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Here I am
Hi All, So very sorry for the long delay in responding to you. I read your posts, and cried. I am so touched that you worry about me. I feel like I have missed so much with all of you. Congrats to you Sue and Vinny. I have been so overwhelmed with life, that I hardley have time to look at my computer. Delores is still…
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Done with my Big Day with Scan Results and then My Chemo, Huh!
I had been anxious for 6 days waiting for the results of my scans til yesterday. Since my onc is out on vacation, his assist dr., Lisa who works closely with me talked with him before he left. Finally yesterday, Lisa immediately told me that all of my cancer is gone. I am dumbfounded and speechless. John wants me to show…
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Coughing again
Hi all, I don't like to read long posts so I'll give some background and cut to the topic. Diagnosed June 2010 NHL-B 1st stage, 8lb lump in my chest and water under my lungs caused allot of coughing. I completed 6 R-CHOP chemo's and 20 radiations late November, about a month age. The lump was reduced and pet and cat scans…
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Muscle Loss due to radiation
Is anyone suffering from muscle loss due to their treatment as a child? I was treated for Hodgkin's Disease at age 7 and again at age 10. I am 41 presently and loosing muscle in my left lower body. Physicians feel this is due to radiation of my spine during treatment. I would be greatful to hear from anyone with similar…
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Sue are you done?
I know I haven't been here for awhile....potty training puppy takes alot of time LOL. Damn, I forgot how much work the little buggers are between the sweet moments :) My poor arms seem to suffer regardless, needles from chemo, blood work, maintenance and puppy teeth! Oh how I wish for the day when bleeding is not so often…
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LISHA."WHERE YOU BE"
Lisha, Waiting to hear what is going on with you. Been thinking of you just as everyone else here has been doing. I know you have a lot on you right now,so when you get a chance give us a holler. Thinking positive thoughts for you. (JOHN-1-4A-5/10)
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Visit with the Onc
Well saw the Dr today, well the PA. She says she will see me in 3 months after my next Pet Scan. No Retuxin for me.Yeah
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Hi Y'All!
Hey, I just spent an hour writing a post in another thread (for Sue) and somehow it just disappeared. So this time I'm just going to start a new subject. Hey Sue, I read that your last chemo went well and that today you are expecting your pred to take hold. So, how has it been today? Just to let you know, after about 3…
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George - are you there? Treanda kicked me good last week - question.
OMG - my two days in chemo lab for my first doese of Treanda (Bendamustine)-R just about put me under the past 4 days. I could not get out of bed for 3 days - extreme fatigue 10 times worse than my CVP-R of last summer. I couldn't even speak for 2 days, had dreadful diahrrea, extreme thirst and nauseau. They were very…
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Trying to get diagnosed
Thank you all for being so friendly on this board. I have read through many posts and you all seem so supportive. I will try to keep this short. About a year ago I noticed my left arm pit felt swollen and lumpy. I mentioned this to my gynecologist at the time but he didn't really even look. I ended up having some female…
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Doctor says probably lymphoma. PLEASE HELP AND RESPOND!!!!
I am 20 years old and have had a swollen lymph node in my groin are for at least 5 months. I also have a swollen lymph node on the back of my neck which has been there for years. These nodes are hard and fixed they never get smaller or go away. I have horrible night sweats to the point where I wake up and my sheets are…
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The last one for Sue YAHOO!!!!!!!!!!!!
Sue, I know the anticipation level is high and the energy level is low. but at least it is the last one. If you are like I was you will cross the finish line almost on your knees. 5 days of your favorite PRED. and then home free.(Be prepared for a couple of months of low energy with your body building itself back up,that…
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always something
Hey guy's, funny story, I'm at work and my Onc. calls me and tells me she is very sorry.... I'm thinking this can't be good....she proceedes to tell me that when I had my lumbar puncture, I should have received intrathecal chemotherapy.... ARE YOU KIDDING ME!!!!!!!! anyway, I have to go thru another lumbar puncture next…
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CT Scan
I'm 23 years old, and in August of this year I was diagnosed with Hodgkin's Lymphoma, after being sick for a year and a half. I've been doing really well since I've started my chemo, I have 8 done now, and 4 left to go (and I still have my hair). December 6th, I will be having my first CT scan since I've started my chemo,…
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Not been on here in a while....
so thought i'd drop in and say hi... How is everyone doing? I hope all is well anyway. I will drop in from time to time but if anyone would like to say hi or ask me anything regarding my past diagnosis (or anything in general) please feel free to message me, as i get email alerts for my private messages so they will not go…
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New to the site & needing advice
Hello all, New member here! My father was recently diagnosed with NHL-diffused large B cell. He's had 2 treatments of R-CHOP, so far with few side effects. The one that has been the most bothersome is the taste change, not so much with food, but with what he drinks. Its the normal metallic taste that goes along with alot…
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When will it end???
I got a clean Pet Scan and I am happy don't get me wrong. BUT and its a big one. When will all the $hit end???? My husband is like a 5 year old. He can take care of his bodily functions. Thank God, but he can't do the things he could before. Ok so I am officially a ****. My husband has gone thru 3 brain anurisms since…
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Noodle Kugel
Hi All, A few months back, I had mentioned that I had a receipe from my grandmother for noodle kugel. I found it last week. I have posted it on my expression page if anyone is interested. It is yummy, comfort food. Really good for a cold winter treat. Enjoy Lisha
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Still trying to get a biopsy, feel like giving up
Let me preface this by saying I am sorry if my questions are dumb, I feel like I've gotten a million different responses from doctors. I have posted a few times now and am still trying to get a biopsy due to continual night drenches, itching and a swollen lymph node at my jawline that has not gone away in over a year. I…
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Rituxan
Hey Anybody out there have taken Rutixan as a maintenance drug? Have you any side effects? How long have you been in remission? Thanks Richard
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Cat Scan Results
Just want to let everyone know that my cat scan results were great. They put it like this that I am cancer free for now. I was so glad , and what a Christmas present. Who needs anything more. And I will be praying for everyone to get the same results on here. So for now I will cherish this. I wish you all a good Holiday.…
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Too funny!!!
Steve has been doing the laundry lately to keep me from going up and down the stairs from the laundry room. Anyways..I heard him in the bedroom opening and closing the drawers and then he popped his head into the living a few minutes ago and said he switched my bottle of Prednisone from my panty drawer to my sock drawer.…
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quick update
Hi All, I have missed you all and think only good and positive thoughts for all of you. I will be getting all the remaining tests done this week, Thurs and fri. MRI, BMB, US. My labs from last week are not so good. Still trying to work out a REAL plan, but it seems like MD Anderson is where I will be heading. I am stressed…
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NHL grade 3A, stage 2 or 4
Hi, everyone. I just joined. My mom was diagnosed with NHL grade 3A (high grade) about a month ago. My family is a mess. It seems like it has taken forever since the surgery... she had two of her lymphnodes removed from the right groin area on 10/20. The pathology report came back with nhl 3a (high grade), but no large b-…
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Cat Scan
In 3 weeks it will be one year since I did the Zevalin. So now last Wednesday I will do my second cat scan this year. I go tomorrow for my results. This is the first time they did not call me to let me know it is ok so I would not worry. Well I know I could have called them but really do not want to know sooner. So now I…
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5 dwn 1Ior 3 to go
hi guys its been tolong for me to be able to get on here and read everyones storys and positive comments to me and my daughter.Well i had cycle no 5 of my r-chop last wednesday so far all has been goin well just the ol energy levels are jus not there nemore and i broke out in these itchy little sores that drive me mad but…
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Sue,are you there?
Sue, I haven't seen any post from you in the past couple of days. That either means you are taking a break or the chemo is dragging you down. If it is the chemo you will probably start feeling a little more strength in the last days just before your last session. You are going to have to take it easy though so you can…
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Happy News!
My new grandbaby that is due to arrive in May is a boy! Josh called earlier with the news. Him and his wife didn't care what sex the baby would be and were just thrilled to see the baby moving. He said they watched him moving his little arms and legs and said it was just awesome. Anyways...just thought I'd share the good…
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Mole's growing in radiation area?
Good or bad? I went for a check up yesterday. To see why there is 2 moles growing in the area that was radiated. They told me not to worry unless its a fast growing mole. Say double in size in a week. But they are taking them out, regardless the nature of the barbie twins. Once they take them out and get the results from…
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Update
I just have my 3 three month check up all is clear so I go back in three months. YES I did it, I beat HL yaay! Now the down side my husband who is in the Army is deploying very soonish, we know it would happen sooner or later. I just ask that all pray or belive or whatever you do, that my husband stays safe and come back…