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Kidney Cancer

NED!
Got the call from my doc that my annual CT and Chest X-Ray was negative. 1 1/2 years since my surgery and a year since last summer's scan. Hope to keep going! Cy
Chromophobe RCC - my experience
It has been nearly half a year since my right kidney was removed, and as my first follow-up scan approaches next month I thought I would share my experience. I live in the Atlanta area and am male, age 42 (was 41 at the time of my procedure), about 6'1"/145 lbs and a lifelong non-smoker and non-drinker in pretty good shape…
Mayo Clinic visit coming up
Hi again, I'll be seeing Dr. Stephen Boorjian in Rochester, just wondering if anyone here has seen him and had a (hopefully) good experience. Thanks, Susan
Complex cyst follow-up
My complex left upper-pole renal cyst that has been monitored for a few years has grown from 4.6 cm to 5.6 cm since last October. I have been doing monitoring near my home in Chicago and sending the reports/discs to the Mayo Clinic, and they called today that they need to see me there for an MRI on their equipment and…
Victoria Trahan
Hi, I am from Lousisana. Me and my husband is going through a custody battle with his ex girlfriend and they have two kids together and when they broke up thats when their little boy had surgery and she never told him anything the doctor said or what was is going with their boy. now that she is court order give us…
Scan tomorrow
Time flies, 3rd year annual chest, abdomen and pelvis CT tomorrow. Thought could be calm but still kind of anxious over it. Hope all turns out well. Had right kidney partial neph in Sept 2016 Clear Cell, Stage 1A Grade 2.
18 months cat scan in a week, Scanxiety is here
I will have my 18-month post partial nephrectomy and I'm feeling a little anxious... no symptoms at the moment but we never know... my last report (1-year scan) showed this: CT CHEST: LUNGS AND AIRWAYS: Airways are patent. Noncalcified pulmonary nodules as follows measured on series 205 and compared to 82,018 CT chest: 2…
New To Kidney Cancer - Looking for Advice
I'm very glad I found this support group, as I am going through an enormous flood of emotions. I'll keep my story brief, but would love any guidance anybody has based on your own experiences. BACKGROUND: A few weeks ago, I noticed blood in my urine and after two ER visits caused by this and major left flank pain, a CT scan…
Would appreciate any guidance
Hi, My head is spinning from doing so much research online, and am hoping I can get some insight from this community. My Dad, who is 72 had his kidney/ureter removed in April after being diagnosed with urotherial carcinoma. I think that is the type, I believe in "upper tract" (I have to tread lightly when asking…
Today's funny
A senior citizen from The Villages Retirement Community in Florida drove his brand new Corvette stingray convertible out of the dealership. Taking the on ramp south on I-75, he floored it to 80 mph enjoying the wind blowing through what little gray hair he had left. “Amazing,” he thought as he flew down I 75, pushing the…
3/4 Month follow-up scans
I had my first round of two weeks ago (partial neph/enucleation was end of March). My urologist initially opted for just the abdominal CT (w/ contrast), but I pushed for chest and pelvis too since I never had one before the surgery. Luckily my insurnace provider (Aetna) approved the revised request and was able to get the…
1 month post op and more
I had my 1 month post op check up with my Kidney surgeon. He told me all of my Kidney tumor was removed with clear margins and I would need no further treatment. I will have follow scans every 6 months for 5 years. Now the stuff I have been dealing with. Before I had my Partial Nephrectomy, I was having some other health…
My first six-month follow-up scan (scanxiety is weird)
After my neph six months ago, this is my first time going through this. I mistakenly assumed I would get a yes or no answer - "congrats, no evidence of disease" or "unfortunately, there is evidence of disease." Instead, I got "good scan". My abdomen CT scan showed everything looked healthy, except for "mild soft tissue…
It's coming out!
So on July 19th they are taking my kidney. Not going to lie, it bothers me. But I know I can do this. I went through two years of breast cancer and still taking those awful pills for prevention, I can do this. But it bothers me really a lot. My kidney removal is due to UTUC of the kidney, which is in the bladder cancer…
Have you ever wondered...
who is on the other side of the screen when you communicate with people on this forum or the background of the person providing responses to your questions? Over the past three years, I've often wondered these things about the people on here--in essence, I've wondered about you. We're all bound by a common bond--RCC, but…
One year post diagnosis.
Hi Y'all. I havent posted lately as life have been very busy. I miss you all and always think about you everyday. I had my partial right sided nephrectomy almost a year ago and this forum has supported me as me and my family navigated the world of kidney cancer. I just had my 1 year scan and xray and I'm happy to say that…
Cancerversary - Trip to Hawaii and more good scans
A little over a year ago I was told I have cancer. My life was flipped upside down. It’s been a long and hard year. I’ve been on Cabo since December and the response has been nothing short of miraculous. I had my second staging scans since starting Cabo and have had two amazing results. Tumors shrinking, nothing new and…
Open partial nephrectomy pain
I had an open partial nephectomy done at Mayo clinic on June 11 2019. The circumstances were a bit odd because I was born with only one kidney and I already had stage 3 kidney disease when I was diagnosed. The good news is that they removed a 4.5 cm tumor and the margins were clear, so they said that I am cured of cancer.…
7 months post surgery pain
Hello - I am 33 years old and had a 2 cm size tumor removed via robot December 6th. I have been fine ever since until a couple weeks ago I started having pain on the front side of my abdomen on side that the tumor was removed on. I'm having any back pain, just dull frontal pain. Any thoughts on what this could be? Is this…
2 years ago, Grade 1 Stage 2 diagnosed.
9 months later partial robotic right. Now 9 months NED. HOWEVER, they are watching a place on my left.
Checking-In
Hello all - it's been awhile since I've posted, but I read regularly. Quick update for me...see my urologic oncologist every six months - saw him this week and all is well. He gave me a high five and a big hug. Both the renal ultrasound and chest x-ray were NED. Bloodwork all normal. Wheww! It's been about 18 months since…
NED Neddie Neddie Neddie Neddie
Hi Everyone, I had my last appointment today of many in my yearly preventive maintenance and follow up trip. General physical; pilar cyst removed from scalp; labs; ultrasound. All clear on everything. Doing the happy kidney dance. While my lab numbers are not where I would like them to be, my surgeon said I have better…
Hello again NED
I LOVE seeing on the NEDS on this board. Still trying to figure some other health issues but..... Cross cancer off the list! Thank you everyone for your support. I'm incredibly lucky to have you guys and this board ! Take care, Stephanie
First Post-Surgical Scans
Had my first post-op scans yesterday. All looks good in and around kidneys and lungs. Blood work slightly better with creatinine back down into high normal. Still got a stone in the other kidney, but it's been there over a year now and it doesn't seem to have grown. PA is not authorized to give cannabis recommend, but…
Blessedgirl94 question
Hi Blessedgirl, I am another in your cohort of surgery three years ago in June and July. You asked about follow ups - I have alternating scans, CT one year and ultrasound alternate year. There is concern about the contrast to do CT yearly (I only have one kidney). Labs every year but not chest xray. I asked my doc about…
Another NED
CT clear today and for some reason, they did an ultrasound on my testicles. I asked the doc, he didn't order it. Kinda weird and I don't recommend it.
Hey hey
3 year scan tomorrow. Dealing with the people at doctors offices suck. Been trying to keep my mind busy, but tomorrow, I face the music and get in the donut.
Uncle Ned Dropped By
Got the results of my CT from yesterday and all is fine. Another year with a visit from Uncle Ned.....and he brought a nice, smooth Cabernet with him. He said he’d come by again to visit next year, but he had to jet off to go see my surgical buddies jazzgirl and Stub to tell them their good news.
Ned after 2 years translocation rcc
After about 25 months since diagnosis, still cancer free. Moving to six month scans! Glad to see others are Ned too!!
3.5 weeks post partial nephrectomy
Hello everyone. Newbie here. I had a partial robotic nephrectomy 3.5 weeks ago to remove 2.5 cm mass in right kidney. It was Stage One RCC. They said they got it all and the next follow up is in three months for renal function study and scans every six months. I feel okay. Started going back to work part time, full time…

Kidney Cancer

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