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Patient-specific Adjuvant Multi-peptide Vaccine after Resection of Metastases
Not sure if anyone have heard of this vaccine before, but the phase I/II result seems relatively good. Results of a Phase 1/2 Study in Metastatic Renal Cell Carcinoma Patients Treated with a Patient-specific Adjuvant Multi-peptide Vaccine after Resection of Metastases. https://www.ncbi.nlm.nih.gov/pubmed/28988765
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help on my results please? does anything stand out to you?
hello, i have a cyst in both my liver and kidney. the doctor has been keeping an eye on my kidney cysts since 2015. this year it grew .2 cm so now it's 2 cm in size. they were a little worried that it looked slightly complexed. i don't have any symptoms to worry about. but i'm just worried about what they said and how…
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Funny
Prior to my surgery in August 2016, I was a pretty heavy sleeper and snored. In fact I'd snore so loud that my kids would tease me the next day because they'd say they could hear me snoring all the way in down the hall to their bedrooms.. I also would get picked on by my wife often about my snoring. Well, after my surgery…
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Lung nodules found on CT scan
Before I had my left radical nephrectomy last August 18, I had CT Angiogram of my abdomen and chest. I had stage 3 cancer which involved the renal vein. The lung findings were a 20mm groundglass nodule in my left lower lobe and a 9mm in my left lung. I had a follow up CT a week ago and the results were unchanged. My…
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17 year old girl with unclassified renal cancer stage II need help!
Hi, my 17 year old daughter just had open radical surgery to remove a 13 cm tumor & right kidney, well what was left of the kidney last thursday. She came home this past monday. We were told yesterday by the pathologist at Ceder Sanai in Los Angeles that she has an unclassified renal cell carcinoma that is very rare, they…
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Need Help Again Sorry
Da Vinci planned for 21St for 4cm(approx). Mass Beyound scared that this will be the death knell for me. And I apologise to all those brave people who have it much worse than me and don't make half as much fuss Mass is sitting at top of right kidney. Doctor says in good position and there is no other sign of any spread…
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Advice for the Newbies so we can help you.
One of the frustrations of those of us who reply to your questions is not knowing enough about your diagnosis to reply apprporriately. Please fill in your CSN Space and detail your diagnosis with your questions. We would like to be able to assure thise of you who have a routine diagnosis that you have a high chance of…
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Kidney Cancer Diagnosis
Hi All, This forum has been a wealth of information -- I just had a robotic partial nephrectomy of my left kidney and a 2.2 cm mass was removed. It was graded pT1A Nx Mn/A and ISUP Nucleoar Grade 2. It was the only tumor they found on the scans and the margins were clean. I have been reading alot about the codes, PT1A…
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liver function tests and leukocytosis after partial
hi. ı am from turkey. ı have renal clear cell grade 2 carcinoma which was 3 cm in size. ı had a left lap. partial nephrectomy 15 days ago. my creatinin is 1.32 and my liver function tests are alt: 120 ast; 42 and my wbc count is 19900( normal is 4000 to 11000) are there any who had same type of problems after surgery?…
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Having kids post Wilms tumor
hello all, I am 26 years old and a 22 year Wilms tumor survivor. I am currently 7 months pregnant. I have been pretty healthy post treatment and have had a pretty easy and very healthy pregnancy so far. My question is, has anyone had similar situations and had their child tested regularly for kidney tumor after they were…
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Path report question
”There is one small focus of apparent vascular invasion at the hilum” This is in my path report everything else was good. My doctor went over the report with me and i don’t remember being told this was a concern. I’ve tried to google it but not found a lot of understandable information. Diagnosos: Renal Cell Carcinoms,…
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Dreaming
So now that the surgery is booked I feel like this whole cancer diagnosis thing is becoming real. I am still waiting for the dr to call me and say they made a mistake and everything is fine. I am also waiting for them to perform the surgery and then tell me "it wasn't even a tumor." Did anybody feel this way? My mind has…
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Kidney stone
Should I be alarmed by getting kidney stones in my one remaining kidney? Thanks guys
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I am right here
After reading Fox's post, I decided to post instead of just reading. Want to help boost Fox's statistic of posts/reads! :) So I had my quarterly scans on Monday. *yawn* Seriously, don't have the results yet. But I feel pretty optimistic and somewhat not really worried about them. Is that progress? I pop in and try and…
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New here.. just a few questions.
Hello, I was diagnosed with CCRCC stage 1 grade 2 and had an open partial nepherectomy on Sept 5. I am 39 years old. My urologist, who did the surgery says he got it all out and that I had clear margins so I was now NED. I haven’t been to an oncologist and I’m not sure I need one since he says he got it all out. I seem to…
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Incision
Since my husband had a full nephrectomy (robotic, laparoscopic), he had to have one larger incision below his belly button (about 3 inches long where they pulled the kidney out). All of the other laparoscopic incisions have now healed completely and they look really good. This larger one has closed on the top, closed on…
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5 Year Scan Results
Just got back from meeting with the Oncologist for Holly's five year scan and all was good. She had her left kidney removed in 2012 after the discovery of Stage 1 RCC. To everyone on the board, thank you for your continued prayers. For anyone just coming to this board, even years from now, you have hope and there are…
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Where's Brenda
She's been on my mind a LOT lately. I hope someone is in contact with her and she's so busy with that grandbaby she isn't missing us. :-) Praying she's well. Donna~
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How quick is surgery after discovery of rcc ?
Hello. I honestly never thought I would be asking questions about cancer, esp. In the kidney but I guess you never know the path you will find yourself on. Sept 4th I asked for an X-ray of my left ribs as I had sharp pain there for several years, nothing wrong with the ribs but they found a 5cm mass on the upper lobe of my…
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NED today :)
Hi Everybody, Got results of my Chest, abdomen, and pelvis scans today (all without contrast). My first scan was 3 months ago and surgery almost 8 weeks ago. My oncologist said he ordered these as a post-surgery baseline. I'm looking for opinions on a few things. A couple of these are for MedScanMan and the rest to…
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scanxiety
I would appreciate good thoughts, vibes, prayers as I go in a couple of weeks for my second follow up appoitnment since surgery to remove my left kidhey last year aroound this time. Six months ago on the first follow up they found a very small "cyst" on my right kidney.I will have a CT scan this time. I am thankful that…
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First CT scan
I had my first CT scan today sense starting 25mg infusions of Torisel and pretreating myself with curcumin for the last two months. The scan showed a lot of tumor shrinkage and no progression, although my liver AST was 111 so they are lowering my dose to 15mg until it gets better. Thank you for all the positive vibes.
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Post Nephrectomy bp & thyroid changes
Husband had routine visit with pcp today one month after nephrectomy for rcc. Bp is running so low Dr is cutting bp meds in half, previously had a hard time controlling bp, may stop taking synthroid since labs now proving taking almost too much medication. Waiting to see creatinine levels on next blood draw, he was running…
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Upcoming scans...
Hey, all, Wanted to share this past experience I just had setting up my scans for my 3rd year. This is the first time that I am on the yearly cycle, and I found it amazing that the doctors' office who follows me conveniently "forgot" to send me the usual letter reminding me to make an appointment. It wasn't until 2 weeks…
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Can I survive renal carcinoma w/out surgery age 74 (Stage 1) Help
I am age 74 just received "90%" diagnosis of renal carcinoma in Type 1 renal masses. No history of kidney function issues at all. Discovered after I was diagnosed with Myasthenia and prescribed Mestinon which caused major abdominal pains. CT Scan then MRI showed "Bilateral renal masses suspicious for renal cell carcinomas.…
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Pale white stool
Does pale stool mean my liver is failing it is no longer pale.
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Y90 Radioembolization update
I had my procedure done January 12 to hopefully kill the five tumors in my liver that were no longer responding to Sutent. I just did scans on 2/15 and all five tumors were blacked out, dead. Supposedly my tumors are gone in my liver after one month. Radioactive isotope work up to 90 days so go back for more scans in…
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Dragging feet
For some reason my insurance is dragging there feet approvlng my surgery for my open procedure in Cleveland which is 3 1/2 hours away. But I thought was in my network. I may have go end up having it locally and that dr want to do robotic surgery. Just hoping this urologist that is not rcc specialist will still be ok. Its…
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Concerned about lesion in remaining kidney
Since my CT scan last week, I am concerned about the diagnosis of my remaining kidney having a low density round mass of 6mm, preferably cyst. This was on my original CT scan 6 months ago showing it was unremarkable. Since I was diagnosed at Stage 1 grade 2, is it a high possibility this is another cancer? I did have a Pet…
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CT Scan Results on Kidney Cyst
About 2 weeks ago I was having some severe left lower abdomen pain. I researched pancreatitis, appendicitis, and gallbladder. I have been a diabetic since I was about 13, now 48. So the pain in my lower right side hurt to even breathe, or turn/twist, laugh, or cough. Oh and back has been killing me. It finally subsided…