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John...Friday last Rituxan!!!
Hi John, Just wanted to say "Good luck" and "YIPPEE"...tomorrow will be your last Rituxan infusion!!! I'll be on the river fishing all day tomorrow, so I wanted to be sure and let you know how happy I am for you. Oct-Dec-Feb and then I will be done also!!! Man...the time has flown by...I remember the fall of 2010 and we…
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MY FIRST POST ON THIS BOARD
I had a number of tests early this year and was finally diagnosed with B Cell Lymphoma this past spring. Maybe there is more to that title, I am not sure. Hope I am on the right board! Am getting RITUXIN infusions every six months for two years. Very new med. Each time, one infusion a week for four weeks. Had the first set…
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Magic Mouthwash
Hello all-- I hope things are well in your corner today.. Things are on an upswing over here, I can feel it.. at least for this split second! I have been having a problem.. for the last three days I have had thick mucous, painful tongue and difficulty swallowing. I'm guessing I have a mouth sore, or maybe bit my tongue in…
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Hey max
I'm sorry I've been a bit scarce lately, just been lurking. Getting the results of my first in treatment ct scan in a few hours so I will post them straight away. Sometimes I read what others are enduring max and I can't bring myself to post my trivial pissings and moanings. The truth is I'm getting through this pretty…
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Good news
I had my yearly PET scan and everything was good. I was trying not to be anxious as my stomach has been bothering me for about 4 weeks . I is not painful just dull aches every now and then every day. The Dr. told me to take Papaya extract with meals an one Tagamet in the morning. I started the tagamet today. I am so…
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another long day
another long day, it started 8am, first i had labs drawed next i had fluids ,thxen i had platelates. the nurse imformed me that if i eat more i wouldnt need so much fluds ihave decided just to put food in my mouth and swallow. blessings denise
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Update after delay of contact
Hi all, It's been quite awhile since I sent any updates. Like quite a few that have posted, I don't know what to say, or am reluctant to put it in words--or I don't know; just doesn't seem so bad, compared to what others are going through ----Just had my Rituxan Wednesday, 9/19; I'm currently on maintenance Rituxan, every…
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John..(Cobra666...caught your fish!!!
Hey buddy... I caught your fish this morning...it wasn't a "big salmon" like I wanted, but a nice 7 pound steelhead will have to do. I caught a 12 pounder also, but it was wild and had to be thrown back :( Anyways...I'm so glad you are home and now finished with your Rituxan maint. When is your follow up scan? Mine is in…
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New around here
Hi all-- I was recently diagnosed and undergoing R-CHOP treatment. So far, it has really been quite a roller coaster.. the chemo is kicking my butt. I hate it.. but I digress.. Recently, I had my "mid-treatment" PET scan before my fifth R-CHOP. While the mass has gotten smaller, there is still activity. It went from a big…
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the opposite of snark
surprisingly, despite all the temptations (politics!! the internet!! the newspaper!!) to indulge in a large and loud bout of cynicism, this quote grabbed me today: "...Happiness is not happiness unless it is shared. For happiness is the one thing in all the world that comes to us only at the moment we give it, and is…
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add another doc to the list
My doctor agrees with me that the rituxan isn't working. So next Friday I have an appt with my radiation onc. Hopeful for less than 3 weeks. Cancer Sucks guys. But at least lymphoma responds to radiation well. Maybe give the armpit a break. thanks for all the good vibes!!!
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New picture...
Hi Guys, I posted a picture(expression gallery) of where we stay on the river...it's really a beautiful area! Tonight I stood out on the deck and the moon was straight across the river and was the most brilliant bright orange I've ever seen. We were told the bright orange color is caused from all of the smoke in the air.…
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Has anyone participated in a clinical trial at the NCI/NIH campus?
I would love to hear your experiences. It's been suggested my husband might be a good match for a clinical trial being held at NCI/NHI here in DC. He is still in the staging process although they "suspect" he has an indolent type of MCL. We will know more after BMB (today...I hope it's not terrible!) and PET scan next…
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Hopefully last treatment for a while
Oncologist said that my last 6th treatment w/RCHOP, rituxan and the shot will be my last until he does another PET scan, CT scan and heart monitor on Oct. 26th. Praying that it will be fine. This last treatment has put me down for the count. Dr. told me to expect this since my treatments have really been harsh. Don't know…
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dr appt
Have appt fri 28th with rad doc.
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New photo
I have a new photo on my expression page of my grandson.
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trying to stay calm and cool.....
Hey guy's, ok trying to stay cool.... I was closing down our pool yesterday, had to go in and vacuum the bottom, Lisa called me in for lunch, and the expression on her face was one of dread. In the area between my shoulder and neck is a golfball size lump. I have my regular maintance visit on the 27th with my oncologist,…
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Important message
Hello Dearhearts First, I want to say that you all are so dear to me and so close to my heart, which is why I now start off with my "Hello Dearhearts". Second, I really want you all to know that each and every comment or words of support you give, really mean so very much. I treasure each and every one of you. So, thank…
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Cooking girl
Hi I know I am not on much but has anyone seen a post from Cooking girl? I know she was traveling this summer to see family.
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ups and downs
i am in the second week of cycle 2 (R-CHOP on september 4 with a Neulasta shot the day afterward.) the first cycle i didn't have much in the way of side-effects at all,just a little tiredness. they had to delay my second chemo a week to give me time to build up the ol' neutrophils (that's why the Neulasta shot). people…
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Another PET Scan
My husband has had 2 rounds of R-ICE and gets another PET scan tomorrow. Waiting until the next day for the results is stressful. Since he has been feeling good and doing quite a lot of stuff and hasn't felt any lymph nodes I am hopefull the R-ICE is doing it's job. I hope to get new that he will be moving on to…
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Sunday night news
Hello Dearhearts Well, I am now home after spending Saturday night in the ER and transfered to a hospital room. Things started getting scary on Sat. around 10 pm. My chest was hurting and I didn't know if it was related to the transfusions. So we called the doc and he said to go to the ER right away. No fun! They did every…
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Checking in
Hello Dearhearts, I am home and finally awake enough to post. So sorry for the delay. I've been thinking of you all and hoping that you are not worring to much.. I am okay. Yesterday was such a long day, I think it really took a lot out of me. When I got the first unit, it was painful in my hand and arm, but with added…
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Blood Tests
Good Saturday Morning Everyone, I had my scan on early part of July and it was good. So I was so happy for that. Then at the Oncologist office they did my cbc and my white count was 4.8 which finally I was happy with. And my rbc was 4.33 and platlets were 134. I thought I was in the range of things. Well I am on blood…
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My wonderful husband diagnosed with Mantle Cell Wednesday and I am devastated
Hello to you all, My husband was diagnosed on Wednesday, via excisionsal node biopsy by an ENT, with Mantle Cell. We are scheduled to meet with an oncologist next Tuesday to begin this journey together. I know he will need a PET scan and BMB to obtain staging. He is 52, in great health (besides THIS!), no "B" symptoms…
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Elixir of life
Hello dear hearts I am now hooked up and getting my first unit. We had some initial problems with the orders, so typical. But now things are flowing smoothly. I can feel your loving support. I was a little nervous this morning, but feel a lot calmer now. Ha. Maybe it's the Pre meds working. I hope you all are having a good…
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Good news from my niece ☺
I just talked with Tosha and she had good results from all the tests today. In fact, the lump isn't there anymore. Thank you all very much for your positive thoughts and prayers! I hope we hear more good news from you folks this week! Hugs, Jim
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transplant has started
today i had the first step of the transplant procedure i had the line placed, tomorrow is retuxan and then the big guns, one week from today i get my new stem cell, i wonder if anything will be different with a new blood type if anyone has had an allo transplant i hope you will anwser a couple of questions for me
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last day of harsh chemo
today was the last day of the harsh chemo, and the 7 hours of infusion which wears me out so far its not to bad the fatigue is awful and my legs really hurt, the next two days is just blood work the countdown is closer 3 more days. i hope everyone is doing good and forme i hope you aer feeling better and thank you sue for…
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Hi all with update to fellow sojourners
Hi fellow sojourners on the NHL Trials-- I have only been on a little in the past few weeks, after hibernating for quite a while. Just passed my 1 year diagnosis anniversary--- Following 6 rounds of R/Bendamustine--last dose 12/14/2011--now in 2 yr. Rituxan maintenance every 8 weeks-- PET scans after treatment showed…