In December of 2008 I had surgery to remove a lump under my jaw. The pathology came back as atypical follicular hyperplasia with a subset of monoclonal b-cells. The pathologist defined this as possible follicular lymphoma in-situ. I was sent to an oncologist who did repeated PET scans. In April of 2009 we found a new mass in my neck that he decided to biopsy. The pathology came back with the exact same report. This oncologist then said, "well, it's not normal, but I don't know what it is." And he told me he didn't want to see me again. A new oncologist is just keeping track of the size of new swollen glands by physical exam, no CT scans or anything else. I don't understand this diagnosis. I always thought if you had any cancer cells in you then you had cancer!! I am very frustrated with the doctors and don't feel like anyone wants to put in the effort to figure out what is really going on with me. Has anyone ever heard of this or had this experience??