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TO ALL MY NEW FRIENDS.....
I just wanted to come by and wish all of you who came to my rescue a few weeks back a very Happy and Blessed Thanksgiving. You are ALL wonderful.....!!! Well I'm down to one more appt with the Onco on Monday for my final results. I know he has had my results for well over a week. I'm hopeful if it showed anything of…
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Has anyone had any reoccurence - I'm scared!
I have been a Hodgkins survivor for 9 years and just recently have had swollen glands and the doc found a nodule on my thyroid (hypo). Ever since he said I had swollen glands I began itching, not as severe as the first go round, but I have that nagging stinging feeling that moves around... could this just be my mind…
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Sue and Tom
Hi Sue and Tom, I sending you both the very best wishes for your tx this week. Sue, you have one more after this one, your doing great. I'll keep praying that all goes as planned.. Tom, this is your last tx, Hooray ! Stay strong and well and let the healing begin.. Anyone one that I may have missed who is having tx this…
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Happy 36th Anniversary Lisha
Hi Lisha, Happy Anniversary! 36 years...now thats something to be proud of my friend. December 22nd we will have our 32nd. We knew and dated each other 8 years prior to getting married, so we have actully been together for 40 years. Hope you two do something special! Love...Sue (FNHL-2-3A-6/10)
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Lymphoma Non Hodgkin low grade Cancer
I'm new at this board, I felt a lump the size of a golf ball under my jaw at the beginning of October. Last week I was operated. They remove 2 lymph node, the first one had cancer but the other one was not. They took a biopsy under my nose but everything was ok. I don't feel no sweat, did not lost any weight or fatigue, or…
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Thanksgiving Wishes
Hi All, I want to wish everyone a very warm and happy thanksgiving. What ever your traditions are, may they be celebrated with warmth and love. Friends and families, large and small, it's a time for sharing and healing. Happy Thanksgiving Lisha
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migraines
Sorry I have not been on, since the lumbar puncture, I have had horrible migraines for four day's, the first time I had this, I was fortunate not to have them. The pain makes me nauseous, and tough to function. I have read it should only last foe three days, so much for that! LOL Vinny
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ESHAP
Anybody gone thru ESHAP for HD and how bad was it?
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after effect of chemo
Hi, just went thru my second battle with NHL. Been in remission for 19 years. It came back last October. Went thru six months of rituxin and a fludurabine and I'm in remission again. I've had some strange side effects since June. I had intense gastrointestinal problems for six weeks that finally passed. Now I'm…
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Where is Everybody???
Where is everybody? I have not seen a post in 2 days. Did everyone go on vacation Without me.hahahaha. John
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Complications update
Hi All, I thought a new thread would be a better way to respond to all of you. First, thank you for all your prayers and positive words. I know that I can turn to you for any advice or just to share my fears/concerns etc. You all are wonderful. Thank you.... I agree with everything you have said. My pcp also is in…
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Vinny,how did everything go today?
Vinny, Just wondering how everything went today. Let us know when you can. Great wishes that all was OK. John (FNHL-1-4A-5/10)
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PET scan negative
Last Friday I took a PET scan and show no signs of cancer. I am happy ,but I have a different look at life now. The cancer can come back any time, so I am relived that I will not have chemo just yet. I eat healty now and look towards enjoying life to the fullest. Positive thinking, added a little humor helped alot. This…
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Complications
Hi All, First I want to say thanks for all of your warm and caring support. This week has been crazy. I started out getting ready to receive the big dose rads. I did all the pre stuff including Injections of some crazy stuff, WBS,small rad dose and more CT. Then, yesterday after the WBS, the rad oncs told me that I will…
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I was just admitted in the hospital last night have a long story hopefully it may make sense to some
Hello everyone.. I know this is long and I know you all go through so much but if anyone may have some advice I would so appreciate it thank you and god bless! I have had a feeling like a lump in my throat when I swollow on the right side just under my jaw bone at first it didnt hurt at all just was annoying But during the…
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Recommend watching...
This is the web site to watch CiAnna's video blog of her journey with cancer. Total of 23..start with the first one and work your way to the last...worth watching! Sue..(FNHL-2-3A-6/10) http://www.youtube.com/user/ciannawilliams
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Wondering about donald
I am wondering about Donald51, I hope he is doing well. I dont see him on this site any longer. Hope you are still doing well. I go for all my tests December 1st. The 23 of December will be a year since the Zevalin. So will see. I seem to have my problems. I hope you are doing well. Would be nice to hear from you. Hilde
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I'm here
I want to say thank you so much for all your thoughts. This has been such a rough weekend for us. Friday afternoon we went to the hospital, Aley met us there and my neighbor and her daughter were there too. My neighbor practically helped raise pogo and potty train while we worked. So she was surrounded with love. She died…
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Good luck Lisha
Hi Lisha, Just wanted to let you know that I will be thinking of you tomorrow when you go in for treatment. You've endured so many obsticles in the past few months that I'm sure your relieved to get this started. One more job to check off your list of things to get done, and heaven knows, your list has been a very long…
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Hello to all!
I have been AWOL for a bit here but I am back on track now I think. I got hit with a double whammy of an evil cold followed by a stomach virus. Then my laptop decided to act up but its all good now. There were so many posts to catch up on and all I can say is,wow lots going on!! Just allow me to wish all of you well and…
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Thursday what's on Tap....( little humor)
Hey guy's I have my spinal tap scheduled for Thursday next week, from what I was told when they did the first tap, there was irregular cells found, but not enough to concern my Onc., but at the Univ. of Penn they are not to sure. I guess it's better to be on the side of caution. If all goes well I'm starting back to work…
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Mary (merrywinner) Leslie (YESYES)
Leslie and Mary Where are you? We miss people when they don't post. We miss you. Let us know how you are doing. John(FNHL-1-4A-5/10)
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After Rituxan
Hi all, Went to the onc yesterday for a check-in. Finished Rituxan only therapy at the beginning of October, for Stage 4 Marginal Zone. She said that we are keeping the lymphoma at bay for now. New blood work in a month and more blood and a visit in January. I was hoping for the R word but I need to take what I can get.…
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neuropathy
Hi all, I tend to do lots of research on line and get noticication of all new journal releases and clinical trials in regards to lymphoma. There is a pediatric phase 11 trial on the use of Glutamine for peripheral neuropathy. Actually there are a number of children receiving Vincristine who are taking Glutamine with their…
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My last chemo is today
Well the day i have been waiting for is today,after a long battle to beat this demon,as i said before in an earlier post i feel like a baby bird being pushed out of the comfort of my nest to finally go out on my own and fly. Its been a long 2 and a half years and i found out alot about myself in that time, i am a strong…
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My heart is breaking
My baby Pogo is in the hospital today. Woke up at 3am to Pogo really suffering. She hurt her back about 3 weeks ago and seemed to be doing better. I have no clue what happened but I've never felt so helpless. She can't stand on her back legs. She was panting so hard Jim and I just kept trying to support her till we could…
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Round 1 Results
First off I wanted to say thanks to all of you who came by my earlier post. Know that all your comments, advise, and friendly words of encouragement are greatly appreciated. I feel all warm and fuzzy inside and not as scared as I was when I came aboard. I just wanted to update on some results that I had mentioned that I…
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Lymph Node Biopsy Questions...
Hi, I've posted once before. I'm not diagnosed but have had swollen lymph nodes, night drenches and random illnesses for over a year now. I finally saw a doctor who would like to do a lymph node biopsy in my neck and am quite relieved. Can anyone share their experience with this procedure? Were you put out, was it just…
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the good and the bad
Hi All, Haven't been on here in some time now. So here goes what has been happening. It is long so please bear with me. As I had mentioned in prior posts my energy level never did come back after my RCHOP chemo finished in February of this year. I think it finally bottomed out when we returned from our anniversary trip in…
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Thinking of you
Hi All, I just want to say that I am thinking of all of you. The weekend is here and its lovely outside. I hope you all have a wonderful weekend and week ahead. I thought I would be a stressed out mess as next week gets closer. But I am feeling pretty good. I didn't think I would be saying that, but I'll take it...…