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Still trying to get a biopsy, feel like giving up
Let me preface this by saying I am sorry if my questions are dumb, I feel like I've gotten a million different responses from doctors. I have posted a few times now and am still trying to get a biopsy due to continual night drenches, itching and a swollen lymph node at my jawline that has not gone away in over a year. I…
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Rituxan
Hey Anybody out there have taken Rutixan as a maintenance drug? Have you any side effects? How long have you been in remission? Thanks Richard
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Cat Scan Results
Just want to let everyone know that my cat scan results were great. They put it like this that I am cancer free for now. I was so glad , and what a Christmas present. Who needs anything more. And I will be praying for everyone to get the same results on here. So for now I will cherish this. I wish you all a good Holiday.…
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Too funny!!!
Steve has been doing the laundry lately to keep me from going up and down the stairs from the laundry room. Anyways..I heard him in the bedroom opening and closing the drawers and then he popped his head into the living a few minutes ago and said he switched my bottle of Prednisone from my panty drawer to my sock drawer.…
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quick update
Hi All, I have missed you all and think only good and positive thoughts for all of you. I will be getting all the remaining tests done this week, Thurs and fri. MRI, BMB, US. My labs from last week are not so good. Still trying to work out a REAL plan, but it seems like MD Anderson is where I will be heading. I am stressed…
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NHL grade 3A, stage 2 or 4
Hi, everyone. I just joined. My mom was diagnosed with NHL grade 3A (high grade) about a month ago. My family is a mess. It seems like it has taken forever since the surgery... she had two of her lymphnodes removed from the right groin area on 10/20. The pathology report came back with nhl 3a (high grade), but no large b-…
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Cat Scan
In 3 weeks it will be one year since I did the Zevalin. So now last Wednesday I will do my second cat scan this year. I go tomorrow for my results. This is the first time they did not call me to let me know it is ok so I would not worry. Well I know I could have called them but really do not want to know sooner. So now I…
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5 dwn 1Ior 3 to go
hi guys its been tolong for me to be able to get on here and read everyones storys and positive comments to me and my daughter.Well i had cycle no 5 of my r-chop last wednesday so far all has been goin well just the ol energy levels are jus not there nemore and i broke out in these itchy little sores that drive me mad but…
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Sue,are you there?
Sue, I haven't seen any post from you in the past couple of days. That either means you are taking a break or the chemo is dragging you down. If it is the chemo you will probably start feeling a little more strength in the last days just before your last session. You are going to have to take it easy though so you can…
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Happy News!
My new grandbaby that is due to arrive in May is a boy! Josh called earlier with the news. Him and his wife didn't care what sex the baby would be and were just thrilled to see the baby moving. He said they watched him moving his little arms and legs and said it was just awesome. Anyways...just thought I'd share the good…
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Mole's growing in radiation area?
Good or bad? I went for a check up yesterday. To see why there is 2 moles growing in the area that was radiated. They told me not to worry unless its a fast growing mole. Say double in size in a week. But they are taking them out, regardless the nature of the barbie twins. Once they take them out and get the results from…
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Update
I just have my 3 three month check up all is clear so I go back in three months. YES I did it, I beat HL yaay! Now the down side my husband who is in the Army is deploying very soonish, we know it would happen sooner or later. I just ask that all pray or belive or whatever you do, that my husband stays safe and come back…
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Lets pretend
Hi All, Lets pretend that there is no cancer and all that goes with it. I'm really needing to be in that place. The onc visit went as I expected it would. No where good. I now need another ultrasound and a brain mri. She told me that I could still do the rads, but the chance of it working was less that 30%. Those aren't…
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Pet Scan
I got the results from my pet scan today. Its clear! When I see my Onc I will know all the poop, but this was good news.
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New day, New post
Hi All, Thank you all for the kind words and caring support. I really needed to hear/read that. I woke up feeling a lot less scared and a lot more angry. I think anger is much better that fear. I am ready to find the solutions. I know in my heart that I need to go elsewhere for tx. I will still get the bmb, us, mri at…
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stress test
Hey everyone, just an update, I made it through the stress test, no major issue's! Kind of tired after the first day of work, but not unbearable! I keep on saying, working is a hell of a lot better then going through what we all experienced or are currently going through. Port flush in two weeks, wish I could just get rid…
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Quick note!
Hello to all. I hope everyone is hanging in there and doing well or putting on the boxing gloves if needed. Tis the season of limited time but I think of you always. Blessings,prayers and good thoughts to one and all. Mary
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Heading to the finish line. Sue
Sue, Make sure you take it extra easy heading into the final round. If you are like me it will take longer to make any comeback as far as building up your strenght at this point. You need to reserve as much as possible.I know it will be a couple of weeks off from #6,but you may have a lot of tiredness all day till then.…
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Sue are you awake
Sue are you awake, I am hoping you or anyone is still out there. I thought that I had it together today, but now that the house is quiet, well I am starting to break. Sitting here thinking about all the ca just living inside me. is very scary. The rational part of me understands that they are growing slow, but the…
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For Liz
Hi Liz, Just wanted to say that I will be thinking of you tomorrow. I hope all goes smoothly for you. I also hope your stress has become a little less. Peaceful healing Lisha
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Meeting with Onc tomorrow
Hi all, Well, tomorrow I meet with the onc to try and get a plan in place. I am not feeling very hopeful at this point. Seems like everytime I see the Dr, things just get more complicated and very difficult. Its hard to stay positive. I am so tired. Our thanksgiving was fine, no major family drama, except for my daughters…
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Please help - Is there truly a cure for people with high Ki-67 levels?
I am hoping someone can give me hope that my wonderful husband will be truly cured. He has Diffuse Large B-Cell Lymphoma, stage 2. His IPI is 1. He is 61 and is tolerating RCHOP well. We have one final treatment to go, just a week before Christmas. Our doctor says my husband has a good chance of a cure. A lifetime cure.…
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back to work
Hey guy's, the migraines are gone, and it's so hard to believe, I'm going back to work on Wednesday. I have a stress test tomorrow, because of the arrhythmia in my heart. I'm more worried about collapsing during the stress test, because it's the first thing remotely resembling exercise since the cancer treatments!!!!…
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where did everyone go?
seems as though friends and family are slowly over time drifting away since finding out about my cancer. i think people seem to think, "oh how terrible to have cancer" and they are now waiting for the worst to happen or maybe, "oh well she has had it this long,{19 mos.} it is old news". i don't get it, has anyone else gone…
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I feel Great But...
Dear Friends, This is the best week after my 7th chemo and after having the blood transfusion feeling more alert actually the first time in a year and half due to anemia and my blood counts looking good even on this off week. But I am dealing with disappointments with my family issues: my 23 yrs old daughter just broke up…
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does anybody know what to when chemo stops working?
Hello everybody and congrats on your remission, my question is what to do when the chemo stops working? My 23 year old daughter has large b cell lymphoma in the mediastinal and it is very agressive, they gave her 12 rounds of chemo and she had a mass about the size of a bb. They decided to wait 3 weeks and do a pet scan…
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Thanksgiving wishes
I would like to wish everyone Happy Thanksgiving, Hope you all had a good one yesterday. I am so grateful to be able to come here and see what is happening. I do all of my tests on Wednesday. And go to the Oncologist December 8th. Always something to worry about. But will see. I wish you all well. Diagnosis : Non-Hodgkins…
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Great Gift Ideas
Hi All, Happy Thanksgiving. Since many folks are thinking Holiday Shopping I wanted to mention to you guys that I got some lovely gifts on the Leukemia/Lymphoma Society Website. They have a gift shop online and for a donation you can get some pretty nice stuff. Got my daughter a yellow necklace (lymphoma color) and a…
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Cancer treatment and successful mistakes
My now wife was diagnosed with Hodgkins in Late 1985. Thank God she is still healthy and cancer free after 25 years. She was 19 I was 26 and still in college. They built the radiation blocks wrong, and basically fried her ovaries. The result? Menopause at 19. Many people said: "Sue the Doctors!" We did not subscribe to…
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Happy Thanksgiving
I know its early but I wanted to wish all my CSN family, a Happy Thanksgiving!!!!! My migraines are killing me, but I got great news, my Spinal Tap came back negative....... For everyone still fighting never give up! Try to make the most out of everyday....... For those in remission, keep your appts. and get your scans!…