-
How's your fatigue Lisha?
Hi Lisha, Well...now that you've been home for a while have you started to feel a little bit better with your energy level? You did so much while you were in Florida and had so much on your mind, that it probably took more out of you than you even realize. Today is my last day on the prednisone and I was so happy when I…
-
Stem Cell Transplant
I am scheduled for a stem cell transplant in a couple of weeks if my PET scan is clear. I will be using my own stem cells. I am very scared. What should I expect? - 32 yr old mother of two little girls
-
I have exciting news
I picked a booger tonite! Yesssss maybe soon snot won't be running down my face at embarassing times. That my friends means there is hair growing in my nose. Who woulda know picking a booger would be exciting news???? Awwwww its the small things in life! Sure hope my armpit hairs don't grow back.
-
How many with enlarged lymph nodes?
Hi, I was just wondering if anyone had any idea as to how many people with lymphoma, whether Hodgkins or Non-Hodgkins, have enlarged lymph nodes? It seems like most do, but I was wondering if anyone had a general percentage? Thanks so much!!! Also, what does the itching feel like? The doctor said I have all the signs of…
-
Anger is a good thing!
Can anyone relate to this message? I am 23 years old and just finished my 12 ABVD treatments and will start radiation. I have an excellent job and make good money. I still finished college even though I have this crappy disease and worked full time while going through treatment. We all know there is a lot of pain and…
-
Looking at the Calendar...
Funny how our minds work when we hear good news..I went to the calendar after Johns good news this morning and started figuring up my treatment dates. Looks like I'll be on the nasty pred the week of Thanksgiving after round 5 on Nov 23rd..."UGH"...But...in December after round 6 on Dec 14th, I'll be off the pred the week…
-
Found this online - LOVE IT!!
Dear Doctor, Here we are, you and me, our lives connected by cancer. My cancer. Under the circumstances, I’m really glad to have you in my life, and I want our relationship to be very, very long and very, very good, but since I can’t find a manual on how to build our relationship, I’m guessing that, like any good one, it…
-
Good luck today John!!
Saying some prayers and crossing my fingers for you today. Please let us know about your PET scan results as soon as you can. Mary(FNHL-1-4A-8/08)
-
Mostly good news
Hi all, I am now home from my ortho Dr visit. He said that my shoulder is almost back to normal. Hooray... It's been a long and difficult journey to get to this point in time. But I am there. He said that I could do just a little strength training, not to hard or to much, LOL, like I could do any more than that right now.…
-
Round 8 completed, finally!
Mom had her round 8 of R-CHOP Tuesday. She will have her pet and cat scan in 3 weeks. This will be the longest and shortest time for me. Thank you to all, by hearing your uplifting stories and your day to day activities I can feel closer to my mom even when I am not with her.
-
Still dragging
Hi all, Well I am still dragging. Feels like I have just returned from a trip around the world twice !!!. I guess it is a bad idea to take a trip when you are already so fatigued. I was feeling great when I got up this a.m., but by 2 I started to feel it. Now I am wiped out. I wish this fatigue would give me a break. I am…
-
Are you home Lisha?
Hi Lisha, Just wondering if you made it home safe and sound. I expect you will be pretty tired from the long flight from Miami to home...coast to coast...long flight indeed! Thinking of you...Love,Sue (FNHL-2-3A-6/10)
-
finally!
I just wanted to drop a line and say it looks like my fever of eight days has broke! I still have this gut wrenching cough that makes me feel that my head is like a soccer ball being kicked, but at least the fever is gone. I have a PET Scan scheduled for this Wednesday, still don't know why my Onc. moved it up a week, (I…
-
Back from dinner !!!
Hi All, I just returned from my birthday dinner and had to tell you about it. OH MY , what an amazing place. I have never experienced anything like it. It was so beautiful and the food was the best. I wanted to finish every bite, of course I didn't, but I tried to. We sat outside over looking the gulf of mexico and watched…
-
Oh so tired
Hi All, Just checking in to say hello. I am feeling so tired. I think the combination of traveling to different cities and the very warm weather is getting to me. We will be back in Calif just before midnight tomorrow. Only have to take two flights. One from the keys to Miami and one from Miami to San Francisco. Hopefully…
-
Anniversary
Hi all, Just wanted to share that yesterday 10/07 was the 18th anniversary of my first breast cancer diagnosis. I said something to my husband about it being my anniv. and he said, "how do you ever remember these dates". Guess it has to happen to you personally to remember it for so long. It is getting more difficult with…
-
Stage IV Hodgkin's
I have just been diagnosed with stage IV Hodgkin's disease (classical type). I have started my ABVD chemo treatments (1 so far out of 12). The PET scan report shows that it is present in: -cervical nodes (posterior, anterior), periclavicular, mediastinal, paratracheal, sub carinal, and axillary nodes. -retroperitoneal…
-
Im wondering
Im wondering if anyone has had kids after having treatment for HL with just chemo and how long did you have to wait before trying? Im only 26 and have two great kids but would one or two more babies. I cant help it I love babies. Thanks,Jackie
-
CT Tomorrow
Ok, Nervous Nellie here. After Friday evenings appointment and Muscle Testing I can't help it. My mind won't stop the downhill slide. Just the mention of possible Liver and Gall Bladder problems has my mind racing. Since I am still having some pain, I went to my family doc today. He's sending me for a CT scan of my abdomen…
-
Hello to all
Just a quick post to say I am wishing all of you the very best and trying to keep up with everyone's journeys. I am in the middle of a long stretch of working and haven't had much time to post but thoughts and prayers are with you. Mary (FNHL-1-4A-8/08)..For you Miss Maggie.
-
Posting DX
Thank you, and thank you. I can't tell you how much I appreciate this info. It will be so much clearer to me now. Also, any new patients visiting our site. God Bless Maggie
-
Including info on 1st line
Hello All, I want to offer a suggestion when posting on this site. Perhaps the first line in the body of the post, should include your origianl DX, and date of DX. It might be easier for some to see the different treatments available, side effects, etc. to their specific illness. No matter what post I read, I carefully…
-
New labs
Hi guys, I got my labs done yesterday and the WBC's were a little low..3.8..(RBC"S stayed the same) but the counts that dropped the most were...Neutrophil% Auto (Sept 17th) they were 31.5 which was low, but yesterdays lab report showed it had dropped to 22.6. The other low count was with the ABS Neutro Auto (Sept 17th)…
-
what a day
I wish I could say I'm feeling better, been fighting this fever now for a week now. I refused to go into the hospital, I feel there is more germs there! LOL!I had to get blood cultures yesterday to rule out infection other then viral, it was interesting because they draw blood from both arms. Here I'm sweating like a pig…
-
Anybodyb heard from Natalie ?? and CATWINK???
I was wondering how both of you are How you are well. Joanie
-
Like the Cookbook Idea!
Hi - Liz, Leslie, Vinny, Sue and anyone else you enjoys cooking - love the Lymphoma cookbook idea! The reason my name here is Cookingirl is because I published my cookbook, Fran's Favorites, 5 years ago. I've cooked all my life, had 350 recipes too good not to share with family and friends, and it turned out to be a…
-
new to this 29-08-10
hi guys my name is jason and im 39 yr old solo dad with a 13yr old daughter who live in new zealand.8 weeks ago i was diagnosed with follicular lymphoma and its ben pretty full on since then had every test under the sun.I started r-chop on the 8-9-10(wont 4get that date got hit by a big aftershock jus b4 bein hooked up)it…
-
Disappointment
Yesterday would have been my mothers 8th R-CHOP treatment however she had a cold and the Dr. wants to wait another week. She did not even get blood drawn. I understand it is for the best but mom has had so many disappointments and prolonging the treatment is just another downer. For me I drive home 6 hours for treatment…
-
Trip part 2
Hi All, Well we are getting ready to leave Tampa tomorrow afternoon. Heading down to Key West for the weekend. We leave KW on Monday night to head home to Calif. Spending my birthday there, but really wish I could be home with my family. Oh well... The visit in Tampa went well, except for the bad news part. It was so…
-
Has anyone used Radioimmunotherapy (RIT) for NHL?
Found today I didn't get remission with CVP+R and headed to Moffitt Cancer Center in Tampa next week to talk about options. One thing mentioned by my Oncologist was RIT - Radioimmunotherapy drugs. Attacks only the cancer cells, given by IV for one week daily and good chance of remission if you find the right one. New to us…