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Kidney Cancer

What to expect at 1st Cat Scan
Hi, I'm going for my 1st Cat Scan with contrast. I've had scans before for things other than my kidneys but never with contrast. I've got my vanilla flavored contrast beverage chilling in the fridge for tomorrow's scan. Any advice as how to get it all down? I'm worried I won't be able to finish it all. Anyone have any…
Hey Cabo You WIN
I stopped taking the CABO on Tuesday the side effects have made my daily life so miserable that I don't want to get out of bed. The pain in my esophagus has been the worst and it just keeps getting worse by the day. I spoke to my doctor and I told him I can't do this anymore even though it is working I am no longer happy,…
What to do...
Hubbie was diagnosed 1 year ago with stage 4 kidney cancer. Cabo made my husband violently ill, he also ended up with colitis from it. Had bad side effects from Votrient and Opdivio did nothing, the mets in his lungs progressed so now taking Affinitor. His MRI on Tuesday now shows 4 new met tumors in his brain, they want…
Path report
My surgery was in October 2016 and i never bothered to read my own Path report. i just trusted my docs and did what they told me. As some of you know i had a run in a couple weeks ago with who i consider a terrible ONC. That led me here and you all all prompted me to get more knowledgeable and invested in my own healthcare…
discharge tomorrow
My drain comes out in about 12 hours (unless it fills the bag overnight) and then I'll be booted out. Thank you all for your support. I'll post again when I get home and don't need to use this tiny phone screen. Steve.
Next...............
Last scan showed that the Votrient I have been taking for almost 5 years has stopped working. Doctor suggested a clinical trial of IPILIMAUB and NIVOLUMAB at Dana Farber. Going to the doctor next Thursday to start the process of entering the clinical trial. How do clinical trials work? I know that I will be reciving a…
Waiting?
Hi, I had a ultra sound done and they found a 5cm mass on my right kidney, I don't have the official report yet but my Dr. (He's a DO) Told me that it's too small to biopsy but if I wanted he could send me to a cancer specialist but they would tell me the same thing? At this point I'm really confused, I have no idea if it…
Histopathology report
Summary: Type: Clear Cell RCC Grade: Fuhrman nucleolar grade 2 Margin: Clear Stage: pT1b Nx Mx Good news... now I am crying and waiting to tell someone. I bet nobody comes in now. Or maybe nobody will feel it like I do. But of course you all know.
Radiation for Stage 4 renal tumors on spinal column
Someone on the renal cancer board suggested a new topic be posted because of interest in metatasis in Stage 4 to the spine. Husband had left kidney removed 8 1/2 years ago at Johns Hopkins, after which he had CT scans yearly all ok. In 2015 a radiologist "overlooked " the fact that a metastasis formed near the spinal…
The Seventh Sneeze
I felt a sneeze coming last night so I grabbed my trusty folded towel, pressed it to my abdomen, and let it happen. It was only a little one, with no follow up. Because sneezing is such a notable event I realised I had sneezed very few times since the surgery. My estimate was seven times. I've also had very few unplanned…
Consequences of long term drug therapy
I've been fortunate enough to have enjoyed success with treatment of my stage 4 cancer. I am so thankful for that. Of course, who knows what the next scan will bring. I know that, too. Drug therapy is a big part of that success. For 3.5 of the last 4 years I've been on either Everolimus, Sutent or Votrient. Currently, I've…
Radiation for Kidney Cancer lesions on Vertebrae
hello group. My mother has kidney cancer and we are terribly scared. A very large tumor about the size of a golf ball was removed (along with the kidney) in June. Just this month she was having severe back pain. We did an MRI and we have discovered kidney cancer lesions on 2 vertebrae (L3 & L5) and many spots in her liver.…
Still here, will check in later
just a quick post to say that I am still here, reading but not posting for a long time. Husband still doing well. Sarah
Checking in
i still peek in once in a while to see how you are all doing. I can never thank you all enough for the support you gave to me and blkjak during his fight. I am happy to see some of you that I remember and hope you continue to kick ****! To all of you who are new, this group is awesome and the support is second to none.
Just found out I have Kidney Cancer
I'm 31 years old and I just found out last Friday I have Kidney Cancer. I was in the hospital for over two weeks with bronchitis and the Flu and they thought I had blood clots in my lungs and when doing the CT scan they seen something on my kidneys. I just had my urologist appointment and my mass is 33 cm big as a golf…
Kidney Function and Weight
Four months ago I went on a food and exercise plan to lose weight. I've lost nearly 31 pounds. One of the things I did not expect was that my kidney function has improved. I didn't think that was possible. My creatinine went from 1.6-1-9 range, to 1.44. In 4 1/2 years with one kidney I never saw a number under 1.6 no…
One year
One year ago today I was having my robot assisted partial nephrectomy for a 2.9 cm clear cell, grade 2 RCC. I am so thankful to have found it on myself thanks to my profession, thankful for each day, and thankful to all of you for the support!! I still worry every single day, but I'm also enjoying each and every minute.
Cant Catch a Break
My Kidney Cancer had previously expanded to Stage 4 and spread to the bone in my right humerous. I had to have a titanium rod placed in that arm because I broke the arm and it was very unstable. Well jump forward 2-3 years and right above the rod the bone cancer came back and today I was doing some work around the house…
CABO Users
To all of the CABO users are any of you having esophagus issues. I am having serious issues with swallowing any think substance for instance last night we had chicken and rice for dinner, and I had a bite of chicken (regular size) but it got stuck in my throat. I had to drink water to get it down and the pain was…
dang...another "dab of cancer" - can a squamous skin cancer be from a kidney cancer??
Hi all - I haven't been able to speak directly to my demotologist yet...and tomorrow I am due to leave the country for a new job...but their office called me to say a biopsy of a nagging blister / cut on my finger is Squamous Cell Cancer. I had a Stage 1A RCC 2.5 years ago with a full nephrectomy right side. Has anyone…
Recurrance Worry
Got my path report and it states stage T1a, Grade 2 Clear Cell. However, I am still constantly worried on possible recurrance and having read that some even have recurrance to the lungs etc. Will be having my first CT on Feb 3 and can't keep the pressure off being anxious. From the report and MD explanation that there is…
26 year old....Just diagnosed
I am 26 years old and I was recently diagnosed with Kidney Cancer. The doctors found it by accident and are baffled as to why I have it. My husband and I have still have many unanswered questions. I was wondering if anyone could help with advice on what to expect. Thank you!
How many of us had Physical Therapy after surgery?
I did, prescribed by my surgeon. I think this helped me with post op gas problems and set me well on the way to recovery. I had the same after IL2. I cant believe its not prescribed for everyone. Certainly, if I was starting this journey now, I would ask for it. Thoughts anyone?
Starting out
Hi, I'm a 48 female and I just had a recent complete abdominal ultrasound showing a 16x20x18 mm complex cyst in upper pole of my right kidney with subtle internal echogenicity. I know it's considered small at this time. Dr has ordered a CT scan with contrast. Went for US after complaining of right sided flank pain that my…
How to change oncologist
Long story but I was diagnosed with RCC in my left kidney in 2013, after the removal of a 7 pound tumor, my left kidney and my spleen to which it was also attached and a very long and painful recovery I was said to be "cured" HAHA. There was no follow up chemo or radiation and I was never asigned an oncologist I went to my…
update. catheter out.
Finally got rid of it about an hour ago. Now I am mobile, but not too much. I was up for 10 minutes to shave then back to bed panting and dozing. Off all pain meds now and feeling good. Steve.
2 Trips to the Emergency Room Last Night
My husband went to the bathroom and had a lot of blood last night. This is the first time since the initial day of finding the tumor. We thought that maybe a trip to the ER would be wise since he also felt a bit lightheaded. They called the urologist and he said it wasn't too surprising and since his bloodwork was…
Anyone get genetic testing
Just wondering if anyone got tested? I am 56 and never thought about needing it till my 32 year old daughter had colonoscopy and had 2 medium pre cancerous serrated adenoma sessile polyps. lynch syndrome is genetic syndrome that is hereditary for colon cancer and other cancers.. kidney cancer is one of the familiar…
update. catheter out.
Finally got rid of it about an hour ago. Now I am mobile, but not too much. I was up for 10 minutes to shave then back to bed panting and dozing. Off all pain meds now and feeling good. Steve.
Good news and bad news
I finally had my surgery. But bleeding caused follow up emergency surgery. So laparospic became open. I am in ICU for another few hours and feeling very bloated. Steve.

Kidney Cancer

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