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Kidney Cancer

Starting my battle with Stage 4 RCC and need info please
My name is Tommy and I Have Stage 4 RCC that has spread to the lymphnodes. I am here to ask for advice on what meds should be prescribed as I am being treated by the VA and I am not too confident. Back in Jan. 2020 they noticed I had a 2cm mass/ cyst in my right kidney and they wanted to monitor it and check on it in 9…
THE SIX MILLION DOLLAR MAN
I'M SURE THERE ARE THOSE HERE WHO ARE CHRONOLOGICALLY ADVANCED THAT WILL GET THE SUBJECT REFERENCE. LOL I'll give you a run down on how I gave myself that nickname, so here goes: 1] My heart in 2003 decided it wanted to be a racehorse, but w/o me having to do any running. It would go from my usual of 65 BPM to 250 BPM at…
Sharp Stabbing Pains 2.5 Weeks Post Partial Nephrectomy
Hello all, On 7/15, I had what would be considered a "heroic" partial nephrectomy (lapropscopic/roboic). They were able to save 65% of my kidney, but they basically has to slice off the entire 35% of my kidney (including the collecting system), to make sure they got the entire tumor. I had a lot bleeding during/after the…
Two Strokes and Stage 4 Kidney Cancer
Hello, This post is for my mother. She is 58 years old and suffered two strokes this year. The first one was in March and the second occurred in June. The doctors didn't know what caused the first stroke but with the second they found tumors in the brain. A full MRI body scan showed they originated from a mass on her…
33 Years Old - Just Diagnosed
Hi All, I am new here, but I am glad I have found this resource. I am shocked to get this diagnosis because I'm an otherwise healthy asymptomatic 33 year old guy, non-smoker, not overweight, clean yearly labs, and no history of cancers in the family. I had food poisoning twice in 30 days, so I asked my GP to order an…
18 years on Saturday since my Neph.
A big day for our family. I will celebrate by wishing my Grandson well as he takes his MCAT's on the big day as well. Didn't see that 18 years ago as he was approaching 3. icemantoo
Complex Kidney Cyst
I'm a 62 year old male, and I work as a Teachers' Aide in a high school. At the beginning of August, I went for my regular annual physical exam at the local Veterans' Administration Clinic, where I've gone for many years. I'd been feeling fine all summer, and had been swimming and walking regularly. I considered skipping…
!7 1/2 Years NED today.
Something positive for a change. icemantoo
Here goes another NED
Hello everyone! Husband finally got his ultrasound done, 5,5 years after surgery. It is NED! Chest x-ray was last November for unrelated reason, all clear, so need to repeat it at the moment. I am so glad for him and all those other NEDs reported recently. But to be honest, I am the happiest for Amy Jo, who is…
I was Ned today
Had my scans done and I was Ned
Stage 4/Renal Cell Carcinoma
On January 23rd was diagnosed with Stage 4 Metistatic Renal Cell Carcinoma. It re occurred from after a 2013 partial Nephrectomy of my left kidney. I have had an initial meeting with an oncologist and she has ordered a MRI and referred me to a specialist for Clinical Trial referral. My cancer is Clear Cell and it does not…
2.5 year check-up - NED!
Hi all - it's been awhile. Happy summer! Quick update from me...met with my urologic oncologist this week for my 2.5 year test results/check-up. Renal ultrasound, chest x-ray both NED! Bloodwork and kidney function all normal! The best results possible. Doing well personally...completing virtual HIIT workouts at home,…
Good news
I met with the PA on Dr. Chow's team yesterday and she let me know everything looked great with my scans. What a blessing to hear those words. Jazz brought up a powerful point in a previous thread when Bryn told us about her upcoming surgeries. It's an awkward situation sharing the NED news, but also being sensitive and…
Scan results - sort of
Hi Everyone, I see that the site will be down tonight and really hope they don't lose content again. Had CT and chest Xray Friday. Seems like it's always right before the weekend. Radiologists notes came through mychart, but I don't see the doc until tomorrow morning in a video appointment. So there were a few notes about…
Bosniak Type 3 mass
Within the past week, MRI with and without contrast showed Bosniak Type 3 with nodular enhancing component, looks suspicious. Of course primary doctor on vacation. Got call from NP who is referring me to a urologist. Has anyone had or heard of this. I've done the internet research, but guess I'm looking for someone with…
Solitary kidney with stones and cyst
Hello all. I was wondering if anyone else has encountered this. I was born with one kidney and I have stage 3b kidney disease. I have had a cyst on the remaining kidney that continues to grow. It is now 7.8cm. I have an appt with a urologist in a few weeks, but since I only have one kidney, what would be my options? Any…
First folow-up after partial Neph.
I just got the results from my first post partial nephrectomy (January 2020) MRI and all is well. Coupled with finding out a couple weeks ago that ,at 33 months post prostatectomy, I am still showing undetectible PSA I'm feeling pretty good. (Until the next tests are due )
New member. Right kidney removed 2 weeks ago.
I just had my right kidney removed two weeks ago. I have a six inch incision and three small incisions. Test results came back positive for cancer but all margins were clear. I only stayed one night in hospital after surgery. I went home reluctantly but I passed all requirements to leave. For the most part I am doing well…
4 year scan - tomorrow.
And I hate it. But, im still here.
Stanford Cancer Survivorship Program
Well, I had my four year appointment Today. It was a video appointment and it was with a nurse practitioner. Because everything had gone so smoothly with the surgery, the only follow-up I've ever done with 5he surgeon was at six months. The rest have been physician's assistants or, like today, a nurse practitioner. As I…
Depression
Anybody going through depression even though scans show no new growth no problems. Husband is in denial of cured. Anybody else having this from spouse.
Just had surgery for kidney cancer
Hi i had part of my kidney taken out I thought I had stage one come to find out I have stage 3 I'm worried sick about it my tumor was 4.1 centimeter I read something it don't sound good I'm being scan every three month it seams like forever I just need to talk to someone thanks
CT Scan Results
I had my annual CT scan yesterday. First in, first out. I even had the same tech as last year and we remembered each other. He did just as good of a job and, surprisingly, the results were posted on Stanford's health portal already, 24 hours later. Another year of NED. This was my fourth anniversary scan. Last year, they…
What do Mets to the back feel like?
Hey guys, I have scans coming up in the next couple of weeks so I'll find out for sure then but wanted to ask something here. I have been having some machines/stiffness in my midback and lower back when I get up in the mornings. The mid back is more recent (last few months) and maybe 2-3 times over the last several months…
Kidney Cancer remission
How many patients stay in remission for five years
Scan Time
Well, I'm at the four year mark from surgery. I have a video appointment with the Physician's assistant in two weeks. My CT is on Wednesday. This past Tuesday, I had a blood test and a chest x-ray. The chest x-ray was clean. I scored a 1.02 on creatinine and 73 on eGFR, which is right in line with last year. My blood sugar…
new to forum
Good Morning, I am new to this forum and this specific type of cancer. Here's the story. My boyfriend of almost a year now has his first teleconference (because of covid-19) tomorrow with 2 doctors from mass. general. He has had CT scans of his kidneys, torso, and all the or scans to get to this point. They found a large…
This is a cruddy time...
to be dealing with cancer. If you are new to this venture, I'm sorry. If you have been around the block a few time, I'm sorry. If you've been a survivor, HooRay. It seems like many of us don't check the board as often; but hopefully we can respond if you are a newbie. Keep up the good cheer, have a stiff upper lip, and…
Just an update
Hello everyone, hopefully you all are healthy COVID-wise! Had a crazy last couple of months. I work for an airline, and we are terribly hit by a virus and struggling to survive :-( Also had a bit of cancer scare myself - one my mole started changing rapidly and concerned doc performed a biopsy. Thankfully it came out…
Problems with largest incision after Partial Nephrectomy (Laproscopic)
Hi, I'm new here and am currently in my 2nd week of recovery after having had a partial nephrectomy. The surgery was performed on February 11th, and I must say, this was by far THE MOST EXCRUCIATING PAIN I have EVER been in. The pain was so awful that I actually thought that I might be dying. The doctors insisted that this…

Kidney Cancer

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