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Neuropathy anyone? My concerns
In looking back before I had this formal diagnosis, one of the earliest symptoms that I had related to HL (or something else?) were the muscle/nerve body aches all over in the evenings and they were unbearable but ibuprofen save me from having them. That was in the fall of 2009. Last winter and my dr gave me shot of…
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Cure for slow growing lymphoma?
Hi My doctor says I have slow growing non hodgkin's lymphoma. I thought it was manageable but not curable. He says there is a 25 percent chance that it can be cured. Does anyone know how this is possible. Richard
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Stand up for Cancer
I LOVE THIS PROGRAM. MAKES MY HEART HAPPY! WE ARE STANDING UP EVERYONE :)
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Question for the Guys
Hi Guys, I've been researching a question that I've had no luck with. Frankly, it's a plumbing issue. (Embarraaassssinnng) Have any of you had any bladder problems that have only started after you began chemo? I know old guys supposedly start having problems, but I've not had any significant ones until I started chemo. Now…
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Headed out!!!
Ok...Getting ready to shut the computer down and head for the river. Wish all of you a happy healthy weekend and always know I will be thinking of you all! I'm going to try and catch a big fall Chinook Salmon...wish me luck!!! Love to all...Sue
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7th treatment in the bag!
Hey Guys, I received my 7Th treatment yesterday, low counts and all!! My Onc offered to give me a blood transfusion and I passed!!!! hahaha I have to get another Muga scan next week to rule out that there is anything wrong with my ticker. My Onc looks at me like I got lobsters crawling out of my ears, when I tell her about…
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Hair
With everyone starting so close together I lose track of everyone and where they are...but many of you should be getting close to the dreaded day. Does your hair hurt yet? That's the best way I can describe the beginnings of it. Just very tender at the roots. Just know that it won't be a good day, but my heart is with all…
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EYE PROBLEMS
I HAVE NOTICED A LOT OF PEOPLE TALK ABOUT EYE PROBLEMS WITH TREATMENT AND AFTER TREATMENT. W HAT KIND OF EYE PROBLEMS ARE WE TALKING ABOUT? I DON'T HAVE ANY EYE PROBLEMS BUT WOULD LIKE TO KNOW WHAT TO LOOK FOR. THANKS
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Chemo today hopefully!
I have my seventh treatment this morning , hopefully they will be able to give it to me, I have been feeling so bad the past few days, I know its my red counts, I have the shortness of breath, and that dull pain in my chest. I really don't want that Procrit because of my history of head and neck cancer. This last month is…
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Feeling stronger
Hi All, I am feeling so much better. I am sure it's because of all your warm and positive wishes, what a huge difference a day makes. I even went to my physical therapy this afternoon, almost didn't but am glad that I did. I have a wonderful P.T. who really understands me and is able to work with me at my level of energy.…
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Hey Liz
Hi Liz, I want to send you positive wishes for tomorrow. I don't know if you'll read this before your chemo, so I'm sending it tonight. I'll be thinking of you and hoping that all goes smoothly and quickly. Also, Happy Happy Birthday To You. Not the best way to spend a birthday, but it gets you one step closer to remission…
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Good Dr. visit.
Hi all, My blood counts were good and my cancer doctor is very pleased with how well I'm doing since round 1 last Tuesday. My count was 7.2. She said 4 is considered low. I asked about the shot and she said she wouldn't give that to me unless my counts got down to 2 or lower.Next labs will be on the 17th. The only tumor…
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Prednisone ?
In the morning I won't be taking the prednisone. I've been taking 60mg a day since Tuesday when I had my first round of chemo. Tonight I've been reading "everything" I can find on abrupt discontinuation of prednisone and I'm not liking what I see. It's 12:26 here on the West Coast so maybe by the time I get up in the…
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I'm almost Done :)
Sooo, my most recent PET scan showed me to be cancer FREE!! HAHAHAHA God is So Good! All I have to do is some radiation to make sure because I still have a tumor the size and shape of a small banana... no I didnt swallow one whole,LOL! I just want to say thanks to all for the support. You all are in my thoughts and prayers…
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So far so good...
Hi guys, Wow...fell asleep about 2:00 a.m. last night and slept straight through until 10:30 this morning. The major portion of my body aches have gone away and I'm feeling pretty good. Moving slow, but not overly exhausted or tired. I'm 100% back to normal with my bathroom business(yes!).. appetite is fairly good, and…
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My journey....starting with a swollen right groin lymph node.
I ghosted these boards for a bit and see there are alot of caring and experienced survivors here. Even though I feel like I'm getting ahead of myself I decided to post now. About a month ago I noticed a "bump" in the area of my right groin. I wear alot of equipment at work so thought it was possibly a hernia. It seemed to…
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Wiped out
Hi All, Well. I just woke up after sleeping all afternoon. Woke up late this am and then spend my day sleeping. Cannot be good. How do you all cope with the extreme fatigue. I don't feel sleepy, but as soon as I lie down, I'm gone. Still running low grade fevers in the evenings. I think that plays into it also. I hope all…
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CT's vs MRI's, etc.
A friend was diagnosed with NHL in Feb of '09. She has had tumors show up in brain, lungs, and near her heart. Chemo has apparently removed all known tumors at the present time. Her onco wants to discontinue treatment, but of course she is worried. My question is.... what tests should she be asking for on a continuing…
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3 Cancer Books - 2 on NHL
Hi - read 3 wonderful books this week I highly recommend. Newest, hot off the press by Merril Hoge, FIND A WAY, about his experiences with CHOP to battle NHL. Mostly about his years playing NFL football and how to remain positive. Second book, CANCER ON $5 A DAY, CHEMO NOT INCLUDED, by a Comedy Central comedian, Robert…
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more news
Hi All, Well, the Dr said I should do more watch and wait. But only for a few weeks. I feel like that is all I have beed doing already. I have had so many scans and blood work etc. and I am so tired and very frustrated with the whole thing. I don't know what to do at this point. I think what they are really trying to do is…
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Brand New Here
I am brand new to this group. I just found you by accident or on purpose, hard to know. Something compelled me to check side effects of Rituxin. I am in my third relapse of B-cell, non-hodgkins lymphoma, indulent kind...if one wants to believe that it is indulent. I think it has taken over my life pretty fast. Nonetheless,…
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Sue
Just wondering how you're feeling. Hopefully the bus hasn't hit too hard :)
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Anyone with siblings who were also diagnosed?
Hi All, I'm normally on the breast cancer boards because I was diagnosed a year ago. However, a vey good friend was diagnosed with stage 4 lymphoma at the same time I was diagnosed with breast cancer. I just found out that his sister was just diagnosed with stage 4 lymphoma. He is worried about his other siblings and his…
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Good News!
Got the news we were looking for!!!! The treatment is working, only one spot left, it's on the Pelvic bone, kinda sucks that it might not go away, because it's in the bone marrow, but hey..... what do I want!!! LOL Will be doing maintenance Chemo for two years, after this course of treatment......... But all and all GREAT…
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COBRA 666
In case you are wondering where I got the name I use of cobra666 it was sort of an accident. I was trying to use cobra 66 for the 1966 cobra car I have. It rejected it so I added another 6. Sounds a liitle sadonic I know. The little ones in the picture are my grandkids and of course my wife. The little girl is such a china…
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lack of support
my husband is getting treated with r chop for his lymphoma. i am getting annoyed with the lack of support from family and friends, any suggestions?
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I'm not a doctor!
I called the Imaging place to pick up result's, I always do, crazy I know, but I feel I have some control reading the result's. I don't know if it's good or bad news as of yet, there is still activity in my pelvic region, the Ilium bone to be exact. I feel the good news is that it seems to be the only area left. I have two…
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First chemo done!
Hi guys, Well...I survived...ha! It took 7 hours and only one set back with the rituxan. My throat got all scratchy and felt like I couldn't swallow, so they stopped the infusion and gave me something to counter-act and half an hour later we started the fusion back up. I slept most of the day which was fine with me. The…
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First Oncologist appointment in 6 month.
Hello Everyone: Tomorrow is my first Oncology appointment in six month after having the Zevalin Treatment in December. Did have a cat scan in March. But had to see the nurse practioner. Since my dr was out of town. But cat scan was good. I am having some questions for him. I need to know about the muscle aches and hip pain…
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Just diagnosed at 58
Hi everyone, I found a lump in my upper thigh/groin area and waited a few weeks to check it out. Never thought it would be cancer, but I had been losing some weight so checked it out. First I had an MRI of the pelvis and groin and it just showed an enlarged lymph node. So the whole lymph node was removed. Next day was told…