-
Pacemaker - long term effects - ED due to pacemaker and or heart pills
The Hodgkins was cured a while ago, but the long term effects left my heart in trouble - it actually stopped. A pacemaker was added to bring back my electric pulses - all ok - but also came a few daily heart pills: Beta Blockers, etc - these were not actually directed to the electric problem. Now there is ED. Life with ED…
-
Rogaine?
Has anyone (especially the girls out there) tried Rogaine for post-chemo hair regrowth? I've read that it can be effective if used during and after chemo to regrow hair more quickly. I don't see anything about use during chemo on the company's website, and I'll ask my doctor about safety. Just wanted to see if anyone else…
-
Happy Birthday Sue
Happy Birthday Sue. I just wanted to be the first one to wish you a very happy day. What a special birthday. I hope you and your family have a wonderful celebration. May the year bring you positive healing and many many happy days ahead.. All the best to you today and always. Libra power.... Happy Birthday. Love, Lisha
-
Hey Sue
Didn't want to say anything on your birthday, but have you noticed your hair starting to wave.......bye bye yet? I think it was right after my 2nd treatment I thought I was shedding. Still got a lot of it but it is so thin. The nurse asked me the same thing after my 2nd treatment. Told her it was getting thinner. She said…
-
Dating after Hodgkin's
I finished my treatment in September for Stage 2 Hodgkins. I recently started dating again and I was hoping someone could give me some advise or share some experiences. I am not sure how and when to tell the person.
-
Never a dull moment
Well guys, I just got back from my Onc. office with lousy news, I have no WBC's, do you believe it,the girl at first thought it was the machine, she ran it three time's, and they came back goose eggs, now my Doc is concerned that my bone marrow shut down, I have to go back and get another two shot's tomorrow and hope for…
-
Ready to go
Hi All, I am ready to go. My luggage is packed. My nerves are kicking in. I will be thinking of all of you and try to stop in now and again. Long flight tomorrow. Have a wonderful weekend everyone... Peaceful healing always, Lisha
-
Good Morning Vinny!
I think you and I are among the very early risers. How are you doing this morning? Mary
-
Dealing with MORE bumps along the road
This week - am experiencing many physical effects and taking different medications that helped mostly. But coping with headaches remains to be a question: I had what is called the beginning stage of migraines so I was given Topomax by my neurologist. I am wary of its side effects (weight loss, some memory loss, tingling in…
-
long day
Hey everyone, got back from my Onc. she was so busy, full waiting room of people coughing, just what I needed! LOL..... Hour goes by and I finally get in, no real change in my counts although I did have readings of something!!! YAHOO...... 0.5 on my WBC and are you ready drum roll please..... 0.1 my Gran, all joking aside,…
-
Slow Grade Lymphomas Time Lines/longevity
We are all made up by different DNA. There is no definite answer to how long we have to live. Thats why the doctors do not know. There is several questions to be answered. Will we change out diet or intake? How would we react to different meds? Is are body healthy enough for a fight? Or mentally stong minded? Theres so…
-
Very sad news
Hi all, I just got home from a walk. As I went past my neighbor and friends home, she popped out to say hello. She said that her husband is in hospice right now. They were at the house and she introduced us to them and all the family from out of town. Her husband has esophageal cancer. It's so sad, he was such a leader in…
-
Warning this is long and sad
I am at my end, I don't know how much more I can take. Many of you know my husband had a stroke and now has had 2 brain surgeries and another to remove a pick line that went thru his heart.He is home but requires 24/7 looking after. He has the mentality of a 2 year old and I don't know if it will get better. and he can get…
-
Port flush
Hey everybody, I jumped right on the phone when I heard every month for the port flush. They said the flush schedule is not set in stone. Some places go every 4 months,some 2 months and and some every month. It did have me concerned as well when I read the responses. I got my power port booklet out and started going thru…
-
LRF Conference
Hi All, Just returned on Monday from the 3 day lymphoma conference in SF and as usual it was very informative. This years conference was about 50% smaller in attendance than two years ago but still great to be around 300 lymphoma survivors. Wanted to let all of you with fNHL know there are lots of new therapies on the…
-
New Doctor
Hi all, What a morning! Started calling the clinic at 8:00 and I'm glad to report that I now have a new doctor. Don't have a clue who he is or what he will be like, but at least I can say I "have" a doctor"...ha! Needless to say the clinic was obviously overwhelmed with patients calling in, but after 4 hours of waiting my…
-
Onc visit
On my way back from the LRF conference I had an appointment with my Hemo/Onc specialist at UCSF. He is very knowledgable about my LPD NHL and I like and respect him very much. Although my blood work appears normal my immune system is haywire. Since I finished chemo in Feb I am sick on average every 2 weeks with a…
-
wow!
Hey Guy's I may be done my treatment, but dam!!! It's been a rough last couple of day's, trying to gut it out till Wednesday when I get my shot's, I really had a hard time yesterday, could not catch my breath, intense pressure in my chest. Hopefully today will be a better day!! Vinny
-
After treatment discomfort
I've had a relatively easy time with NHL, (compared to the experiences of many on this forum). I was diagnosed with NHL, 1 node on rt side of my neck diffuse lg B cell stage 1, had 3 treatments of RCHOP & 20 rads, my last PET scan was clean & I'm very, very grateful. Now that I'm about 6 weeks out from the radiation, my…
-
Kaye...Thinking of you
Hi Kaye, Been thinking of you since you posted yesterday. I hope today is going a little bit better for you. Please remember if you need someone to talk with at "anytime" I am more than happy to give you my phone number..all you have to do is ask. In my prayers daily. Love...Sue Tom...how did your 3rd round go on Thursday?…
-
To All
Just a quick note to wish everyone well. I haven't had time lately to post to everyone but do keep up with all of you because I care and understand it all. Please hang in there and make wise decisions for yourselves. Good luck and God bless each of you. Your struggles will pay off in the end but I know it's not easy. When…
-
Traveling with all of you
Hi All, Still feel nervous about the upcoming trip. We leave on Sat morn 10/2 San Francisco to Tampa. We will be there a week then spend the weekend in Key West. We have a hotel that we are trying to sell. Anyone want to buy a hotel,restaurant, caberet on the main street in key West... We need to check that all is going…
-
Chronic cough and neuropathy and flu shots.
Hi Y'All, Just wanted to ask about a couple of symptoms. I had my 3rd infusion last Thursday. R-CHOP. Went well, only 6 hours. But I have developed a chronic chest cough that seems to get really rugged at times. Any one else have this problem? Also, a known issue is the neuropathy. Hitting really hard this time. Both feet…
-
back from Onc.
Well it was what I thought, my HGB count is at 9.4, below 10 which is Anemic, my RBCs are at 3.24, she said giving me a transfusion with just coming off Chemo and the stem cell issue would not be a good idea. My WBCs are at 2.4. The did a oxygen test which was normal, she did find out my Vitamin D counts are way to low.…
-
Nightsweats but not drenching
I still do have some nightsweats that are irritating and uncomfortable. Every night like clockwork I go read in bed and am fine. Then when I am ready to go to sleep, I get comfortable and lay my head down flat. Within about 2 minutes my head is steaming the pillow and I have to lose the covers completely for about 5 min. I…
-
I think its returned and he wont do a scan!
Agressive-Diffuse large B cell Mediastinal NHL Age 32 Female Completed 8 cycles RCHOP and 15 Radiotherapys in January 2010 Hi all, im experiencing similar symptoms, but not as bad, to when i was 1st diagnosed. I told my oncologist when i seen him in July and he said "unfortunately i will experience discomfort and problems…
-
Puzzled
I received my order for my cat scan to be done on Dec 1st. But I was at the office three weeks ago and did a port flush. They took a lot of blood. Now on my cat scan order there is an added test which is called bun creatinine. I did look it all up it has to do with my kidney's. I have a feeling they found something on my…
-
Ok Guys, have to admit
I am getting really worried. You all know I have a colonoscopy coming up, and the fear is starting to ramp up. I'm taking stool softners for the pain, and it's helping with that. BUT...the shape is ALL WRONG which is a warning sign of colon cancer and blockages. Crap. I hate worrying and at times I do pretty good, then…
-
Bad timing or what???
Hi guys, I received a letter in the mail today that said as of Sept 27th my cancer doctor will no longer be at my clinic. They are sorry for the inconvienence, and regret the emmotional distress this may cause,blah, blah,blah. What the heck??? Hubby never liked this doctor from day one and liked her even less after my BMB…
-
No MMM!! More bumps along the road
Hi, Friends, I have been thinking that I am faced with the fact that I continue to have low WBCs and my doc told me no MMM - do not go to malls, metro, and movies or crowded areas or dirty areas!! Geez, I find myself kinda isolated at home. I also am faced with a dirty house. My hands hurt too much from neuropathy and am…