-
Symptoms worse after core needle biopsy??
Hi everyone I got the most problematic lymph node biopsied. Now I'm almost constantly itchy, esp after waking up and showers and nighttime, and soooo sleepy. It's so hard to wake up in the morning. Anyone else have this issue? Where it aggravates the symptoms?
-
Trust after Cancer
It seemed to me as I was going through cancer there were really only 2 kinds of people. 1. Outstandingly generous people who were doing everything they could to help and were upset they couldn't do more. 2. People who didn't care at all. Maybe they would do a low effort thing, like a box of cookies in the mail for…
-
Tattoos
Tattoo ink contains known carcinogens, and can be transported around the body and end up in the lymph nodes. However, there is little research into whether or not having a tattoo raises a person’s risk of cancer. Researchers from Lund University Sweden used national registries to identify cases of lymphoma and analyze…
-
My journey as a blog
Each individual's journey through chemotherapy and treatment is unique, of course; and many others have written blogs about their particular experiences. For myself, I've found it helpful to read about others' personal experiences; it reminds me that we're all in this together. Here's my own story, such as it is, as I…
-
My daughter 28 has been diagnosed
I need advice on how to cope and be strong for her
-
Starting my own journey with Hodkin's Lymphoma
I'm a 56 year old male, diagnosed last month. I've had one chemo treatment so far, and (my first?) unexpected hospital stay as a result of dealing with the side effects. So much still for me to learn! Glad to meet everyone today!
-
hubby waiting for a diagnosis? Incidentally found Multiple enlarged lymph nodes in abdomen
Hello to all, my husband (only 40 years old, normally super healthy, thin, eating organic, stopped smoking 10 years ago, but wasn’t smoking much anyway, had yearly blood check-ups…) had 2 months ago an MRI for an unrelated reason and it showed “enlarged mesenteric lymph nodes” in the stomach. of course he went to his GP…
-
Hi, new member here. Having issues more than 2 years out.
So, back in Jan '21 I had a cramp in my small intestines area. Got worse over several days and I ended up in Hospital. Turned out to be a large mass 10cm. Surgery was performed, got infection and after about 2 weeks in hospital ,the oncologist came in and stated it was Lymphoma, bulky mass (DELCL). Leaving the hospital,…
-
Needing advice/support for my boyfriend
My boyfriend is 24 and was diagnosed with Hodgkin’s Lymphoma. By the time they even started chemo, it was everywhere and stage four. I’ve been with him for ten months total now, eight of which he has been sick for. He’s had 9 out of 12 chemo sessions and his last pet scan came back clean, so technically, he’s in remission…
-
Issues and care years after treatment ??
Hello I had Hodgkins back in 2008 and 2012. I was treated with AVBD and ICE and an auto SCT. I also had rituximab in 2008 (study) and in 2019 for what was likely an autoimmune disease ITP or maybe B cell lymphoma. I’m sure there is a case study on that one somewhere. Never had radiation treatment. Since 2020 I have been…
-
Help - Just diagnosed with Hodgkin's Lymphoma
58 year old male and was just given the diagnosis a few days ago. Meeting with Hematology and Oncology next week. What should I be purchasing for Chemo visits to make myself more comfortable and to hopefully make the side effects (sores, nausea, pain, hair loss) lessen. Also what should I be purchasing for my home. I live…
-
Ongoing infection post-chemo
Hello, 74 year old female in remission from Diffuse Large Cell NH Lymphoma having completed 5 RCHOP cycles in 11/23. Since then, I'm experiencing repeated infections—cold, influenza, sinus, UTI. Is this common? I'd be interested in hearing if others experience this and how they cope I feel like a sitting duck!.
-
Peripheral T Cell - NOS - pctl
I am 49, was diagnosed pctl nos in sept 2021. I have completed 6 chemo sessions (was clear of cancer after 2 rounds - i think thats a positive) - i am so worried about the future - i have autologous stem cell transplant in 1-2 mos and i just always read how bleak the prognosis is for pctl nos. I have a 13 year old boy with…
-
Anaplastic Large Cell Lymphoma ALK Positive
Anyone on the boards have this besides me?
-
Support for survivor teen daughter
Hello I was wondering if there are any support groups meeting in Connecticut that can help my 17 year old daughter cope. She says that nobody understands how she feels and we can’t possibly relate. I really hope to get her the help she needs here, so her life can have more meaning, and she can cope with having to relive…
-
4 vs 6 cycles of R-CHOP for DBC-NHL
Does anyone have any experience or research on going 4 cycles instead of the recommended 6-8 for diffuse large B cell non-hodgkins lymphoma? I found an article titled: (this site won't let me share the link but you can find it via Google search) Treatment With Four Cycles of R-CHOP Is Non-Inferior to Six Cycles in Some…
-
Past members
Had some time last night so I looked at some old post that go back quite a few years. I came across a member I kinda forgot about. The name was cobra 666. He helped keep the forum going. Anybody know what happened to him. I had a glitch in my computer back then and then I noticed I did not see any more post from him. Also…
-
CNS Lymphoma Newly diagnosed need advice and where are doctors with this specialty - HELP
Hi, I asking for 25 yr old. it looks like he may have CNS Lynphoma. Can survivors tell me how you are doing, and where are the Lymphoma specialist. We are in the Philadelphia area but can travel. Can you tell us the questions we should be asking doctors ? There is some existing comprise to the ammune system. fluid on the…
-
Testimonial on how phototherapy helped this patient with Follicular Lymphoma
I was diagnosed with Follicular Lymphoma in 2015 and after chemo and Rituxan treatments I went into remission. This past year my PET scan showed that the disease had returned. My doctor put me on a two year plan of Rituxan every three months of which I am half way through. I'm thankful that these treatments continue to…
-
ANY LYMPHOMA LATEST NEWS UPDATES?
Can anybody fill me in on the latest indolent follicular lymphoma news. Every site I go to gives different info. I know they have come a long way in the past few years, but its hard to tell just how far when you are new to the site as I am. I was diagnosed stage 4 recently, but from what I read that is not a death sentence…
-
Trying to get help for my sister.
It's tough seeing my sister struggle, especially with young kids to care for. She just had her first treatment, and it's hitting her hard. I'm at a loss being so far away. I want to help, but I don't know how. I thought of reaching out to her community, friends, or other family members for support, but I'm not sure what…
-
Essiac Tea
Has anyone heard about Essiac Tea and how it’s cured NHL …I was diagnosed in February for the third time with NHL …..well if you haven’t I’m cancer Free from taking it for the last couple months without chemotherapy
-
Looking for those treated with AEPA / CAPDac protocol
My 16 year old daughter was just diagnosed with Classical Hodgkin Lymphoma stage 2a. One of the treatment options offered by Stanford is AEPA/CAPDac. Stanford also refers to it as HLHR13. Consists of 2 cycles with Adcetris (brentuximab vedotin), Etoposide, Prednisone and Dozorubicin. Followed by one cycle of…
-
Anyone have any recent info on this?
I have seen this mentioned off and on for at least 10 years. Just wondering if anyone has been in trials for this therapy or discussed it with their treatment team. ***************************** Epub 2023 Jan 26. Targeted Lymphoma Therapy Using a Gold Nanoframework-Based Drug Delivery System Manpreet Bariana 1, Beilu…
-
R chop
Hello, My mom started mini r-chop for her lymphoplasmacytic lymphoma with richters transformation . Her first treatment went ok but she had a reaction to one of the meds which was stopped. Her white blood cell count went from 158 down to 29.5 the day after treatment. The number now is up a bit to 58 a week after treatment.…
-
Waiting for Diagnosis
Hello, I had a neck CT for a follow up to parathyroid surgery I had in the summer, and the report came back showing "3 x 2 cm pathologically enlarged left supraclavicular lymph node. Pathologically enlarged bilateral level 1B lymph nodes, up to 15 mm in long axis diameter. Several greater in number than size lymph nodes in…
-
"To infinity and beyond"
My never-boring, fifteen-year HL adventure has a new twist: I'm scheduled for a liver biopsy in about a month. My enzymes won't play right, and the gastro people want to find out why. I've already had a lot of lab and ultrasound work. It is NOT believed to be malignant in causality. Their best-guess is that it is a long…
-
Biopsy journey
Hi, I just wanted to see about getting other opinions on my whole journey I’ve been on for the last three months. The week before Thanksgiving, I noticed there was a big ball formed under my left armpit. Went to urgent care, she said it was an enlarged lymph node. We did blood work and CBC came back showing high LDH, low…
-
Husband just diagnosed with MCL
After 6 weeks of testing, my husband has been diagnosed with a rare cancer, mantle cell lymphoma. We are waiting for Mayo Clinic in Rochester to call us. We are in the small town of Ironwood in the upper peninsula of Michigan. Our oncologist is out of Chicago. He said he would start my husband on chemo here, while we wait.…
-
Soft tissue Density in Peritoneal
Good evening. Said I wasn’t gonna do it yet her I am. In Aug my Onco ordered CT scan of abdomen & chest due to me being symptomatic -night sweats started in April & now low grade fevers nightly along with fatigue. Have been in remission from FNHL stage 3b since 12/2016. Did 8 rounds of Rituxan for maintenance. the CT scan…