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Lymphoma (Hodgkin and Non-Hodgkin)

Heart Racing??
Ok so I finished my chemo(ABVD) and radiation, it was all completed on 10-19-10. Since then was put on Darvocet 3 x daily for a month until the recall. Now I take hydrocodone 5's. Last night my heart started fluttering and then started racing for about an hour or so. Had me terrified. I've had heart problems ever since…
Agent Orange
Are there any `children` of Vietnam Veterans out there who have been diagnosed with non-hodgkins lymphoma?!?!? i know that the pamphlets that are sent out each month say only spina bifida for a possible side effect in children, but if the vets can get NHL, why cant it be passed through their blood into their children? my…
I kicked cancers ****!
As of Monday, I am officially done with all my treatments for Hodgkins! Scans look good, and now i'll just be getting new scans every 3 months for a while! I wanted to say thanks to everyone on these boards for being such a great inspiration and support team for me this past year! I never thought i'd see the end of the…
did anyone out there come down with long term effects????
i am 13 years stage 4 hodgkins free and so far the only longterm effect i came down with was an under active thoyroid which the radiation killed...i am at high risk for alot of long term complications like heart disease, breast cancer, thyroid cancer etc..i was just wondering how many people actually did come down with…
Blood Counts
My father has Non-Hodgkin's Lymphoma. This is his 3rd relapse, and he was supposed to be admitted to Moffitt Cancer Center in Tampa on Thursday for 5 days of intensive chemo (Etoposide, Cisplatin, Cytarabine, and Ritual). The plan was to do a 5 day intensive now, one in February. If the PET scan in March then shows at…
Houston update-MIL update
Hi All, Thanks for all the well wishes and advice. I am safely in Houston with only minor problems getting here. Plane had a broken something in Dallas, but we are here as of 9 last night. My first appointment is at 10 tomorrow so I plan on arriving at 9. I was told to use the valet and that they/dr will validate it for…
Sue- did you get final results?
Hi Sue, I know you had your last chemo on 12/14 and then after that you'd do the PETscan. I have been thinking of you and praying. I just came to this site after a month or so, been busy with my mom. I am wondering how things turned out. Roya
Can't stop crying
The week after I got my diagnosis in May, my dear friend and fellow board member of a local non profit was also diagnosed. I have NMZ NHL Stage iv. He had SMZ NHL. We called ourselves the Lymphoma twins and we emailed and talked constantly about how we would beat this together. He needed to get back on his bike next summer…
How are you doing Lisha?
Hi Lisha, Just wanted to tell you I am thinking about you and anxiously waiting to hear any "NEW" news or a progress report on you getting some kind of treatment going. I'm keeping you in my prayers every day and hope to hear from you soon. Also keeping Delores and your mom in my prayers...hope all is ok with both of them…
update and questions
I forgot to mention, I go back in may 2011 for blood tests, no scans. The oncologist told me they can check the blood for any changes including bone marrow involvement. Never heard of that. The down side, I have other problems that took the joy out of my good news. The exact words were: There is mild patchy FDG around the…
Doc visit today whew!
Mammo was good. Blood work good. He's not overly concerned about the swelling, can't feel any discernable nodes. He's going to send to a lymphadema clinic about the swelling so that they can look at and teach me what to watch for and how to deal with it. Told me if it gets worse to call him and he may send me for a…
remission or gone
Hello all, I saw my oncologist monday jan 3. She informed me the NHL is gone. The results of the pet scan I had on dec 29, 2010 was negative. 3rd scan that was negative. My small bowel perforated in sept 2009 from NHL. My small bowel was resected and most likely all cancer cells were removed. I then had only 4 weeks of…
Anybody know anything about Lymphadema?
I'm going to be referred to a clinic for it, and have no friggin clue what it is. Can anyone help me? Also, he told me to be careful with my left arm for scratches and stuff.....yeah right, 12 week old puppy with needles for teeth???? I almost laughed.
Ok...the holidays are over..so...
Whats up peeps??? The holidays are over so lets check in and share whats going on. Up-coming tests? How your feeling? etc,etc. I'll go first...my port gets flushed on the 11th...first CT scan on the 18th and results of the scan will be reviewed with my oncologist on the 25th. I'm still pretty tired, but nothing going on…
To Don Engel re: Cesium therapy
Hello I'm new to this board and I've jsut read your earlier reply (around March?) where you mentioned that you were using high Cesium therapy for B cell lymohoma. I'm wondering how that is coming along as it's something I'm also considering although I'm a little hesitant as I've heard it can cause heart palpitations. Which…
NHL / Rituxan or Herbal ESSIAC
Hello, Thank all of you for your responses. Have any of you taken Essiac / Caisse's tea. I have been doing alot of reseach on rituxian and Essiac tea. My doctor recommends rituxan as maintenance therapy. I have 2 more weeks to decide. My specialist is undecided, no evidence shows weather live expectency improves with or…
Hello there, looking for help. Hubby had SCT for Hodgkins Disease
Hi there. My husband was dx'd with Hodgkins stage IVB 9-09 at age 48. To make a LONG story short he received a rescue autologous stem cell transplant in September with a survival rate of ten-fifteen percent. So far he is alive, but the complications continue. He was hospitalized most of December with c.diff producing…
New pain?
Hey Ladies, Miss Paranoid here. Ok I have encountered a new pain that I really don't understand, and it's really frustrating me. With this last relapse I had a biopsy taken from my left armpit, actually it's just on the outer edge of my breast. For about the last 24 hours I have been having very uncomfortable…
Paranoia
Crap. Here we go again. Paranoia setting in....had a drenching night sweat this week. Don't know what it is about this time of year, but for me seems to be NHL. I found swollen nodes Jan 5th originally in 2006. Thought it was back December 2006 (it was). Relapsed again Jan 2010. I sincerely hope I am simply reading into…
Off for Rituxan
Well in just about 30 minutes I'm off to get another infusion of Rituxan, this time for my RA. I will be getting a much larger dose than for my cancer. I've done this so many times before for my NHL that it's old hat but today I'm nervous. It's going to be a long and I hope uneventful day. But I do want to say HI to all my…
Good News!
I had my 'biopsy' on tuesday, however when they went in to take a piece of what they thought was an enlarged lymph node, the surgeon discovered it was an abnormally enlarged salivary gland instead! I wish they could have told me that without surgery, but I guess that is what was needed. He felt it and examined it, but…
Has anyone else experienced continued pain after treatment?
Hello everyone, I was diagnosed with NHL small b-cell, 3A, grade 1. I have had the 4 weeks of treatment and now on every 2 months for 2 year plan. I am experiencing continued left groin, underarm, and chest pain (hard to breath). Sometimes all of this is barely tolerable even on Neurontin 900MG a day and Vicadin 500MG…
weight gain?
do you always gain weight with treatment? I am worried about this since i am over weight to begin with.
Early Xmas present
Well,quite a few of us got an early Xmas present this year. We heard the magic word REMISSION. There are still a few more that will hear that same word in about a month. Then a few more that are working hard on it and their gift will be the same. All of you have really helped me thru this diagnoses that I got back in May…
Following Rituxen
Hi, Had four infusions of Rituxen in Sept-Oct of this year for Stage IV NMZ NHL. No Remission yet. Have had repeated upper resp. infections, on antibiotics twice for them. NOW... I have C-diff, a nasty intestinal infection caused by compromized immune system and too many antibiotics! And even though I am on Flagyl (yet…
Best Christmas Gift
Hi Y'All, Sorry that I have not had time to read the posts since I got back from Houston. But I wanted to let you all know that my onc at MD Anderson told us that I AM IN REMISSION!!!! He said that I still have several masses in various places, but that nothing is active. All I have to do is go down for full testing every…
Happy New Year
To my CSN family, have a healthy and happy New Year!!!!! Wishing you all Well Vinny
A Christmas Wish!
I just want to take a moment to wish all of my CSN family a heartfelt Merry Christmas! You mean so much to me. Thank you. Mary
Quiet and Clean !
Hi All, Just want to send my love and support to all. I am now sitting in my quiet and clean home. Our youngest daughter(28) moved into her apt. and hubby gave me the gift of housecleaners. The cleaners just left and the only noise is Lola barking for me to give her some attention.. The sun is peeking through overcast…
To Donna
Hi Donna I just read your post regarding Thermophore. I have a very bad right knee. I did google, and found the site right away. My question, Is it the moist heating pad for about $68.00? I read everyone's post each day. I find the info on this site so helpful with my NHL. Thankfully, I am finding info on another problem I…

Lymphoma (Hodgkin and Non-Hodgkin)

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