-
Follicular lymphoma transformation experience
Hi all, I am posting this as a response to a request in a different thread instead of hijackin that one. The request was for me to share my experience with transformed FL and treatment etc. Some bullet points for background knowledge: Male, 56 Lives in Denmark Kidney cancer survivor since 2010 Diagnosed with FL in 2019.…
-
NON-HODGKIN MARGINAL ZONE
WHAT CAN MY BROTHER-IN-LAW TAKE FOR THIS. ASKING TIM TIPPENS
-
New here.
Hi, everyone. I'm new here. For a while, I've been experiencing non painful lymph nodes. After talking to my GP, she referred me to the general surgery people in the practices network of offices (They're all run by a local hospital) They did some sonograms and recently it showed a difference that made them want to do a…
-
Low testosterone
Hi, I just started to take androgel for a very low testosterone count. I was wondering if anyone else has taken or is taken testosterone hormone therapy. How long did it take to see or feel results? Any side effects from the medication? Thanks for the help Matt
-
Lymphoma and disabilty
Can someone comment who had experience in this area ? I looked that SS Admin site and there are are hole bunch of items. I think,as I read this, there is no point to apply as you going tru initial treatment. … ? Wife is un-employed for last year or so but had worked for about 30 years paying SS. Before diagnosis, she was…
-
In home (CNA/other?) support while going thru chemo
Last Fri wife was diagnosed with non-hodgkin lymphoma. ,, large B-Cell … something… Had one appt in top school cancer program in the area to confirm biopsy… in couple days she is going for pet scan…. and likely for chemo after that. Wife is in middle 50s and so am I. I still need to work. Right now I am working remotely…
-
Exercise and fitness after R-Chop is finished
What fitness level and or fatigue can a patient expect after completion of 6 cycles of R-chop? I went into therapy in good physical shape for a 66 year old man, golfing , cycling, skiing etc. I’ve tolerated the chemo fairly well. Mostly just fatigue. Can I expect to regain my pre- therapy activity and fitness level again…
-
Llarge and giant platelets
Greetings and Regards My son has been dealing with a drop in platelets and large and giant platelets since birth, and unfortunately, he was diagnosed with Non-Hodgkin's lymphoma at the age of 2 and is currently undergoing chemotherapy. The doctor of blood and pediatric oncology says that one of the reasons for this cancer…
-
Symptoms worse after core needle biopsy??
Hi everyone I got the most problematic lymph node biopsied. Now I'm almost constantly itchy, esp after waking up and showers and nighttime, and soooo sleepy. It's so hard to wake up in the morning. Anyone else have this issue? Where it aggravates the symptoms?
-
Tattoos
Tattoo ink contains known carcinogens, and can be transported around the body and end up in the lymph nodes. However, there is little research into whether or not having a tattoo raises a person’s risk of cancer. Researchers from Lund University Sweden used national registries to identify cases of lymphoma and analyze…
-
My journey as a blog
Each individual's journey through chemotherapy and treatment is unique, of course; and many others have written blogs about their particular experiences. For myself, I've found it helpful to read about others' personal experiences; it reminds me that we're all in this together. Here's my own story, such as it is, as I…
-
My daughter 28 has been diagnosed
I need advice on how to cope and be strong for her
-
Starting my own journey with Hodkin's Lymphoma
I'm a 56 year old male, diagnosed last month. I've had one chemo treatment so far, and (my first?) unexpected hospital stay as a result of dealing with the side effects. So much still for me to learn! Glad to meet everyone today!
-
hubby waiting for a diagnosis? Incidentally found Multiple enlarged lymph nodes in abdomen
Hello to all, my husband (only 40 years old, normally super healthy, thin, eating organic, stopped smoking 10 years ago, but wasn’t smoking much anyway, had yearly blood check-ups…) had 2 months ago an MRI for an unrelated reason and it showed “enlarged mesenteric lymph nodes” in the stomach. of course he went to his GP…
-
Hi, new member here. Having issues more than 2 years out.
So, back in Jan '21 I had a cramp in my small intestines area. Got worse over several days and I ended up in Hospital. Turned out to be a large mass 10cm. Surgery was performed, got infection and after about 2 weeks in hospital ,the oncologist came in and stated it was Lymphoma, bulky mass (DELCL). Leaving the hospital,…
-
Needing advice/support for my boyfriend
My boyfriend is 24 and was diagnosed with Hodgkin’s Lymphoma. By the time they even started chemo, it was everywhere and stage four. I’ve been with him for ten months total now, eight of which he has been sick for. He’s had 9 out of 12 chemo sessions and his last pet scan came back clean, so technically, he’s in remission…
-
Issues and care years after treatment ??
Hello I had Hodgkins back in 2008 and 2012. I was treated with AVBD and ICE and an auto SCT. I also had rituximab in 2008 (study) and in 2019 for what was likely an autoimmune disease ITP or maybe B cell lymphoma. I’m sure there is a case study on that one somewhere. Never had radiation treatment. Since 2020 I have been…
-
Help - Just diagnosed with Hodgkin's Lymphoma
58 year old male and was just given the diagnosis a few days ago. Meeting with Hematology and Oncology next week. What should I be purchasing for Chemo visits to make myself more comfortable and to hopefully make the side effects (sores, nausea, pain, hair loss) lessen. Also what should I be purchasing for my home. I live…
-
Ongoing infection post-chemo
Hello, 74 year old female in remission from Diffuse Large Cell NH Lymphoma having completed 5 RCHOP cycles in 11/23. Since then, I'm experiencing repeated infections—cold, influenza, sinus, UTI. Is this common? I'd be interested in hearing if others experience this and how they cope I feel like a sitting duck!.
-
Peripheral T Cell - NOS - pctl
I am 49, was diagnosed pctl nos in sept 2021. I have completed 6 chemo sessions (was clear of cancer after 2 rounds - i think thats a positive) - i am so worried about the future - i have autologous stem cell transplant in 1-2 mos and i just always read how bleak the prognosis is for pctl nos. I have a 13 year old boy with…
-
Anaplastic Large Cell Lymphoma ALK Positive
Anyone on the boards have this besides me?
-
Support for survivor teen daughter
Hello I was wondering if there are any support groups meeting in Connecticut that can help my 17 year old daughter cope. She says that nobody understands how she feels and we can’t possibly relate. I really hope to get her the help she needs here, so her life can have more meaning, and she can cope with having to relive…
-
4 vs 6 cycles of R-CHOP for DBC-NHL
Does anyone have any experience or research on going 4 cycles instead of the recommended 6-8 for diffuse large B cell non-hodgkins lymphoma? I found an article titled: (this site won't let me share the link but you can find it via Google search) Treatment With Four Cycles of R-CHOP Is Non-Inferior to Six Cycles in Some…
-
Past members
Had some time last night so I looked at some old post that go back quite a few years. I came across a member I kinda forgot about. The name was cobra 666. He helped keep the forum going. Anybody know what happened to him. I had a glitch in my computer back then and then I noticed I did not see any more post from him. Also…
-
CNS Lymphoma Newly diagnosed need advice and where are doctors with this specialty - HELP
Hi, I asking for 25 yr old. it looks like he may have CNS Lynphoma. Can survivors tell me how you are doing, and where are the Lymphoma specialist. We are in the Philadelphia area but can travel. Can you tell us the questions we should be asking doctors ? There is some existing comprise to the ammune system. fluid on the…
-
Testimonial on how phototherapy helped this patient with Follicular Lymphoma
I was diagnosed with Follicular Lymphoma in 2015 and after chemo and Rituxan treatments I went into remission. This past year my PET scan showed that the disease had returned. My doctor put me on a two year plan of Rituxan every three months of which I am half way through. I'm thankful that these treatments continue to…
-
ANY LYMPHOMA LATEST NEWS UPDATES?
Can anybody fill me in on the latest indolent follicular lymphoma news. Every site I go to gives different info. I know they have come a long way in the past few years, but its hard to tell just how far when you are new to the site as I am. I was diagnosed stage 4 recently, but from what I read that is not a death sentence…
-
Trying to get help for my sister.
It's tough seeing my sister struggle, especially with young kids to care for. She just had her first treatment, and it's hitting her hard. I'm at a loss being so far away. I want to help, but I don't know how. I thought of reaching out to her community, friends, or other family members for support, but I'm not sure what…
-
Essiac Tea
Has anyone heard about Essiac Tea and how it’s cured NHL …I was diagnosed in February for the third time with NHL …..well if you haven’t I’m cancer Free from taking it for the last couple months without chemotherapy
-
Looking for those treated with AEPA / CAPDac protocol
My 16 year old daughter was just diagnosed with Classical Hodgkin Lymphoma stage 2a. One of the treatment options offered by Stanford is AEPA/CAPDac. Stanford also refers to it as HLHR13. Consists of 2 cycles with Adcetris (brentuximab vedotin), Etoposide, Prednisone and Dozorubicin. Followed by one cycle of…