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Like the Cookbook Idea!
Hi - Liz, Leslie, Vinny, Sue and anyone else you enjoys cooking - love the Lymphoma cookbook idea! The reason my name here is Cookingirl is because I published my cookbook, Fran's Favorites, 5 years ago. I've cooked all my life, had 350 recipes too good not to share with family and friends, and it turned out to be a…
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new to this 29-08-10
hi guys my name is jason and im 39 yr old solo dad with a 13yr old daughter who live in new zealand.8 weeks ago i was diagnosed with follicular lymphoma and its ben pretty full on since then had every test under the sun.I started r-chop on the 8-9-10(wont 4get that date got hit by a big aftershock jus b4 bein hooked up)it…
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Disappointment
Yesterday would have been my mothers 8th R-CHOP treatment however she had a cold and the Dr. wants to wait another week. She did not even get blood drawn. I understand it is for the best but mom has had so many disappointments and prolonging the treatment is just another downer. For me I drive home 6 hours for treatment…
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Trip part 2
Hi All, Well we are getting ready to leave Tampa tomorrow afternoon. Heading down to Key West for the weekend. We leave KW on Monday night to head home to Calif. Spending my birthday there, but really wish I could be home with my family. Oh well... The visit in Tampa went well, except for the bad news part. It was so…
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Has anyone used Radioimmunotherapy (RIT) for NHL?
Found today I didn't get remission with CVP+R and headed to Moffitt Cancer Center in Tampa next week to talk about options. One thing mentioned by my Oncologist was RIT - Radioimmunotherapy drugs. Attacks only the cancer cells, given by IV for one week daily and good chance of remission if you find the right one. New to us…
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fever
Still fighting this fever!!! It's been three days now, 101.6 last night! Been taking Tylenol, breaks it, then it goes back up, going to call my doc, On way to the University of Penn for that Stem Cell consult, this should be fun......... Take care Vinny
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new at this 2nd r-chop
Hi guys thanks for all the positive comments and advice it takes me a while to reply cause i dont have access to a computer very often.My 2nd round went ok except a reaction to the rituxin that made me feel like i had a bad case of hayfever uncontrollable sneezing.They rang the oncologist and they gave me a couple of jabs…
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i have a lg, tonsil .
dr thinks i may have lymmphoma .do i need to be under general aniastia to do a biospy. should he do other test first.
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I'm back
Hi all, Oh man...I didn't take my new laptop with me and boy was that a mistake! I can't believe all the posting for only being gone 3 days! Yikes...I read all of them, but won't even try to catch up...Ok? I kept all of you in my prayers and kept good positive thoughts. Your going to think I'm nuts, but... I left my new…
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Moffitt Hospital ....WOW
Hi All, Well we had a long day at Moffitt. But I do need to say what a warm and caring place Moffitt Hospital is. I was very impressed. The news for my mom in law is not so good. They stopped the chemo, since it is not working. They have offered her a trial to start at the end of the month. She is thinking about it. Not…
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Fran...PET scan results?
Hi Fran, I had a note reminding me that you go for your PET scan today. What were the results? I've got my fingers and toes crossed that you climbed passed the 40% mark and all is looking good for you. Will check back later to hear what the "GOOD" news is! Positive thoughts always....Love...Sue
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How's our Vinny doing today?
Hi Vinny, I just got done cleaning everything up from our fish fry and thought.."Whew"..I'm exhausted...and then I thought of you for the 3rd time today....first time was this morning when I woke up feeling tired and remembered it was fish fry party day, so had to push through the tired feeling...second time was when hubby…
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Vinny and Sue??
Where are you guys?? Hope all is well. Kind of worried. Mary
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Colonoscopy
Well, the day is here and I check in at 8:00, test at 9:00. Lord how much I hate this test. I really want my coffee! Wish me luck everyone. Beth
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An open letter to cancer doctors
Have been writing the "Reader's Digest" version of my book for our local news and today wrote an open letter to cancer doctors everywhere. My inbox has been slammed with messages saying, effectively, that every doctor should have a laminated copy, and many have emailed to their doctors. Here's the link if you want to read…
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In surgery
My aunt is in surgery...still. Probably got another 2 hours. I hate cancer and what it takes away from us.
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Cookingirl
Anybody heard how her PET scan came out? As for the cookbook I have a couple recipes I could share.
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checking in
Hi All, Just wanted to check in and say hi from Florida. I'm feeling pretty tired right now, but okay. Yesterday was busy with family from Fl. This morn. I am taking it easy, still in my pjs. LOL. We will meet up with Fam in the afternoon. My mom in law is in good spirits and looks okay too. We will be at the hosp all day…
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Pacemaker - long term effects - ED due to pacemaker and or heart pills
The Hodgkins was cured a while ago, but the long term effects left my heart in trouble - it actually stopped. A pacemaker was added to bring back my electric pulses - all ok - but also came a few daily heart pills: Beta Blockers, etc - these were not actually directed to the electric problem. Now there is ED. Life with ED…
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Rogaine?
Has anyone (especially the girls out there) tried Rogaine for post-chemo hair regrowth? I've read that it can be effective if used during and after chemo to regrow hair more quickly. I don't see anything about use during chemo on the company's website, and I'll ask my doctor about safety. Just wanted to see if anyone else…
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Happy Birthday Sue
Happy Birthday Sue. I just wanted to be the first one to wish you a very happy day. What a special birthday. I hope you and your family have a wonderful celebration. May the year bring you positive healing and many many happy days ahead.. All the best to you today and always. Libra power.... Happy Birthday. Love, Lisha
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Hey Sue
Didn't want to say anything on your birthday, but have you noticed your hair starting to wave.......bye bye yet? I think it was right after my 2nd treatment I thought I was shedding. Still got a lot of it but it is so thin. The nurse asked me the same thing after my 2nd treatment. Told her it was getting thinner. She said…
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Dating after Hodgkin's
I finished my treatment in September for Stage 2 Hodgkins. I recently started dating again and I was hoping someone could give me some advise or share some experiences. I am not sure how and when to tell the person.
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Never a dull moment
Well guys, I just got back from my Onc. office with lousy news, I have no WBC's, do you believe it,the girl at first thought it was the machine, she ran it three time's, and they came back goose eggs, now my Doc is concerned that my bone marrow shut down, I have to go back and get another two shot's tomorrow and hope for…
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Ready to go
Hi All, I am ready to go. My luggage is packed. My nerves are kicking in. I will be thinking of all of you and try to stop in now and again. Long flight tomorrow. Have a wonderful weekend everyone... Peaceful healing always, Lisha
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Good Morning Vinny!
I think you and I are among the very early risers. How are you doing this morning? Mary
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Dealing with MORE bumps along the road
This week - am experiencing many physical effects and taking different medications that helped mostly. But coping with headaches remains to be a question: I had what is called the beginning stage of migraines so I was given Topomax by my neurologist. I am wary of its side effects (weight loss, some memory loss, tingling in…
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long day
Hey everyone, got back from my Onc. she was so busy, full waiting room of people coughing, just what I needed! LOL..... Hour goes by and I finally get in, no real change in my counts although I did have readings of something!!! YAHOO...... 0.5 on my WBC and are you ready drum roll please..... 0.1 my Gran, all joking aside,…
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Slow Grade Lymphomas Time Lines/longevity
We are all made up by different DNA. There is no definite answer to how long we have to live. Thats why the doctors do not know. There is several questions to be answered. Will we change out diet or intake? How would we react to different meds? Is are body healthy enough for a fight? Or mentally stong minded? Theres so…
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Very sad news
Hi all, I just got home from a walk. As I went past my neighbor and friends home, she popped out to say hello. She said that her husband is in hospice right now. They were at the house and she introduced us to them and all the family from out of town. Her husband has esophageal cancer. It's so sad, he was such a leader in…