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Anyone in the NYC area Conference Sept 20
Hi, Just wondering if anyone is living in the NYC area. If so, there is a conference on Sept 20 at the Weill Greenberg Center at 6:30 PM. If you will be attending, please email me. Perhaps we can meet up. Dr. John P. Leonard will be the moderator. Also, I was thinking of switching to one of the doctors that will be…
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Hair regrowth
I know I have seen it on here several times and the answers vary from person to person, but how long did it take for you to notice your hair starting to regrow? I am going for my hopefully last treatment next week (#6) and so far I have not noticed anything regrowing at all. As a matter of fact it is still thinning. I saw…
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LYMPHOMA WORKSHOP -OCT. 16, 2010 - BLOOMINGTON, MN
Hi, For those of you living in or near the Twin Cities, there is a Lyphoma Workshop here on October 16. My husband and I attended last year and it was fantastic. They have breakout sessions for the different kinds of lymphoma. Last year there were two doctors from Mayo, one from the U of M, one from U of W. Those are the…
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How do you count remission?
Hope every one is doing well this evening. I'm wondering if anyone knows when you start counting the time you start remission? I was in remission after my second cycle of RCHOP in December 2009. However I believe doctors count from when you finish treatment, which for me would be February of this year. So at what month…
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Well?
Sue, did you catch that salmon? How you feeling? Vinnie, How's the last one going for you? You doing ok? John, Are you ok or just wiped out? Doesn't seem like you've been up much lately. Liz, You hanging in there? Forme, Still thinking about you! Cookingirl, Are you finished yet? You doing ok? Catwink, You ok lady? Haven't…
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Overwhelming fears
I know I said I have to go see my surgeon again. At first I was laughing at least it's not cancer related, but now the thought creeps in...what if it is? I've let this problem go for 3 years since it's just off an on. Alot can happen in 3 years. What if there is a blockage? The &*(*^*& fear is taking over today and…
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Hair growth ????
Hi I finished my sixth chemo last week and my hair started to grow back. Peach fuzz. I am suppose to get eight chemos. Has anyone experienced this? Does that mean the chemo is not working? Richsterr
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CARDBOARD FINGERNAILS
Anybody have their fingernails turn to cardboard while on chemo? I am waiting for my skin to turn to wood so I can change my name to Howdy Doody!!!!!!
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Follow - Up Chest X-Rays
Quick backround: I was treated for Hodgkin's in 1982 (Radiationa and Chemo). Quad by-pass in 2002. At my annual Oncology check-up today, the doctor suggested decreasing the frequency of my chest x-ray from annually to every other year, because less radiation is always a good thing. When I said, " but isn't the downside…
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Yet another trip to my surgeon
Well, looks like I am going to be heading to my surgeon again. He's going to determine what tests to do, colonoscopy or scan. Damn.
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C T scan
Had my CT today. 6 treatments down, and now I see if I need 2 more. I should know on monday or tuesday. Wish me luck!
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lost for word's...and for me that's bad!!!!! lol
Hi everyone, I'm feeling quite numb right now. I had my weekly visit after Chemo, my counts are so lowwwwwww, no surprise. My Onc and I starting talking, I asked her that just because next Wednesday is my last treatment, what happens if the cancer is still there? She tell's me that she is sending me to a specialist at the…
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Good news and not so good news
Hi, Friends Got word that my WBC became normal - so that is good news and that means I don't need the shots but the onc said I need to get the shots for 5 days before each chemo date. Huh! I am hoping that I get a break the week after chemo so that I can work 1 to 2 days (meaning right before chemo day). So how can I be…
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Hoshimoto's Thyroiditis Prior to NHL
I recently read that there is a correlation between Hoshimoto's Thyroiditis and NHL. I was diagnosed with Hoshimoto's in 1980. It is an autoimmune disease of the thyroid gland. Just curious to know, if anyone else has heard of this or has a history similar to this. Thanks, Kellie
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I need to vent
Hi All, Please forgive me, but I need to vent a little. Today has been a very hard day. After getting off the phone with my mom in law, my husband comes to get me. He has just come home from driving our grandson to the skate park. He tells me to come look at the car, our BRAND NEW car. As he was driving out, a kid on a…
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How's it going John?
Hi John, Just checking in to see how round 5 went for you. I can hardly believe you are nearing the end of your treatments. It just shows how fast time "really" goes by, which makes me stop and remember that my time will move equally as fast. The waiting between rounds is hard, as all I want is to get this all behind…
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Sad news today
Hi All, I thought I would reach out to you all. I just heard that my mother in law has a recurance of her melanoma. She has tried everything from surgery to chemo and rads. The Dr said there is a trial at Moffit hosp in Tampa that she could try. She is thinking about that. She is also thinking about doing nothing. Very sad…
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Good news!
Sorry I've been MIA. I was on vacation and then jumped right back into school. My PET scan came back clean as a whistle. Officially one year cancer free!
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Rituxan maintenance therapy
I am wondering if anyone has experienced side effects from Rituxan causing skin rashes and itching. I have been on Rituxan maintenance therapy for approximately eleven years now and my onconogist has now held off on additional treatments. I am trying to identify what is causing my itching and skin rashes. Possibly it is…
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non hodgkin's indolent lymphoma
Does anybody know of any persons who have lived for twenty years or more with non hodgkin's indolent or folliular lymphom? The statistic say only 7 ro 10 years. Is that so? I would appreciate any help on this matter. Richard
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follicular lymphoma
i am going for a second opinion soon and just wondering how many of you have done so. did you opt for the second opinion? my doctor has done nothing and i am in the watch and wait phase but not confortable with this. my regular doctor thinks my lymph gland is large and is now starting in 2 more glands. i am getting very…
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Roller coaster ride
Hi All, Do you ever feel like your on a roller coaster ride that won't stop. Just when you think the ride is slowing down , it starts to pick up speed again , next thing you know your are at the top looking down, then wham down you go again. That's been me the last couple of weeks. How do you keep it together. I know some…
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zevalin .... in our future
My husband has completed his chemo (Rchop) and will be starting Zevalin and Rituxan in a few weeks. We meet with the radiologist tomorrow to discuss the zevalin regiment. WE know very little about this drug. Does anyone have advice or suggestion of a list of questions we should ask the DR. My husband was diagnosed in Feb,…
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Uninsured
My boyfriend does not have health insurance. We live in NY and I was wondering if anyone has ANY resources, links etc to can use to help him with the bills. Its overwhelming.
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Chronic Pain after Treatment
Hi! I need some major encouragement these days! Prior to being diagnosed 01/2009, they sent me everywhere to figure out what was wrong! At one point they said it was Fibromyalgia. Then after being diagnosed my oncologist said that the HL was the problem. I was so thrilled to be diagnosed after over a year of being told…
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In the Announcements...on my calendar for Update on Lymphoma
Event (e.g.conference, teleconference, fundraiser, etc.) Free CancerCare Telephone Workshop: Update on Lymphoma Treatment from the 2010 American Society of Hematology Annual Meeting December 15, 2010 01:30 pm All CancerCare workshops take place over the telephone or you can listen via live streaming online.…
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base of tongue preliminary biopsy results showed lymphoma
DOES ANYONE HAVE ANY EXPERIENCE WITH THIS LOCATION OF LYMPHOMA? wHAT IS THE TREATMENT? WHAT IS THE PROGNOSIS? I KNOW WILL FIND OUT WITH THE FINAL RESULTSBUT I'M JUST TO CURIOUS TO WAIT. WE WERE EXPECTING SQUAMOUS CELL CA. THANKS IN ADVANCE TBOB
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Small Lymphacytic lymphoma
My husband was diagnosed with SLL a month ago. He has swollen nodes in his right groin, nodules in his lungs,lost about 35 lbs. in the last year, high WBC count, and is fatigued. He is on his 3rd week of rutuxin. He had an allergic reaction to the first dose and now is more fatigued, has joint pain, and abdominal pain and…
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Do I cry or do I laugh
Hi All, Well , here I am ready to explode. I don't know if I should cry or laugh or just go crazy.. Dr told me that on the most recent ct and pet/ct they found a mass on my ovary. can you believe this s**t. I mean , really when is enough enough. I though that I had more then I could handle but I guess that is not the case.…
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Vocal changes
Hi All, I have another question - of no particular importance, just curious. Anyone have any changes in your voice after you started chemo? I used to be a respectable baritone/tenor and then stopped singing for many years. Came back as a bass. Last night was my first time singing since chemo, now I'm suddenly a higher…