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Lymphoma (Hodgkin and Non-Hodgkin)

Bone Cancer after Hodkins???
Hi all, I just finished my treatment for Hodkins 2weeks and 2days ago. I had 6 cycles of ABVD and 3 weeks of radiation. The tumor in my chest was originally almost 11 inches wide. 2 days after my last radiation treatment I began experiencing bone pain in my pelvis and femur in my left side. The pain has since gotten so bad…
This is for Tom - Vitamin B treating Neuropathy
Hi, Tom, Just remembered (here goes my chemo brain) my intention to let you know that I asked my onc about your question about vit B 12 question. He said it is the B complex that helps with treating neuropathy. I did quick check on the internet - not much but saw something interesting from Canada's services for AIDS…
one more!!!!!
Hey, just an update, they want me to do another spinal tap, to be sure that I don't have any other serious problems developing....... they feel the bone marrow biopsy is a waste of time at this moment. She was of course happy with the PET scan result's, but feel's that I must be diligent and get scans every 3 months for…
Flu Shots
Hi, My oncologist told me last Tuesday, that I could have a flu shot, but when your immune system is challenged they only worked in one out of six people. Finished RCVP in May and then had the Zevalin in July. I asked him how long I should wait to have one, and he didn't seem to have a definitive answer. Anyone else asked…
Will I ever become normal again?
Or am I destined to stay a nervous wreck? I was just Diagnosed a year ago with Hodgkins Lymphoma, did 12 rounds of chemo, and declared 'in remission'. I had lots of trouble with my chemo, I developed thrush everytime and I thought my 'bone pain' was unbearable. My Gallbladder quit functioning and I had to have it taken out…
Newest update
Hi All, I just wanted to update on MIL. Our plan was for her to arrive on the 12th, but yesterday she started to go down hill, so I have changed her tickets to this Mon. The airline was so kind, they even upgraded the seats to row three. I have been scrambling to finish up at the apt. And I still am fighting this cold. I…
lymphoma in oral tongue
Hi, my first time here. I found a lump in my tongue in Dec. 2009, had it removed. Came back as large B cell. Went through six rounds of chemo, no radiation. It has been 4 months since my last chemo and now I have found a new lump in my tongue. Went to my ENT two weeks ago and he wasn't to concern because it was quite…
does symptomatic lyphoma mean it is advanced?
Because you show symtoms and have chemotherapy but go into complete remission does this mean that my lymphoma is advanced. ? I cant find any information about this and would appreiate anybody that can help? Richsterr
Lymphoma Pain
I was wondering what kind of pain lymphoma cancer gives to our bodies? Pain like burning sensation or just throbing pain? I know this might be a dumb question, but in the end what should we expect?
Thank you!
Thanks to all who took a peek at Maggie and were so kind to take the time to leave a comment. I then felt so bad for not putting the other twin on there too. I was in a hurry and thought the picture was too funny. Soooo I did sneak a second picture of Maggie's twin Nanette for anyone who would like to see. I need a big…
4th round all done...
Hi guys, 4th round went fine...no problems, but still took 6 hours at the clinic. My doctor would not adjust the pred..boo hoo! He said I could take benedryl to slow it down, so maybe I will try that when it gets crazy for me. Round 5 will be 2 days before Thanksgiving. Anyways...I feel a little tired from all of the…
Trouble Swallowing during Radiation
So i've had 10 radiation treatments or 20 for Hodgkins. I am being radiated in my chest area. The doctor had told me one of the side effects that most patients complained about was having trouble swallowing. I had no idea how bad it would be. I can barely swallow my own saliva, let alone anything to drink or eat. If i try…
anyone else with alk-ana plastic large cell
I would like to hear of another case of this said to be rare form of non Hodgkin's
How can I get diagnosed?
Beginning Labor Day weekend, I had pain in my lymph nodes under left arm. Within the next couple of days I ended up with a burning sensation under both my arms, and a sunburn feeling on my chest, upper back and upper arms. I then had tingling in upper thighs, and began waking in the night with hot flashes (no sweating).…
Anyone up for a laugh?
My daughter has 5 month old twins and one of the pictures always makes me laugh out loud. I wanted to share this with anyone who needs a laugh this morning. If so go to my profile then expressions and click photo to enlarge. Thanks for looking at one of my big reasons to fight!! Mary
Difficult Week - just reaching out
Hi, Friends, This has been a hard week - my dear step mom (of 40 yrs), Ruthe has ovarian cancer - it was found last week and it grew fast aggressively after it was biopsed (due not being able to urinate) so she had to have weekly chemotherapy ASAP which started 2 days ago! Poor dad has been caring for her and is stressed…
Ideas on staying organized?
Hi, my name is Amanda and I was diagnosed with Stage 4 Hodgkin’s Lymphoma five years ago. Thankfully, I am now doing very well! I am currently a graduate design student at Pratt Institute in Manhattan. For my thesis project I would like to create a welcome binder for new cancer patients. Inside would be information about…
back
Hello everyone, we just got back from Marco island, it's a beautiful place, it was so nice not to think of cancer for a week, sure we talked about it, but we did not dwell on it. This Wednesday I see if my count's came back, if not it's a bone marrow biopsy again. Not to get all deep, but I got to tell you, when I was…
not to bad news
Hey, just got back from Onc. visit, while my white count's are still low they did come up from the last visit which is good. My doctor said she stills wants to do a bone marrow biopsy, to be 100% sure that I'm still in remission. She also said I still may need the Spinal Tap, if the Univer. of Penn thinks it's necessary. I…
Merrywinner
Mary, Haven't seen a posting from you for a long time. How are you doing? Darlene
Newly Diagnosed, Will it get harder?
Hello - I was recently diagnosed with Hodgkins Lymphoma, Stage 2a. Last Thursday I had my first chemo treatment (ABVD) and have been feeling good. I had a little mouth soreness for one or two days and was more tired than usual the first few days following but I'm back to normal. With the exception of having chemo scheduled…
Sue, how did it go today?
Hi Sue, I think from another post that you have your 4th infusion today. Let us know how it went. I am particularly interested because my 4th hit me harder that the others did. But even at that, after about 1 1/2 weeks it was much better. And I don't think that we are on the same chemo - but still, let us know. Hope it…
ANOTHER IDIOT
I GUESS YOU KNOW BY NOW WE HAVE ANOTHER A$$HOLE ON HERE TRYING TO SELL THE SAME CRAP,PROBABLY THE SAME PERSON WITH A DIFFERENT NAME. I FLAGGED A FEW ALREADY. IT IS REALLY MESSING UP THINGS FOR ME. IT WOULD BE NICE IF THIS SITE HAD SPAM FILTERS.THEN AGAIN HOW WOULD THEY KNOW SPAM FROM JUST REGULAR POST? THEY SHOULD BE ABLE…
Fear of recurrence. When will a cold be just a cold?
I was diagnosed with Hodgkin's Stage IVa in November 1994 and underwent 12 rounds of ABVD. I did not have radiation. I have been cancer free since May 1995. Due to the chemotherapy I have always had a low white blood cell count--roughly 3800. This week I had a check-up and my WBC was only 3100, low even for me. I will…
More news
Hi All, Well, I have rented an apt and now trying to furnish it. My daughter has been a great help finding stuff. I set up cable and phone service too. I have arranged for hospice to start the day after MIL arrives. They will supply her with a hosp bed, wheelchair and what ever else she may need. My stress level is better,…
Suggestion after a PET scan
I had a PET scan on the 21st of Oct. Praise the Lord the results were great. The person who administered the radio active stuff told me to drink a gallon of African Rooibos Red Tea as soon as I got home. I did. He says it helps to wash the radiation out. I thought I would share this. I drank a gallon in less than an hour…
Late Effects of chemo
Hi, I found this site looking for support groups of childhood cancer surviviors. I am 19 and had stage 4 NHL when I was 2. Since I was 11 I have experinced many episodes of anxiety attacks and PTSD over the years. I also have difficulty in school particulary in math. I was just curious if anyone else has had these issues…
CTCL/MF
I'm devastated by my mother's condition. She had a heart attack back in March, and while in the hospital the hemotologist was curious about her skin condition, ran test to find out that she had late stage CTCL/MF. Her skin was really in bad shape, her feet, and hands hurt and her fingertips almost useless. She has since…
Happy Halloween!
Hi guys... "HAPPY HALLOWEEN" to all of you! We bought two "big" bags of candy at Costco 3 weeks ago and theres only 1/2 of one bag left to hand out...ha! I'll be glad to see the last of it gone tonight...I'm sick of candy...ha!!!!...Love..Sue (FNHL-2-3A-6/10)
Stem Cell Transplant
Hi everyone: I have Hodgkin Lymphoma, diagnosed in March 2008. Been thru all kinds of chemo, but never stayed in remission for more than 1 month. I am eventually going to be needing a stem cell transplant. I was just wondering if anyone has had a SCT for HD and what kind of high doses of chemo did they give you. I have 2…

Lymphoma (Hodgkin and Non-Hodgkin)

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