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First scans next week
Im a little worried about my first scans every pain I feel I think did it come back.i know god is watching down on me I got to believe everything will be ok.
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Robotic partial nephrectomy
Hi all Quick update - I am booked in for a robotic partial nephrectomy on Saturday week. Glad I got in quick. My surgeon is a rock star and made me feel really comfortable. Ive got great support from my family and i am really grateful that I found this forum. I guess im really worried that the tumour will be malignant and…
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If it ain't one thing
So I am now at 7 years since neph. and it's time to see my doc for annual check up. At the beginning of this month I sent in my orders for CT scan w/o contrast. Called today for status and told that order has been refused and sent back to doc as insurance protocol only allows CT for the first 3 years. Strange they should…
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Can I beat this as I was downgraded to Stage 3
Ok you Salty Dogs in Kidney Cancer world...I got a little good news today. I had changed my Oncologist and met with him today. My tumor is 8CM by 5 CM in the right kidney and there is only cancer in the the surrounding lymphnodes. I start Sutent tomorrow and should have kidney removed in a few months as I am trying to get…
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Cyst question
I had a 2.5cm tumor removed in 2017. also a 4mm simple cyst since the beginning of my journey. this year the images showed it to be 6mm And classified as stable. i asked my doctor and she said it's most likely the was the ct scans were cut. My question is, is it normal for a simple cyst to grow or should I be concerned?…
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Chromophobe RCC.
Apologies to my many friends in this site who were always here when I needed them. i have been absent for a while. Sorry life busy with parents, children and a few close deaths along the way Not to mention having what I though was covid in Jan, was suffering for six weeks was never in hospital I warned everyone at the time…
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3 years scaniety
It been a long time since I posted. I still read along. Glad to see so many are doing well, and sad about the losses. I just had my three year scans. Waiting on the results until tuesday is rough. Good karma and prayers are welcome. Does your doctor post the results on your online health chart before the apooitment or wait…
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Surgiversary
My Sweetie reminded me that today is my four year surgiversary. Usually I am laser focused on the date, but actually forgot this time. I guess that's good. I certainly feel better today than four years ago. So for this day: extra dancing with wild abandon, and even more gratitude than usual. Take care -
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Complex Renal Cyst Help please.
Okay, so we found out I have Prostate Cancer .. that's on going, 2/b honest. But during this process, "suddenly" and MRI I am told I have: JULY 23, 2020 3. Several Complex Renal Cysts. Now as of April 19, 2020 I only had ( at that time ) 1 Simple Renal Cyst. No followup needed. So obviously something changed in just a a…
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Urinating blood clots when does this stop
I started urinating blood with clots a couple months before I was diagnosed with stage 4 RCC. It goes away after a few days and returns every 2 weeks or so or whenever I do something physical or lifting heavy objects. I believe this is caused by the tumor growing and needing space but thats just a guess. My question is…
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Starting my battle with Stage 4 RCC and need info please
My name is Tommy and I Have Stage 4 RCC that has spread to the lymphnodes. I am here to ask for advice on what meds should be prescribed as I am being treated by the VA and I am not too confident. Back in Jan. 2020 they noticed I had a 2cm mass/ cyst in my right kidney and they wanted to monitor it and check on it in 9…
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THE SIX MILLION DOLLAR MAN
I'M SURE THERE ARE THOSE HERE WHO ARE CHRONOLOGICALLY ADVANCED THAT WILL GET THE SUBJECT REFERENCE. LOL I'll give you a run down on how I gave myself that nickname, so here goes: 1] My heart in 2003 decided it wanted to be a racehorse, but w/o me having to do any running. It would go from my usual of 65 BPM to 250 BPM at…
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Sharp Stabbing Pains 2.5 Weeks Post Partial Nephrectomy
Hello all, On 7/15, I had what would be considered a "heroic" partial nephrectomy (lapropscopic/roboic). They were able to save 65% of my kidney, but they basically has to slice off the entire 35% of my kidney (including the collecting system), to make sure they got the entire tumor. I had a lot bleeding during/after the…
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Two Strokes and Stage 4 Kidney Cancer
Hello, This post is for my mother. She is 58 years old and suffered two strokes this year. The first one was in March and the second occurred in June. The doctors didn't know what caused the first stroke but with the second they found tumors in the brain. A full MRI body scan showed they originated from a mass on her…
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33 Years Old - Just Diagnosed
Hi All, I am new here, but I am glad I have found this resource. I am shocked to get this diagnosis because I'm an otherwise healthy asymptomatic 33 year old guy, non-smoker, not overweight, clean yearly labs, and no history of cancers in the family. I had food poisoning twice in 30 days, so I asked my GP to order an…
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18 years on Saturday since my Neph.
A big day for our family. I will celebrate by wishing my Grandson well as he takes his MCAT's on the big day as well. Didn't see that 18 years ago as he was approaching 3. icemantoo
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Complex Kidney Cyst
I'm a 62 year old male, and I work as a Teachers' Aide in a high school. At the beginning of August, I went for my regular annual physical exam at the local Veterans' Administration Clinic, where I've gone for many years. I'd been feeling fine all summer, and had been swimming and walking regularly. I considered skipping…
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!7 1/2 Years NED today.
Something positive for a change. icemantoo
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Here goes another NED
Hello everyone! Husband finally got his ultrasound done, 5,5 years after surgery. It is NED! Chest x-ray was last November for unrelated reason, all clear, so need to repeat it at the moment. I am so glad for him and all those other NEDs reported recently. But to be honest, I am the happiest for Amy Jo, who is…
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I was Ned today
Had my scans done and I was Ned
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Stage 4/Renal Cell Carcinoma
On January 23rd was diagnosed with Stage 4 Metistatic Renal Cell Carcinoma. It re occurred from after a 2013 partial Nephrectomy of my left kidney. I have had an initial meeting with an oncologist and she has ordered a MRI and referred me to a specialist for Clinical Trial referral. My cancer is Clear Cell and it does not…
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2.5 year check-up - NED!
Hi all - it's been awhile. Happy summer! Quick update from me...met with my urologic oncologist this week for my 2.5 year test results/check-up. Renal ultrasound, chest x-ray both NED! Bloodwork and kidney function all normal! The best results possible. Doing well personally...completing virtual HIIT workouts at home,…
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Good news
I met with the PA on Dr. Chow's team yesterday and she let me know everything looked great with my scans. What a blessing to hear those words. Jazz brought up a powerful point in a previous thread when Bryn told us about her upcoming surgeries. It's an awkward situation sharing the NED news, but also being sensitive and…
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Scan results - sort of
Hi Everyone, I see that the site will be down tonight and really hope they don't lose content again. Had CT and chest Xray Friday. Seems like it's always right before the weekend. Radiologists notes came through mychart, but I don't see the doc until tomorrow morning in a video appointment. So there were a few notes about…
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Bosniak Type 3 mass
Within the past week, MRI with and without contrast showed Bosniak Type 3 with nodular enhancing component, looks suspicious. Of course primary doctor on vacation. Got call from NP who is referring me to a urologist. Has anyone had or heard of this. I've done the internet research, but guess I'm looking for someone with…
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Solitary kidney with stones and cyst
Hello all. I was wondering if anyone else has encountered this. I was born with one kidney and I have stage 3b kidney disease. I have had a cyst on the remaining kidney that continues to grow. It is now 7.8cm. I have an appt with a urologist in a few weeks, but since I only have one kidney, what would be my options? Any…
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First folow-up after partial Neph.
I just got the results from my first post partial nephrectomy (January 2020) MRI and all is well. Coupled with finding out a couple weeks ago that ,at 33 months post prostatectomy, I am still showing undetectible PSA I'm feeling pretty good. (Until the next tests are due )
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New member. Right kidney removed 2 weeks ago.
I just had my right kidney removed two weeks ago. I have a six inch incision and three small incisions. Test results came back positive for cancer but all margins were clear. I only stayed one night in hospital after surgery. I went home reluctantly but I passed all requirements to leave. For the most part I am doing well…
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4 year scan - tomorrow.
And I hate it. But, im still here.
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Stanford Cancer Survivorship Program
Well, I had my four year appointment Today. It was a video appointment and it was with a nurse practitioner. Because everything had gone so smoothly with the surgery, the only follow-up I've ever done with 5he surgeon was at six months. The rest have been physician's assistants or, like today, a nurse practitioner. As I…