-
I need success stories
I would love to hear some success stories about renal cell with metastasis or thoughts on could we posibly live with this as a chronic disease.
-
treatment with interleukin 2
Has anyone been treated with interleukin 2 for kidney mets.Was it successfull ?
-
Uncle NED is visiting but hasn't moved in yet...
An update on my son-in-law John who was diagnosed last summer with stage IV, grade 4 sarcomatoid RCC. The latest scans came back a week or so ago and there are NO visible tumors anywhere and the one on his aorta that was zapped with SBRT a few months ago is totally non-existant now (only scar tissue from the radiation burn…
-
Kidney removal for RCC and now burning when urinate
Has anyone experienced extreme burning and painful urination after kidney removal? I had kidney removed 7/21/17 for RCC and four weeks after surgery I started having a lot of pelvic pain and painful urination. Since then I was treated for kidney and bladder infection but urine cultures have been clear. I had a CT without…
-
Optimistic Girl thinking of you
sendin best wishes on your husbands surgery hope all goes well
-
We have a plan
After the Shock of been told I had a 3.7cm kidney mass we now have a plan a. da vinici partial will be done on Sept 21st b surgeon measured mass as 4.2 cm so I went into meltdown again thinkng that it had spread everywhere c). Chest CT was clear d) didn't have a bone scan so panicking about that but doesn't think I need…
-
Newly diagnosed and upcoming surgery
My 35 year old son was just told he has a mass on his kidney. The 6.8 mass was detected incidently on ultrasound. Immediately, he had a CT scan with contrast and that states possibly oncocytoma or RCC. He had his first appointment with urologist and the urologist feels it is most likely RCC. My son has appointments to…
-
hope for the future
Hello, I just joined the group, well a few months ago I was diagnosed with clear cell renal carcinoma that had spread to the liver. I immediately went in for surgery to have the left kidney and 12.5cm mass removed followed by a surgery to have the left side of my liver removed. All was well until a I had a CT scan a few…
-
Best Kidney Cancer Doctors
Hi everyone, I'm trying to find out who the leading kidney cancer doctors are worldwide (presumably the US), for treating kidney cancer. Specifically this cancer has metastasized to the liver. Travel and money is not an issue. I've done a lot of googling, but any first hand suggestions would be greatly appreciated. Thanks…
-
1st set of scans this week.
Thursday is our 1st set of scans after my wifes partial back in March. Scanxiety is there but for some reason we both feel really well about it.....cautiously optimistic. Let me back up a bit.......we are seeing our Oncologist Thursday who will be ordering the scans. It may be next week, not 100% sure yet but the sooner…
-
Cystic Renal Cell Carcinoma on pathology report?
Just wondering has anyone who received a bosniak category (I.E IIF, III, or IV) on their complex cyst after CT alos has their pathology report mentioned about the cystic structure. Do they specify the histology as "Cystic Renal Cell Carcinoma" or just CCRCC? Reason I asked is that lots of people are saying pathology report…
-
Not in the club.
A friend of mine confided in me on Thursday that he was pissing blood. Brought back all sorts of memories and fears. Turns out his was just a stone. I'm really glad he didn't get an invitation to this club.
-
depresse
4 months out of surgery, had right kidney removed ad ureitia, just had an ablation to remove stub of ureitia.Things seem to be getting bettr just still tired and depressed. Primary DR suggeste antdeprssants . I don, t like the idea. If it goes away in a while.
-
newbie seeks help with mri report
I have browsed through the board looking for other reports from imaging that have helped. This board has so much great information and positive support. I'm still puzzled by one sentence in my kidney MRI report that I was hoping someone might explain for me. There is a 6 mm T2 hyper-intense lesion which does not clearly…
-
Prayers please
Please pray for all those affected by Hurricane Harvey down south in the USA. I have family & friends down there and although we sent a 22ft. enclosed trailer loaded with donations down there a couple of days ago, doesn't even come close to touching what their needs are. Of course safety is a concern as well, only to…
-
RCC & Pancreatic Tumor
I'm in Houston for trips to MD Anderson Cancer Center. I just found out about a pancreatic tumor after my 2 rcc. The next thing you know . . . death and destruction with a hurricane! Harvey hurt my friends and family here in Houston, but so far, there is no news of the death of anyone I know. I'm going to have my boyfriend…
-
Atezolizumab Trial as Adjuvant Therapy Targeting PDL1 After Nephrectomy M0
Roche is running a trial: "A Study of Atezolizumab as Adjuvant Therapy in Participants With Renal Cell Carcinoma (RCC) at High Risk of Developing Metastasis Following Nephrectomy (IMmotion010)" I have started on the trial and had my first infusion last week. Read more and check locations here:…
-
Hospitalized
So I was admitted on last Tuesday for an pneumonia , where that came from idk. Now after a catscan they find it's spreading, growing whatever all while on 60 mg Cabo . And I have a fluidy mass in my nephrectomy bed that they have now put a drain in my back that had to stay for 5 days and it a holiday weekend. Initial…
-
Sutent and Rashes
I ma on Sutent 50 mg, 14 on and 7 off. I have developed a nasty rash on the insides of my arms and thighs. First thought it was jock itch but fungus cream caused a bad chemical/burn reaction. Has anyone experienced this?
-
New to this journey
In July 2017 my husband was diagnosed with stage 4 Kidney Cancer Renal Cell. Since then it has been like a rollercoaster ride with tests, diagnosis and treatment plans. Because his immune system is low (just got over pneumonia) we agreed that he should not be working (works in a warehouse) less chance of catching anything…
-
Confused about aggressive
So, my cancer WAS stage 11 aggressive, I have read that cancer grows only so much each year, then I have seen and heard of some that within few months it has spread fast, I'M CONFUSED.
-
Do you have anxiety problems with one kidney?
I had my right kidney removed in September 2009 and since then I have had some major anxiety problems. When I'm in a public place or sometimes at work I get very nauseous, lightheaded and nervous, bordering on a panic attack. My doctor gave me Xanax and that helps, but I hope I won't be dependent on this drug forever. I…
-
Post surgery treatment
I haven't been on here in a while. Our life has been a whirlwind since my husband's diagnoses of kidney cancer. I read everyone's posts and I do find comfort that we are not alone in this battle. My husband was diagnosed with Stage IV Renal Cell Carcinoma in March and had a left nephrectomy April 24th. He had a solitary…
-
Questions
I am 42 female, I just dont even know what to say. I had a stomach CT in July beacuse I was having stomach pain. I had a Divinci hysterectomy last Aug, and was having pain on my right by the scar. I also had a stomach CT in Jan eariler in the year and nothing was found. I am in the Ohio area. I had just found a new faimly…
-
29 years old, mother of 6, 4.5 cm lesion.
Hi, I don't know if I belong in this area, I am just lost on where else to go. I have had ct and ultrasound done where they found a 4.5 cm mass on my right upper pole. Rim like calcification and was also told I have sponge kidney in the kidney as well. I went in for pain, and was also told my galbladder has polyps and I…
-
I think maybe it's a plot, or...?
Tell people who "haven't been there" that you've got any kind of cancer, kidney or otherwise, and you generally get the "Oh, you poor thing" look. They want to bring you casseroles, drive you to your appointments, come by and read uplifting poetry (or Chicken Soup books) to you. Those who are on your care team are…
-
Bruising
Did anyone here have bruising on their sides after surgery? My husband is on blood thinners and I'm wondering if this is some bleeding under the skin or if it's normal. Has anyone who is not on blood thinners had this?
-
Mixed News
Well I had my annual check today with doctors. I got the results of labs and of ultrasound and chest xray. US and chest xray normal no cause for concern however my labs showed slight hematurua in urine culture. I have had this intermittently, just a trace for a couple of years now but this time doc wants to have an…
-
Newly diagnosed
Newly diagnosed with kidney cancer after having a backache I had X-ray MRI and cat scan which found a 3.777 cm tumor on my right kidney. I'm meeting with an urologist tomorrow am quite scared. I'm hoping it is confined. Would love to hear some positive stories. I have a brand new grandbaby coming in April I'd like to be…
-
just had open partial nephrectomy
thank you all for preparing me? I can barely stay awake.