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Back from dinner !!!
Hi All, I just returned from my birthday dinner and had to tell you about it. OH MY , what an amazing place. I have never experienced anything like it. It was so beautiful and the food was the best. I wanted to finish every bite, of course I didn't, but I tried to. We sat outside over looking the gulf of mexico and watched…
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Oh so tired
Hi All, Just checking in to say hello. I am feeling so tired. I think the combination of traveling to different cities and the very warm weather is getting to me. We will be back in Calif just before midnight tomorrow. Only have to take two flights. One from the keys to Miami and one from Miami to San Francisco. Hopefully…
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Anniversary
Hi all, Just wanted to share that yesterday 10/07 was the 18th anniversary of my first breast cancer diagnosis. I said something to my husband about it being my anniv. and he said, "how do you ever remember these dates". Guess it has to happen to you personally to remember it for so long. It is getting more difficult with…
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Stage IV Hodgkin's
I have just been diagnosed with stage IV Hodgkin's disease (classical type). I have started my ABVD chemo treatments (1 so far out of 12). The PET scan report shows that it is present in: -cervical nodes (posterior, anterior), periclavicular, mediastinal, paratracheal, sub carinal, and axillary nodes. -retroperitoneal…
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Im wondering
Im wondering if anyone has had kids after having treatment for HL with just chemo and how long did you have to wait before trying? Im only 26 and have two great kids but would one or two more babies. I cant help it I love babies. Thanks,Jackie
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CT Tomorrow
Ok, Nervous Nellie here. After Friday evenings appointment and Muscle Testing I can't help it. My mind won't stop the downhill slide. Just the mention of possible Liver and Gall Bladder problems has my mind racing. Since I am still having some pain, I went to my family doc today. He's sending me for a CT scan of my abdomen…
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Hello to all
Just a quick post to say I am wishing all of you the very best and trying to keep up with everyone's journeys. I am in the middle of a long stretch of working and haven't had much time to post but thoughts and prayers are with you. Mary (FNHL-1-4A-8/08)..For you Miss Maggie.
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Posting DX
Thank you, and thank you. I can't tell you how much I appreciate this info. It will be so much clearer to me now. Also, any new patients visiting our site. God Bless Maggie
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Including info on 1st line
Hello All, I want to offer a suggestion when posting on this site. Perhaps the first line in the body of the post, should include your origianl DX, and date of DX. It might be easier for some to see the different treatments available, side effects, etc. to their specific illness. No matter what post I read, I carefully…
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New labs
Hi guys, I got my labs done yesterday and the WBC's were a little low..3.8..(RBC"S stayed the same) but the counts that dropped the most were...Neutrophil% Auto (Sept 17th) they were 31.5 which was low, but yesterdays lab report showed it had dropped to 22.6. The other low count was with the ABS Neutro Auto (Sept 17th)…
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what a day
I wish I could say I'm feeling better, been fighting this fever now for a week now. I refused to go into the hospital, I feel there is more germs there! LOL!I had to get blood cultures yesterday to rule out infection other then viral, it was interesting because they draw blood from both arms. Here I'm sweating like a pig…
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Anybodyb heard from Natalie ?? and CATWINK???
I was wondering how both of you are How you are well. Joanie
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Like the Cookbook Idea!
Hi - Liz, Leslie, Vinny, Sue and anyone else you enjoys cooking - love the Lymphoma cookbook idea! The reason my name here is Cookingirl is because I published my cookbook, Fran's Favorites, 5 years ago. I've cooked all my life, had 350 recipes too good not to share with family and friends, and it turned out to be a…
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new to this 29-08-10
hi guys my name is jason and im 39 yr old solo dad with a 13yr old daughter who live in new zealand.8 weeks ago i was diagnosed with follicular lymphoma and its ben pretty full on since then had every test under the sun.I started r-chop on the 8-9-10(wont 4get that date got hit by a big aftershock jus b4 bein hooked up)it…
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Disappointment
Yesterday would have been my mothers 8th R-CHOP treatment however she had a cold and the Dr. wants to wait another week. She did not even get blood drawn. I understand it is for the best but mom has had so many disappointments and prolonging the treatment is just another downer. For me I drive home 6 hours for treatment…
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Trip part 2
Hi All, Well we are getting ready to leave Tampa tomorrow afternoon. Heading down to Key West for the weekend. We leave KW on Monday night to head home to Calif. Spending my birthday there, but really wish I could be home with my family. Oh well... The visit in Tampa went well, except for the bad news part. It was so…
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Has anyone used Radioimmunotherapy (RIT) for NHL?
Found today I didn't get remission with CVP+R and headed to Moffitt Cancer Center in Tampa next week to talk about options. One thing mentioned by my Oncologist was RIT - Radioimmunotherapy drugs. Attacks only the cancer cells, given by IV for one week daily and good chance of remission if you find the right one. New to us…
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fever
Still fighting this fever!!! It's been three days now, 101.6 last night! Been taking Tylenol, breaks it, then it goes back up, going to call my doc, On way to the University of Penn for that Stem Cell consult, this should be fun......... Take care Vinny
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new at this 2nd r-chop
Hi guys thanks for all the positive comments and advice it takes me a while to reply cause i dont have access to a computer very often.My 2nd round went ok except a reaction to the rituxin that made me feel like i had a bad case of hayfever uncontrollable sneezing.They rang the oncologist and they gave me a couple of jabs…
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i have a lg, tonsil .
dr thinks i may have lymmphoma .do i need to be under general aniastia to do a biospy. should he do other test first.
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I'm back
Hi all, Oh man...I didn't take my new laptop with me and boy was that a mistake! I can't believe all the posting for only being gone 3 days! Yikes...I read all of them, but won't even try to catch up...Ok? I kept all of you in my prayers and kept good positive thoughts. Your going to think I'm nuts, but... I left my new…
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Moffitt Hospital ....WOW
Hi All, Well we had a long day at Moffitt. But I do need to say what a warm and caring place Moffitt Hospital is. I was very impressed. The news for my mom in law is not so good. They stopped the chemo, since it is not working. They have offered her a trial to start at the end of the month. She is thinking about it. Not…
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Fran...PET scan results?
Hi Fran, I had a note reminding me that you go for your PET scan today. What were the results? I've got my fingers and toes crossed that you climbed passed the 40% mark and all is looking good for you. Will check back later to hear what the "GOOD" news is! Positive thoughts always....Love...Sue
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How's our Vinny doing today?
Hi Vinny, I just got done cleaning everything up from our fish fry and thought.."Whew"..I'm exhausted...and then I thought of you for the 3rd time today....first time was this morning when I woke up feeling tired and remembered it was fish fry party day, so had to push through the tired feeling...second time was when hubby…
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Vinny and Sue??
Where are you guys?? Hope all is well. Kind of worried. Mary
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Colonoscopy
Well, the day is here and I check in at 8:00, test at 9:00. Lord how much I hate this test. I really want my coffee! Wish me luck everyone. Beth
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An open letter to cancer doctors
Have been writing the "Reader's Digest" version of my book for our local news and today wrote an open letter to cancer doctors everywhere. My inbox has been slammed with messages saying, effectively, that every doctor should have a laminated copy, and many have emailed to their doctors. Here's the link if you want to read…
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In surgery
My aunt is in surgery...still. Probably got another 2 hours. I hate cancer and what it takes away from us.
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Cookingirl
Anybody heard how her PET scan came out? As for the cookbook I have a couple recipes I could share.
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checking in
Hi All, Just wanted to check in and say hi from Florida. I'm feeling pretty tired right now, but okay. Yesterday was busy with family from Fl. This morn. I am taking it easy, still in my pjs. LOL. We will meet up with Fam in the afternoon. My mom in law is in good spirits and looks okay too. We will be at the hosp all day…