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15 cm mass found on left kidney
22 years ago I was diagnosed with rhabfomyosarcoma. It was found in my right leg. It was really rare at the time. I had my right leg amputated- 3 times, all the way up to the hip and pelvis. I had needle biopsies, chemo, and radiation. I was only 7 years old. Fast forward of today, I started having stomach pains back in…
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Flu- what can I take??
I have been sick for a week now. I know no ibuprofen, but what do you all take OTC for cold/flu? I am so miserable and as usual Google is no help at all. One site says you can take this medicine another says no way. All I have been taking is some Benadryl at night, mostly just to help me sleep. I know we can take Tylenol,…
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Also new to discussons
ultrasound yesterday showed a mass on right kidney, 4x9 4x8 4x6. Due for CT scan in the morning.The anxiety through all of this can be devastating. I am 64, no family history of kidney cancer. Dull ache in the side is what took me to the doctor last week. I am so glad I found this discussion group. The internet info is…
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47 yr old hubby has Stage IV ccRCC that spread to lymph nodes in his throat and lung area
Hi. In October 2016 my husband went to an urgent care because he had discomfort in his lower back that I assumed were kidney stones. A CT scan found a 13 cm tumor in his left kidney and several suspicious lymph nodes. Two weeks later he underwent a radical nephrectomy. At his post surgery appointment we were told that 27…
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Feel Like I am Going Crazy
I know this has been posted many times but I really need support from you guys right now. My husband found out that he has a 6cm mass on his right kidney on Wednesday. He went to the urologist on Thursday and he told him he definitely thinks it's cancer (I can barely type the word) and needs the kidney removed. They are…
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How can I help my husband?
Hi Everyone, My husband is having an open radical nephrectomy of his left kidney and probably his adrenal gland in a week. I would love to have your suggestions as to how I can make him more comfortable during his hospital stay and when he gets home. What did you find to be helpful and what helped? Thanks so much!
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Insurance Companies - AAAAARRRRRRGGGGGHHHHH
So, on another thread I mentioned that I was going to have my first follow-up CT scan nice and early on Monday morning. Well, not so fast bucko. I got a call from Stanford at about 5PM today (Saturday), less than 48 hours before the CT scan, saying that unless I was willing to sign a document taking responsibility for the…
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Rccc stage 1 returns 7 years later
Hi there!! 41 year old female here. Original diagnosis was when I was 32 found incidentally. I had a 2.4 cm lesion on my right kidney and had an open partial nephrectomy. Was monitored for 5 years and all was good. Year 7 I had a CT which was read as negative only to find out 3 years later which would be just last November…
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30 year old, diagnosed with grade 4 cRCC
Hi, It's my first time posting here. I am a 30 year old male, diagnosed with clear cell RCC in November 2016, with radical nephrectomy done. Pathology report showed 2.2cm tumor, no lymph node involvement, but it is grade 4, with no sarcomatoid feature. I have been doing some research, and the fact that it is grade 4 scares…
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Those of you NED.....
My hubs is going for some new scans Feb 2. The last ones in Nov showed that the only "active" disease were two small (7mm) nodules in his lungs. we are hoping those two are gone when we scan in Feb. The question I have for all of you is, what treatement are you on while you are NED? Are you still taking the regimen that…
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Life as Art
I'm 11 days out from surgery and feeling pretty calm about it, though of course I do have some background anxiety. But I realise that part of me is looking forward to the experience. It will be a bit like being the star of my own reality show. I guess I don't have a very interesting life, eh? If you view your life as a…
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Update #3 My husband just had his kidney removed
My husband just had his right kidney removed last week due to a 9cm mass. Surgery went well and the doctor said everything was good. We go back in next week for a follow up and move forward from there. How long does it take to get the grade and type of cancer? Would we hear that news at his post op? At any rate...2 days…
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Desensitization for Scanxiety?
I had my surgery 12/13/2016. * First follow-up appointment was 12/19 to get the drain removed, staples out, and get the results of the pathology report. Oh, wait! The path report hasn't been done yet. We'll schedule a follow-up for 12/28 so you can go over the results with the doctor. * Oh, wait! The pathology report still…
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First my right boob, then my right kidney....
Just when you think life couldn't get any more surreal in 2016, I was diagnosed in June with Invasive Ductal Carcinoma, Stage IIB, Grade 3 cancer cells and lymph node involvement to boot. During snowball of further testings (MRIs, ultrasounds and a full body PET scan woo hoo!), a 6.3 cm suspicious mass was located in my…
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Depression
Hi everyone, wondering what you all do to fight the dreaded depression that comes with this disease? My husband is 6 months into Votrient, and his scans are great. He goes to work everyday and walks the dog three times a day....but he says he has been in this great "funk" the past week. Doesn't want to go anywhere or do…
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PA Versus MD
I've been seeing the same oncologist for 4 years. It's been 2 years since my last tumor (adrenal gland). So far in all my followup appointments, I've seen the oncologist. On this last one I was surprised that the oncologist didn't see me. A PA saw me. I asked him what's going on and he said that since this is routine…
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Completely confused
Hello all, I am completely confused. In September I was told I had a anatomocally abnormal kidney. At the beginning of this month I was told that I had a 5.8 cm mass in my right kidney that was suspected rcc or oncocytoma. The ultrasound report was very detailed. I had an Mri on Friday. The results came back-…
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Four years after kidney removal.... it's baaaaaack...
Hi everyone. I had my left kidney removed, T1B, fuhrman grade of 3, about six cm, four years ago. (clear cell). I get regular scans for aortic stenosis and while the yearly chest xrays and abdominal ultrasounds were clear, a recent CT scan for the heart found two pulmonary nodes and some lymph nodes that were suspicious.…
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Six Month Post Surgery Followup
After my wonderful time with the insurance company, I finally did get my CT scan for my six month followup. Well, technically, since I had surgery in mid-June, 2016, I guess it's my seven month follow-up, but who's counting? The outcome was nothing seen on my chest x-ray and there's no evidence of any recurrence or…
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margins
Hey guys, So its two weeks until my 1 year MRI and followup. I went back and looked at my path report again. Its nothing new but still concerns me. So, I thought I would vent on here and see if anyone else has this on report. The tumor was deep in the kidney, stage one but on the renal vein and surgeon could get no margin…
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Should you listen to your wife or not?
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Symptoms From Tumors Showup Before Scan Sees Them?
I've asked this question before. For some reason I can't remember the answer or maybe I didn't get a definite answer. First of all I don't really understand the difference in sensitivity between a contrast CT scan and a non-contrast CT scan. I can't have contrast, so I'm always worried they are going to miss something.…
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Incisions
Hey there, so I am just wondering what kind of incisions everyone had with their nephroctomies? Personally, my tumor was almost 11 cm and they took the whole kidney with it and I have 4 small holes in my abdomen (that look like red dragonflies due to staples) and then a 4-5 inch line under my belly button. No reason I am…
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Seven years on CSN
Still here trying to help the newbies get thru difficult times. A few milestones coming up. Fifteen years since my neph on August 1, 2017. Will be 75 years young next year. Trying to stay heathy and just got over a bad bout with pnemonia. Lost 30 pounds last year as well as another 30 back in 2014. Lucky enough to have met…
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Please help
Hi please can anyone help I'm driving myself insane I was admitted to hospital with acute cholecystis during my stay I had a c t scan which found a complex cystic lesion in my right kidney size 6.0 X 4.8 with multiple internal septations also indeterminate low attenuation lesions in the spleen on discharge an urgent…
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What has cancer taught you about yourself?
foxhd Posts: 2760 Joined: Oct 2011 Jan 02, 2017 - 4:51 pm Just continues to prove I wanted to open up a thought from a recent thread. At least as of today, we all know what NED means. But what else have we all learned? Newbies concerns and fears are different than us old timers. And so are stage 1's vs stage 4's. What…
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ACA Repeal
Just wondering if anyone is worried about the repeal of the ACA by congress. I have insurance through my work and am fortunate to have it. But I was wondering how many people on this board or people with cancer in general will be affected by the potential loss of insurance or the removal of mandatory coverage for people…
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Recovering from radical nephrectomy
I had a radical nephrectomy on May 06, 2009. I had renal cell carcinoma on my right kidney. The tumor was 7cm. My body is still not back to normal and I feel like I should be doing a little better than I am. I still find it very difficult to wear pants. I also feel like a lot of people think well she had the surgery to…
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Quick Update
I've not been here for several weeks so it's taking a long time to catch up with all the messges. I don't have any big news but thought it was time for an update. I've had a bone scan which showed no mets. I have also had the dreaded telescope (cystoscopy?) which was ok except for peeing razor blades for a couple of days.…
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Getting older