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Heading to the finish line. Sue
Sue, Make sure you take it extra easy heading into the final round. If you are like me it will take longer to make any comeback as far as building up your strenght at this point. You need to reserve as much as possible.I know it will be a couple of weeks off from #6,but you may have a lot of tiredness all day till then.…
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Sue are you awake
Sue are you awake, I am hoping you or anyone is still out there. I thought that I had it together today, but now that the house is quiet, well I am starting to break. Sitting here thinking about all the ca just living inside me. is very scary. The rational part of me understands that they are growing slow, but the…
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For Liz
Hi Liz, Just wanted to say that I will be thinking of you tomorrow. I hope all goes smoothly for you. I also hope your stress has become a little less. Peaceful healing Lisha
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Meeting with Onc tomorrow
Hi all, Well, tomorrow I meet with the onc to try and get a plan in place. I am not feeling very hopeful at this point. Seems like everytime I see the Dr, things just get more complicated and very difficult. Its hard to stay positive. I am so tired. Our thanksgiving was fine, no major family drama, except for my daughters…
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Please help - Is there truly a cure for people with high Ki-67 levels?
I am hoping someone can give me hope that my wonderful husband will be truly cured. He has Diffuse Large B-Cell Lymphoma, stage 2. His IPI is 1. He is 61 and is tolerating RCHOP well. We have one final treatment to go, just a week before Christmas. Our doctor says my husband has a good chance of a cure. A lifetime cure.…
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back to work
Hey guy's, the migraines are gone, and it's so hard to believe, I'm going back to work on Wednesday. I have a stress test tomorrow, because of the arrhythmia in my heart. I'm more worried about collapsing during the stress test, because it's the first thing remotely resembling exercise since the cancer treatments!!!!…
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where did everyone go?
seems as though friends and family are slowly over time drifting away since finding out about my cancer. i think people seem to think, "oh how terrible to have cancer" and they are now waiting for the worst to happen or maybe, "oh well she has had it this long,{19 mos.} it is old news". i don't get it, has anyone else gone…
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I feel Great But...
Dear Friends, This is the best week after my 7th chemo and after having the blood transfusion feeling more alert actually the first time in a year and half due to anemia and my blood counts looking good even on this off week. But I am dealing with disappointments with my family issues: my 23 yrs old daughter just broke up…
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does anybody know what to when chemo stops working?
Hello everybody and congrats on your remission, my question is what to do when the chemo stops working? My 23 year old daughter has large b cell lymphoma in the mediastinal and it is very agressive, they gave her 12 rounds of chemo and she had a mass about the size of a bb. They decided to wait 3 weeks and do a pet scan…
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Thanksgiving wishes
I would like to wish everyone Happy Thanksgiving, Hope you all had a good one yesterday. I am so grateful to be able to come here and see what is happening. I do all of my tests on Wednesday. And go to the Oncologist December 8th. Always something to worry about. But will see. I wish you all well. Diagnosis : Non-Hodgkins…
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Great Gift Ideas
Hi All, Happy Thanksgiving. Since many folks are thinking Holiday Shopping I wanted to mention to you guys that I got some lovely gifts on the Leukemia/Lymphoma Society Website. They have a gift shop online and for a donation you can get some pretty nice stuff. Got my daughter a yellow necklace (lymphoma color) and a…
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Cancer treatment and successful mistakes
My now wife was diagnosed with Hodgkins in Late 1985. Thank God she is still healthy and cancer free after 25 years. She was 19 I was 26 and still in college. They built the radiation blocks wrong, and basically fried her ovaries. The result? Menopause at 19. Many people said: "Sue the Doctors!" We did not subscribe to…
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Happy Thanksgiving
I know its early but I wanted to wish all my CSN family, a Happy Thanksgiving!!!!! My migraines are killing me, but I got great news, my Spinal Tap came back negative....... For everyone still fighting never give up! Try to make the most out of everyday....... For those in remission, keep your appts. and get your scans!…
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TO ALL MY NEW FRIENDS.....
I just wanted to come by and wish all of you who came to my rescue a few weeks back a very Happy and Blessed Thanksgiving. You are ALL wonderful.....!!! Well I'm down to one more appt with the Onco on Monday for my final results. I know he has had my results for well over a week. I'm hopeful if it showed anything of…
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Has anyone had any reoccurence - I'm scared!
I have been a Hodgkins survivor for 9 years and just recently have had swollen glands and the doc found a nodule on my thyroid (hypo). Ever since he said I had swollen glands I began itching, not as severe as the first go round, but I have that nagging stinging feeling that moves around... could this just be my mind…
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Sue and Tom
Hi Sue and Tom, I sending you both the very best wishes for your tx this week. Sue, you have one more after this one, your doing great. I'll keep praying that all goes as planned.. Tom, this is your last tx, Hooray ! Stay strong and well and let the healing begin.. Anyone one that I may have missed who is having tx this…
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Happy 36th Anniversary Lisha
Hi Lisha, Happy Anniversary! 36 years...now thats something to be proud of my friend. December 22nd we will have our 32nd. We knew and dated each other 8 years prior to getting married, so we have actully been together for 40 years. Hope you two do something special! Love...Sue (FNHL-2-3A-6/10)
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Lymphoma Non Hodgkin low grade Cancer
I'm new at this board, I felt a lump the size of a golf ball under my jaw at the beginning of October. Last week I was operated. They remove 2 lymph node, the first one had cancer but the other one was not. They took a biopsy under my nose but everything was ok. I don't feel no sweat, did not lost any weight or fatigue, or…
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Thanksgiving Wishes
Hi All, I want to wish everyone a very warm and happy thanksgiving. What ever your traditions are, may they be celebrated with warmth and love. Friends and families, large and small, it's a time for sharing and healing. Happy Thanksgiving Lisha
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migraines
Sorry I have not been on, since the lumbar puncture, I have had horrible migraines for four day's, the first time I had this, I was fortunate not to have them. The pain makes me nauseous, and tough to function. I have read it should only last foe three days, so much for that! LOL Vinny
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ESHAP
Anybody gone thru ESHAP for HD and how bad was it?
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after effect of chemo
Hi, just went thru my second battle with NHL. Been in remission for 19 years. It came back last October. Went thru six months of rituxin and a fludurabine and I'm in remission again. I've had some strange side effects since June. I had intense gastrointestinal problems for six weeks that finally passed. Now I'm…
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Where is Everybody???
Where is everybody? I have not seen a post in 2 days. Did everyone go on vacation Without me.hahahaha. John
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Complications update
Hi All, I thought a new thread would be a better way to respond to all of you. First, thank you for all your prayers and positive words. I know that I can turn to you for any advice or just to share my fears/concerns etc. You all are wonderful. Thank you.... I agree with everything you have said. My pcp also is in…
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Vinny,how did everything go today?
Vinny, Just wondering how everything went today. Let us know when you can. Great wishes that all was OK. John (FNHL-1-4A-5/10)
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PET scan negative
Last Friday I took a PET scan and show no signs of cancer. I am happy ,but I have a different look at life now. The cancer can come back any time, so I am relived that I will not have chemo just yet. I eat healty now and look towards enjoying life to the fullest. Positive thinking, added a little humor helped alot. This…
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Complications
Hi All, First I want to say thanks for all of your warm and caring support. This week has been crazy. I started out getting ready to receive the big dose rads. I did all the pre stuff including Injections of some crazy stuff, WBS,small rad dose and more CT. Then, yesterday after the WBS, the rad oncs told me that I will…
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I was just admitted in the hospital last night have a long story hopefully it may make sense to some
Hello everyone.. I know this is long and I know you all go through so much but if anyone may have some advice I would so appreciate it thank you and god bless! I have had a feeling like a lump in my throat when I swollow on the right side just under my jaw bone at first it didnt hurt at all just was annoying But during the…
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Recommend watching...
This is the web site to watch CiAnna's video blog of her journey with cancer. Total of 23..start with the first one and work your way to the last...worth watching! Sue..(FNHL-2-3A-6/10) http://www.youtube.com/user/ciannawilliams
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Wondering about donald
I am wondering about Donald51, I hope he is doing well. I dont see him on this site any longer. Hope you are still doing well. I go for all my tests December 1st. The 23 of December will be a year since the Zevalin. So will see. I seem to have my problems. I hope you are doing well. Would be nice to hear from you. Hilde