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Feeling a bit scared
My husband has CLL with transformation to Large B Cell Lymphoma. He finished his 6th round of R-CHOP June 25th and goes in tomorrow for PET scan and bone marrow. We are afraid it has not worked. He can feel a couple of swollen lymph nodes in his neck which I assume is the CLL. Does anyone know if the lymphoma makes your…
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Excellent news concerning Lisha!
Hi Guys, Lisha's husband, Keith, just called me and said everything went great for Lisha. The mass/tumor in her stomach is benign! NOT cancer! They did a partial hysterectomy and removed the tumor and from what Keith was told by Lisha's doctor she will not require any chemo after this. She will be in recovery for the next…
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Update via email from Carol
I emailed Carol on 7/15 and got a response today. I think overall, she has good news :) . Per her request, I'm sharing with everyone I have not responded yet - have to run some errands and visiting a nearby friend for a day or two. ======================================================= From: cbpgill26 To: jimwins Subject:…
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Sutter Hospital
Has anyone be treated at Sutter Hospital, Sacramento or by a Dr. Kiwan. My oncologist wants to refer me there.
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Remission Questions
Hi Everyone! I'm new to this site so here's my story first.. I'm 23 years old I had Diffused B-Cell NHL in my chest in January. Did 6 rounds of R-CHOP and now I am 12 weeks out and considered to be in complete remission. I have felt totally fine but the past two weeks Ive had a lot of pain in my jaw and armpits and also…
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Heading to the launch pad
Dearhearts Thank you so very much for the loving prayers and genuine faith in me. I slept a little but figure I'll be sleeping most of today, so I'll get plenty of rest. The fear factor has mellowed a bit, the drugs are helping with that too.. I have no doubt that when I get into the car and we drive over, it will start to…
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T minus ten and counting
Dearhearts I am now in a styling gown waiting for the nurse. Then comes the iv. That part will not be fun. But a must for the promised good drugs. I am using hubby's iPad, so forgive any errors. My girls and hubby are still out in the waiting room. After I get hooked up and all the other fun stuff done, they will allow…
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New to this site- Hello and my story
Hello everyone, I was diagnosed with Hodgkins Lymphoma back in April of this year 2012. I am a single 30year woman who lives in Austin, texas Back pain, 103.5 fever took me to the emergency room. I had a kidney infection. At least that's what the er doctor told me. I knew something was not right. I had never had a kidney…
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Houston, we have count down
Dearhearts, It is true. I am all set to go tomorrow morning. I have to be at the hospital at 5:30 AM!!!. Most of you know that I am NOT a morning person, so this just adds insult upon insult... I am the first person to have surgery tomorrow. The start time is 7:30 AM. If all goes as planned I should be in the recovery room…
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Here we go
Well today's the day, hopefully it won't be too bad though I think I'd rather be out fishing with sue. I'll keep y'all posted
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Today is "Hugs Day" ☺
Hey, I know "Mama Sue" has gone fishin' but we can still "holler" right? I'm declaring today "Hugs Day" so hug someone you love - or hug me. I never get enough of them - LOL. Aaron, good luck today with your first infusion and please touch base with us when you feel up to it. Lisha, how ya doing today? Liz, what's going on…
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back home from visit
Hi All Well the visit went way better than I expected. It's always the fear of the unknown. I am so glad that I told her. I also told my cousin who is still battleing rectal cancer. She will be having another surgery on Tuesday. We decided to email each other from the hospital when we are in a less drugged up state. She…
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3 years clear!
I have been cancer free for 3 years this month!!! That is one of the reasons I started my fitness and health journey, I never want to go through it again, I hope no one ever has to. If you want to get fit and healthy I would love to help. Exercising, eating right and taking care of yourself is important to prevent cancer…
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Sunday checking in
Hi All Well, I have made it to Sunday, still keeping it together. But, boy is it getting hard to do. Seems like the tears just start welling up,and it takes a lot to keep it from becoming a flood. I'm going to visit our close family friend this afternoon. She is the one I have talked about who is like a second mom to me.…
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Side effects of treatment or relapse?
My husband had 3 rounds of R-CHOP then a 6 week break, then 20 radiation treatments for Diffuse Large B Cell Lymphoma, left tonsil. His last radiation treatment was about 6 weeks ago. Between the chemo and radiation, he had a PET scan that showed no sign of cancer. He was feeling pretty good until last week. He always…
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Happy "Port Day" for Aaron
Hi Aaron, Just wishing you good luck on your port install today. A little awkward at first, it will soon become your friend. It will also make great "show and tell" for the kids and others too ;) . Hugs and positive thoughts, Jim DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)
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can't stop crying
Today and the last month I have been crying daily. I am working from home now , because working as as ICU vet tech is not something I can do while I am on ABVD and dealing with HL. My relationships I have with with my sisters are falling apart. I feel like I can't face the world. I was so strong, I am strong. I don't…
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Hello to all!
Hope someone remembers me? I don't have the time right now to go through all of the posts so allow me to just say you are all in my prayers. Feeling anxious right now...I go for a recheck scan tomorrow(I know many of you can relate). I will know the results by tomorrow afternoon and hope like crazy the remission is…
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need input
i am feeling feeling scared about the allo transplant i could have it and die from host versus graft desiese or keep having chemo and mabey have more time i don't know which way to go i would be appreciated blessings denise
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So much better!
The miracle of good expensive drugs. I now have another anti nausea med along with the new one from a few hours ago. So far so good. NO nausea, and just minor discomfort. I talked with the onc tonight. They are both trying their best to get me in on Tuesday. She didn't want to promise after what happened on Monday, but I…
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Searching for answers
Hello Everyone, I hope no one minds that I am only a "possible" case. I have received some strength from you already and it helps me to keep pushing my doc for an answer. First my symptoms (Dec 2011): pain in back around left shoulder blade that hit me like a blow along with nausea. The back pain dulled to an ache within…
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Evening update
Hi All Just thought I would update everyone. Looks like Tuesday will be the big day. It's going to be a long time from now till then.. Still dealing with the increasing pain and nausea. But even that is hopefully going to have a little improvement. The triage nurse upped the pain meds to fast acting liquid morphine and a…
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Happy to sign up with Cancer Survivors Network Hodgkins
I was diagnosed with Hodgkins Lymphoma in March 2011. Just signed up today. I noticed just looking at what some people posted. It has made me break out my paperwork and get a little more involved in my disease. Although I am not a survivor yet I have just achieved complete remission (CR). Thank God. I still have to get a…
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Better evening
Hi All No new update as far as the surgery day and time. Still hoping that I'll hear it's on for Thursday. Onc only does surgery on Tue and Thur. Today was quiet and very uneventful. Thank goodness. The only negative is the pain. I think the last hour or so is the first time since I woke up that I don't have really yucky…
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Quick update and prayers needed
Hi All It's been awhile since I've given any sort of update. I'll make this brief, since I don't have all the info yet. I had an emergency Doc visit yesterday afternoon (monday). I am getting a ct scan in about 8 hours. I have a tumor that has become so large in a short amount of time, that it is visible. Seems like it was…
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Surgery CANCELLED !!!
Yes, It's really true. I cannot believe it. I have pulled myself together after a major major meltdown and a long nap. I cried myself to sleep. The Hospital and the cancer center each have operating rooms. The cancer center rooms are used by cancer patients and kids from the childrens hospital next door. This is what I was…
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Scuttlebug11...Denise..how are you doing???
Hi Denise, Hope all is well, but would feel better if you popped in and told us how things are going for you. :) You are in my daily thoughts and prayers sweetie. Much love...Sue (FNHL-2-3a-6/10)
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From the mouth of babes
Hi All Still hanging in. Having lots of moments of okay and then tears. I wanted to share something my youngest granddaughter, Fynn said to me last evening. We were walking to my car to get some left over sparklers to light before I went back home, and out of the blue, she asks me if I am scared to have surgery. This is…
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recently diagnosed with NLPHL and scared out of my mind
This is a first for me. I was recently diagnosed with Nodular lympacyte predominent hodkins lymphoma and i am scared out of my mind. After weeks of tests and biopsy a treatment has been planned. I will recieve 6 rounds of r-chop...... i have no clue what to expect. what side effects are common, how long do i have before i…
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Welcome Whitney (whitneytheartist)
I'm posting this as a response/copy to Whitney (the artist) who made her first post in response to the article I shared with everyone. I thought it would be better to open a new thread to welcome her. Paste: Hi Jim, Thank you so much for posting that wonderful article. Wow! I was diagnosed three weeks ago with Large B Cell…