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Having kids post Wilms tumor
hello all, I am 26 years old and a 22 year Wilms tumor survivor. I am currently 7 months pregnant. I have been pretty healthy post treatment and have had a pretty easy and very healthy pregnancy so far. My question is, has anyone had similar situations and had their child tested regularly for kidney tumor after they were…
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Path report question
”There is one small focus of apparent vascular invasion at the hilum” This is in my path report everything else was good. My doctor went over the report with me and i don’t remember being told this was a concern. I’ve tried to google it but not found a lot of understandable information. Diagnosos: Renal Cell Carcinoms,…
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Dreaming
So now that the surgery is booked I feel like this whole cancer diagnosis thing is becoming real. I am still waiting for the dr to call me and say they made a mistake and everything is fine. I am also waiting for them to perform the surgery and then tell me "it wasn't even a tumor." Did anybody feel this way? My mind has…
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Kidney stone
Should I be alarmed by getting kidney stones in my one remaining kidney? Thanks guys
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I am right here
After reading Fox's post, I decided to post instead of just reading. Want to help boost Fox's statistic of posts/reads! :) So I had my quarterly scans on Monday. *yawn* Seriously, don't have the results yet. But I feel pretty optimistic and somewhat not really worried about them. Is that progress? I pop in and try and…
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New here.. just a few questions.
Hello, I was diagnosed with CCRCC stage 1 grade 2 and had an open partial nepherectomy on Sept 5. I am 39 years old. My urologist, who did the surgery says he got it all out and that I had clear margins so I was now NED. I haven’t been to an oncologist and I’m not sure I need one since he says he got it all out. I seem to…
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Incision
Since my husband had a full nephrectomy (robotic, laparoscopic), he had to have one larger incision below his belly button (about 3 inches long where they pulled the kidney out). All of the other laparoscopic incisions have now healed completely and they look really good. This larger one has closed on the top, closed on…
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5 Year Scan Results
Just got back from meeting with the Oncologist for Holly's five year scan and all was good. She had her left kidney removed in 2012 after the discovery of Stage 1 RCC. To everyone on the board, thank you for your continued prayers. For anyone just coming to this board, even years from now, you have hope and there are…
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Where's Brenda
She's been on my mind a LOT lately. I hope someone is in contact with her and she's so busy with that grandbaby she isn't missing us. :-) Praying she's well. Donna~
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How quick is surgery after discovery of rcc ?
Hello. I honestly never thought I would be asking questions about cancer, esp. In the kidney but I guess you never know the path you will find yourself on. Sept 4th I asked for an X-ray of my left ribs as I had sharp pain there for several years, nothing wrong with the ribs but they found a 5cm mass on the upper lobe of my…
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NED today :)
Hi Everybody, Got results of my Chest, abdomen, and pelvis scans today (all without contrast). My first scan was 3 months ago and surgery almost 8 weeks ago. My oncologist said he ordered these as a post-surgery baseline. I'm looking for opinions on a few things. A couple of these are for MedScanMan and the rest to…
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scanxiety
I would appreciate good thoughts, vibes, prayers as I go in a couple of weeks for my second follow up appoitnment since surgery to remove my left kidhey last year aroound this time. Six months ago on the first follow up they found a very small "cyst" on my right kidney.I will have a CT scan this time. I am thankful that…
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First CT scan
I had my first CT scan today sense starting 25mg infusions of Torisel and pretreating myself with curcumin for the last two months. The scan showed a lot of tumor shrinkage and no progression, although my liver AST was 111 so they are lowering my dose to 15mg until it gets better. Thank you for all the positive vibes.
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Post Nephrectomy bp & thyroid changes
Husband had routine visit with pcp today one month after nephrectomy for rcc. Bp is running so low Dr is cutting bp meds in half, previously had a hard time controlling bp, may stop taking synthroid since labs now proving taking almost too much medication. Waiting to see creatinine levels on next blood draw, he was running…
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Upcoming scans...
Hey, all, Wanted to share this past experience I just had setting up my scans for my 3rd year. This is the first time that I am on the yearly cycle, and I found it amazing that the doctors' office who follows me conveniently "forgot" to send me the usual letter reminding me to make an appointment. It wasn't until 2 weeks…
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Can I survive renal carcinoma w/out surgery age 74 (Stage 1) Help
I am age 74 just received "90%" diagnosis of renal carcinoma in Type 1 renal masses. No history of kidney function issues at all. Discovered after I was diagnosed with Myasthenia and prescribed Mestinon which caused major abdominal pains. CT Scan then MRI showed "Bilateral renal masses suspicious for renal cell carcinomas.…
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Pale white stool
Does pale stool mean my liver is failing it is no longer pale.
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Y90 Radioembolization update
I had my procedure done January 12 to hopefully kill the five tumors in my liver that were no longer responding to Sutent. I just did scans on 2/15 and all five tumors were blacked out, dead. Supposedly my tumors are gone in my liver after one month. Radioactive isotope work up to 90 days so go back for more scans in…
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Dragging feet
For some reason my insurance is dragging there feet approvlng my surgery for my open procedure in Cleveland which is 3 1/2 hours away. But I thought was in my network. I may have go end up having it locally and that dr want to do robotic surgery. Just hoping this urologist that is not rcc specialist will still be ok. Its…
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Concerned about lesion in remaining kidney
Since my CT scan last week, I am concerned about the diagnosis of my remaining kidney having a low density round mass of 6mm, preferably cyst. This was on my original CT scan 6 months ago showing it was unremarkable. Since I was diagnosed at Stage 1 grade 2, is it a high possibility this is another cancer? I did have a Pet…
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CT Scan Results on Kidney Cyst
About 2 weeks ago I was having some severe left lower abdomen pain. I researched pancreatitis, appendicitis, and gallbladder. I have been a diabetic since I was about 13, now 48. So the pain in my lower right side hurt to even breathe, or turn/twist, laugh, or cough. Oh and back has been killing me. It finally subsided…
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pancreatitis after surgery ?
I had surgery about 2 weeks ago to remove my spleen / left kidney / 4 lyph nodes and gland. Last thursday i was in a lot of pain so i went to the ER which at that time they did a CT of my chest and abodem. They found that my pancreatitis was inflammed and that my white cell count was extermly high. The surgian removed 4…
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stomach Binders
Looking for tips on recovery from a open partial. I think i read on this board about stomach binders. I have had a cesection and wondering if a open partial is similar to that in recovery. I handle that surgery pretty well, but i was alot younger. Any tips well help. Thanks again
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Para aortic and lung nodule
I had partial neprektomi (left kydney) 3 mont ago, 3,7 cm renal cell carcinoma, and the pathologi resutl are, #Tumour limited to the lydney.#Resection margin not involvet by tumor #no lymfe nodes identified#necrocis not identified#non neoplastic, glomerolusclerosis and some intestitial chronic inflamatory infiltrate…
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Stopping treatment prematurely???
I am stage 4 RCC for 4 yrs.. left kidney & renal vein removed. 1 lymphatic node in lung disappeared over 2 year treatment with sutent... continued on sutent after disappearance for 1 year. Then, after 1 year of no RCC anywhere, it reappeared in right shoulder bone. Then had surgical removal of visual cancer plus 10…
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Like to hear from anyone that had lung nodules - whether is was a sign of metastasis or not
I had my six month abdominal scan and that was clear, but I also had a Chest Xray and they found a suspicious 5mm spot. Well, a follow-up Chest CT showed two 7mm nodules in the right lung - nothing in the left. As we don't have a previous CT Scan, we don't have anything to compare to. So now it's wait 3 months and take…
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I am nervous
Hi everyone i hope you are all enjoying life. I am having a check up in 2 weeks and this is my first one since the surgery back in June. I had a partial nephrectomy on my left kidney. i am 22 so I think that is why I recovered quickly. I wasn't nervous or scared for surgery just confused as to how I had cancer... I felt…
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just body pain from surgery and age
I AM VERY STRAIGHT FORWARD HAD CANCER 3 TIMES FIRST AND LAST FROM MELINOMA THE SECOUND KIDNEY ONLY HAD A BIT OF PAIN BEFORE I LOST KIDNEY ONCE IT WAS GON BODY JUST STARTED GOING DOWN HILL I HAVE FOUND CBD OIL HELPS ALOT WOULD USE THC OIL BUT I WORK FOR A GOVT ENTITY WHO DOE RANDOM TESTING SO I WILL KEEP GOING TILL I RETIRE…
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GROIN PAIN AND KNUMBNESS
HAD KIDNEY SURGERY IN 2014 REMOVAL OF KIDNEY WITH TUMOR THE SIZE OF HARDBALL FOUND IT BECAUSE MY BACK WAS HURTING AFTER SURGERY I STILL GET KNUMBNESS FROM RIGHT GROIN TO KNEE AND A EXTREEMLY PAINFULL THROBING IN SAME AREA LIKE I HAVE A HERNIA GLAD THEY DONT HIT THE SAME TIME, AND THE DOC SAYS IT IS NORMAL BECAUSE OF…
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Totally Confused!!!
Hi all! I am new here and would appreciate any feedback/experiences. I will try to make a long story short. Left kidney cyst has been monotored for 1 yr. A few weeks ago I had an ultrasound and a solid mass showed up as well. Had a CT scan with contrast dye and it was confirmed...Solid mass being 3.6cm in size (along with…