-
Elevated IGM levels
Anyone else familiar with this? I have indolent b cell nodal marginal zone stage 4. I am getting straight Rituxan therapy and have been told that my IgM levels have increeased and that this can contribute to fatigue. Just wondering if anyone else knows anything about this. Sometimes I feel like I'm learning a new language!…
-
Hugs needed
Hi All, My MIL arrived last night. She and sis in law are now comfy in their apt. MIL is in poor shape. The change from early Oct to now is dramatic. Hospice came today and set everything up. They are wonderful. I am getting my voice back a little, but the extreme fatigue is doing a real number on me. I feel like I don't…
-
Hair falling out due to Radiation
So, i'm 12 treatments into radiation, and suddenly my hair is falling out again on the back of my head. I am only getting radiation to the chest area, and was under the impression you would only lose hair at the radiation site. Did anyone else lose their hair during radiation? i am finished with chemo, and already lost my…
-
Grasping at Straws
Hello, This is my first post to this discussion group and I thank you all for listening. A member of my family(age 49) was diagnosed last year 2009 with Non-Hogkins Lymphoma (Follicular,Indolent) Lymph nodes in cervical, axillary and mediastinum. Biopsy was done on cervical node confirming this diagnosis. He was offered to…
-
Word to the wise from the NOT so wise!
Back away from the window folks!!!! Got off the computer earlier and decided to wash the living room windows..(project hubby was to do a month ago). Got the window toppers down and in the wash, screens out and two removeable side windows into the living room....(I'm exhausted by now) and Oh...did I mention that our home is…
-
Posted picture in Expressions
Hi guys, As you know, alot of fishermen tell "Tall Tales" when saying how big their fish are. Well...we believe a picture speaks for itself. This is the 65 pound biggest salmon I have yet to ever catch. Click on my picture(allmost60 in blue box to the left) which will take you to my CSN space...then click on expressions…
-
Can't get back to 100%
Had last treatment on Sept.28th, but just can't get back to 100%. Its weird because I feel a little stronger everyday, but just not a 100% yet. My body doesn't really feel tired ,its that my eyes feel tired. Its kind of hard to explain. I am not expecting miracles, just wondering if this is normal. Anybody that has…
-
Hodgkins- "The Good Cancer"
Is anyone else tired of hearing people say "oh Hodgkins, that's the good cancer!"? I realize it is one of the better ones to have, it's treatable, blah blah blah. Still cancer. Still scary. Still have to go through chemo. Still have to have radiation. It's not fun and it's in no way shape or form "good". And I don't just…
-
Sue's Fish
Hey Sue, Love the new pic. Not being a fisherman, what kind of fish are they and can they be eaten? All I know about fish is what I can eat, but that is a FABULOUS picture! Love it! How are you doing after your 4th? My grandson is standing next to me with his Woody toy (Toy Story) being cuter than any 3 year old can…
-
#5 on tap
Hi Y'All, Just thought I'd let you know that I'm in the waiting room to be called in for my #5 infusion. I haven't been able to go through the recent posts yet and internet doesn't work in the infusion center, so I don't know everyone's status. And tomorrow (Friday) early AM we have to drive down to Houston (5 hours) to…
-
Every chemo treatment is different
Hi, Folks, Thanks, Sue for checking me out last week! Been exhausted and busy healing.. I had anxiety going into the infusion room last week because the tx before that my body had 6 days of constant chemo effects - non-stop (I bawled and my hubby actually had to coax me to go to the infusion room.) But this time, no heavy…
-
Just my luck!
Don't it figure...we turn the clocks back tonight...last day to take the pred and now I'll have an extra hour of no sleep..hahaha!...Love Sue..(FNHL-2-3A-6/10)
-
Bone Cancer after Hodkins???
Hi all, I just finished my treatment for Hodkins 2weeks and 2days ago. I had 6 cycles of ABVD and 3 weeks of radiation. The tumor in my chest was originally almost 11 inches wide. 2 days after my last radiation treatment I began experiencing bone pain in my pelvis and femur in my left side. The pain has since gotten so bad…
-
This is for Tom - Vitamin B treating Neuropathy
Hi, Tom, Just remembered (here goes my chemo brain) my intention to let you know that I asked my onc about your question about vit B 12 question. He said it is the B complex that helps with treating neuropathy. I did quick check on the internet - not much but saw something interesting from Canada's services for AIDS…
-
one more!!!!!
Hey, just an update, they want me to do another spinal tap, to be sure that I don't have any other serious problems developing....... they feel the bone marrow biopsy is a waste of time at this moment. She was of course happy with the PET scan result's, but feel's that I must be diligent and get scans every 3 months for…
-
Flu Shots
Hi, My oncologist told me last Tuesday, that I could have a flu shot, but when your immune system is challenged they only worked in one out of six people. Finished RCVP in May and then had the Zevalin in July. I asked him how long I should wait to have one, and he didn't seem to have a definitive answer. Anyone else asked…
-
Will I ever become normal again?
Or am I destined to stay a nervous wreck? I was just Diagnosed a year ago with Hodgkins Lymphoma, did 12 rounds of chemo, and declared 'in remission'. I had lots of trouble with my chemo, I developed thrush everytime and I thought my 'bone pain' was unbearable. My Gallbladder quit functioning and I had to have it taken out…
-
Newest update
Hi All, I just wanted to update on MIL. Our plan was for her to arrive on the 12th, but yesterday she started to go down hill, so I have changed her tickets to this Mon. The airline was so kind, they even upgraded the seats to row three. I have been scrambling to finish up at the apt. And I still am fighting this cold. I…
-
lymphoma in oral tongue
Hi, my first time here. I found a lump in my tongue in Dec. 2009, had it removed. Came back as large B cell. Went through six rounds of chemo, no radiation. It has been 4 months since my last chemo and now I have found a new lump in my tongue. Went to my ENT two weeks ago and he wasn't to concern because it was quite…
-
does symptomatic lyphoma mean it is advanced?
Because you show symtoms and have chemotherapy but go into complete remission does this mean that my lymphoma is advanced. ? I cant find any information about this and would appreiate anybody that can help? Richsterr
-
Lymphoma Pain
I was wondering what kind of pain lymphoma cancer gives to our bodies? Pain like burning sensation or just throbing pain? I know this might be a dumb question, but in the end what should we expect?
-
Thank you!
Thanks to all who took a peek at Maggie and were so kind to take the time to leave a comment. I then felt so bad for not putting the other twin on there too. I was in a hurry and thought the picture was too funny. Soooo I did sneak a second picture of Maggie's twin Nanette for anyone who would like to see. I need a big…
-
4th round all done...
Hi guys, 4th round went fine...no problems, but still took 6 hours at the clinic. My doctor would not adjust the pred..boo hoo! He said I could take benedryl to slow it down, so maybe I will try that when it gets crazy for me. Round 5 will be 2 days before Thanksgiving. Anyways...I feel a little tired from all of the…
-
Trouble Swallowing during Radiation
So i've had 10 radiation treatments or 20 for Hodgkins. I am being radiated in my chest area. The doctor had told me one of the side effects that most patients complained about was having trouble swallowing. I had no idea how bad it would be. I can barely swallow my own saliva, let alone anything to drink or eat. If i try…
-
anyone else with alk-ana plastic large cell
I would like to hear of another case of this said to be rare form of non Hodgkin's
-
How can I get diagnosed?
Beginning Labor Day weekend, I had pain in my lymph nodes under left arm. Within the next couple of days I ended up with a burning sensation under both my arms, and a sunburn feeling on my chest, upper back and upper arms. I then had tingling in upper thighs, and began waking in the night with hot flashes (no sweating).…
-
Anyone up for a laugh?
My daughter has 5 month old twins and one of the pictures always makes me laugh out loud. I wanted to share this with anyone who needs a laugh this morning. If so go to my profile then expressions and click photo to enlarge. Thanks for looking at one of my big reasons to fight!! Mary
-
Difficult Week - just reaching out
Hi, Friends, This has been a hard week - my dear step mom (of 40 yrs), Ruthe has ovarian cancer - it was found last week and it grew fast aggressively after it was biopsed (due not being able to urinate) so she had to have weekly chemotherapy ASAP which started 2 days ago! Poor dad has been caring for her and is stressed…
-
Ideas on staying organized?
Hi, my name is Amanda and I was diagnosed with Stage 4 Hodgkin’s Lymphoma five years ago. Thankfully, I am now doing very well! I am currently a graduate design student at Pratt Institute in Manhattan. For my thesis project I would like to create a welcome binder for new cancer patients. Inside would be information about…
-
back
Hello everyone, we just got back from Marco island, it's a beautiful place, it was so nice not to think of cancer for a week, sure we talked about it, but we did not dwell on it. This Wednesday I see if my count's came back, if not it's a bone marrow biopsy again. Not to get all deep, but I got to tell you, when I was…