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Checking-In
Hello all - it's been awhile since I've posted, but I read regularly. Quick update for me...see my urologic oncologist every six months - saw him this week and all is well. He gave me a high five and a big hug. Both the renal ultrasound and chest x-ray were NED. Bloodwork all normal. Wheww! It's been about 18 months since…
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NED Neddie Neddie Neddie Neddie
Hi Everyone, I had my last appointment today of many in my yearly preventive maintenance and follow up trip. General physical; pilar cyst removed from scalp; labs; ultrasound. All clear on everything. Doing the happy kidney dance. While my lab numbers are not where I would like them to be, my surgeon said I have better…
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Hello again NED
I LOVE seeing on the NEDS on this board. Still trying to figure some other health issues but..... Cross cancer off the list! Thank you everyone for your support. I'm incredibly lucky to have you guys and this board ! Take care, Stephanie
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First Post-Surgical Scans
Had my first post-op scans yesterday. All looks good in and around kidneys and lungs. Blood work slightly better with creatinine back down into high normal. Still got a stone in the other kidney, but it's been there over a year now and it doesn't seem to have grown. PA is not authorized to give cannabis recommend, but…
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Blessedgirl94 question
Hi Blessedgirl, I am another in your cohort of surgery three years ago in June and July. You asked about follow ups - I have alternating scans, CT one year and ultrasound alternate year. There is concern about the contrast to do CT yearly (I only have one kidney). Labs every year but not chest xray. I asked my doc about…
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Another NED
CT clear today and for some reason, they did an ultrasound on my testicles. I asked the doc, he didn't order it. Kinda weird and I don't recommend it.
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Hey hey
3 year scan tomorrow. Dealing with the people at doctors offices suck. Been trying to keep my mind busy, but tomorrow, I face the music and get in the donut.
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Uncle Ned Dropped By
Got the results of my CT from yesterday and all is fine. Another year with a visit from Uncle Ned.....and he brought a nice, smooth Cabernet with him. He said he’d come by again to visit next year, but he had to jet off to go see my surgical buddies jazzgirl and Stub to tell them their good news.
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Ned after 2 years translocation rcc
After about 25 months since diagnosis, still cancer free. Moving to six month scans! Glad to see others are Ned too!!
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3.5 weeks post partial nephrectomy
Hello everyone. Newbie here. I had a partial robotic nephrectomy 3.5 weeks ago to remove 2.5 cm mass in right kidney. It was Stage One RCC. They said they got it all and the next follow up is in three months for renal function study and scans every six months. I feel okay. Started going back to work part time, full time…
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8 Months Good - Not so As Of Today
I'm 60 yrs old male. I had my left kidney removed Oct 2019 along with ( 30 nodes all clean) - RCC. Robotic surgery for 6 hrs and out of the hospital in 18 hrs after surgery. My first scan FEB 2019 was clean, no concerns. Blood work good. Fast forward June 20,2019. NEW CT Scan - I have a new lung nodule .. had 2 previous…
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Losartan
Now that I'm home recovering from a nephrectomy I'm sitting around watching too much TV. I'm seeing all these legal firm ads about Losartan and cancer. Googling around I'm seeing a lot more on the subject. Apparently there have been any number of "bad batches" produced. I thought we had an FDA. My doc put me on Losartan…
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Irbesartan for hypertension
I recently found out that a medication (Irbesartan/HCTZ) I take for hypertension was recalled due to its containing a contaminate that is a probable carcinogen. I have been taking this medication for several years and am now wondering if my kidney cancer was caused by this medication. The articles that I have read…
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Recurrent in IVC
Hey all. Does anyone have any experience with recurrent RCC in the Vena Cava? Looking at my second surgery in a week to have a small tumor removed and the Vena Cava patched. Its been almost 2 years since my nephrectomy and I am trying to wrap my head around what may be coming. Any thoughts or advice?
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Anyone with recuurent cancer back in another kidney
Hi Guys, Anyone in this forum who had cancer recurring back to another kidney? what kind of treatment did you took and what are the prognosis after this? Did anyone go for a kidney transplant? I have heard immunosuppresants given during kidney transplant really brings your immune system down and there is very very high…
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June 20th World Kidney Cancer Day
Sharing this online event happening this Thursday for World Kidney Cancer Day. More info at the link below! https://kccure.org/2019/06/a-day-of-kidney-cancer-talk-june-20th-world-kidney-cancer-day/?fbclid=IwAR3HC_NJwBFoNFlofxi2UGin2Y8GKtL1DhwPfNk08l-G_QHgdRwr5VG9IjM Summary - KCCure and Kidney Cancer Canada join forces to…
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3 Year Follow Up
Hi Everyone - especially Bay Area Guy and stuib1969 as we seem to be in the same cohort... Monday, Tuesday, and Wed of next week I have my annual physical, labs, ultrasound, and followup with urologist/oncologist who was my surgeon 3 years ago. I come to Iowa every summer for events around family, church, and jazz band…
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The Good, bad, and awful
This is my first Post in awhile. I needed a break from here and today I caught up on some Posts will go back to all of them. First off, had the 2 years scans and was not bothered like the other 2 scans. Came out NED, GFR improved, blood pressure good and weight same. Hit a home run and thats the Good. Got the CALL…
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What kinds of follow ups do you do?
I was wondering what kind of follow ups do you do. I'm new to this, only 1 month out of surgery. I had a partial nephrectomy to remove a 5 cm RCC off my right kidney. Initial assessment is that it was all removed with nothing outside the kidney. I will have a repeat CT scan in September and probably yearly scans after…
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First two consultations with urological surgeon
I had consultation individually with two urological surgeons in past week on treatment for a mass in size 10x4x15mm at my left kidney. Both surgeons recomended three options as the same as what was recommended by another urological surgeon when I was with Kaiser, but I insisted to have a robotic partial nephrectomy to get…
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Low Back Pain
About a month ago, I developed a pain in my low back/hips. If I lay down in bed, even for a short time, and I stand up, it's there. Kind of a knot with shooting pain. After being up and around all day, it slowly gets better. By the end of the day it's pretty much gone and I start over again the next day. It's been so bad…
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Some of us feel like We are Survivors (unless of course you disagree with that term)
Thank you all for sharing your stories. I was hesitant to post because of a bad experience on another message board, I felt like my tumor didn't "really" count because it was so small and fixed so "easily". Well you know what? I am a cancer survivor! I had a 3.2 cm tumor in the middle of my right kidney. It counts! I had…
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Complex appearing irregularly margined cyst mid pole
Hello Everyone, I was just referred for a CT scan after an ultrasound (for an unrelated issue) showed a "complex appearing irregular margined cyst mid pole of the left kidney measuring 2.1 x 1.9 x 2.3 cm". I realize that the CT scan will likely tell me more but, as you well know, the waiting is so scary. I wasn't worried…
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Open Radical Nephrectomy on Tuesday
Man, am I not looking forward to this, but we do what we've gotta do. Any tips, tricks or wisdom for getting through this and minimizing the pain?
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That Time of the Year
No. It's not Christmas time. It's annual scan time. I went for my chest X-Ray today. Tomorrow is blood test time. Then on the 11th, it's CT time. And finally, the all clear from the doc on the 17th. I was originally scheduled for all of this in July, but we were able to score some good award flights to Japan and Thailand…
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Complex renal Cyst
I am 31 years old male. In Dec 2004, I had burning sensation while urinating. On urine test, microscopic hematuria was found. A string of tests were done including CT scan of abdomen without contrast and everything came out normal. In Nov 2006, a Ultrasound scan found an incidental complex renal cyst in the lower pole of…
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Passing urine 1 month after surgery
Hello to all. I'm a new poster although I joined a month before my surgery which was last month. On April 25th I had a 5 x 4.5 x 3.5 tumor removed by partial nephrectomy on my right kidney. It was a clear cell RCC. The pathology report, which I don't have with me right now, indicated that it was fully removed with clear…
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NED :-)
Hello everyone, finally my husband found time for another follow up scans (US and chest x-ray). He was really overdue, supposed to have them in January-February, but never bothered much. I love his calmness and optimism :-) NED! Belated, but NED, as expected. Next scans in a year. He is 4,5 years from surgery. Happy for…
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What works for you to feel positive?
Hi, I had a partial nephrectomy in March and I am experiencing many of the symptoms that others have mentioned here, including pain and some bloating. The surgery was much more traumatic than I expected and the diagnosis came as a total shock to me since I had no symptoms and it was diagnosed via a routine ultrasound…
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4 weeks post robotic partial nephrectomy with burning pain and severe bloating
hello i had a partial nephrectomy robotically for an “unclassified” renal tumor. 31/2 weeks ago. I have severe superficial burnishing sensation / parenthesia on my skin from umbilicus ( where drain was) to flank and hips. i am very bloated having gained probably about 10 lbs after 1 week post op. Worse in the evening. I…