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relapsed once already, please lord not again!
My name is allison and I was diagnosed with Stage 4B hodgkins in june of 2007 went through 12 cycles fo ABVD went into remission to only find out that 3mths later that the cancer was back and it had spread. The next step was a stem cell transplant at the Mayo Clinic in minnesota which is an amazing place, definetly the…
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RE: Supplements..good or bad?
I recently read an article that said you should always check with your doctor during and after cancer treatment before you use nutritional supplements? Some interfere with treatment..and it also said it was much better to get what you need through food. I was always low in potassium and they sent in a nutritionist to help…
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Radiation
In 1977 I had radiation treatments for Hodgkins thru out my chest, shoulders and neck area. In January (06) I had open heart surgery to replace a valve that the doctors say that was damaged from the radiation treatments. I have also lost all muscle thru out my shoulders and neck. My neck is very weak and I am having…
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A week of 'bombshells'...
I went to the doctor to have my left eye looked at because I noticed it looked swollen, almost like someone had punched me, but without the bruising. My doctor sent me to the ER at GW University Hospital in Wash DC. After an initial CT scan, it was determined that I had a 4 cm mass growing behind my left eye. I was…
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Alternative Medicine
Has anybody out there every tried alternative medicine for Hodgkins Disease. Like loading up on antioxidants and eating tons of fruits and veggies. And if so, did it work? I've been reading such terrible things about chemotherapy and all the side effects it causes. I've already been thru 12 treatments of ABVD and now they…
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Non-hodgkins Lymphoma
If you are a 5+ yr. survivor of cancer is your immune still weak?
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Starting R CHOP
I will be starting r chop on october 6th for my follicular nhl. I am nervous. The lump in my neck has gotten larger and my MD feels this is the best option. Any tips or suggestions?
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first Rituxan infusion scheduled
It is really going to happen. My orientation is next Tuesday and treatment will start a week from Thursday. Normally I would be in a panic but my mom at 84 is in very serious condition in a hospital in Nashville so I am making the 500 mile trip this Thursday to go check on her. God works in mysterious ways; right now my…
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radiation and chemo
has anyone NOT gained weight with chemo or radiation? what meds did you receive?
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Prognosis following PBSC transplant for progressive Hodgkin's Lymphoma
Hi, Posting from the UK - 14 year old daughter diagnosed with Hodgkin's Lymphoma stage 2BE almost 2 years ago. Completed initial 4 month course and was told that would do the job - no scan offered, not happy and eventually after 3 month delay, private scan performed only to show disease spread! Told it was 'progressive…
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Darkest Secret of 1963
Anyone out there ? Survivors from the 60's ... I am, and never thought I'd be here today. 3 Secondary Cancers result of Primary Cancer in 1963. More so now that I'm older, I have trauma about the past ?? It is unfortunate children did not get recognition nor guidance. I was told to forget I had Cancer, not encouraged to…
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Long-term prognosis for non-HD Lymphoma?
Hi Everyone! I just reached my 10-year anniversary earlier this year. I was diagnosed with T-Cell Lymphoblastic Lymphoma at 11 in 1998, and was in remission within 2 weeks. I was on chemo for two years but thankfully received no radiation. No relapses, kind of a "dream case" (if you can call 2 years of chemo any kind of…
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"Metabolic damage" from chemo/rads?
Hi everyone, I was diagnosed with IIB HD in August of 2000, and had 6 months of ABVD chemo followed by a month of radiation to my mediastinal area. I didn't lose any weight prior to my diagnosis -- I had night sweats and some other symptoms instead. Here's my question: Since the end of my treatment in May of 2001, I have…
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how large is large on lymph nodes?
in trying to decide whether to start treatment (rituxin) after being diagnosed with follicular lymphoma Stage IV...how do you know how large enlarged means? several nodes, mainly in abdomen are 2.4cm or 2.9 cm... when the growth is measured it is shown in mm as nodes increase from 9mm to 19 mm in some areas. It seems grow…
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bone marrow biopsy
i am having a bone marrow biopsy soon and could anyone tell me if it is a painfull procedure? thanks for any help you can give me on this. my doctor says it is nothing but i have heard it is very painful.
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MANTLE CELL LYMPHOMA
If anyone is looking to make a first connection with a someone who was diagnosed and treated for Mantle Cell Lymphoma, feel free to contact me. 917-686-3684.
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Cancer diagnosed this week
This week I have been diagnosed with NH ( Malt ) lymphoma of the stomach... I was SO VERY shocked / disappointed as I thought I was very healthy... I feel confused & like my head is spinning...Does anyone have ANY information to share about their experience with Lymphoma ? I have been doing research online... I have NOT…
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Refuses to eat.
My mom was diagnosed with Large B-cell Non-Hodgkins Lymphoma. She has had her first round of chemo and since she has been home she doesn't like to eat. She tells us that food tastes terrible and metallic. We have been giving her Ensure to drink but she won't eat anything else. Is this a side effect? She has lost a lot of…
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Follicular Lymphoma Rituxin for symptoms
Looking for answers, diagnosed in April 09 Stage 4 due to bone marrow involvement. Watch and wait; now two scans later each scan shows minimal growth. However, symptoms are much worse. Had none to begin with, was found looking for other issues. Symptoms now are extreme fatgue; the kind where you cry all the way home from…
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White Cell Count going back down
I don't know where to begin, it has been so many ups and downs. My husband was diagnosed w/ NHL back in October and he was told that he needed 6 to 8 treatments of R-CHOP. He had a treatment at the beginning of November and then at the end of November, along with a Neulasta shot at the end of each of those treatments. Then…
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Bone Marrow Transplant for Progressive
Hello, My name is Stephany, 26 yrs old and I was dianoged with Stage 2a hodgkin's disease back in May. I began Chemotherapy and have went through 3 mts of it. The first scan the results were amazing, 50% decrease in the 14 cm mass in my chest, I just got a second scan done and the mass went up from 7 cm to 9cm, so a small…
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Finding survivorship harder than treatment, am I alone?
Hi, This is my first post, although I have been a silent member for a little bit. I was diagnosed with Stage 2A, nodular sclerosis Hodgkins Lymphoma in May of 2007. I was 48 years old at the time and had just celebrated my 25th wedding anniversary. I had 6 rounds of ABVD, no rads. Went into early remission and basically…
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SVC syndrome anyone?
I think that I may have SVC syndrome, I have been having chest pain for about a mth now and it is getting worse, I feel like someone is sitting on my chest. Today I noticed that my fingers are kind of blue like I am not getting good circulation went to my oncologist going to have a CT tomorrow has this happened to anyone…
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recurrent yeast infections as symptom of cancer?
Did anyone have or hear of anyone having recurrent yeast infections as one of there symptoms before they were diagnosed?
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Father doesn't want treatment for NHL
My father is 82 and newely diagnosed 2 weeks ago. He had a bone marrow test, ct scan, pet scan and ecocardiagram this week. He told us that he does not want cemo or radiation treatment and I respect that. I am already caring for my mom who has COPD and is a 24 hour watch. I guess I am just scared because I don't know what…
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chest pain with lymphoma
Has anyone had chest pain and found out they had lymphoma in there chest? Did it feel like there was someone sitting on your chest and like you couldn't always get a good breath? Also have had alot of itching lately in my chest area but also on my arms and neck area.
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eye infection on R CHOP 2
ok, i cant find the answer, ill ask the question maybe someone can help. just thru 4th R CHOP. got an infection on my left cornea. the doctors are taking it pretty seriously. i am using 3 different drops and an ointment. one of the drops is cyclopentolate. all i read about this drug tells me it is used to dilate the pupil…
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eye infection on R CHOP
hi, does anyone know where i can ask a medical question on-line without having to pay for it?
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Divorce help: spousal support?
Hi. I just recently completed chemotherapy (hooray). In January I was diagnosed with lymphoma. Stage 4. In March my husband (of 8 years) moved out, after I discovered his affair. Shocking. He's living with her now and we're in the middle of a long divorce. Does anyone have advice on spousal support/alimony relating to…
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enlarged thymus gland
Ok so I was diagnosed with Hodgkins had chemo went into remission, relapsed had stem cell transplant went into remission and everything on the scans looked great but I always had an enlarged thymus gland and it even got a little bigger in later scans. What scares me is that the thymus gland is part of the lymph system…