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Recent diagnosis
Feeling so vulnertable since this RCC diagnosis. Everything seems strange and frightening. Will it get better. I feel like something is missing-maybe my old self
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Perhaps I spoke too soon...?
As I had posted earlier, I had a PET scan for my lung nodules; scan didn't show any uptake, which we were very happy to hear. While I knew there was a chance that the lung nodules might be too small for the PET to pick anything up, I remained optimistic - and am still working on keeping that attitude. However, I met with…
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Does anyone else feel like a "cheater" when they say survivor?
Hi everyone, I am new to the network. I stumbled across it today and i am so happy to be here and be a member! I had RCC and had an open partial nephrectomy on August 10th. Almost 2 weeks ago. I was diagnosed in July, and after surgery am said to now be cancer free! There has been something weighing heavily on my mind and…
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Urine Blood After surgery
Hi! 2day is my 11th day from my partial kidney removal via laparoscopic surgical. Every thing was good till today. I had urine blood quite a lot..... is this normal or part of the healing..... ?
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Gut bateria influence on response to immunotherapy
Interesting result from a research report for patients under immunotherapy --------------------------------------------------------------------------------------- Unveiling gut microbes' influence on cancer patient response to immunotherapy https://www.eurekalert.org/pub_releases/2017-11/aaft-ugm103017.php
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Checking in
it has been a while but feeling good tonight after stress of scanxiety; my husband had MRI of his spine as well as CT scans and today we met with the radiation oncologist. He is stage 4 and other than a small spot on the adrenal gland, his sporadic mets have been to the spine and SBRT has been successful so that we have…
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Organisation Pre and Post Operation Partial Nephrectomy
Hi, firstly thank you to all the people old and new who post on the board. I hope to be a contributing and useful member. I am schedueld for a partial nephrectomy laproscopically on 9th November in Auckland, New Zealand. I am 50, female, good health and weight, husband, 3 teen kids and a dog. Is an incidentally found…
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What questions should I ask / what do I need to know?
Hi! I’m new here. Im 29 years old and went to the ER with extreme abdominal pain which ended up being diverticulitis but a lesion was found on my right kidney during a CT scan. Anyways, I was referred to a urologist who got me in immediately and ordered another CT scan with and without contrast. He gave me his cell phone…
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My annual check up
Hi everyone I had my 3 1/4 year check up yesterday and got the report today. Thanks heaven All is fine. I had a 10 cm grade two stage two tumor removed in August 2014. Sending you all positive thoughts and prayers for your coming surgeries, next check ups and treatments especially to you Apny.
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Bump in the Road with Votrient
I know there are a lot of threads on Votrient and have tried looking through a lot of them. Many are several years old. After a right kidney nephrectomy, spinal tumor ablation and various other treatments, I was put on Votrient in May. The first scan showed a reduction in all lesions, including the three in my lungs. One…
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Tomorrow is the day
So I am due for surgery tommorrow. I was hoping to get my procedure done at the Cleveland Clinic since it is the best facility near me. But I was not able to get it to work out its 3 1/2 hours away and had some travel issues and insurance blips. I am pretty confident the local urologist, the first doctor seen will do well,…
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Minimally Complex Renal Cyst in rt Kidney
OK, I am a 41 yr old Male and have had a minimally complex (Bosniak IIF) cyst measuring 3.0 cm in my right kidney that was discovered in July 2003. Dr.'s have monitored it with Ultrasound and CT scans over the last 6 years, but this past year, it increased in size to 4.0 cm. Three urologists at Barnes-Jewish hospital in…
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Any others with Unclassified Renal Cell Carcinoma?
I am trying to find others with this rare and aggressive RCC that I have been diagnosed with. There is not much information at there due to it's rarity. -Theresa
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Needing Support
In March I had a partial nephrectomy. My 3 month scan showed that it was possible that RCC came back. My 6th month scan showed that it had probably matastasized to my liver. Today I got the results back that it had mets there. I'm just wanting to know how people who have been in my shoes and taking the medication have…
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Changes in your routine/nutrition
I'm just curious how you changed your routines and nutrition after surgery. I've always been very healthy and for the past year have been into juicing and eating much healthier. I've read many different things about eating cancer fighting foods and juices as the best way to minimize reoccurance of cancer. But for every…
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New'ish Member
Hi all, I'm a new'ish member to this board. I have updated my profile for those who may be interested in my story. The quick summary is I was diagnosed a little more than a year ago, had a radical nephrectomy, gone through a couple rounds of scans and am very thankful to be doing well. I will try to stay up-to-date on the…
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Lung biopsy result
The biopsy result is inconclusive. Is that good or bad? My oncologist suggested CT follow up in 3 to 6 months and a referral to a pulmonary surgeon for an opinion. Right now I'm still in limbo.
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I made it thru...now on to healing
Well, it's over and now I'm on to recovery....I'm not gong to lie, it was tougher than I expected, but not what you think. I went into surgery last Thursday morning, they had me prepped and under anesthesia. My heart then started doing weird rhythms so they stopped, pulled me out of surgery and called in a cariologist.…
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Just saying hi
Fall is the absolute busiest semester of the year for me so I haven't been able to spend much time here. So, I wanted to say hi to all the new members! I hope you are all navigating this journey with as much ease as possible. Also, a big hi and lots of love to all of the usual crew that I've come to care for, I hope you…
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Recent diagnosis
Hi recently diagnosed RCC with surgery pls g-d on 11/27. Dr put my mind at ease after appt. Spend too much time on google not understabding what i was reading but panicing and thinking the worst all the same. 3.8 size mass on left kidney extension into renal sinus. Dr. Says they treat this the same ad T1-I hope so. Anyone…
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Scanticipation
Getting a bit anxious. My 3 ½ year follow up scans and x-ray are on Thursday then I see the doc on Friday to discuss scan results. Leaving for NY tomorrow. I wish it was next week already. Hate this edgy nervous feeling.
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Opinions on laproscopic or partial
Hello, i was recently diagnosed with a 5cm renal mass located centrally in my right kidney.The urologist wants to order an mri to determine if its malignant. My question to you all, are their any surgeons who would try a partial given the location of the mass?
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Need a Little Help
Well, I was really trying to put on my big girl pants this time but I am such a worrier. My husband had his second set of scans after his surgery on Monday. His first scans in July were clear and also done on a Monday. The results were available on Wednesday evening through the patient portal for those. Does that mean they…
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Well...not out of the woods yet I think
My surgeon called today to talk about the results of my tumor. Here is the path: T3a NO M0...The tumor was 2.7cm and had broken containment of the kidney and into the renal vein. My margins are negative... He was very positive saying even though it's graded as a T3a, he doesn't think I'm going to have much chance of…
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Finally surgery date
Here we go...11/14/17. I will be having an open partial Neph. MY mass is small but in a tough location in the middle of my kidney and they cannot get to it with laprosocip so the surgeon will have to use his hands..I guess i will lose a rib as well so I have been told..I'm anxious about the surgery and recovery of the open…
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Going to meet surgeon this morning
Headed to talk to my surgeon this morning feeling a little anxious and touch of relief. .Ready to get this 2.2 cm mass out of my body. I have been working through this since the end of august. NEED prayers hopefully we can get a partial Neph scheduled soon and move on with life!!! Thanks everyone on this site you have been…
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Recommendations
All, My birthday is coming up in November... I am thinking of doing a fund raiser on FB with proceeeds going to Kidney cancer in lieu of gifts. Any recommendations on what organization to list as the benefactor of these funds? Thank you, Angie
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Pls recommend surgeons!!! Anyone knows Dr. Paul Russo?
Pls let us know who the best doctors in the US for partial nephrectomy are? Needed for removal of a large mass. Does anyone know of Dr. Russo from Sloan Kettering?
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How Long Before Doing Hard Abdominal Contractions
I am 18 weeks post partial nephrectomy using the robotic procedure. I still have pain in my abdominal muscles when doing planks but I can do them on my knees which takes some stress off the abdominals. I'd like to hear from others that can share their experience regarding how long it took before you could confidently do…
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28 yrs old possible Kidney Tumor
Hello Everyone: I am new here so I hope i get some replies back. I was diagnosed with Polycystic Kidney disease when I was 13 yrs old. Ever since than I've always had kidney infections and Kidney stones. However, this year has a been a tough year on my poor kidneys specially my left kidney. About a month ago I starting…