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Urologist,Nephrologist, Oncologist???
So we were invited to a large tailgate party yesterday. During the party my wife and I are introduced to an acquaintance of the host " who also had Kidney Cancer" This person is 3 years out from Partial Neph. I explain I am 6 months full neph and schedule for 1st scans this week. They then ask what type. I'm alittle…
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I made it through
I had my surgery 10/30/17 it was a partial Robotic. The surgeon said it was clean margins and thought it was a success. On day two in the hospital the nurses took out the catheter. So I could get up walking . The pain is more the I expected. It seem more like gas pain. There was a complication when the nurses tried to help…
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Surgery Today
I have been browsing this discussion board ever since I got the news the Dr's found a mass on my kidney. I decided to register today. I am schedule for surgery this afternoon. The Dr's found a 6.5cm partially exophytic, centrally necrotic mass in my upper pole of my right kidney. The scans show my lungs, spleen, liver and…
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More cancer in the world
I got a bit behind on this forum and decided to just take a few weeks off. Now I am a long way behind and slowly catching up. I think the forum is quite busy now. While I am musing about nothing in particular... There seems to be an awful lot of cancer in the world these days. Maybe it is a function of getting older, but…
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Cryoablation for kidney cancer
A couple of weeks ago I had a 2cm malignant tumor removed by percutaneous cryoablation. For now, the scans show that the tumor was completely froaen and the outlook is good. My concern is that I have had a consistent swelling (the sizes of an eggplant) starting at my waist and going almost to the navel. I am also…
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Am I the only one
that enjoys watching chickens run around. LOL, seriously though the simple things in life are so calming. my family thinks im crazy , they call me the bird man. i will get home from work and just go out and sit and watch the chickens and drink a beer. what do you guys do to relieve your stress. I also like to go out and…
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Stage t3s
Any encouaging info on stage t3a? I'M SO PANICKED ABOUT THE STAGE AND RECURRENCE-THANKS
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Surgery Completed!!
Quick update! Had surgery yesterday and they ended up taking the whole kidney. Three mths ago the tumor was only 3.6 cm. It ended up being deeper than originally thought. He said it took up 1/3 of the kidney. I will ask dr the size today. Yesterday he was puzzled and said he has NO IDEA now what it is. It has been sent off…
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Stage 1 CCRCC Grade 2 recurrence or treatment questions
I was diagnosed this summer with ccrcc and of course have a harder time dealing with the mental effects of it than the physical ones so far. My urologist gave me the all clear and said he got it all and didn't recommend any follow up treatment or anything other than every 6 month scans. I know this is the normal protocol…
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My experience
Hi all. I've been hanging around reading a lot of your stories the past couple weeks and decided to share mine. I had a 5.5cm mass incidentally discovered on my rt kidney in mid August this year. You can imagine my terror when I first read the words renal cell carcinoma in my ultrasound report. I'm a relatively fit 47 yr…
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CT Scans
Hi, why would having several CT scans harm us. Thanks
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What did you eat to get your energy back?
I'm 2 weeks post-op and feeling pretty good. I've even gone back into my business for a few hours 4 days last week. I know my energy levels and fatique were going to be a problem for awhile, but I was wondering what you ate to give yourself a boost. I'm sure we all had little to no appetite following surgery, but the only…
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Problem with Dissolvable Stitches
My husband had a full nephrectromy on August 21st, so, in addition to the laparoscopic incisions, he has a 3 inch incision below his belly button where the kidney was removed. They used the dissolvable stitches and they also used glue. Well, the dissolvable stitches still haven't completely dissolved, and a couple of them…
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Annissa and Kiwi
Best of luck ladies on your ops I will be here thinking and praying for you You will both be fine. Just hang on and hang in and the worst will be over in No time Then we get to party like the old post op people we are I will Bring the wine Good Luck Annie
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wow not again.
I had what I was beleiving would be my last follow up vist did not go as expected. I was diagnosed with renal cancer in 2013. I had a partial nephrectomy on my left kidney. I had a 4cm cancerous mass removed. All of my scans have been clear up to now. This would have been 5 years. I was not expecting the news that I have…
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Where is everyone?
I've had several messages from friends I've made on this site. They notice I've been quiet. Neuropathies make typing difficult for me and it can take 30 minutes or so to post a message. I no longer can play guitar or ride motorcycles, or use many tools. Including eating utensils. I have my ups and downs but manage to be…
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Complication
Just a random question (something I was wondering about). Did anyone have a laparascopic partial nephrectomy scheduled, but due to complications, etc. end up having a radical or open surgery? Just curious. I also wonder if anyone's tumor grew between finding out and surgery time. Thanks!!!
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Hit my 5 year mark
That happened on October 5th, and I'm feeling like it's just one more reason to celebrate! I am SO happy. Lovin' life!! Donna~
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Recent diagnosis
Feeling so vulnertable since this RCC diagnosis. Everything seems strange and frightening. Will it get better. I feel like something is missing-maybe my old self
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Perhaps I spoke too soon...?
As I had posted earlier, I had a PET scan for my lung nodules; scan didn't show any uptake, which we were very happy to hear. While I knew there was a chance that the lung nodules might be too small for the PET to pick anything up, I remained optimistic - and am still working on keeping that attitude. However, I met with…
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Does anyone else feel like a "cheater" when they say survivor?
Hi everyone, I am new to the network. I stumbled across it today and i am so happy to be here and be a member! I had RCC and had an open partial nephrectomy on August 10th. Almost 2 weeks ago. I was diagnosed in July, and after surgery am said to now be cancer free! There has been something weighing heavily on my mind and…
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Urine Blood After surgery
Hi! 2day is my 11th day from my partial kidney removal via laparoscopic surgical. Every thing was good till today. I had urine blood quite a lot..... is this normal or part of the healing..... ?
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Gut bateria influence on response to immunotherapy
Interesting result from a research report for patients under immunotherapy --------------------------------------------------------------------------------------- Unveiling gut microbes' influence on cancer patient response to immunotherapy https://www.eurekalert.org/pub_releases/2017-11/aaft-ugm103017.php
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Checking in
it has been a while but feeling good tonight after stress of scanxiety; my husband had MRI of his spine as well as CT scans and today we met with the radiation oncologist. He is stage 4 and other than a small spot on the adrenal gland, his sporadic mets have been to the spine and SBRT has been successful so that we have…
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Organisation Pre and Post Operation Partial Nephrectomy
Hi, firstly thank you to all the people old and new who post on the board. I hope to be a contributing and useful member. I am schedueld for a partial nephrectomy laproscopically on 9th November in Auckland, New Zealand. I am 50, female, good health and weight, husband, 3 teen kids and a dog. Is an incidentally found…
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What questions should I ask / what do I need to know?
Hi! I’m new here. Im 29 years old and went to the ER with extreme abdominal pain which ended up being diverticulitis but a lesion was found on my right kidney during a CT scan. Anyways, I was referred to a urologist who got me in immediately and ordered another CT scan with and without contrast. He gave me his cell phone…
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My annual check up
Hi everyone I had my 3 1/4 year check up yesterday and got the report today. Thanks heaven All is fine. I had a 10 cm grade two stage two tumor removed in August 2014. Sending you all positive thoughts and prayers for your coming surgeries, next check ups and treatments especially to you Apny.
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Bump in the Road with Votrient
I know there are a lot of threads on Votrient and have tried looking through a lot of them. Many are several years old. After a right kidney nephrectomy, spinal tumor ablation and various other treatments, I was put on Votrient in May. The first scan showed a reduction in all lesions, including the three in my lungs. One…
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Tomorrow is the day
So I am due for surgery tommorrow. I was hoping to get my procedure done at the Cleveland Clinic since it is the best facility near me. But I was not able to get it to work out its 3 1/2 hours away and had some travel issues and insurance blips. I am pretty confident the local urologist, the first doctor seen will do well,…
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Minimally Complex Renal Cyst in rt Kidney
OK, I am a 41 yr old Male and have had a minimally complex (Bosniak IIF) cyst measuring 3.0 cm in my right kidney that was discovered in July 2003. Dr.'s have monitored it with Ultrasound and CT scans over the last 6 years, but this past year, it increased in size to 4.0 cm. Three urologists at Barnes-Jewish hospital in…