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Lymphoma (Hodgkin and Non-Hodgkin)

Mantel cell lymphoma
Hello all I am new here and don't know much about what is going on. I was diagnosed with stage 3 mantel cell lymphoma May the 7th I have gone through 4 intrathecal Chemo's and 4 R-CHOP chemo's.I am doing very well with treatment not bad side effects but I woke up this morning at about 5:30 with the night sweats. Is this…
DaddysGirl
DadysGirl, Just wondering about your dad and you? Please let us know what the Doc says... constantly thinking and praying for your dad and you! (((HUGS))) Sincerely, Liz
Hodgkins Horsburgh Recluses
Well Hello to all. Hope everyone is doing the best they can. I have not been on the Network for a few months. I am the type of guy who may recluse a bit if things do not go well. I was getting prepped up to have a Stem Cell transplant in July. Things were rolling along pretty well. I got all the way to stem cell harvest.…
Mediastinal Mass - NHL Chest Area
Hello, I was hoping I can get in contact with survivors. I was diagnosed in June with NHL mediastinal mass on my chest area. I had 5 r-chop therapies, my 5th one was today and it went well. Hopefully, it stays this way. I did not feel vomit or nausea as much for the first 2 treatments. My 3rd treatment was the harshest and…
Scared
Hello Dearhearts I am scared of tomorrow. I must sound so silly, but I really could use your advice. I have had many many transfusions in the past, but with a different doc taking care of me and setting it all up. Every time I have received a unit of blood, I would receive as a pre med, tylrnol and i.v. benadryl. Then…
I Am New Here
Hello: I am new here. I live in Southern California. I was diagnosed in May with Non-Hodgkins Lymphoma Diffuse Large B Cell. I had pain in my lower spine and hip area and that alerted me to find someone to diagnose what it was. It was a surprise because I was being diagnosed with arthritis, sciatica, and a host of other…
Home from appointment
Hello Dearhearts I am now back home. Today was difficult again. Mini meltdown. I am really ready for some peaceful moments. I am set to get my transfusions on Friday starting at 8 am. They are not keeping me overnight. I am feeling a little scared about that, but it is what it is. The onc visit did not turn out well. I…
Falling down and apart
Hello Dearhearts I am really having a hard time. Both physically and mentally. I still have not received the transfusions. I will be typed and crossed tomorrow after my onc appointment. It seems that I am always having the miscommunications between docs. It took till today for the onc to return the calls to the pcp. He…
Good morning to all
Hello, I'm new to this forum and I see that the human power is greater than anything else. First of all excuse me for my English :) I'm writing so that I can get some answers to my concerns. My father in law was diagnosed with Primary Adrenal NHL with no adrenal insufficiency. A very rare case with so few incidents…
Me and the Mouse
Hi All, Just want to let you all know that Hubby and I are taking a quick trip out of town. My daughter, son in law and the grands have planned a trip to Disneyland. They are driving there tomorrow. The kids have NO idea that they are going. They are spending the night tonight at the beach and then telling the kids that…
Anyone hear from Maggie?
During her move I hope she didn't put her computer in the microwave ;) . Just thinking about you, Maggie. Jim
1st day of harsh chemo...Denise
Hi Denise, Just wanted to drop you a note and say I'm thinking of you today. This being the first day of your 3 harsh chemo treatments, I'd imagine all you will want to do is rest and stay peaceful. I hope you are feeling ok and not too wiped out, or sick. The next 3 days will go fast and then you can rest on Wednesday and…
Denise...Rituxan today...
Hi Denise, I just wanted to let you know I'm thinking good positive thoughts with your Rituxan today. I hope everything is going good with no problems. It took 7 hours on my first day of chemo because they had to set the Rituxan drip to a slow rate. Seems like that first day went on forever. Now it only takes 3 hours or…
How did things go Aaron?
Hi Aaron, Thinking of you! How did things go for you today? Do you they check your blood counts every treatment? Hopefully you were well enough and didn't have to skip. My went well again. My oldest son is here visiting me from out of town, so he came with and we had a nice visit. I think it was helpful for him to see what…
More news :(
Hello Dearhearts As promised, this is my after the doc visit update. Well my bone marrow has not come back to life. Major bummer. So the doc is now in the process of settting up an admit to the hospital so that I can receive the needed transfusions. It will have to be an overnight stay. I so had hoped that my blood counts…
Positive thoughts for my niece
My niece, Tosha (35 yrs old) discovered a lump in one of her breasts. It has since decreased in size but she has an appointment to have it checked out today. So, just asking for your positive thoughts and prayers for her. Thanks my friends, Jim
John..are you done with the R now?
Hi John, I couldn't remember if this week was your "final" week or not for the Rituxan maint. I hope all is going good and if you ARE done, then "YIPPEE". My "done" date is Feb 14th...again on Valentines Day this year. This will make the 3rd year I've had to be at the cancer clinic getting an infusion on Valentines…
Friday update
Hello Dearhearts, Here is the lastest news. I am feeling like the pain is under control, still have it, and the occasional break through pain but it is managed well with this new pain dosage. I think I am headed in the right direction with the pain. I even have times when I take a little less pain meds. Hooray.. I am…
Post-Hodgins Annual Check-Ups: What Tests Should Be Performed
It's been 30 years since diagnosis of Hodgkins Stage IIa at age 19. Treated at MSK with Radiation and Chemo (not MOPP, the other one). Had CABG 10 years ago as by-product of radiation. I get follow-ups by both an Oncologist (annual) and Cardiologist (semi-annual). Both request blood work, Oncologist also has me do a annual…
Round 5 done
Hi all! Had my two days of infusions- all went well. Home resting and being spoiled by my daughter and husband. And of course Max my dog. :) Will have final round in October.( Getting bendamustine/ofatumumab miracle mix) Just found out yesterday that I will have maintenance - One full day of Ofatumumab infusion every other…
Maggie moving
Hello to my family, I will be moving Tuesday, Sept 4 to a smaller house. I have been so busy packing and throwing things out. I am moving close to where i live now. There are so many of you struggling. It makes me very sad I will not be able to keep in touch with all of you. Especially, the ones that need my support,…
Here I am
Hi All Thanks for asking about me. I'm not lost or missing, just feeling down and so very tired. The pain is still with me, but mostly managed with the meds. The doc gave me another pain med to take for break through pain. I feel like all I do is take pain meds, then take other meds for the side effects of the pain meds…
Relapsed NHL-Rituxan Maintenance or Stem Cell?
I recently was diagnosed with a relapse of NHL (diffuse large B-cell/aggressive). 4 years ago I was treated with R-CHOP and now they are giving me DHAP since I had a bad experience w/ RICE. After two treatments-I am presently in total remission My primary oncoligist (the Dr. who treated me 4 years ago) has recommended that…
hey everyone
I just wanted to say that I really enjoy this group. I'm glad to meet and talk to others who have been in the same boat as me. Thank you all once again
Swollen tonsil
I just had a tonsillectomy today. I had a swollen tonsil for about eight months. Well thats when I first noticed it. It never hurt me until recently. It was causing me some neck pain and pressure. The left one started to get bigger also but they were not the same size. I finally went to see the ENT this month and he looked…
consent form signed
i signed the consent form thursday i had some teeth pulled today to make sure they didnt get infected my mouth is really sore, tommrow i have an infusion of retuxab. i go back home untill the7th when i have the cath placed i really feel good about this like its the miricle ive been praying for. blessings denise
Lisha (forme) - How ya doing?
Hi Lisha, Just wanted to check in on you. You doing okay? Looks like Isaac was kind to the Keys. I would have sent you some of Beth's (dixiegirl) King Ranch Chicken but my brother in law ate it all ;) . Just thinking about you and sending you warm hugs, Jim
Pet Scan
Well another Pet Scan today, hope that activity in my hip is behaving, promised my wife I would not plant my vegetable garden this year until I get a clean bill of health! So here's to the vegetable garden going in this year lol!!!!
TORTURE
King ranch chicken would have been AWESOME, but I guess I'll choke down a turkey sandwich... booooo
BIG HUGS FOR LISHA !!!!!
Lisha, We will all be there with you tomorrow in the operating room. BIG,BIG HUGS. John

Lymphoma (Hodgkin and Non-Hodgkin)

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