to skip. My went well again. My oldest son is here visiting me from out of town, so he came with and we had a nice visit. I think it was helpful for him to see what…
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More news :(
Hello Dearhearts As promised, this is my after the doc visit update. Well my bone marrow has not come back to life. Major bummer. So the doc is now in the process of settting up an admit to the hospital so that I can receive the needed transfusions. It will have to be an overnight stay. I so had hoped that my blood counts…
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Positive thoughts for my niece
My niece, Tosha (35 yrs old) discovered a lump in one of her breasts. It has since decreased in size but she has an appointment to have it checked out today. So, just asking for your positive thoughts and prayers for her. Thanks my friends, Jim