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Any others with Unclassified Renal Cell Carcinoma?
I am trying to find others with this rare and aggressive RCC that I have been diagnosed with. There is not much information at there due to it's rarity. -Theresa
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Needing Support
In March I had a partial nephrectomy. My 3 month scan showed that it was possible that RCC came back. My 6th month scan showed that it had probably matastasized to my liver. Today I got the results back that it had mets there. I'm just wanting to know how people who have been in my shoes and taking the medication have…
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Changes in your routine/nutrition
I'm just curious how you changed your routines and nutrition after surgery. I've always been very healthy and for the past year have been into juicing and eating much healthier. I've read many different things about eating cancer fighting foods and juices as the best way to minimize reoccurance of cancer. But for every…
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New'ish Member
Hi all, I'm a new'ish member to this board. I have updated my profile for those who may be interested in my story. The quick summary is I was diagnosed a little more than a year ago, had a radical nephrectomy, gone through a couple rounds of scans and am very thankful to be doing well. I will try to stay up-to-date on the…
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Lung biopsy result
The biopsy result is inconclusive. Is that good or bad? My oncologist suggested CT follow up in 3 to 6 months and a referral to a pulmonary surgeon for an opinion. Right now I'm still in limbo.
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I made it thru...now on to healing
Well, it's over and now I'm on to recovery....I'm not gong to lie, it was tougher than I expected, but not what you think. I went into surgery last Thursday morning, they had me prepped and under anesthesia. My heart then started doing weird rhythms so they stopped, pulled me out of surgery and called in a cariologist.…
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Just saying hi
Fall is the absolute busiest semester of the year for me so I haven't been able to spend much time here. So, I wanted to say hi to all the new members! I hope you are all navigating this journey with as much ease as possible. Also, a big hi and lots of love to all of the usual crew that I've come to care for, I hope you…
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Recent diagnosis
Hi recently diagnosed RCC with surgery pls g-d on 11/27. Dr put my mind at ease after appt. Spend too much time on google not understabding what i was reading but panicing and thinking the worst all the same. 3.8 size mass on left kidney extension into renal sinus. Dr. Says they treat this the same ad T1-I hope so. Anyone…
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Scanticipation
Getting a bit anxious. My 3 ½ year follow up scans and x-ray are on Thursday then I see the doc on Friday to discuss scan results. Leaving for NY tomorrow. I wish it was next week already. Hate this edgy nervous feeling.
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Opinions on laproscopic or partial
Hello, i was recently diagnosed with a 5cm renal mass located centrally in my right kidney.The urologist wants to order an mri to determine if its malignant. My question to you all, are their any surgeons who would try a partial given the location of the mass?
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Need a Little Help
Well, I was really trying to put on my big girl pants this time but I am such a worrier. My husband had his second set of scans after his surgery on Monday. His first scans in July were clear and also done on a Monday. The results were available on Wednesday evening through the patient portal for those. Does that mean they…
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Well...not out of the woods yet I think
My surgeon called today to talk about the results of my tumor. Here is the path: T3a NO M0...The tumor was 2.7cm and had broken containment of the kidney and into the renal vein. My margins are negative... He was very positive saying even though it's graded as a T3a, he doesn't think I'm going to have much chance of…
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Finally surgery date
Here we go...11/14/17. I will be having an open partial Neph. MY mass is small but in a tough location in the middle of my kidney and they cannot get to it with laprosocip so the surgeon will have to use his hands..I guess i will lose a rib as well so I have been told..I'm anxious about the surgery and recovery of the open…
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Going to meet surgeon this morning
Headed to talk to my surgeon this morning feeling a little anxious and touch of relief. .Ready to get this 2.2 cm mass out of my body. I have been working through this since the end of august. NEED prayers hopefully we can get a partial Neph scheduled soon and move on with life!!! Thanks everyone on this site you have been…
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Recommendations
All, My birthday is coming up in November... I am thinking of doing a fund raiser on FB with proceeeds going to Kidney cancer in lieu of gifts. Any recommendations on what organization to list as the benefactor of these funds? Thank you, Angie
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Pls recommend surgeons!!! Anyone knows Dr. Paul Russo?
Pls let us know who the best doctors in the US for partial nephrectomy are? Needed for removal of a large mass. Does anyone know of Dr. Russo from Sloan Kettering?
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How Long Before Doing Hard Abdominal Contractions
I am 18 weeks post partial nephrectomy using the robotic procedure. I still have pain in my abdominal muscles when doing planks but I can do them on my knees which takes some stress off the abdominals. I'd like to hear from others that can share their experience regarding how long it took before you could confidently do…
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28 yrs old possible Kidney Tumor
Hello Everyone: I am new here so I hope i get some replies back. I was diagnosed with Polycystic Kidney disease when I was 13 yrs old. Ever since than I've always had kidney infections and Kidney stones. However, this year has a been a tough year on my poor kidneys specially my left kidney. About a month ago I starting…
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RCC Research Study with Memorial Sloan Kettering Cancer Center
I found out about a study that is taking place for RCC and genetics at Memorial Sloan Kettering Cancer Center. They just have you fill out some questionnaires on your health and family history and collect a saliva sample that you can do at home and mail it in. They are trying to get 750 participants and your immediate…
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What Am I in For???
Partial nephrectomy (laparascopic) is booked for Nov. 7th. I know it is a long surgery and am wondering what to expect upon waking up. How are the first few days? I am thinking it will be very painful even with meds. How was the removal of the drainage tube? How many incisions for ports did you have? When did you return to…
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Nervous Newbie
I am still waiting on my results from yesterday's bone scan and chest xray... But I have an appointment next week at MD Anderson and need to take all imaging and reports with me. While gathering the reports I was able to see the findings of my CT Scan from 9/29/17: There is a heterogeneous primarily solid enhancing mass…
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Don't be afraid to make waves, or a tsunami
The month of September was stressful enough with a regular CT and then a brain MRI and another CT with a possible biopsy. I started complaining with the first two days worth of screw-ups, which included a physical meeting with 2 administrators in the radiation department (who had zero power to change anything and just gave…
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Thank you
i just wanted to thank everyone on this board! For the past 3 months I have been waiting to determine if a 1.5 cm mass on my left kidney is cancer. The mass was found incidentally via a CT scan looking for appendicitis. Turned out I had a severe kidney infection and for months it has been unclear if the mass is cancer or…
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I think It's good News
After the CT on 8/8, I was sent in to have a brain MRI, for which I still haven't heard back. The other test was a CT locate biopsy on the back of the right lung. This was to be yesterday. It was not any different than going in for day surgery: all the papers to sign, extra blood tests, insert the line for an IV, etc.…
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On to hospice for in laws
Both in laws have been in nursing home for over 20 months. FiL has been advanced Alzheimer's since he has been placed in home. MIl was in assisted living in same facility. She has slipped very quickly. My wife has just placed her into the Hospice care of the facility due to her failing state. It has been an awful 2 years…
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Surgical question
I'm scheduled for a robotic partial neph on October 19th at Vanderbilt Medical Center. I had a pre-op screening yesterday and they went over the procedure. The good news, I guess, is they said I was the healthiest patient they've seen in the past month. Not sure if that makes me feel better or not... Anyway, it was…
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Better attitude and other lessons learned
Well, once again Fox's post from Sept 18th woke me up. I did not see it until Oct 3 or so, and I will step up and join in again. I spent the summer as a turtle. You know, head pulled in, totally under a shell hiding from life, and just existing. It hits me often anymore. Might need to up my depression meds. In any event,…
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Feeling rather anxious today
I had a needle biopsy back in August for a lung nodule, which didn't show any signs of disease - though there was some concern that perhaps they didn't get the needle into the small nodule properly. I also developed a pneumothorax that kept me in the hospital for a week, and really threw me behind at work. But that's the…
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Tomorrow is the day...
Well, tomorrow I undergo a partial-neph to get this demon cut out of me. I've been waiting since July because I wanted a specific surgeon at Vanderbilt. It's been a little stressful and now that it's here I'm rather anxious. I've never had any symptoms, and my cancer was found by accident and luck, but these past couple of…
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Hospital Comfort
Hello everyone, I was happy to find this forum today. My 38 year old husband was diagnosed with Stage 1 RCC a week ago today. He went in for a routine scan of his kidney arteries, doctor was checking for blockages in his renal arteries because he has high blood pressure and that is how the mass was detected,…