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Travel fears
Hi All, Just wanted to ask any of you about travel. I booked our flights to Florida, and now I am getting worried. I've been trying to save what little energy I have. The though of flying cross country with all my fatigue concerns me. But, I didn't have a lot of choice. Now seemed the best time to visit mom in law. We will…
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Good News
Hi Y'All, Vinny, good to hear that you got through your last one. Of course I know there are still a lot of issues, but I hope you are enjoying the evening and not worrying about things you can't control. Still praying your way. Sue, even with your head hurting, you got through number 2. Congratulations. We had good news…
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Done!!!!!
Hi guy's thanks for all the responses, My blood work is such a problem, especially the RBC, my Onc wanted to send me to the hospital for a transfusion, but the more we discussed it, we decide against it, on the fact that if I have do stem cell, it's not a good idea. I may do the Procrit shot, the more I talked about it…
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Are you scared
Hi All, Hope your week is starting off well. I am having a really hard time with the fatigue. Today, going up the stairs was close to impossible. I was so short of breath. I had to stop many times. It hurt to breathe. I know that some of you have trouble with anemia and or major fatigue. Do you get scared by this. I keep…
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Longevity
Hi How long can you live with slow growin non hodgkin's lymphoma? Must you die from it? I try not to take into account the statistics but does anyone know? Richard
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Tuesday morning warriors
Hi Sue and anyone else going for treatment today, I just want you to know that I am sending positive energy your way. You will be in my thoughts and prayers. before you know it, you will be on your way back home. Stay strong. Peace and healing to you.. Lisha
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Neulasta (pegfilgrastim)
I completed 3 cycles of RCHOP - at the finish of the first tx I was given an injection of 6 mg of Neulasta as a preventative to nertropenia. My side effects were horrible - lots of bone pain, joint and body aches, head ache, jaw pain, gum pain, teeth pain ear aches etc. The next two cycles we cut the dose to 3 mg to see if…
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Vinny
How are things going for you today? John
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Who here has gone through the stem cell transplant?
So I went to my first rescan 3 months after remission and had already relapsed. I did a treatment of ICE, but it didn't work and I had some crazy reactions to it. Now I'm doing ESHAP and holy cow. I'm curious who has gone through the stem cell transplant. What's it like? I'm terrified it get's even worse than ESHAP =,( I…
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8th Treatment
On way in about a hour to my last Chemo session...... where did the time go!!!!! They won't do another P.E.T. Scan for a few more weeks, that's when the real fun begins! LOL Talk to all soon God Bless Vinny
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Today
Today is going to be a good day for all of us. Treatments today are going to fly by. I go see my surgeon today and hopefully get good news, we'll see. Hang in there guys, we're gonna make it (throwing a hat in the air) LOL Take care everyone Beth
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Well
The appointment went well today I suppose. I do have to have a colonoscopy :( which is what I was afraid of. I SO did NOT enjoy the first one I had a few years ago. He doesn't believe it's anything serious. He thinks it's just irritable bowel. I told him I've had irritable bowel for years and never had this type of pain,…
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Anyone in the NYC area Conference Sept 20
Hi, Just wondering if anyone is living in the NYC area. If so, there is a conference on Sept 20 at the Weill Greenberg Center at 6:30 PM. If you will be attending, please email me. Perhaps we can meet up. Dr. John P. Leonard will be the moderator. Also, I was thinking of switching to one of the doctors that will be…
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Hair regrowth
I know I have seen it on here several times and the answers vary from person to person, but how long did it take for you to notice your hair starting to regrow? I am going for my hopefully last treatment next week (#6) and so far I have not noticed anything regrowing at all. As a matter of fact it is still thinning. I saw…
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LYMPHOMA WORKSHOP -OCT. 16, 2010 - BLOOMINGTON, MN
Hi, For those of you living in or near the Twin Cities, there is a Lyphoma Workshop here on October 16. My husband and I attended last year and it was fantastic. They have breakout sessions for the different kinds of lymphoma. Last year there were two doctors from Mayo, one from the U of M, one from U of W. Those are the…
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How do you count remission?
Hope every one is doing well this evening. I'm wondering if anyone knows when you start counting the time you start remission? I was in remission after my second cycle of RCHOP in December 2009. However I believe doctors count from when you finish treatment, which for me would be February of this year. So at what month…
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Well?
Sue, did you catch that salmon? How you feeling? Vinnie, How's the last one going for you? You doing ok? John, Are you ok or just wiped out? Doesn't seem like you've been up much lately. Liz, You hanging in there? Forme, Still thinking about you! Cookingirl, Are you finished yet? You doing ok? Catwink, You ok lady? Haven't…
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Overwhelming fears
I know I said I have to go see my surgeon again. At first I was laughing at least it's not cancer related, but now the thought creeps in...what if it is? I've let this problem go for 3 years since it's just off an on. Alot can happen in 3 years. What if there is a blockage? The &*(*^*& fear is taking over today and…
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Hair growth ????
Hi I finished my sixth chemo last week and my hair started to grow back. Peach fuzz. I am suppose to get eight chemos. Has anyone experienced this? Does that mean the chemo is not working? Richsterr
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CARDBOARD FINGERNAILS
Anybody have their fingernails turn to cardboard while on chemo? I am waiting for my skin to turn to wood so I can change my name to Howdy Doody!!!!!!
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Follow - Up Chest X-Rays
Quick backround: I was treated for Hodgkin's in 1982 (Radiationa and Chemo). Quad by-pass in 2002. At my annual Oncology check-up today, the doctor suggested decreasing the frequency of my chest x-ray from annually to every other year, because less radiation is always a good thing. When I said, " but isn't the downside…
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Yet another trip to my surgeon
Well, looks like I am going to be heading to my surgeon again. He's going to determine what tests to do, colonoscopy or scan. Damn.
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C T scan
Had my CT today. 6 treatments down, and now I see if I need 2 more. I should know on monday or tuesday. Wish me luck!
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lost for word's...and for me that's bad!!!!! lol
Hi everyone, I'm feeling quite numb right now. I had my weekly visit after Chemo, my counts are so lowwwwwww, no surprise. My Onc and I starting talking, I asked her that just because next Wednesday is my last treatment, what happens if the cancer is still there? She tell's me that she is sending me to a specialist at the…
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Good news and not so good news
Hi, Friends Got word that my WBC became normal - so that is good news and that means I don't need the shots but the onc said I need to get the shots for 5 days before each chemo date. Huh! I am hoping that I get a break the week after chemo so that I can work 1 to 2 days (meaning right before chemo day). So how can I be…
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Hoshimoto's Thyroiditis Prior to NHL
I recently read that there is a correlation between Hoshimoto's Thyroiditis and NHL. I was diagnosed with Hoshimoto's in 1980. It is an autoimmune disease of the thyroid gland. Just curious to know, if anyone else has heard of this or has a history similar to this. Thanks, Kellie
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I need to vent
Hi All, Please forgive me, but I need to vent a little. Today has been a very hard day. After getting off the phone with my mom in law, my husband comes to get me. He has just come home from driving our grandson to the skate park. He tells me to come look at the car, our BRAND NEW car. As he was driving out, a kid on a…
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How's it going John?
Hi John, Just checking in to see how round 5 went for you. I can hardly believe you are nearing the end of your treatments. It just shows how fast time "really" goes by, which makes me stop and remember that my time will move equally as fast. The waiting between rounds is hard, as all I want is to get this all behind…
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Sad news today
Hi All, I thought I would reach out to you all. I just heard that my mother in law has a recurance of her melanoma. She has tried everything from surgery to chemo and rads. The Dr said there is a trial at Moffit hosp in Tampa that she could try. She is thinking about that. She is also thinking about doing nothing. Very sad…
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Good news!
Sorry I've been MIA. I was on vacation and then jumped right back into school. My PET scan came back clean as a whistle. Officially one year cancer free!