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never really done
Hey guy's had my visit to Onc. today, my blood counts dropped pretty severely from the last time I was there. See told me that she is going to not give me the Neulasta shot's, to see if they go up on their own. If not, there could be a problem, she would need me to get a bone marrow biopsy of my hip. She is hoping that the…
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Still waiting
Hi All, Well I am still waiting for the phone to ring. It's a little after 4, and no docs have called me yet. I am getting ready to watch the GIANTS beat the Phillies one more time. It will be just my luck, the docs will call during the game... I'll check in with all of you a little later on. Peaceful healing... Go Giants…
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Doc visit
Hi All, Well, I have news, and not so great. I had to stop by my Dr office to pick up an rx, it was the end of his work day. Thought it was a quick in and out. Nope, he wanted to go over stuff with me and just check me out. Spleen is still very enlarged and tender to the touch. Nothing new. Then he tells me that had gone…
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Round 3 in the bag!
Hi all, Home from chemo and all went fine. Got to the clinic at 9 and was home by 4. Met my new doctor and he seems ok...I need a little more time with him than 1/2 hour to give a solid opinion yet. They cut my benedryl down from 50 mg to 25 which eliminated the restless leg, and still didn't have any adverse reactions…
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Just found out dad's diagnosis
Hi all, I am new to this, so don't know if i am doing this right. My dad was diagnosed with Non hodgkins lymphoma in Oct 1998. He started with Diffuse large B cell that was "big, bad and ugly" as the cancer dr said. He took CHOP and went into remission with it. He had a continual follicular non hodgkins...that he would…
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GOOD LUCK SUE
Sue, I am sure you are still in La-La land with you being in the west coast time zone, but its 7am here on the east coast and time to feed the chickens and slop the hogs. Thats if we had any chickens and hogs to feed and slop. Anyway good luck on that pet scan today. You been thru it before so its really no big deal. Its…
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Out of the dark
Hi All, Well, today was so much better. I didn't think it was possible, but I did bake cookies for multiple neighbors, grandkids and us. If you had asked me yesterday if I thought I could bake today, I would have said your crazy, no way!!. Of course I am totaly tired right now, but in a good way. I am trying to take the…
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Yahoo!!!!!
Hey Guys, I finally have some good news to share, my latest PET Scan came back negative! Cancer is all gone..... I will finally be on the road to true recovery soon. I need my blood cells to bounce back, but other then that this is the best news my wife and I could have recieved! I have to still go to Univ. Of Penn in…
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melt down day
Hi All, Well today was just too much. It feels like everything is crushing me from the top on down. I told my husband , well really yelled at him in tears, that it is all too much to handle. I try to be so strong and not get upset, but I just don't know how to keep up with everything. My elderly mom, my mom in law, my…
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Anger!
I was Diag with Mantel Cell Lymphomia in July I am going thru r-chop therapy, I am getting my 3rd treatment next week I though I could deal with all this but over the last few days I have become VERY ANGERY i know my wife is trying but i keep finding myself being a real A**hole. I dont know why. Normally i am very balanced…
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Round 8 finished
I don't know about the rest of you but round 1 was the worst for me. My body was blindsided for sure. 2 thru 6 ok but 7 & 8 I really dreaded. I am so wiped out with the chemo and my husband I can hardly take it. Now I have to wait 8 weeks for a pet scan. The Dr told me the chemo would be working all that time. Oh and I…
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How's your fatigue Lisha?
Hi Lisha, Well...now that you've been home for a while have you started to feel a little bit better with your energy level? You did so much while you were in Florida and had so much on your mind, that it probably took more out of you than you even realize. Today is my last day on the prednisone and I was so happy when I…
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Stem Cell Transplant
I am scheduled for a stem cell transplant in a couple of weeks if my PET scan is clear. I will be using my own stem cells. I am very scared. What should I expect? - 32 yr old mother of two little girls
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I have exciting news
I picked a booger tonite! Yesssss maybe soon snot won't be running down my face at embarassing times. That my friends means there is hair growing in my nose. Who woulda know picking a booger would be exciting news???? Awwwww its the small things in life! Sure hope my armpit hairs don't grow back.
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How many with enlarged lymph nodes?
Hi, I was just wondering if anyone had any idea as to how many people with lymphoma, whether Hodgkins or Non-Hodgkins, have enlarged lymph nodes? It seems like most do, but I was wondering if anyone had a general percentage? Thanks so much!!! Also, what does the itching feel like? The doctor said I have all the signs of…
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Anger is a good thing!
Can anyone relate to this message? I am 23 years old and just finished my 12 ABVD treatments and will start radiation. I have an excellent job and make good money. I still finished college even though I have this crappy disease and worked full time while going through treatment. We all know there is a lot of pain and…
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Looking at the Calendar...
Funny how our minds work when we hear good news..I went to the calendar after Johns good news this morning and started figuring up my treatment dates. Looks like I'll be on the nasty pred the week of Thanksgiving after round 5 on Nov 23rd..."UGH"...But...in December after round 6 on Dec 14th, I'll be off the pred the week…
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Found this online - LOVE IT!!
Dear Doctor, Here we are, you and me, our lives connected by cancer. My cancer. Under the circumstances, I’m really glad to have you in my life, and I want our relationship to be very, very long and very, very good, but since I can’t find a manual on how to build our relationship, I’m guessing that, like any good one, it…
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Good luck today John!!
Saying some prayers and crossing my fingers for you today. Please let us know about your PET scan results as soon as you can. Mary(FNHL-1-4A-8/08)
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Mostly good news
Hi all, I am now home from my ortho Dr visit. He said that my shoulder is almost back to normal. Hooray... It's been a long and difficult journey to get to this point in time. But I am there. He said that I could do just a little strength training, not to hard or to much, LOL, like I could do any more than that right now.…
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Round 8 completed, finally!
Mom had her round 8 of R-CHOP Tuesday. She will have her pet and cat scan in 3 weeks. This will be the longest and shortest time for me. Thank you to all, by hearing your uplifting stories and your day to day activities I can feel closer to my mom even when I am not with her.
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Still dragging
Hi all, Well I am still dragging. Feels like I have just returned from a trip around the world twice !!!. I guess it is a bad idea to take a trip when you are already so fatigued. I was feeling great when I got up this a.m., but by 2 I started to feel it. Now I am wiped out. I wish this fatigue would give me a break. I am…
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Are you home Lisha?
Hi Lisha, Just wondering if you made it home safe and sound. I expect you will be pretty tired from the long flight from Miami to home...coast to coast...long flight indeed! Thinking of you...Love,Sue (FNHL-2-3A-6/10)
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finally!
I just wanted to drop a line and say it looks like my fever of eight days has broke! I still have this gut wrenching cough that makes me feel that my head is like a soccer ball being kicked, but at least the fever is gone. I have a PET Scan scheduled for this Wednesday, still don't know why my Onc. moved it up a week, (I…
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Back from dinner !!!
Hi All, I just returned from my birthday dinner and had to tell you about it. OH MY , what an amazing place. I have never experienced anything like it. It was so beautiful and the food was the best. I wanted to finish every bite, of course I didn't, but I tried to. We sat outside over looking the gulf of mexico and watched…
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Oh so tired
Hi All, Just checking in to say hello. I am feeling so tired. I think the combination of traveling to different cities and the very warm weather is getting to me. We will be back in Calif just before midnight tomorrow. Only have to take two flights. One from the keys to Miami and one from Miami to San Francisco. Hopefully…
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Anniversary
Hi all, Just wanted to share that yesterday 10/07 was the 18th anniversary of my first breast cancer diagnosis. I said something to my husband about it being my anniv. and he said, "how do you ever remember these dates". Guess it has to happen to you personally to remember it for so long. It is getting more difficult with…
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Stage IV Hodgkin's
I have just been diagnosed with stage IV Hodgkin's disease (classical type). I have started my ABVD chemo treatments (1 so far out of 12). The PET scan report shows that it is present in: -cervical nodes (posterior, anterior), periclavicular, mediastinal, paratracheal, sub carinal, and axillary nodes. -retroperitoneal…
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Im wondering
Im wondering if anyone has had kids after having treatment for HL with just chemo and how long did you have to wait before trying? Im only 26 and have two great kids but would one or two more babies. I cant help it I love babies. Thanks,Jackie
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CT Tomorrow
Ok, Nervous Nellie here. After Friday evenings appointment and Muscle Testing I can't help it. My mind won't stop the downhill slide. Just the mention of possible Liver and Gall Bladder problems has my mind racing. Since I am still having some pain, I went to my family doc today. He's sending me for a CT scan of my abdomen…