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Lymphoma (Hodgkin and Non-Hodgkin)

not to bad news
Hey, just got back from Onc. visit, while my white count's are still low they did come up from the last visit which is good. My doctor said she stills wants to do a bone marrow biopsy, to be 100% sure that I'm still in remission. She also said I still may need the Spinal Tap, if the Univer. of Penn thinks it's necessary. I…
Merrywinner
Mary, Haven't seen a posting from you for a long time. How are you doing? Darlene
Newly Diagnosed, Will it get harder?
Hello - I was recently diagnosed with Hodgkins Lymphoma, Stage 2a. Last Thursday I had my first chemo treatment (ABVD) and have been feeling good. I had a little mouth soreness for one or two days and was more tired than usual the first few days following but I'm back to normal. With the exception of having chemo scheduled…
Sue, how did it go today?
Hi Sue, I think from another post that you have your 4th infusion today. Let us know how it went. I am particularly interested because my 4th hit me harder that the others did. But even at that, after about 1 1/2 weeks it was much better. And I don't think that we are on the same chemo - but still, let us know. Hope it…
ANOTHER IDIOT
I GUESS YOU KNOW BY NOW WE HAVE ANOTHER A$$HOLE ON HERE TRYING TO SELL THE SAME CRAP,PROBABLY THE SAME PERSON WITH A DIFFERENT NAME. I FLAGGED A FEW ALREADY. IT IS REALLY MESSING UP THINGS FOR ME. IT WOULD BE NICE IF THIS SITE HAD SPAM FILTERS.THEN AGAIN HOW WOULD THEY KNOW SPAM FROM JUST REGULAR POST? THEY SHOULD BE ABLE…
Fear of recurrence. When will a cold be just a cold?
I was diagnosed with Hodgkin's Stage IVa in November 1994 and underwent 12 rounds of ABVD. I did not have radiation. I have been cancer free since May 1995. Due to the chemotherapy I have always had a low white blood cell count--roughly 3800. This week I had a check-up and my WBC was only 3100, low even for me. I will…
More news
Hi All, Well, I have rented an apt and now trying to furnish it. My daughter has been a great help finding stuff. I set up cable and phone service too. I have arranged for hospice to start the day after MIL arrives. They will supply her with a hosp bed, wheelchair and what ever else she may need. My stress level is better,…
Suggestion after a PET scan
I had a PET scan on the 21st of Oct. Praise the Lord the results were great. The person who administered the radio active stuff told me to drink a gallon of African Rooibos Red Tea as soon as I got home. I did. He says it helps to wash the radiation out. I thought I would share this. I drank a gallon in less than an hour…
Late Effects of chemo
Hi, I found this site looking for support groups of childhood cancer surviviors. I am 19 and had stage 4 NHL when I was 2. Since I was 11 I have experinced many episodes of anxiety attacks and PTSD over the years. I also have difficulty in school particulary in math. I was just curious if anyone else has had these issues…
CTCL/MF
I'm devastated by my mother's condition. She had a heart attack back in March, and while in the hospital the hemotologist was curious about her skin condition, ran test to find out that she had late stage CTCL/MF. Her skin was really in bad shape, her feet, and hands hurt and her fingertips almost useless. She has since…
Happy Halloween!
Hi guys... "HAPPY HALLOWEEN" to all of you! We bought two "big" bags of candy at Costco 3 weeks ago and theres only 1/2 of one bag left to hand out...ha! I'll be glad to see the last of it gone tonight...I'm sick of candy...ha!!!!...Love..Sue (FNHL-2-3A-6/10)
Stem Cell Transplant
Hi everyone: I have Hodgkin Lymphoma, diagnosed in March 2008. Been thru all kinds of chemo, but never stayed in remission for more than 1 month. I am eventually going to be needing a stem cell transplant. I was just wondering if anyone has had a SCT for HD and what kind of high doses of chemo did they give you. I have 2…
Unresolved issues question
So, I would like a little information from the members here. I have two questions and looking for a little insight. First, background;I'm male 47 yrs. old. I post on the colorectal boards here as I have stage II rectal cancer. I was diagnosed last November and went through a battery of diagnostic testing through the…
Pet scan Thursday
I have a Pet scan tomorrow at 1pm. I haven't had one in 14 months. The person in charge of PET scan told me to drink a gallon of this kind of red tea afterward to get out the radiation. I never heard of that. I will let you all know what it is called.
Difference between cll and nhl? Anybody know?
Anybody know the difference between chronic lymphocytic leukemia and non hodgkin's lymphoma?
Update
Hi All, This is the latest news on mom in law. We are flying her and her daughter out in 2 weeks. MIL(mom in law) Will stay in Ca until her time comes. Sister in law will most likely also remain in Ca. I am now having to scramble to find a short term rental apartment and furnish it. They arrive on the 12th. My rads start…
Mass on Left side of neck
Just wondering what to expect. My husband has a large mass on the left side of his neck and the Dr thinks he has Hodskin or Thyroid cancer. He goes in Fri for a CT scan. What is next? Just really worried he is 43 and we have 3 kids. Any info would be great.
ICE Treatement
Has anyone received ICE treatment for Non-Hodgkin Lymphoma? If so, what were the side effects. I have large B cell lymphoma. I had R-CHOP for six months, had a Pet Scan only to find out it wasn't working. My counts were up as for as white and red blood and platelets, but it didn't do the trick for me. Treatments begin on…
scan results
Hi All, just a quick update on my mom in law. The scans show mets to her brain. She will attempt to have cyberknife radiation and will be under hospice care. I know many of you have said prayers for her, please continue to pray for Delores. I hope all of you are holding strong. I have had a bunch a difficult days. Some is…
POLY MVA
Hi There: Was just wondering if anyone has every used Poly-MVA to treat your Hodgkin Lymphoma. Or used it in combination with chemo. I was diagnosed with Nodular Sclerosing HD back in March 2008. Still dealing with it. Chemo will only put me into remission for a month or two. Then back to more chemo and now they want to do…
questions and concerns about lymphoma
So my sysmtoms started another 3 years ago. It was little stuff really, like swallow glands in my neck and the pressure was so bad. I thought maybe it was just a sore throat. This has progressed to them always be slightly swollen now. Sometimes its really bad. Then I started having lots of colds, phenomena, sinus…
Strange moods
Hi Sue and Tom, When I was doing my RCHOP I found each round different from the last but they all had one thing in common. Each one became more difficult with greater fatigue until I pretty much had zero energy for anything other than day to day serviving. With each additional chemo we get further andd further away from…
CT scan results
Hi all, I got the results of my mid-way CT scan in the mail today..... Radiologists Impression:(reading straight from the report) CT of the Chest, Abdomen, and Pelvis demonstrating a POSITIVE response to therapy with the previously Lymphadenopathy appearing to have decreased in greatness dimensions by 50% or greater as…
Docs called
Hi All, Well, the Docs did call. The onc said that she thought the pcp had told me since he was the one who had ordered all the scans. My pcp said the same thing, he thought she had told me since she was the onc. I think they both messed up. they both should have told me, instead of thinking only one. It's hard to have…
How are you doing Tom?
Hi Tom, Hows everything in Grapevine Texas? You should have finished round 3 by now and it's been awhile since you've checked in. Hopefully that means you are out and about and doing good! Lots of good news coming out of the group..eh? Thinking of you...Sue...(FNHL-2-3A-6/10)
COMPLETE REMISSION ZERO ACTIVITY
NO activity at all. Don't know what else to say. TOYAL REMISSION!!!!! (FNHL-1-4A-(5/10)
congrats
congrats to all you Giants fans out there, we watched the game at a sports bar, it was so hard to watch! hahahaha Weather is nice here, got to watch the sun, no hair on my body,hahahahahaha hope all is well guys! Vinny
Possible Virus
Hi Everyone, Take a look at all the posts (even in other discussion groups) from DorisEKnight. I think we have a virus going on here. Don't open any of those posts!! Don't know what else to do. Anyone else have an opinion? Want to keep my Lymphoma family safe!! :)
Port Question
Today i just finished my last treatment of Chemo! Praise the Lord! I am also scheduled to have 4 weeks of radiation starting in October. I haven't had a chance to talk to my doctor yet, but i'm wondering when I can get this stupid port taken out! My chemo nurse said that older individuals usually just keep them in, but i…
13 years HODGKINS FREE!!!
I WOULD LOVE TO HEAR HODGKINS DISEASE SUCCESS STORIES!! OR IF ANYONE NEEDS TO TALK ABOUT WHAT YOU ARE GOING THROUGH EMOITONALLY IM SURE I CAN RELATE AND SHARE MINE WITH YOU! LETS STAY POSITIVE PEOPLE...BLESS YOU ALL!

Lymphoma (Hodgkin and Non-Hodgkin)

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