Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

RCC Research Study with Memorial Sloan Kettering Cancer Center
I found out about a study that is taking place for RCC and genetics at Memorial Sloan Kettering Cancer Center. They just have you fill out some questionnaires on your health and family history and collect a saliva sample that you can do at home and mail it in. They are trying to get 750 participants and your immediate…
What Am I in For???
Partial nephrectomy (laparascopic) is booked for Nov. 7th. I know it is a long surgery and am wondering what to expect upon waking up. How are the first few days? I am thinking it will be very painful even with meds. How was the removal of the drainage tube? How many incisions for ports did you have? When did you return to…
Nervous Newbie
I am still waiting on my results from yesterday's bone scan and chest xray... But I have an appointment next week at MD Anderson and need to take all imaging and reports with me. While gathering the reports I was able to see the findings of my CT Scan from 9/29/17: There is a heterogeneous primarily solid enhancing mass…
Don't be afraid to make waves, or a tsunami
The month of September was stressful enough with a regular CT and then a brain MRI and another CT with a possible biopsy. I started complaining with the first two days worth of screw-ups, which included a physical meeting with 2 administrators in the radiation department (who had zero power to change anything and just gave…
Thank you
i just wanted to thank everyone on this board! For the past 3 months I have been waiting to determine if a 1.5 cm mass on my left kidney is cancer. The mass was found incidentally via a CT scan looking for appendicitis. Turned out I had a severe kidney infection and for months it has been unclear if the mass is cancer or…
I think It's good News
After the CT on 8/8, I was sent in to have a brain MRI, for which I still haven't heard back. The other test was a CT locate biopsy on the back of the right lung. This was to be yesterday. It was not any different than going in for day surgery: all the papers to sign, extra blood tests, insert the line for an IV, etc.…
On to hospice for in laws
Both in laws have been in nursing home for over 20 months. FiL has been advanced Alzheimer's since he has been placed in home. MIl was in assisted living in same facility. She has slipped very quickly. My wife has just placed her into the Hospice care of the facility due to her failing state. It has been an awful 2 years…
Surgical question
I'm scheduled for a robotic partial neph on October 19th at Vanderbilt Medical Center. I had a pre-op screening yesterday and they went over the procedure. The good news, I guess, is they said I was the healthiest patient they've seen in the past month. Not sure if that makes me feel better or not... Anyway, it was…
Better attitude and other lessons learned
Well, once again Fox's post from Sept 18th woke me up. I did not see it until Oct 3 or so, and I will step up and join in again. I spent the summer as a turtle. You know, head pulled in, totally under a shell hiding from life, and just existing. It hits me often anymore. Might need to up my depression meds. In any event,…
Feeling rather anxious today
I had a needle biopsy back in August for a lung nodule, which didn't show any signs of disease - though there was some concern that perhaps they didn't get the needle into the small nodule properly. I also developed a pneumothorax that kept me in the hospital for a week, and really threw me behind at work. But that's the…
Tomorrow is the day...
Well, tomorrow I undergo a partial-neph to get this demon cut out of me. I've been waiting since July because I wanted a specific surgeon at Vanderbilt. It's been a little stressful and now that it's here I'm rather anxious. I've never had any symptoms, and my cancer was found by accident and luck, but these past couple of…
Hospital Comfort
Hello everyone, I was happy to find this forum today. My 38 year old husband was diagnosed with Stage 1 RCC a week ago today. He went in for a routine scan of his kidney arteries, doctor was checking for blockages in his renal arteries because he has high blood pressure and that is how the mass was detected,…
Patient-specific Adjuvant Multi-peptide Vaccine after Resection of Metastases
Not sure if anyone have heard of this vaccine before, but the phase I/II result seems relatively good. Results of a Phase 1/2 Study in Metastatic Renal Cell Carcinoma Patients Treated with a Patient-specific Adjuvant Multi-peptide Vaccine after Resection of Metastases. https://www.ncbi.nlm.nih.gov/pubmed/28988765
help on my results please? does anything stand out to you?
hello, i have a cyst in both my liver and kidney. the doctor has been keeping an eye on my kidney cysts since 2015. this year it grew .2 cm so now it's 2 cm in size. they were a little worried that it looked slightly complexed. i don't have any symptoms to worry about. but i'm just worried about what they said and how…
Funny
Prior to my surgery in August 2016, I was a pretty heavy sleeper and snored. In fact I'd snore so loud that my kids would tease me the next day because they'd say they could hear me snoring all the way in down the hall to their bedrooms.. I also would get picked on by my wife often about my snoring. Well, after my surgery…
Lung nodules found on CT scan
Before I had my left radical nephrectomy last August 18, I had CT Angiogram of my abdomen and chest. I had stage 3 cancer which involved the renal vein. The lung findings were a 20mm groundglass nodule in my left lower lobe and a 9mm in my left lung. I had a follow up CT a week ago and the results were unchanged. My…
17 year old girl with unclassified renal cancer stage II need help!
Hi, my 17 year old daughter just had open radical surgery to remove a 13 cm tumor & right kidney, well what was left of the kidney last thursday. She came home this past monday. We were told yesterday by the pathologist at Ceder Sanai in Los Angeles that she has an unclassified renal cell carcinoma that is very rare, they…
Need Help Again Sorry
Da Vinci planned for 21St for 4cm(approx). Mass Beyound scared that this will be the death knell for me. And I apologise to all those brave people who have it much worse than me and don't make half as much fuss Mass is sitting at top of right kidney. Doctor says in good position and there is no other sign of any spread…
Advice for the Newbies so we can help you.
One of the frustrations of those of us who reply to your questions is not knowing enough about your diagnosis to reply apprporriately. Please fill in your CSN Space and detail your diagnosis with your questions. We would like to be able to assure thise of you who have a routine diagnosis that you have a high chance of…
Kidney Cancer Diagnosis
Hi All, This forum has been a wealth of information -- I just had a robotic partial nephrectomy of my left kidney and a 2.2 cm mass was removed. It was graded pT1A Nx Mn/A and ISUP Nucleoar Grade 2. It was the only tumor they found on the scans and the margins were clean. I have been reading alot about the codes, PT1A…
liver function tests and leukocytosis after partial
hi. ı am from turkey. ı have renal clear cell grade 2 carcinoma which was 3 cm in size. ı had a left lap. partial nephrectomy 15 days ago. my creatinin is 1.32 and my liver function tests are alt: 120 ast; 42 and my wbc count is 19900( normal is 4000 to 11000) are there any who had same type of problems after surgery?…
Having kids post Wilms tumor
hello all, I am 26 years old and a 22 year Wilms tumor survivor. I am currently 7 months pregnant. I have been pretty healthy post treatment and have had a pretty easy and very healthy pregnancy so far. My question is, has anyone had similar situations and had their child tested regularly for kidney tumor after they were…
Path report question
”There is one small focus of apparent vascular invasion at the hilum” This is in my path report everything else was good. My doctor went over the report with me and i don’t remember being told this was a concern. I’ve tried to google it but not found a lot of understandable information. Diagnosos: Renal Cell Carcinoms,…
Dreaming
So now that the surgery is booked I feel like this whole cancer diagnosis thing is becoming real. I am still waiting for the dr to call me and say they made a mistake and everything is fine. I am also waiting for them to perform the surgery and then tell me "it wasn't even a tumor." Did anybody feel this way? My mind has…
Kidney stone
Should I be alarmed by getting kidney stones in my one remaining kidney? Thanks guys
I am right here
After reading Fox's post, I decided to post instead of just reading. Want to help boost Fox's statistic of posts/reads! :) So I had my quarterly scans on Monday. *yawn* Seriously, don't have the results yet. But I feel pretty optimistic and somewhat not really worried about them. Is that progress? I pop in and try and…
New here.. just a few questions.
Hello, I was diagnosed with CCRCC stage 1 grade 2 and had an open partial nepherectomy on Sept 5. I am 39 years old. My urologist, who did the surgery says he got it all out and that I had clear margins so I was now NED. I haven’t been to an oncologist and I’m not sure I need one since he says he got it all out. I seem to…
Incision
Since my husband had a full nephrectomy (robotic, laparoscopic), he had to have one larger incision below his belly button (about 3 inches long where they pulled the kidney out). All of the other laparoscopic incisions have now healed completely and they look really good. This larger one has closed on the top, closed on…
5 Year Scan Results
Just got back from meeting with the Oncologist for Holly's five year scan and all was good. She had her left kidney removed in 2012 after the discovery of Stage 1 RCC. To everyone on the board, thank you for your continued prayers. For anyone just coming to this board, even years from now, you have hope and there are…
Where's Brenda
She's been on my mind a LOT lately. I hope someone is in contact with her and she's so busy with that grandbaby she isn't missing us. :-) Praying she's well. Donna~

Kidney Cancer

Discussion List

Discussion Boards