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Thank you all but need your help
Thank you all so much ....you have no idea what you have done for me in the past few days. I have not felt right for the last two months with pains and heart palpitations and A slight pain in my side.. I went to Accident and Emergency twice who checked my bloods and heart and said I was fine... then trips to Gp.. I have a…
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I guess I've gotten spoiled....
OK, maybe I took one of the longer journeys between getting the "mass on kidney" diagnosis, getting it removed, and getting my pathology report. But still, I'm delighted that I saw some really awesome medical people. You might even say I'm spoiled. While all the kidney drama was unfolding, I pretty much ignored taking care…
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Pain after nephrectomy
Had nephrectomy on July 19, 2017 on right kidney. Partial in 2012, cancer returned, T3 diagnosis Rcc as tumor was spreading into vein, but no cells found in any fatty tissue, praise the Lord. I was initially having moderate pain beneath front incision area that would spread to back (where kidney was) in a flashing, burning…
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Took a little break
I just wanted to say hi to everyone! I took a break for a bit to enjoy my summer with my kiddo while he was out of school. Things are settling back to normal so I'm back with lots of reading and catching up to do! Hope you are all well!
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Great Good News
i went to my surgeon today for a one week check up from a partial nephrectomy done last Monday. Healing very well with minimal pain. Today the surgeon said I don't have any restrictions... Wow. Of course I will be taking it easy for awhile. No lifting either. The great part is my pathology report came back and I Do Not…
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Length of surgery, stress!
Hey everyone - I'm still processing this whole thing (I have a 4cm on left kidney, back side that was found a few weeks ago by accident while looking for a reason for stomach pains). But today I got my surgery date of Sept 26. My surgeon was playing it like it's not a big deal, no worries, it's the smallest that we usually…
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Nausea
So I'm going into my 4th month of Cabo and nausea has become my biggest problem. I can't keep any food down. Even when I have nothing in my stomach I'm sick as a dog. Doctor told me to stop the Cabo for 3 days to see if I feel better. Well today is day one off of it and I have gotten sick twice. I've lost close to ten…
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Sexual performance after removing 1 kidney
HI, This is a very personal topic for me and difficult to talk about. I am a 54 year old man in decent shape and 90 deys ago had my left kidney removed with a large tumor. Now I find my self having sexual performance issues. Difficulty keeping an errection and taking longer or inabilty to climax. Can anyone shed some light…
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It's Our Turn...Surgery Today!
My husband, Mike, is in surgery right now. I want to thank everyone here for your support the last three months. I truly appreciate it. You have all helped me tremendously. I'm scared, but I'm relieved it's finally here. It's going to be a long day.
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New Sacns
Had my 2nd round of scans yesterday. Feeling great and pretty excited to get the results tomorrow! I know that up to the first 3 or 4 scans on imuno therapy may show that the tumors may seem that they are growing. But first scan largest in my right lung shrank 60%.
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Pathology results
I had my first post PN follow up. The results showed a 4cm clear cell papillary renal cell carcinoma (T1a NX) Fuhrman grade 2. The said that these are usually a less aggressive type of renal cancer. From what I've read, this seems to be a pretty "good" kind of renal cancer to get. He wants to do follow up scans at 3,6 & 12…
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cryoablation pain
Had a cryoablation for a 5 cm tumor 5 weeks ago still experiencing swelling and pain and burning nerve pain too. How long does this take to go away. Can do nothing but read and sleep
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First appointment one week from PN
I had my PN last Thursday. I get my pathology report on Friday at my post op appointment. What questions should I ask? I'm feeling pretty good. I just get very tired every 3-4 hours and need to lay down. The pain has been pretty manageable with medication. I haven't taken anything today and I'm feeling a little sore but…
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scalp metastasis
Hello. Do any of you have metastasis to the scalp/skin? My husband had three lesions on his scalp before we even knew his RCC had returned. Discovered lung nodules at his five year check up. IL 2, he hated it and it didn't work anyway. Votrient for 9 months....the scalp noduels went away and his disease stabelized. We…
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New - TCC kidney lining
I assume a short introduction is helpful. Im 40 years old. Around the end of April I had quite a bit of blood in my urine. This was the first time and it scared me. So we went to the er. They checked for infections and did an ultrasound. Both came back negative. They started throwing around bladder cancer and told me to…
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Next steps
Clear cell renal cell carcinoma per surgeon was contained to kidney. Tumor was something like 6cm. Saw oncology yesterday and heading for a brain MRI and PET scan. Hubby doesn't ask questions so I don't know why he is having a brain scan!! So nervous. I first was excited to hear it was contained. Now terrified something is…
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Can a partial nephrectomy be done robotically?
Ok, I finally sat down with Dr. Dalton at Northwestern. He first showed me my MRI images. The mass in my kidney is basically taking up the upper left half of my kidney and he said that the Bosniak classification is a "solid 2F", he said the irregular shape is what is giving the radiologists pause. There are septations, but…
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White lines on nails
Does anyone have white lines on their toenails? Would be interested in hearing from you!
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Does hydrocortisone reduce nivolumab's effectiveness?
My wife has been prescribed nivolumab for her kidney cancer by her oncologist. The nivolumab has affected her thyroid and adrenal glands. So, her endocrinologist has prescribed hydrocortisone to address the gland insufficiency. drugs.com says hydrocortisone works by decreasing or preventing tissues from responding to…
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Sarcomatoid chromophobe renal cell carcinoma
My partner had radical nephrectomy on 26th May 17cm tumor in left kidney. We were told renell cell carcinoma however when they did the pathology they said it wasn't and it is Sarcomatoid chromophobe renal cell carcinoma. They said aggressive rare and prepare for devastation. He's only 41 with our young children. Worst…
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MRI Adventure
I needed a MRI recently. During the MRI, while in the "tube", I was daydreaming about sci-fi and space travel -- influenced by the sounds and pulse of the MRI machine. Then the power went out. Blackness and quiet -- it was like it got teleported into space!! Kinda cool.
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TNM Staging Report Confusion
HI! I got my pathology report last week. My Doctor said everying is OK and prognosis is good. Just my blood count is quite low but not concern. The reason my blood count is low as i suffered bleeding on the 2 weeks after the LPN surgical (tumor 4 cm on the left kidney) . I lost quite a lot of blood during urinating. But…
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Good Karma for all my friends!
Not quite four years ago I was diagnosed with a tumor on my right kidney. By October of 2013 it was removed and confirmed to be RCC T1bMxNo. My 5x7 cm mass was removed in a open surgery, This last week I had my 4 year scan and am now happy to be able to report NED is still my friend. As I count my blessings I wanted to…
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Waiting is so hard
Hi I was in hospital last week for complication (they thought) with my Chrons. 2 CT scans, 1 ultrasound later a hard 3cm mass on left kidney. I have had pain, fevers blood in urine. I have now to wait till the Muti Specialist Team for Renal meet in Glasgow which is once a week! My partner works away as a lorry driver. It's…
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Fifteen Years on August 1, 2017
Some observations and a few thoughts: NED X 15 NBD X 15 Each of the 5 grandchildren has become 15 years older. No new ones. The 18 year old girl I met on the beach (Icewoman) will be 73 this fall. The survivor rates for each Stage of RCC have increased over the last 15 years.. Ice Tongs are no longer used for RCC Surgery.…
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Surgery tomorrow scared
tomorrow is doomsday how my husband calls it! We are to arrive at 7.30 to have the embolization done and then his surgery to remove his kidney and that nasty evil 15cm tumour! we are both scared! He keeps crying and I am just secretly hiding my tears cause I am trying to be strong for him and our 3 kids! I will be waiting…
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Just diagnosed..
I'm another newby - Just got diagnosed Wednesday, they found a 4cm tumor on my left kidney. I've been reading through many of your stories, and I find it interesting that many of you went in to get checked for stomach pain, and ended up finding out you had kidney cancer. That's exactly what happened to me - they gave me…
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Opinions would be greatly appreacited
Hi Everyone On October 5, 2012 I had surgery to remove my left kidney. 11CM Stage 3 Grade 3. The tumor had invaded the renal sinus and muscular veins, I was then 50 years old I had scan every three months for a year, then every six months and after 3 years once a year. In October of 2016 the scan disclosed three nodules in…
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Questions I hope to get some answers
Hi guys, haven't been on for a few weeks . Took a trip across country with my daughter, so inlaw and grandson to Disneyland. Had a great time. Doctor gave me a week off of Cabo while I was away, so that was good. Anyway to my newest questions. Before I went away I went to ER for abdominal pain. I had to follow up with a…