Need Help Again Sorry
Da Vinci planned for 21St for 4cm(approx). Mass
Beyound scared that this will be the death knell for me. And I apologise to all those brave people who have it much worse than me and don't make half as much fuss
Mass is sitting at top of right kidney. Doctor says in good position and there is no other sign of any spread
However I keep getting sharp pains in both breasts And under right armpit(god I hate that word) not all the time but I can feel it and I can also feel mass under my rib cage which is just horrible
Do you think that this is a sign that things have spread to lymph nodes
there is no lumps
Willl they look at the lymph nodes whilst doing a partial
Many Thanks and sorry again
Annie
Comments
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So Common
It is so common to have every little pain cause fear that your cancer has spread. I have diagnosed myself with so many types of cancer (none of which were accurate) after my kidney cancer diagnosis that I have lost count! Most of the time before they even allow you to schedule the DaVinci surgery they already know that it has not spread. However, call your doctor to talk to them. They understand. I found that I had severe anxiety after my diagnosis, and I finally asked for help. I am currently taking medication for my anxiety. I am almost 18 months post-op and still cancer free! I, too, had the DaVinci surgery, and the recovery is so much easier! Just remember walk, walk, walk as it will help your recovery. Drink plenty of fluids. Don't push yourself - FOLLOW THE LIFTING RESTRICTIONS. I had a 1.7cm tumor that was removed with clear margains from this surgery. Sending you thoughts and prayers!!!
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HI! I had Davinci last week
HI! I had Davinci last week for partial nephrectomy. My mass was also on the top of my right kidney and is 4.5cm. I had no symptoms of this before. THe mass was found on a CT looking for kidney stones on the other kidney. It had clear margins and no sign of spreading. After the diagnosis I would have random pains on that side near my heart or breast. I think it was purely anxiety! other than the expected pain from the incisions my recovery has not been horrible.
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Thank you
You are both very kind...
thank you for your time and advice I will try to stay strong...
My doctor must be fed up with me ringing him. I am fretting over everything
Annie
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If talking to your doctors
If talking to your doctors give you peace of mind by all means call! I had 3 specialists and was calling all of them over the course of a month before I chose which one I wanted to do my procedure. try not to stress too much about everything. I know it's hard to do. I was and am in those shoes.
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Hyper vigilant
Annie,
You are in a state of mind know as hyper vigilance. Anytime you find something wrong, or out of the normal, with your body you will automatically assume the worst. It took me about a year to get past this in my head.
Here is something you DO NOT want to happen and that is letting this turn into PTSD. You will survive this and it would really suck to spend the rest of your life worrying about it returning or coming back. There is a mental battle you will fight with cancer and that is a battle you may need help with try and find a good therapist and psychiatrist. That's what I did and it helped so much.
I've worked in healthcare for over 20 years, mainly emergency medicine, as an EMT and now as an RN so you can always inbox me if you have any questions.
To answer your questions:
Do you think that this is a sign that things have spread to lymph nodes: No
Will they look at the lymph nodes whilst doing a partial: Unless they saw swollen nodes on the CT Scan I suspect they will not remove any.
Hang in there!
Jason
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Thank youkw80843130 said:So Common
It is so common to have every little pain cause fear that your cancer has spread. I have diagnosed myself with so many types of cancer (none of which were accurate) after my kidney cancer diagnosis that I have lost count! Most of the time before they even allow you to schedule the DaVinci surgery they already know that it has not spread. However, call your doctor to talk to them. They understand. I found that I had severe anxiety after my diagnosis, and I finally asked for help. I am currently taking medication for my anxiety. I am almost 18 months post-op and still cancer free! I, too, had the DaVinci surgery, and the recovery is so much easier! Just remember walk, walk, walk as it will help your recovery. Drink plenty of fluids. Don't push yourself - FOLLOW THE LIFTING RESTRICTIONS. I had a 1.7cm tumor that was removed with clear margains from this surgery. Sending you thoughts and prayers!!!
you had a great outcome So happy that you are doing well
its the waiting and the fear which is had to conquer
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Hi! I too had the tumor
sitting at top of the right side kidney (6cm) but had a partial and kept 70% of that kidney and no lymph nodes were removed. It will be 3 years the 30th of September. Hang on, its a difficult time but you will go thru and have your life back. I did not believe this at the time but it is true! And your fears you will learn to tame them. We loose so much energy worrying! I know its easy for me to say that now but please trust us. Hang in there, you will be fine. Put trust in your caregivers and in yourself.
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WHew.. I can understand why
WHew.. I can understand why you feel the way you do. You are listening to your body. And yes, we do become hypervigilent..for good reason!
Before my surgery, I had pain in an area that the Urolgoist/surgeon said was not related to the tumor. My other doctor said it was not related to what she was treating me for. My primary said we'll we see. If its gone after surgery, then you know. Well it finally left after surgery. It was NOt in a typical place. But you can have REERRED pain.
Now you seem to feel it could be in the lymph system. Again, let the surgeon note that as they DO check for possible spreading lymph node around the tumor. AGain ask your surgeon how they check lymph nodes as you are having something noticable under your arm/breasts.
Let us know how you are doing. And we'll be here for you all the way ok?
Sending you calm, serenity and HOPE for a better future!
Hugs, Jan
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As a guy, I can't comment
As a guy, I can't comment about those particular pains. However, as someone else pointed out, once you are diagnosed with cancer, every new pain that comes up makes you think it has spread somewhere else. This has happened to me many times only to find in my next scan that I am just fine. I do understand the fear. I live it every day. Be happy that you caught this early. That is a wonderful thing.
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Marosa,marosa said:Hi! I too had the tumor
sitting at top of the right side kidney (6cm) but had a partial and kept 70% of that kidney and no lymph nodes were removed. It will be 3 years the 30th of September. Hang on, its a difficult time but you will go thru and have your life back. I did not believe this at the time but it is true! And your fears you will learn to tame them. We loose so much energy worrying! I know its easy for me to say that now but please trust us. Hang in there, you will be fine. Put trust in your caregivers and in yourself.
Marosa,
your comments helped ease my worries some... I mine was also at the top right kidney. 4.5CM. I kept 90% of my kidney. Had a partial 2 weeks ago tomorrow. No lymph nodes taken. I see my Doc tomorrow for follow up. But your wors really helped my worries of "what if"
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Hey Sexy Girlmarosa said:Hi! I too had the tumor
sitting at top of the right side kidney (6cm) but had a partial and kept 70% of that kidney and no lymph nodes were removed. It will be 3 years the 30th of September. Hang on, its a difficult time but you will go thru and have your life back. I did not believe this at the time but it is true! And your fears you will learn to tame them. We loose so much energy worrying! I know its easy for me to say that now but please trust us. Hang in there, you will be fine. Put trust in your caregivers and in yourself.
Thank you
Great to hear your experience and thank you for holding my hand
I am trying....
Annie
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I also had random pains onAngie1496 said:HI! I had Davinci last week
HI! I had Davinci last week for partial nephrectomy. My mass was also on the top of my right kidney and is 4.5cm. I had no symptoms of this before. THe mass was found on a CT looking for kidney stones on the other kidney. It had clear margins and no sign of spreading. After the diagnosis I would have random pains on that side near my heart or breast. I think it was purely anxiety! other than the expected pain from the incisions my recovery has not been horrible.
I also had random pains on the opposite side but since my surgery I haven't felt them.
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Hi Angie yes
surgery on thurs 21st
thank you for remembering me and also to those other special people who emailed Your kindness have truly helped me over the past month and I will always be grateful You know who you are
Da Vinci partial on a 4.2 mass
surgery went very well but I have had a few very very tough days I am sitting in hospital at the end of day four and all I can say is that iceman was right It's hard I would love to meet these lucky souls who go home within 48 hours
Surgeon seemed happy He is a perfectionist so he is not been too cork popping until he sees the Pathology but he said that there were no surprises reckoned size was 4cm
said it was definitely cancerous from what he could see
said there was a layer of fat round it In my drug induced state I keep thinking that that is bad news but I will see him before I leave so will ask.
I am left with approx 80% of kidney and I know that if he had any doubt he would have taken the lot
I will write further when I am stronger and have the results
I feel a lot calmer but know you never stop looking
At the minute I don't know what I am
Cured
Living with cancer
might be cured but just in case we are wrong you have cancer
Some of my symptoms have gone Others haven't
Sometimes Good does happen
Annie
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I'm sorry you are having a
I'm sorry you are having a rough recovery! My tumor was also under fat. It's part of the kidney make up from what I was told. Its hard to say cured. Cancer free is what I've said. In 6 months I hope to say my scans show I'm still cancer free. Everyday you will get a little better. Don't rush it. I'm 2.5 weeks post op. Going back to work onsite tomorrow for at least half a day. Everything tires me. Not used to not being able to do things I did up till surgery. Try to remember we have had a major surgery and our bodies will take time and energy to heal. Good thoughts and prayers for your continued healing and that your pain lessens.
Angie
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Hold on
you are going back to work
Well that won't be me
but that will be a big step for you so good luck
pain is improving
whilst I am happy to be here at the minute it will be great when I get home
Annie
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Several years post-op
Just wanted to weigh in on this. I had a partial open nephrectomy in February, 2011. Have regular scans since then that show the surgeon got it all and there is nothing growing anywhere around the area. For some reason, just before I go in for scans, I start getting weird pains in my back, in the area of my kidneys. I always think that it has returned. It hasn't, it's just my mind playing tricks on me, I guess.
Sending you prayers and positive energy that your results are the same as mine.
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Hi Mary
Oh thank you
what size was your tumour?
Annie
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This happens to me too and IMary H. said:Several years post-op
Just wanted to weigh in on this. I had a partial open nephrectomy in February, 2011. Have regular scans since then that show the surgeon got it all and there is nothing growing anywhere around the area. For some reason, just before I go in for scans, I start getting weird pains in my back, in the area of my kidneys. I always think that it has returned. It hasn't, it's just my mind playing tricks on me, I guess.
Sending you prayers and positive energy that your results are the same as mine.
This happens to me too and I realized from others it is related to anxiety, in our case "Scanxiety". When I was diagonoised last year, I thought I was told that it's my right kidney has the tumor and got flank pain on the right side for days until I saw my speciliast who told me it is on the left side... I still have pain everytime days before my scan....
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