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Those of you NED.....
My hubs is going for some new scans Feb 2. The last ones in Nov showed that the only "active" disease were two small (7mm) nodules in his lungs. we are hoping those two are gone when we scan in Feb. The question I have for all of you is, what treatement are you on while you are NED? Are you still taking the regimen that…
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Life as Art
I'm 11 days out from surgery and feeling pretty calm about it, though of course I do have some background anxiety. But I realise that part of me is looking forward to the experience. It will be a bit like being the star of my own reality show. I guess I don't have a very interesting life, eh? If you view your life as a…
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Update #3 My husband just had his kidney removed
My husband just had his right kidney removed last week due to a 9cm mass. Surgery went well and the doctor said everything was good. We go back in next week for a follow up and move forward from there. How long does it take to get the grade and type of cancer? Would we hear that news at his post op? At any rate...2 days…
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Desensitization for Scanxiety?
I had my surgery 12/13/2016. * First follow-up appointment was 12/19 to get the drain removed, staples out, and get the results of the pathology report. Oh, wait! The path report hasn't been done yet. We'll schedule a follow-up for 12/28 so you can go over the results with the doctor. * Oh, wait! The pathology report still…
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First my right boob, then my right kidney....
Just when you think life couldn't get any more surreal in 2016, I was diagnosed in June with Invasive Ductal Carcinoma, Stage IIB, Grade 3 cancer cells and lymph node involvement to boot. During snowball of further testings (MRIs, ultrasounds and a full body PET scan woo hoo!), a 6.3 cm suspicious mass was located in my…
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Depression
Hi everyone, wondering what you all do to fight the dreaded depression that comes with this disease? My husband is 6 months into Votrient, and his scans are great. He goes to work everyday and walks the dog three times a day....but he says he has been in this great "funk" the past week. Doesn't want to go anywhere or do…
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PA Versus MD
I've been seeing the same oncologist for 4 years. It's been 2 years since my last tumor (adrenal gland). So far in all my followup appointments, I've seen the oncologist. On this last one I was surprised that the oncologist didn't see me. A PA saw me. I asked him what's going on and he said that since this is routine…
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Completely confused
Hello all, I am completely confused. In September I was told I had a anatomocally abnormal kidney. At the beginning of this month I was told that I had a 5.8 cm mass in my right kidney that was suspected rcc or oncocytoma. The ultrasound report was very detailed. I had an Mri on Friday. The results came back-…
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Four years after kidney removal.... it's baaaaaack...
Hi everyone. I had my left kidney removed, T1B, fuhrman grade of 3, about six cm, four years ago. (clear cell). I get regular scans for aortic stenosis and while the yearly chest xrays and abdominal ultrasounds were clear, a recent CT scan for the heart found two pulmonary nodes and some lymph nodes that were suspicious.…
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Six Month Post Surgery Followup
After my wonderful time with the insurance company, I finally did get my CT scan for my six month followup. Well, technically, since I had surgery in mid-June, 2016, I guess it's my seven month follow-up, but who's counting? The outcome was nothing seen on my chest x-ray and there's no evidence of any recurrence or…
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margins
Hey guys, So its two weeks until my 1 year MRI and followup. I went back and looked at my path report again. Its nothing new but still concerns me. So, I thought I would vent on here and see if anyone else has this on report. The tumor was deep in the kidney, stage one but on the renal vein and surgeon could get no margin…
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Should you listen to your wife or not?
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Symptoms From Tumors Showup Before Scan Sees Them?
I've asked this question before. For some reason I can't remember the answer or maybe I didn't get a definite answer. First of all I don't really understand the difference in sensitivity between a contrast CT scan and a non-contrast CT scan. I can't have contrast, so I'm always worried they are going to miss something.…
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Incisions
Hey there, so I am just wondering what kind of incisions everyone had with their nephroctomies? Personally, my tumor was almost 11 cm and they took the whole kidney with it and I have 4 small holes in my abdomen (that look like red dragonflies due to staples) and then a 4-5 inch line under my belly button. No reason I am…
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Seven years on CSN
Still here trying to help the newbies get thru difficult times. A few milestones coming up. Fifteen years since my neph on August 1, 2017. Will be 75 years young next year. Trying to stay heathy and just got over a bad bout with pnemonia. Lost 30 pounds last year as well as another 30 back in 2014. Lucky enough to have met…
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Please help
Hi please can anyone help I'm driving myself insane I was admitted to hospital with acute cholecystis during my stay I had a c t scan which found a complex cystic lesion in my right kidney size 6.0 X 4.8 with multiple internal septations also indeterminate low attenuation lesions in the spleen on discharge an urgent…
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What has cancer taught you about yourself?
foxhd Posts: 2760 Joined: Oct 2011 Jan 02, 2017 - 4:51 pm Just continues to prove I wanted to open up a thought from a recent thread. At least as of today, we all know what NED means. But what else have we all learned? Newbies concerns and fears are different than us old timers. And so are stage 1's vs stage 4's. What…
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ACA Repeal
Just wondering if anyone is worried about the repeal of the ACA by congress. I have insurance through my work and am fortunate to have it. But I was wondering how many people on this board or people with cancer in general will be affected by the potential loss of insurance or the removal of mandatory coverage for people…
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Recovering from radical nephrectomy
I had a radical nephrectomy on May 06, 2009. I had renal cell carcinoma on my right kidney. The tumor was 7cm. My body is still not back to normal and I feel like I should be doing a little better than I am. I still find it very difficult to wear pants. I also feel like a lot of people think well she had the surgery to…
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Quick Update
I've not been here for several weeks so it's taking a long time to catch up with all the messges. I don't have any big news but thought it was time for an update. I've had a bone scan which showed no mets. I have also had the dreaded telescope (cystoscopy?) which was ok except for peeing razor blades for a couple of days.…
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Getting older
--------- An elderly couple had dinner at another couple's house, and after eating, the wives left the table and went into the kitchen. The two gentlemen were talking, and one said, 'Last night we went out to a new restaurant and it was really great. I would recommend it very highly.' The other man said, 'What is the name…
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NED, NED, NED!!
I just got back from my oncologist....Uncle NED decided to stay for a while. Woo hoo! I just saw Todd's post of NED too! Yay, Todd! I am having my thyroid out on the 27th...my oncologist has been concerned about my thyroid since I have had some issues with my multinodular goiter for a while, and even though it is rare for…
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Hi. I'm new here, I'm scared and I need support.
Hello. The past few months have been one hell of a roller coaster for me. I'm ready to get off the ride but it doesn't seem to ever end! In the begining of September of this year, I was diagnosed with Kidney Cancer. The Urologist told me I had a large tumor on my right kidney, and that it, and the kidney, would have to be…
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Lowering IGF-1 levels
Interesting article & video: What’s the Best Way to Lower Levels of IGF-1, the Cancer-Promoting Growth Hormone? https://www.forksoverknives.com/whats-best-way-lower-levels-igf-1the-cancer-promoting-growth-hormone/
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You can't do that! Or can you...?
One of the advantages to ending pain meds three days after surgery, my body is definitely more that willing to let me know if I shouldn't be doing something. I've attempted a very brief very simplified Tai Chi practice a few times since surgery. Nice. Yesterday, my brain and all of my body was really getting into the…
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Is this normal?
Hi guys, sorry but this is another complainy post. But I need to know if what I am going through is normal, or if I should go see my doctor. I am now 25 days post surgery. I returned to work after 11 days, and that has been fine, as I work from home and I would be sitting in front of the TV anyway, so sitting in front of a…
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Breathlessness and extreme dizziness
I am 73 years old and I had my left kidney and a 7-centimeter tumour removed just four weeks ago. The tumour was found by accident in an ultra-sound scan on my prostate, so the whole thing was a major shock. To make matters worse, my heart level plunged through the floor as the surgeon was about to start the operation and…
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NED
I had a scan 2-3 weeks ago. Just wanted to pop in and say it was NED. I'm feeling pretty good about it. This is the first scan I've had in 4 years that I experienced very little scanxiety. When I had my followup, the oncologist didn't even see me this time. He had the PA see me. I'm not sure if I like that, but I decided…
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Another lung surgery..........
Tuesday Jan 3rd going in again to have two more RCC lung mets removed, a 5mm and 6mm in the upper left lobe left lung this time (wedge resections again), traditional lateral thoracotmy. It seems my surgeon likes to get his hands dirty and feel the lung while he has it deflated outside the rib cage and make sure there are…
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They don't know until...
From the blog herecomesthesun927.com Dear every cancer patient I ever took care of, I’m sorry. I didn’t get it. Posted on November 14, 2016by herecomesthesun927 Dear every cancer patient I ever took care of, I’m sorry. I didn’t get it. This thought has been weighing heavy on my heart since my diagnosis. I’ve worked in…