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6 years NED today
Hi all, it's been a while Today is my sixth year cancer free anniversary, old buddies remember it was a huge 10 cm tumor. Six years past and here I am, NED, NED, NED STAY VIGILANT AND POSITIVE
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Catching Up with Good News
Hi guys I have been away for sometime now. I had alot going on in my personal life. One can only handle so much. I was diagnosed 2/18. Had my kidney removed 3/18. Shortly after my cancer metastasized to lungs liver lymp nodes and spine. Causing me to have compression fractures at L spine and T spine. Along with 2 blood…
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Heading Home
Hey guys Just had my kidney drainage line pulled out (worse than the catheter coming out). If I remain stable then I am heading home tomorrow and will get my histopathology results on Wednesday. Thanks for all your support guys. It held me in times of great stress . I hope I can put this dark time behind and use this…
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NED Thank God
Report came back IMPRESSION: Status post partial nephrectomy changes of the left kidney. No definite evidence of local residual/recurrent neoplasm. Thank God!
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Surgery tomorrow morning
Hi all, I have robotic partial nephrectomy tomorrow morning at 930am. Feeling really nervous. Hoping desperately that the growth isn't bigger than it seems on CT and fearful of going under for surgery. Thanks for all your support and I will see you on the other side.
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How sweet the sound...
When they call and tell you NED! A year and change ago from my neph. And I had to move the scans to the right b/c of COVID. Today's a damned good day! To all of you new here, hang in there. Trust your docs and be hopeful even when the night's dark. This is a great community. NED! OH HELL YEAH!!!!
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Newly diagnosed Stage IV
My husband had an emergency Nephrectomy in 2018 to remove a 22 cm tumor along with his right kidney and adrenal glands. The pathology report showed the tumor had rhabdoid and sarcomatoid qualities, which meant it was aggressive. There was a positve margin on the vena cava. After his surgery, he's been having abdominal and…
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"Good Thought Exchange" date and time....
What started off as an idea to celebrate NED status for the 2016 group has evolved into what I'd like to call a "Good Thoughts Exchange". Let's plan on Saturday, July 11 at 6 pm central time to toast, send good thoughts, eat a pizza (Jazz--a great way to remember Fox), send a prayer--whatever you like. My hope is that each…
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Now I am really confused
What a roller coaster ride im taking and I have yet to be treated. I believed I had stage 4 renal cell carcinoma and then it was stage 3. Now they dont know what kind of cancer i have as the biopsy came back inconclusive. They were putting me on Sutent and then they told me not to take it. They believe I may…
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First scans next week
Im a little worried about my first scans every pain I feel I think did it come back.i know god is watching down on me I got to believe everything will be ok.
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Robotic partial nephrectomy
Hi all Quick update - I am booked in for a robotic partial nephrectomy on Saturday week. Glad I got in quick. My surgeon is a rock star and made me feel really comfortable. Ive got great support from my family and i am really grateful that I found this forum. I guess im really worried that the tumour will be malignant and…
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If it ain't one thing
So I am now at 7 years since neph. and it's time to see my doc for annual check up. At the beginning of this month I sent in my orders for CT scan w/o contrast. Called today for status and told that order has been refused and sent back to doc as insurance protocol only allows CT for the first 3 years. Strange they should…
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Can I beat this as I was downgraded to Stage 3
Ok you Salty Dogs in Kidney Cancer world...I got a little good news today. I had changed my Oncologist and met with him today. My tumor is 8CM by 5 CM in the right kidney and there is only cancer in the the surrounding lymphnodes. I start Sutent tomorrow and should have kidney removed in a few months as I am trying to get…
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Cyst question
I had a 2.5cm tumor removed in 2017. also a 4mm simple cyst since the beginning of my journey. this year the images showed it to be 6mm And classified as stable. i asked my doctor and she said it's most likely the was the ct scans were cut. My question is, is it normal for a simple cyst to grow or should I be concerned?…
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Chromophobe RCC.
Apologies to my many friends in this site who were always here when I needed them. i have been absent for a while. Sorry life busy with parents, children and a few close deaths along the way Not to mention having what I though was covid in Jan, was suffering for six weeks was never in hospital I warned everyone at the time…
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3 years scaniety
It been a long time since I posted. I still read along. Glad to see so many are doing well, and sad about the losses. I just had my three year scans. Waiting on the results until tuesday is rough. Good karma and prayers are welcome. Does your doctor post the results on your online health chart before the apooitment or wait…
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Surgiversary
My Sweetie reminded me that today is my four year surgiversary. Usually I am laser focused on the date, but actually forgot this time. I guess that's good. I certainly feel better today than four years ago. So for this day: extra dancing with wild abandon, and even more gratitude than usual. Take care -
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Complex Renal Cyst Help please.
Okay, so we found out I have Prostate Cancer .. that's on going, 2/b honest. But during this process, "suddenly" and MRI I am told I have: JULY 23, 2020 3. Several Complex Renal Cysts. Now as of April 19, 2020 I only had ( at that time ) 1 Simple Renal Cyst. No followup needed. So obviously something changed in just a a…
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Urinating blood clots when does this stop
I started urinating blood with clots a couple months before I was diagnosed with stage 4 RCC. It goes away after a few days and returns every 2 weeks or so or whenever I do something physical or lifting heavy objects. I believe this is caused by the tumor growing and needing space but thats just a guess. My question is…
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Starting my battle with Stage 4 RCC and need info please
My name is Tommy and I Have Stage 4 RCC that has spread to the lymphnodes. I am here to ask for advice on what meds should be prescribed as I am being treated by the VA and I am not too confident. Back in Jan. 2020 they noticed I had a 2cm mass/ cyst in my right kidney and they wanted to monitor it and check on it in 9…
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THE SIX MILLION DOLLAR MAN
I'M SURE THERE ARE THOSE HERE WHO ARE CHRONOLOGICALLY ADVANCED THAT WILL GET THE SUBJECT REFERENCE. LOL I'll give you a run down on how I gave myself that nickname, so here goes: 1] My heart in 2003 decided it wanted to be a racehorse, but w/o me having to do any running. It would go from my usual of 65 BPM to 250 BPM at…
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Sharp Stabbing Pains 2.5 Weeks Post Partial Nephrectomy
Hello all, On 7/15, I had what would be considered a "heroic" partial nephrectomy (lapropscopic/roboic). They were able to save 65% of my kidney, but they basically has to slice off the entire 35% of my kidney (including the collecting system), to make sure they got the entire tumor. I had a lot bleeding during/after the…
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Two Strokes and Stage 4 Kidney Cancer
Hello, This post is for my mother. She is 58 years old and suffered two strokes this year. The first one was in March and the second occurred in June. The doctors didn't know what caused the first stroke but with the second they found tumors in the brain. A full MRI body scan showed they originated from a mass on her…
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33 Years Old - Just Diagnosed
Hi All, I am new here, but I am glad I have found this resource. I am shocked to get this diagnosis because I'm an otherwise healthy asymptomatic 33 year old guy, non-smoker, not overweight, clean yearly labs, and no history of cancers in the family. I had food poisoning twice in 30 days, so I asked my GP to order an…
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18 years on Saturday since my Neph.
A big day for our family. I will celebrate by wishing my Grandson well as he takes his MCAT's on the big day as well. Didn't see that 18 years ago as he was approaching 3. icemantoo
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Complex Kidney Cyst
I'm a 62 year old male, and I work as a Teachers' Aide in a high school. At the beginning of August, I went for my regular annual physical exam at the local Veterans' Administration Clinic, where I've gone for many years. I'd been feeling fine all summer, and had been swimming and walking regularly. I considered skipping…
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!7 1/2 Years NED today.
Something positive for a change. icemantoo
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Here goes another NED
Hello everyone! Husband finally got his ultrasound done, 5,5 years after surgery. It is NED! Chest x-ray was last November for unrelated reason, all clear, so need to repeat it at the moment. I am so glad for him and all those other NEDs reported recently. But to be honest, I am the happiest for Amy Jo, who is…
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I was Ned today
Had my scans done and I was Ned
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Stage 4/Renal Cell Carcinoma
On January 23rd was diagnosed with Stage 4 Metistatic Renal Cell Carcinoma. It re occurred from after a 2013 partial Nephrectomy of my left kidney. I have had an initial meeting with an oncologist and she has ordered a MRI and referred me to a specialist for Clinical Trial referral. My cancer is Clear Cell and it does not…