14 year survivor of HD

drcas

I was diagnosed with HD May 1984. Went through MOPP therapy for 6 months and radiation therapy for 5 weeks. Was in remission for 1 1/2 year and was rediagnosed in Aug 1986. Went through ABVD for 1 year and have been in remission since.

I have not noticed any severe complications except for infertility. I have a very active lifestyle (especially the last 3 years since getting seriously into weight training and nutrition.

Question I have is: after being in remission for 14 years, is it possible to exhibit neural complications? for the past several months, I have been having tingling, prickly burning sensation in my feet (very similar to what occured during chemo). It could be from something else like a pinched nerve but just dont know

Anyone else in long-term remission have the same problem? (although it could be much worse)

drcas

dpomroy

Oh so maybe I'm not crazy? I finished my treatments last May, and have been having trouble with my feet too! I had no trouble during chemo, only recently. I've noticed that it's especially noticable after I have been sitting or laying down for any length of time. I asked my oncologist about it, and she says it "doesn't sound cancer related" so talk to my regular doc. He says it might be water retention, so put me on diuretics which haven't helped. I tried chiropractic, but that hasn't made a dent. I wondered about neural affects too...let me know if you find anything out!

olivia

Yes, as a 19 yr survivor,I have the same burning, pricky feeling in my feet, mostly across my feet at the base of my toes. I also have tingling in my hands pretty often. I see a neurologist for a rare condition called P.O.T.S., postural orthostatic tachycardia syndrome, caused, they think, by chemo and radiation damage to some of my nerves. Maybe you should ask about it. Do you have low blood pressure? Let me know if you find out anything else.

dpomroy

olivia said:

Yes, as a 19 yr survivor,I have the same burning, pricky feeling in my feet, mostly across my feet at the base of my toes. I also have tingling in my hands pretty often. I see a neurologist for a rare condition called P.O.T.S., postural orthostatic tachycardia syndrome, caused, they think, by chemo and radiation damage to some of my nerves. Maybe you should ask about it. Do you have low blood pressure? Let me know if you find out anything else.

What do they do to help with P.O.T.S.?

chemicaltaz

I was diagnosed 12/6/00 w/stage 4 BS and went through ABVD chemo. I get the same tingling in my fingers and they turn blue for the lack of blood flow. I don't have low blood pressure. My onc did say it was a side affect to one of the chemo's My onc had a name for it but I can't remember it.

ladyjaws

I am also a long term survivor to cancer. I have the same problem with my feet if i lower my chin to my chest. I am a 30 year survivor.