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Waiting to find out, 4.9cm complex mass
Hello, I recently had an ultrasound due to some left back/flank pain, and the report stated that I have a "complex, hypoechoic mass in the upper pole of the left kidney, measuring 3.5 x 4.9 x 3.3 cm. This has a lobulated contour and internal septations, it does appear to have a cystic component." I have seen a urology…
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Swelling in side
My husband has been diagnosed with kidney cancer in his left kidney. However, he is having pain and swelling in his right side. We have been assured that there is no problem with his right kidney, but this problem continues to get worse. Has anyone had this issue or any suggestions? Thanks.
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Sorry for complaining but
12 more days sitting here tearing my hair out whilst the monster inside me continues to grow and possibly spreadI i have no energy either so can really do much to keep distracted although I am still working screaming on the inside sorry Annie
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New to forum, new diagnosis need help for post surgery
Hello, I have been reading here for just a short while, my husband was just diagnosed 2 weeks ago with 7 cm x 3 cm x3 cm kidney tumor. Dr thinks it is RCC but from position may be TCC. Supposedly confined to kidney to the best of the Dr's ability to tell with ct scans. He is scheduled for davinci robotic nephrectomy in 2…
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I honestly can not believe any of this
Well I have been in the hospital for 12 days now, started with an pneumonia and has progressively gotten very bad. It seems I could have a hole in my small bowel. This is a problem!!!! My chemo has had to stop, which is not good. And it apparently from last scan it's worse. I have an endoscopy tommorrow morning to see what…
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Just Diagnosed...Yep I'm scared.
Well, I've been diagnosed with stage 1 kidney cancer after my doctor found a 2.5 cm solid mass on my left kidney. Surgery is scheduled for a month from now with a partial nephrectomy. I am terrified with emotions running the gamut from "I've got this" to "I'm hiding under the covers and never coming out." Like many of you,…
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Just recieved a good report
Few weeks back I had my follow up reports with NED results. I was diagnosed three years ago with a 10 cm tomur on my right kidney. An immidiate surgery took out tumor along with my right kidney and adrenal gland. And three years later here I am, celebrating my NED report with my dear ones and you all.
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Looking For Benefit of Experience
Hey guys, I'm a 42 year old man from Michigan. After a July of feeling a little more run down than normal, although still keeping up my normal activities of walking the dog a mile a day, playing tennis and baseball, and hiking in the woods, I found myself feeling utterly fatigued and just generally drained by mid-August.…
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clinical trial sutinent and votrient
I was told that a clinical trial at MD Anderson that uses sutinent and votrient may be avilable to me as a course of action if other drugs don't work. I was wondering if anybody else has any experience or info on this combo?
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I need success stories
I would love to hear some success stories about renal cell with metastasis or thoughts on could we posibly live with this as a chronic disease.
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treatment with interleukin 2
Has anyone been treated with interleukin 2 for kidney mets.Was it successfull ?
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Uncle NED is visiting but hasn't moved in yet...
An update on my son-in-law John who was diagnosed last summer with stage IV, grade 4 sarcomatoid RCC. The latest scans came back a week or so ago and there are NO visible tumors anywhere and the one on his aorta that was zapped with SBRT a few months ago is totally non-existant now (only scar tissue from the radiation burn…
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Kidney removal for RCC and now burning when urinate
Has anyone experienced extreme burning and painful urination after kidney removal? I had kidney removed 7/21/17 for RCC and four weeks after surgery I started having a lot of pelvic pain and painful urination. Since then I was treated for kidney and bladder infection but urine cultures have been clear. I had a CT without…
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Optimistic Girl thinking of you
sendin best wishes on your husbands surgery hope all goes well
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We have a plan
After the Shock of been told I had a 3.7cm kidney mass we now have a plan a. da vinici partial will be done on Sept 21st b surgeon measured mass as 4.2 cm so I went into meltdown again thinkng that it had spread everywhere c). Chest CT was clear d) didn't have a bone scan so panicking about that but doesn't think I need…
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Newly diagnosed and upcoming surgery
My 35 year old son was just told he has a mass on his kidney. The 6.8 mass was detected incidently on ultrasound. Immediately, he had a CT scan with contrast and that states possibly oncocytoma or RCC. He had his first appointment with urologist and the urologist feels it is most likely RCC. My son has appointments to…
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hope for the future
Hello, I just joined the group, well a few months ago I was diagnosed with clear cell renal carcinoma that had spread to the liver. I immediately went in for surgery to have the left kidney and 12.5cm mass removed followed by a surgery to have the left side of my liver removed. All was well until a I had a CT scan a few…
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Best Kidney Cancer Doctors
Hi everyone, I'm trying to find out who the leading kidney cancer doctors are worldwide (presumably the US), for treating kidney cancer. Specifically this cancer has metastasized to the liver. Travel and money is not an issue. I've done a lot of googling, but any first hand suggestions would be greatly appreciated. Thanks…
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1st set of scans this week.
Thursday is our 1st set of scans after my wifes partial back in March. Scanxiety is there but for some reason we both feel really well about it.....cautiously optimistic. Let me back up a bit.......we are seeing our Oncologist Thursday who will be ordering the scans. It may be next week, not 100% sure yet but the sooner…
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Cystic Renal Cell Carcinoma on pathology report?
Just wondering has anyone who received a bosniak category (I.E IIF, III, or IV) on their complex cyst after CT alos has their pathology report mentioned about the cystic structure. Do they specify the histology as "Cystic Renal Cell Carcinoma" or just CCRCC? Reason I asked is that lots of people are saying pathology report…
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Not in the club.
A friend of mine confided in me on Thursday that he was pissing blood. Brought back all sorts of memories and fears. Turns out his was just a stone. I'm really glad he didn't get an invitation to this club.
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depresse
4 months out of surgery, had right kidney removed ad ureitia, just had an ablation to remove stub of ureitia.Things seem to be getting bettr just still tired and depressed. Primary DR suggeste antdeprssants . I don, t like the idea. If it goes away in a while.
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newbie seeks help with mri report
I have browsed through the board looking for other reports from imaging that have helped. This board has so much great information and positive support. I'm still puzzled by one sentence in my kidney MRI report that I was hoping someone might explain for me. There is a 6 mm T2 hyper-intense lesion which does not clearly…
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Prayers please
Please pray for all those affected by Hurricane Harvey down south in the USA. I have family & friends down there and although we sent a 22ft. enclosed trailer loaded with donations down there a couple of days ago, doesn't even come close to touching what their needs are. Of course safety is a concern as well, only to…
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RCC & Pancreatic Tumor
I'm in Houston for trips to MD Anderson Cancer Center. I just found out about a pancreatic tumor after my 2 rcc. The next thing you know . . . death and destruction with a hurricane! Harvey hurt my friends and family here in Houston, but so far, there is no news of the death of anyone I know. I'm going to have my boyfriend…
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Atezolizumab Trial as Adjuvant Therapy Targeting PDL1 After Nephrectomy M0
Roche is running a trial: "A Study of Atezolizumab as Adjuvant Therapy in Participants With Renal Cell Carcinoma (RCC) at High Risk of Developing Metastasis Following Nephrectomy (IMmotion010)" I have started on the trial and had my first infusion last week. Read more and check locations here:…
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Hospitalized
So I was admitted on last Tuesday for an pneumonia , where that came from idk. Now after a catscan they find it's spreading, growing whatever all while on 60 mg Cabo . And I have a fluidy mass in my nephrectomy bed that they have now put a drain in my back that had to stay for 5 days and it a holiday weekend. Initial…
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Sutent and Rashes
I ma on Sutent 50 mg, 14 on and 7 off. I have developed a nasty rash on the insides of my arms and thighs. First thought it was jock itch but fungus cream caused a bad chemical/burn reaction. Has anyone experienced this?
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New to this journey
In July 2017 my husband was diagnosed with stage 4 Kidney Cancer Renal Cell. Since then it has been like a rollercoaster ride with tests, diagnosis and treatment plans. Because his immune system is low (just got over pneumonia) we agreed that he should not be working (works in a warehouse) less chance of catching anything…
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Confused about aggressive
So, my cancer WAS stage 11 aggressive, I have read that cancer grows only so much each year, then I have seen and heard of some that within few months it has spread fast, I'M CONFUSED.