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My experience
Hi all. I've been hanging around reading a lot of your stories the past couple weeks and decided to share mine. I had a 5.5cm mass incidentally discovered on my rt kidney in mid August this year. You can imagine my terror when I first read the words renal cell carcinoma in my ultrasound report. I'm a relatively fit 47 yr…
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CT Scans
Hi, why would having several CT scans harm us. Thanks
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What did you eat to get your energy back?
I'm 2 weeks post-op and feeling pretty good. I've even gone back into my business for a few hours 4 days last week. I know my energy levels and fatique were going to be a problem for awhile, but I was wondering what you ate to give yourself a boost. I'm sure we all had little to no appetite following surgery, but the only…
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Problem with Dissolvable Stitches
My husband had a full nephrectromy on August 21st, so, in addition to the laparoscopic incisions, he has a 3 inch incision below his belly button where the kidney was removed. They used the dissolvable stitches and they also used glue. Well, the dissolvable stitches still haven't completely dissolved, and a couple of them…
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Annissa and Kiwi
Best of luck ladies on your ops I will be here thinking and praying for you You will both be fine. Just hang on and hang in and the worst will be over in No time Then we get to party like the old post op people we are I will Bring the wine Good Luck Annie
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wow not again.
I had what I was beleiving would be my last follow up vist did not go as expected. I was diagnosed with renal cancer in 2013. I had a partial nephrectomy on my left kidney. I had a 4cm cancerous mass removed. All of my scans have been clear up to now. This would have been 5 years. I was not expecting the news that I have…
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Where is everyone?
I've had several messages from friends I've made on this site. They notice I've been quiet. Neuropathies make typing difficult for me and it can take 30 minutes or so to post a message. I no longer can play guitar or ride motorcycles, or use many tools. Including eating utensils. I have my ups and downs but manage to be…
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Complication
Just a random question (something I was wondering about). Did anyone have a laparascopic partial nephrectomy scheduled, but due to complications, etc. end up having a radical or open surgery? Just curious. I also wonder if anyone's tumor grew between finding out and surgery time. Thanks!!!
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Hit my 5 year mark
That happened on October 5th, and I'm feeling like it's just one more reason to celebrate! I am SO happy. Lovin' life!! Donna~
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Recent diagnosis
Feeling so vulnertable since this RCC diagnosis. Everything seems strange and frightening. Will it get better. I feel like something is missing-maybe my old self
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Perhaps I spoke too soon...?
As I had posted earlier, I had a PET scan for my lung nodules; scan didn't show any uptake, which we were very happy to hear. While I knew there was a chance that the lung nodules might be too small for the PET to pick anything up, I remained optimistic - and am still working on keeping that attitude. However, I met with…
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Does anyone else feel like a "cheater" when they say survivor?
Hi everyone, I am new to the network. I stumbled across it today and i am so happy to be here and be a member! I had RCC and had an open partial nephrectomy on August 10th. Almost 2 weeks ago. I was diagnosed in July, and after surgery am said to now be cancer free! There has been something weighing heavily on my mind and…
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Urine Blood After surgery
Hi! 2day is my 11th day from my partial kidney removal via laparoscopic surgical. Every thing was good till today. I had urine blood quite a lot..... is this normal or part of the healing..... ?
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Gut bateria influence on response to immunotherapy
Interesting result from a research report for patients under immunotherapy --------------------------------------------------------------------------------------- Unveiling gut microbes' influence on cancer patient response to immunotherapy https://www.eurekalert.org/pub_releases/2017-11/aaft-ugm103017.php
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Checking in
it has been a while but feeling good tonight after stress of scanxiety; my husband had MRI of his spine as well as CT scans and today we met with the radiation oncologist. He is stage 4 and other than a small spot on the adrenal gland, his sporadic mets have been to the spine and SBRT has been successful so that we have…
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Organisation Pre and Post Operation Partial Nephrectomy
Hi, firstly thank you to all the people old and new who post on the board. I hope to be a contributing and useful member. I am schedueld for a partial nephrectomy laproscopically on 9th November in Auckland, New Zealand. I am 50, female, good health and weight, husband, 3 teen kids and a dog. Is an incidentally found…
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What questions should I ask / what do I need to know?
Hi! I’m new here. Im 29 years old and went to the ER with extreme abdominal pain which ended up being diverticulitis but a lesion was found on my right kidney during a CT scan. Anyways, I was referred to a urologist who got me in immediately and ordered another CT scan with and without contrast. He gave me his cell phone…
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My annual check up
Hi everyone I had my 3 1/4 year check up yesterday and got the report today. Thanks heaven All is fine. I had a 10 cm grade two stage two tumor removed in August 2014. Sending you all positive thoughts and prayers for your coming surgeries, next check ups and treatments especially to you Apny.
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Bump in the Road with Votrient
I know there are a lot of threads on Votrient and have tried looking through a lot of them. Many are several years old. After a right kidney nephrectomy, spinal tumor ablation and various other treatments, I was put on Votrient in May. The first scan showed a reduction in all lesions, including the three in my lungs. One…
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Tomorrow is the day
So I am due for surgery tommorrow. I was hoping to get my procedure done at the Cleveland Clinic since it is the best facility near me. But I was not able to get it to work out its 3 1/2 hours away and had some travel issues and insurance blips. I am pretty confident the local urologist, the first doctor seen will do well,…
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Minimally Complex Renal Cyst in rt Kidney
OK, I am a 41 yr old Male and have had a minimally complex (Bosniak IIF) cyst measuring 3.0 cm in my right kidney that was discovered in July 2003. Dr.'s have monitored it with Ultrasound and CT scans over the last 6 years, but this past year, it increased in size to 4.0 cm. Three urologists at Barnes-Jewish hospital in…
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Any others with Unclassified Renal Cell Carcinoma?
I am trying to find others with this rare and aggressive RCC that I have been diagnosed with. There is not much information at there due to it's rarity. -Theresa
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Needing Support
In March I had a partial nephrectomy. My 3 month scan showed that it was possible that RCC came back. My 6th month scan showed that it had probably matastasized to my liver. Today I got the results back that it had mets there. I'm just wanting to know how people who have been in my shoes and taking the medication have…
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Changes in your routine/nutrition
I'm just curious how you changed your routines and nutrition after surgery. I've always been very healthy and for the past year have been into juicing and eating much healthier. I've read many different things about eating cancer fighting foods and juices as the best way to minimize reoccurance of cancer. But for every…
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New'ish Member
Hi all, I'm a new'ish member to this board. I have updated my profile for those who may be interested in my story. The quick summary is I was diagnosed a little more than a year ago, had a radical nephrectomy, gone through a couple rounds of scans and am very thankful to be doing well. I will try to stay up-to-date on the…
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Lung biopsy result
The biopsy result is inconclusive. Is that good or bad? My oncologist suggested CT follow up in 3 to 6 months and a referral to a pulmonary surgeon for an opinion. Right now I'm still in limbo.
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I made it thru...now on to healing
Well, it's over and now I'm on to recovery....I'm not gong to lie, it was tougher than I expected, but not what you think. I went into surgery last Thursday morning, they had me prepped and under anesthesia. My heart then started doing weird rhythms so they stopped, pulled me out of surgery and called in a cariologist.…
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Just saying hi
Fall is the absolute busiest semester of the year for me so I haven't been able to spend much time here. So, I wanted to say hi to all the new members! I hope you are all navigating this journey with as much ease as possible. Also, a big hi and lots of love to all of the usual crew that I've come to care for, I hope you…
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Recent diagnosis
Hi recently diagnosed RCC with surgery pls g-d on 11/27. Dr put my mind at ease after appt. Spend too much time on google not understabding what i was reading but panicing and thinking the worst all the same. 3.8 size mass on left kidney extension into renal sinus. Dr. Says they treat this the same ad T1-I hope so. Anyone…
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Scanticipation
Getting a bit anxious. My 3 ½ year follow up scans and x-ray are on Thursday then I see the doc on Friday to discuss scan results. Leaving for NY tomorrow. I wish it was next week already. Hate this edgy nervous feeling.