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Complications update
Hi All, I thought a new thread would be a better way to respond to all of you. First, thank you for all your prayers and positive words. I know that I can turn to you for any advice or just to share my fears/concerns etc. You all are wonderful. Thank you.... I agree with everything you have said. My pcp also is in…
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Vinny,how did everything go today?
Vinny, Just wondering how everything went today. Let us know when you can. Great wishes that all was OK. John (FNHL-1-4A-5/10)
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PET scan negative
Last Friday I took a PET scan and show no signs of cancer. I am happy ,but I have a different look at life now. The cancer can come back any time, so I am relived that I will not have chemo just yet. I eat healty now and look towards enjoying life to the fullest. Positive thinking, added a little humor helped alot. This…
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Complications
Hi All, First I want to say thanks for all of your warm and caring support. This week has been crazy. I started out getting ready to receive the big dose rads. I did all the pre stuff including Injections of some crazy stuff, WBS,small rad dose and more CT. Then, yesterday after the WBS, the rad oncs told me that I will…
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I was just admitted in the hospital last night have a long story hopefully it may make sense to some
Hello everyone.. I know this is long and I know you all go through so much but if anyone may have some advice I would so appreciate it thank you and god bless! I have had a feeling like a lump in my throat when I swollow on the right side just under my jaw bone at first it didnt hurt at all just was annoying But during the…
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Recommend watching...
This is the web site to watch CiAnna's video blog of her journey with cancer. Total of 23..start with the first one and work your way to the last...worth watching! Sue..(FNHL-2-3A-6/10) http://www.youtube.com/user/ciannawilliams
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Wondering about donald
I am wondering about Donald51, I hope he is doing well. I dont see him on this site any longer. Hope you are still doing well. I go for all my tests December 1st. The 23 of December will be a year since the Zevalin. So will see. I seem to have my problems. I hope you are doing well. Would be nice to hear from you. Hilde
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I'm here
I want to say thank you so much for all your thoughts. This has been such a rough weekend for us. Friday afternoon we went to the hospital, Aley met us there and my neighbor and her daughter were there too. My neighbor practically helped raise pogo and potty train while we worked. So she was surrounded with love. She died…
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Good luck Lisha
Hi Lisha, Just wanted to let you know that I will be thinking of you tomorrow when you go in for treatment. You've endured so many obsticles in the past few months that I'm sure your relieved to get this started. One more job to check off your list of things to get done, and heaven knows, your list has been a very long…
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Hello to all!
I have been AWOL for a bit here but I am back on track now I think. I got hit with a double whammy of an evil cold followed by a stomach virus. Then my laptop decided to act up but its all good now. There were so many posts to catch up on and all I can say is,wow lots going on!! Just allow me to wish all of you well and…
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Thursday what's on Tap....( little humor)
Hey guy's I have my spinal tap scheduled for Thursday next week, from what I was told when they did the first tap, there was irregular cells found, but not enough to concern my Onc., but at the Univ. of Penn they are not to sure. I guess it's better to be on the side of caution. If all goes well I'm starting back to work…
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Mary (merrywinner) Leslie (YESYES)
Leslie and Mary Where are you? We miss people when they don't post. We miss you. Let us know how you are doing. John(FNHL-1-4A-5/10)
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After Rituxan
Hi all, Went to the onc yesterday for a check-in. Finished Rituxan only therapy at the beginning of October, for Stage 4 Marginal Zone. She said that we are keeping the lymphoma at bay for now. New blood work in a month and more blood and a visit in January. I was hoping for the R word but I need to take what I can get.…
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neuropathy
Hi all, I tend to do lots of research on line and get noticication of all new journal releases and clinical trials in regards to lymphoma. There is a pediatric phase 11 trial on the use of Glutamine for peripheral neuropathy. Actually there are a number of children receiving Vincristine who are taking Glutamine with their…
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My last chemo is today
Well the day i have been waiting for is today,after a long battle to beat this demon,as i said before in an earlier post i feel like a baby bird being pushed out of the comfort of my nest to finally go out on my own and fly. Its been a long 2 and a half years and i found out alot about myself in that time, i am a strong…
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My heart is breaking
My baby Pogo is in the hospital today. Woke up at 3am to Pogo really suffering. She hurt her back about 3 weeks ago and seemed to be doing better. I have no clue what happened but I've never felt so helpless. She can't stand on her back legs. She was panting so hard Jim and I just kept trying to support her till we could…
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Round 1 Results
First off I wanted to say thanks to all of you who came by my earlier post. Know that all your comments, advise, and friendly words of encouragement are greatly appreciated. I feel all warm and fuzzy inside and not as scared as I was when I came aboard. I just wanted to update on some results that I had mentioned that I…
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Lymph Node Biopsy Questions...
Hi, I've posted once before. I'm not diagnosed but have had swollen lymph nodes, night drenches and random illnesses for over a year now. I finally saw a doctor who would like to do a lymph node biopsy in my neck and am quite relieved. Can anyone share their experience with this procedure? Were you put out, was it just…
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the good and the bad
Hi All, Haven't been on here in some time now. So here goes what has been happening. It is long so please bear with me. As I had mentioned in prior posts my energy level never did come back after my RCHOP chemo finished in February of this year. I think it finally bottomed out when we returned from our anniversary trip in…
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Thinking of you
Hi All, I just want to say that I am thinking of all of you. The weekend is here and its lovely outside. I hope you all have a wonderful weekend and week ahead. I thought I would be a stressed out mess as next week gets closer. But I am feeling pretty good. I didn't think I would be saying that, but I'll take it...…
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Elevated IGM levels
Anyone else familiar with this? I have indolent b cell nodal marginal zone stage 4. I am getting straight Rituxan therapy and have been told that my IgM levels have increeased and that this can contribute to fatigue. Just wondering if anyone else knows anything about this. Sometimes I feel like I'm learning a new language!…
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Hugs needed
Hi All, My MIL arrived last night. She and sis in law are now comfy in their apt. MIL is in poor shape. The change from early Oct to now is dramatic. Hospice came today and set everything up. They are wonderful. I am getting my voice back a little, but the extreme fatigue is doing a real number on me. I feel like I don't…
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Hair falling out due to Radiation
So, i'm 12 treatments into radiation, and suddenly my hair is falling out again on the back of my head. I am only getting radiation to the chest area, and was under the impression you would only lose hair at the radiation site. Did anyone else lose their hair during radiation? i am finished with chemo, and already lost my…
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Grasping at Straws
Hello, This is my first post to this discussion group and I thank you all for listening. A member of my family(age 49) was diagnosed last year 2009 with Non-Hogkins Lymphoma (Follicular,Indolent) Lymph nodes in cervical, axillary and mediastinum. Biopsy was done on cervical node confirming this diagnosis. He was offered to…
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Word to the wise from the NOT so wise!
Back away from the window folks!!!! Got off the computer earlier and decided to wash the living room windows..(project hubby was to do a month ago). Got the window toppers down and in the wash, screens out and two removeable side windows into the living room....(I'm exhausted by now) and Oh...did I mention that our home is…
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Posted picture in Expressions
Hi guys, As you know, alot of fishermen tell "Tall Tales" when saying how big their fish are. Well...we believe a picture speaks for itself. This is the 65 pound biggest salmon I have yet to ever catch. Click on my picture(allmost60 in blue box to the left) which will take you to my CSN space...then click on expressions…
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Can't get back to 100%
Had last treatment on Sept.28th, but just can't get back to 100%. Its weird because I feel a little stronger everyday, but just not a 100% yet. My body doesn't really feel tired ,its that my eyes feel tired. Its kind of hard to explain. I am not expecting miracles, just wondering if this is normal. Anybody that has…
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Hodgkins- "The Good Cancer"
Is anyone else tired of hearing people say "oh Hodgkins, that's the good cancer!"? I realize it is one of the better ones to have, it's treatable, blah blah blah. Still cancer. Still scary. Still have to go through chemo. Still have to have radiation. It's not fun and it's in no way shape or form "good". And I don't just…
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Sue's Fish
Hey Sue, Love the new pic. Not being a fisherman, what kind of fish are they and can they be eaten? All I know about fish is what I can eat, but that is a FABULOUS picture! Love it! How are you doing after your 4th? My grandson is standing next to me with his Woody toy (Toy Story) being cuter than any 3 year old can…
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#5 on tap
Hi Y'All, Just thought I'd let you know that I'm in the waiting room to be called in for my #5 infusion. I haven't been able to go through the recent posts yet and internet doesn't work in the infusion center, so I don't know everyone's status. And tomorrow (Friday) early AM we have to drive down to Houston (5 hours) to…