-
Opinion on treatmenr
I have Chromophobe kidney cancer that has come back in my abdomen. Anyone out there have experience with treatments?
-
Checking-In
Hello all - it's been awhile so I figured that I'd check-in. Happy New Year! My two-year post bilateral partial nephrectomy appointment was in December 2019. The renal ultrasound showed something "suspicious" on the left kidney...so a CT abdomen/pelvis was ordered. CT confirmed surgical change only, just scar tissue.…
-
Prostatectomy 2 years ago and now this
2+ years after a prostatectomy and still showing a non-detectable PSA now I'm faced with a 4.6 cm mass in my right kidney. Consultation next week with my urologist as to which direction to go. Partial or total . Given my history I want it all gone but I suppose I should wait and see what he says. He called me early today…
-
Face flushing
Hi everyone. I have oncologist appt next week but gave been having bad face upper body flushing. Honestly is worrisome. I think I remember having before my surgery. Had hysterectomy in late 90's so not that. I'm 4 years out but insurance refuses ct scan This time. Said not needed. Anyone else get this with reoccurrence?…
-
Happy New Year!
Hello all. I haven't posted in a long time - sorry about that. I recently saw that Painter Girl (Ann) passed away a few weeks ago - so sad. We both started our cancer journey around the same time in March of 2018. I have been on Cabo for over a year now and the tumors have decreased in size and nothing new. I had SBRT in…
-
Hi everyone! Forgive my absence! Happy New Year!
Hello old friends and newbies! Wishing that the new year brings all good things, mainly health, love and peace! I dont come here often lately but CSN is very present always on my mind. I feel like Im living very very fast this last 10 months, Its difficult for me to even write a long message and make sense so forgive me!…
-
5 years ago
Hello everyone and seasons greetings! It has occured to me today that 5 years ago in December 2014 my husband had a surgery to remove kidney cancer. I still remember the date - December 15, the day doctors saved his life. He was Stage 1 Grade 1, clear cell, currently NED. Even had an unplanned/unscheduled NED in November -…
-
kidney cancer recurrence & survival rates
Hi, In March of 2017 I had a left nephrectomy and the removal of a tumor in the inferior vena cava. There was no follow up chemo and/or radiology. My doctors and I have been vigilant about doing 6 month MRIs and unfortunately, there has been a recurrence of the kidney cancer in lymphnodes on my right side. I will be…
-
Holiday Season is here
Wishing you and yours a relaxed and happy Holiday and New Year. In the past 13 years, I've learned to Not overdo and have the "if it doesn't get done, so what" attitude. Most importantly, I take care of myself, ensure my house is Healthy; but not necessarily totally neat and decorated. As a couple, we attend the kids…
-
Pembro/Cabo trial
I know I haven't been here in a while, and I wanted to check in. I had been on Votrient for over 18 months, and it was keeping my lung mets in check. My October scans showed growth in one of the Mets, and a new lesion on my L5. I stopped Votrient in November, and two weeks ago I completed radiation for the spinal met and…
-
Trail closing -63 months NED
I dont post much anymore, but wanted to share this one, and actually get some feedback. I have been in a Sutent-Nivolumab trial since Feb 2013, I was stage IV with lung spots and an adrenal tumor. I have been NED since August 2014. I have continued to take Nivolumab infusions and 37.5 mg of sutent for maintenance since…
-
Vit C IV (Kidney Cancer)
Hey all, I’m trying to find Vit C IV. I am in the UK and would much rather one of my friends (a nurse) to admin it rather than going into a clinic where the cost has been considerably bumped up. If anyone knows, please get in touch. I’ve also researched that Tapioca, Camu Camu and other natural forms of vitamin c is more…
-
NED today!
So today I was cleared for another 4 months. God is so good. Whoop Whoop, Roar!!!
-
Sorry for being away so long!
I've just been so busy with work and family and not thinking much about cancer! I feel a little guilty. I had CT scans Tuesday and they were clean. It's the 5 year mark for me. It's been 5 years since my last tumor. I'm so happy and relieved to have made it to 5 years. Those of you Stage 4, I want you to know that it's…
-
Follow up blood work - concerned.
Hello, team. I'm not a doctor, and I don't pretend that any of you are. Some follow up bloodwork was done on me and I just want to compare notes. I have an upcoming appointment with my nephrologist. Background: I had a nephrectomy in March. Tests performed approximately two weeks ago: * Glucose - High 117 * Bun - 19 * eGFR…
-
All is well from Disneyland
yAs most of you are aware I had my surgery to remove my Prostate in Orlando back on September 30. Today I got the resuly of my 6 week post seugery PSA whych was undetectabl or for lack of a better worh, Ned. My wife thinks seeing a Urulogist regularly as a result of Kidney Cancer led to earlier detection and may have saved…
-
My dad.
i peed blood 3 years ago, had surgery and joined the club. It’s been up and down since. I wouldn’t have wished this on anyone. Tonight, I learned that my dad has been peeing blood for 4 months. Blood clots, same symptoms, everything. Saw the doc and tested normal, so no one did anything. He scans on Tuesday. I’m totally…
-
Husband check in, checkmate immunotherapy.
Husaand had scan two weeks ago. No new growth, srinkage of bone tumors. We are at 1.5 years. He is feeling better since we stopped the bone hardening additive. Blood work looks great.
-
Newly diagnosed
Hi. My name is Mary and I was recently diagnosed with 7.5cm tumor on right kidney with small thrombus in renal vein (T3b stage?). I am 59 year old female. I am scheduled to have robotic assisted laparoscopic nephrectomy on Monday. It has been a crazy few months. I had gastric sleeve surgery in August, followed 3 weeks…
-
I don't have too much to say at this point in my life
I didn't have lap or robotic surgery, no drugs or radiation, or a lot of the problems some of you have encountered. I hit the road the first time with Stage 4, T2N2M1 in 2006. Then had recurrences in single nodes in 2007 and 2008. Three major surgeries and monitoring since then. I'm still not enjoying the CT's with barium…
-
NED!!!
Second year scans came clear.NED. Wanted to share the good news with the group. Thank you again for the all support and strength.
-
I’m Back!
I joined the prostate cancer forum Fall 2009 just before my robotic, radical prostatectomy. My PSA was undetectable for 5 years. Then I ate some bad duck in late summer 2014, got campilobacter infection, caused renal failure, creatinine went to 6.7. After 4 days in ICU they decided to scan my kidneys to see if there was…
-
Questions about robotic retroperitoneal partial nephrectomy
Hello, I am a woman in my 40s and recently found out I have a 2.2cm kidney tumor. It does not appear to have spread. The doctor said there is an 85% chance it’s cancerous but they won’t know until it’s removed so of course I’m hoping it is benign. The first surgeon I met with said he could not operate robotically due to…
-
Iceman question.
What standing alone always lowers your kidney function,(GFR), but is a good thing to do? icemantoo
-
22 months NED
Had my 3rd 6 month post-op scan today. Not one single thing in either kidney. Starting this journey, I had 4 in my right (they took one out) and 2 in my left. Happy news......EXCEPT....they think it's Mets to my C7-T1 area of my spine (neck) incidental find of course. MRI on Dec 2 and go from there. Rad Dr was pretty…
-
NED !!!
4 years NED THANKS for all the support
-
Breakthrough as scientists create a virus that can kill EVERY type of cancer
https://www.dailymail.co.uk/news/article-7664927/Breakthrough-scientists-create-new-cowpox-style-virus-kill-type-cancer.html Hope this is something we all have been waiting for! Let's stay healthy
-
Video
Thank you icemantoo for the informative video. I have found that the more I know the less anxiety I have. In 2017 I had an MRI r/t microscopic blood in my urine in which a small 0.5 x 0.6 x 0.5 cm tumor on the lower pole of my left kidney was found (unrelated to the blood in my urine-which I recently found out has…
-
lower back pain when sleeping flat
Before surgery, I was told I wouldn't be able to sleep on my regular bed, so I bought a reclining bed and I was sleeping on the reclining bed for a few weeks after surgery. As I start to feel better, I go back to my regular bed and sleep flat. However, every night when I sleep flat, I wake up with bad lower back pain. If I…
-
Video for Newbies
https://vimeo.com/371401433?fbclid=IwAR1O4RIXwEE2g_-_H3AUEqey6b02kuU5CTST_c54G1jotHgCvKc_9g4oHy4 icemantoo