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chronic pain after partial neph
i had robotic partial nephrectomy of right kidney 7 month ago. and since then i have almost constant flank and between shoulder blades pain.doctor said it is not from surgery. he mentioned herniated disk. thoratic mri did not reveal any problem. ct and mri of stomach is negative. so doctor lies. why they are not honestly…
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First scans next week
I have my first Mag3Renal scan next week-3 month. I had a recent CT due to shortness of breath, rising pulse and BP. It didn't show anything worrisome. I have definitely experienced an overall spike in BP and pulse-headaches, dizziness since my partial nephrectomy in late May of this year. I have been trying to increase…
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My second follow-up scan
So my first scans 6 months post-nephrectomy were good, except that they showed "mild soft tissue stranding in the renal bed". Probably just inflammation left over from my surgery, but we decided to play it safe and ordered another CT scan for three months later to compare. Had my second scan yesterday and it was all good.…
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Scans coming up in October. Scared.
So my surgery follow up scans are coming up in October. I'm really scared. I've kept my lifestyle, including the occasional drink or two. Just learned that a good friend is battling Type IV liver cancer and has not given that much to live. I'm depressed. I'm worried. I'm not sleeping. :-\ :-\
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Roll call
since the crash, things are real confusing. If you’re still here, type here or something.
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Date for Second Rodeo
My Prostate Surgery is set for Nov 12 barring an earlier cancellation. I am continuing my Walnut free diet. icemantoo
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Votrient
I have been on Votrient for 21 months. My kidney cancer had spread into my lung before we caught it. I had both kidney and lung surgery 6 weeks apart. Has any one had cancer come back on votrient? My hair turnd all white. i have some dark hair return to my eyebrows and mustashe..
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I have Shingles
and The fun never stops.
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Translocation Renal Cell Carcinoma XP11.2
Happy Easter everyone! I hope you all enjoyed your day with family. I had a wonderful day with my family. My 3 1/2 year old twins were so much fun to watch on their egg hunt and opening their baskets. So I posted about a week and a half ago that my doctor called and said the pathologist was going to send my tumor off to…
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5 Years Down the Road -- NED, Baby!!
One one hand, it seems like my diagnosis in April/May 2014 was such a long time ago. On the other hand, it seems like yesterday. While my tumor was small at 2.9 cm, it was in a tricky location on right kidney. Complicating the situation was the fact that I had extensive abdominal surgery. My first urologist said my entire…
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Looking doctor recommendation
Hey all it been a minute. Good to read post of the same faithful poster. You are amazing. I commend you all. I have been busy with a new job and daughter in competition dance. But I do read often. I am looking for recommendation on a new urologist oncology specializing RCC In the Cincinnati, Dayton, and Columbus Ohio area.…
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Five Years NED
Hello everyone, I haven't posted here for a while. I am dealing with another not cancer related issue of my life which takes all my strength, unfortunately I haven't been able to handle it yet, but I'm doing my best to finally find a way. Because of that I'm dealing with on and off depression but meanwhile trying hard to…
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Boys only
One of the advantages of Kidney Caner for us guys, especially those of us over 50 is tthat we are seen at least yearly by a Uro. Besides a regular DRE and PSI he runs other tests and takes a better history in a search for Prostate Cancer. I think it helped for me in dectecting it before it otherwusewould of. icemantoo
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I might have to join a new board
Ecerything's ok with the remaining kidney., but rhe Prostate valve on the plumbing is suspicious and I am having a biopsy on July 26. icemantoo
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Metastasis to spine now
Hi, I had bad news last Thursday. After hurting in lower back, I went to doctor thinking I had bladder infection, so the doctor sent me over for CT scan , it showed a spot on my lower spine L5. Then sent over to get MRI and it showed 3.8 x 3 cm mass. Four different doctors said that day it looked like kidney cancer. The…
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Todd?
Hello, haven't heard from Todd for a while, wonder how is he... Did anyone heard about him?
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Two year scans coming up
Hi All! Been about a year since I have been on. I do that for my own sanity and anxiety, but boy it's good to see so many of you still active and posting and seem to be doing well! I am of course nervous for my 2 year scans on Friday and thought I'd check in and see how everyone was doing and look for some words of…
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HLRCC or type 2 papillary??
Hi, I’m new and looking to see if there is anyone else with HLRCC or type 2 papillary kidney cancer on this forum. It’s rare and difficult to find research, information, or others to connect with for advice so I thought I’d give this a try. I had surgery 3.5 years ago to remove tumor, kidney, adrenal gland, and part of…
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Mets to the bone, how do you know?
So I am wondering what are the signs and symptoms for mets to the bone? What have any of you experienced first hand? I had my kidney removed back in November and since then had clear scans of chest and abdomen back in June. I have had some aches and pains in my Left shin, Left Thigh and Right hip. They aren't bad pain wise…
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Here we go... Scan # 3
At the Hospital waiting my turn for my scan... crossed fingers
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How do you not freak out, and where do you go...
So on July 18tI had the left kidney removed and it want fine. I did have a history of High BP but they always handled it. This time it waas not handled well and that evening my heart went into AFIB. The docs freaked and gave me a very high dose of Amiodarone 200 mg 3 X day and Eliquis 2.5 mil 2 x day. I went home with…
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Anyone heard from Marosa?
Just curious how her husband is doing. I haven't seen her post in a while.
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12 Months After Stopping Immunotherapy
I had another one of my three-monthly CT scans last week, 12 months after stopping the immunotherapy I had been receiving for three years. Still no signs of anything, and my bloods are all good, as is my life in general. Going on to six-monthly scans now. Regards, Fred
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definition of invincible
So, my dad told us yesterday that he has kidney cancer. I don’t think I’ve ever cried as hard as I did when he let is know what was going on. My dad is a 47-year-old geek, a non-smoker, non-drinker, a relatively healthy guy who shouldn’t be under the weight of all of this. At first, he thought it was kidney stones, and…
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3 year scans
I just finished my 3-year scans today and got the "all clear" for another year. Happy...you bet!! CR---I know your scans are tomorrow, so I sent Uncle NED your way. Stub
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Home from the kidney removal
So I got through the surgery on Thursday and only had one complications, I had irregular heart beat and went into afib, but they pulled me out of it and I am good. Doc beleives the chemo i had for my BC was a contributor to this. So while I went home with one less kidney, I pick up 2 more meds for life. I feel good though.…
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Canserversery
This week marks 17 years NED (except for the Prostate) and 76 years young. Hope I can get another 17 years out of the Prostate. Here's something from when I was a kid. https://www.facebook.com/100000340756148/videos/795664280454923/ icemantoo
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Complex cyst question
Hello, I have had a complex cyst in my left kidney that has been watched for about 4 years, my last MRI was October of last year, so I'm due for another scan within the next few months. The MRI report from last year stated: Multilobulated 4.5 x 3.6 cm cyst in the upper pole left kidney with a couple of thin internal…
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NED!
Got the call from my doc that my annual CT and Chest X-Ray was negative. 1 1/2 years since my surgery and a year since last summer's scan. Hope to keep going! Cy
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Chromophobe RCC - my experience
It has been nearly half a year since my right kidney was removed, and as my first follow-up scan approaches next month I thought I would share my experience. I live in the Atlanta area and am male, age 42 (was 41 at the time of my procedure), about 6'1"/145 lbs and a lifelong non-smoker and non-drinker in pretty good shape…