-
Not exactly anticipated outcome of my partial nephrectomy
I want to share a story of my robotic partial nephrectomy surgery that was performed at Stanford on Tuesday two weeks ago. I was supposed to get rid of a solid mass and drain the fluid of a simple cyst adjacent to it, since CT/MRI/US scans before the surgery indicated there was a small exophytic solid lesion in posterior…
-
Post-op: avoid incisional hernia or flank bulge
Hello everyone, Thank you so much for all the encouragement and advices when I was so anxious about the surgery. After surgery one of my major concerns is incisional hernia or flank bulge. I have an open partial nephrectomy. Compared to laparoscopic one, does open surgery have higher risk of incisional hernia? What are the…
-
Rt. Flank bulge / Hernia (?) following robotic nephrectomy
My surgeon seemed surprised that I had the 15cm by 6 cm rt. flank bulge AFTER SURGERY. They opened me up for removal after not being able to get it out through laproscope. He originally said "the swelling would go down"... It hasn't and the hernia specialist said the muscle nerves have been cut... and a screen wouldn't…
-
CT Scan results not so good
Hi Everyone, I took a long break from all things medical. As much as I could. I was so happy to go off the Chemo med, Cabometyx, that I'd taken for 15 months with great, stable results. Then creatinine levels got too high, so we decided to go off it. Fast forward 4 short months, and now I am in progression already. NOT…
-
Confusing scans
Hi- i has an u/s for gall bladder issues that also ended up showing a complex hypodense lesion with exogenic minimally shadowing center in the subcortical right upper pole. It measured 2.5 cm in right kidney. i then was sent for a ct scan but in the meantime had my gallbladder removed. The ct scan (with contrast) says…
-
One year ago
Last September 18, I said farewell to Sidney the kidney and his nasty hitch-hiker. Good riddance!
-
5 years Ned officially told I'm done with the scans
Had my 5 year scan back in February. Was told I'm all done no more scans , no more follow up. I'm now normal and only need to see my Doc once a year for my annual c/up. Doesn't seem like I'm normal. I don't feel normal. At least mentally. Cancer is very difficult to deal with mentally and emotionally. But I do feel better…
-
MRI contrast two days in a row?
I'm heading to the Mayo Clinic in two weeks for them to evaluate my approx. 6cm cystic mass on my left kidney, which has recently grown. I originally thought i had a kidney infection, so I had an ultrasound, which showed the growth of the kidney mass, AND a solid mass in my pelvis, which appears to be new. I was originally…
-
Just sharing
My wife (64) had her right kidney removed at the end of August, scans had indicated a 3.9 cm mass in the enter of the kidney and the rest of the kidney didn't look great. We received the pathology report a couple of weeks ago: RCC with a 6.2 cm mass, stage 2 focally extended to renal sinus and renal vein, ureteral margins…
-
Tiny 4mm lesion in kidney, yet glowed on PET scan
Hi all, I am actually visiting from the head and neck and lung cancer forums. I have been diagnosed with stage IIIb squamous cell lung cancer with occult primary (they cannot find a primary tumor in my lung). I have a total of four oncologists (two at Moffitt cancer center and two locally) concur in this diagnosis. I am…
-
Bone mestastasis question
Husband haas stage 4 to bone. On immunotherapy for 1 year.checkmate. Latest scan shows good results. But, 8 th rib shows activity. He complains of pain everywhere and is saying, he has had enough of pain. His pain medicine is only ibuprofen. What do you do for pain? What can i do to help?
-
Chemo -My dad's 2nd Dose of 1st round did not go well
Looking to see if this is how chemo feels like? Background: My dad is 59, fit for his age and has had I think 7 surgeries including 3 back operations and can take some amount of pain. Story: Today was his 2nd dose (last wk was 7 hrs and today was supposed to be 2 or 3) and he said it was "sheer torture". He said burning in…
-
chronic pain after partial neph
i had robotic partial nephrectomy of right kidney 7 month ago. and since then i have almost constant flank and between shoulder blades pain.doctor said it is not from surgery. he mentioned herniated disk. thoratic mri did not reveal any problem. ct and mri of stomach is negative. so doctor lies. why they are not honestly…
-
First scans next week
I have my first Mag3Renal scan next week-3 month. I had a recent CT due to shortness of breath, rising pulse and BP. It didn't show anything worrisome. I have definitely experienced an overall spike in BP and pulse-headaches, dizziness since my partial nephrectomy in late May of this year. I have been trying to increase…
-
My second follow-up scan
So my first scans 6 months post-nephrectomy were good, except that they showed "mild soft tissue stranding in the renal bed". Probably just inflammation left over from my surgery, but we decided to play it safe and ordered another CT scan for three months later to compare. Had my second scan yesterday and it was all good.…
-
Scans coming up in October. Scared.
So my surgery follow up scans are coming up in October. I'm really scared. I've kept my lifestyle, including the occasional drink or two. Just learned that a good friend is battling Type IV liver cancer and has not given that much to live. I'm depressed. I'm worried. I'm not sleeping. :-\ :-\
-
Roll call
since the crash, things are real confusing. If you’re still here, type here or something.
-
Date for Second Rodeo
My Prostate Surgery is set for Nov 12 barring an earlier cancellation. I am continuing my Walnut free diet. icemantoo
-
Votrient
I have been on Votrient for 21 months. My kidney cancer had spread into my lung before we caught it. I had both kidney and lung surgery 6 weeks apart. Has any one had cancer come back on votrient? My hair turnd all white. i have some dark hair return to my eyebrows and mustashe..
-
I have Shingles
and The fun never stops.
-
Translocation Renal Cell Carcinoma XP11.2
Happy Easter everyone! I hope you all enjoyed your day with family. I had a wonderful day with my family. My 3 1/2 year old twins were so much fun to watch on their egg hunt and opening their baskets. So I posted about a week and a half ago that my doctor called and said the pathologist was going to send my tumor off to…
-
5 Years Down the Road -- NED, Baby!!
One one hand, it seems like my diagnosis in April/May 2014 was such a long time ago. On the other hand, it seems like yesterday. While my tumor was small at 2.9 cm, it was in a tricky location on right kidney. Complicating the situation was the fact that I had extensive abdominal surgery. My first urologist said my entire…
-
Looking doctor recommendation
Hey all it been a minute. Good to read post of the same faithful poster. You are amazing. I commend you all. I have been busy with a new job and daughter in competition dance. But I do read often. I am looking for recommendation on a new urologist oncology specializing RCC In the Cincinnati, Dayton, and Columbus Ohio area.…
-
Five Years NED
Hello everyone, I haven't posted here for a while. I am dealing with another not cancer related issue of my life which takes all my strength, unfortunately I haven't been able to handle it yet, but I'm doing my best to finally find a way. Because of that I'm dealing with on and off depression but meanwhile trying hard to…
-
Boys only
One of the advantages of Kidney Caner for us guys, especially those of us over 50 is tthat we are seen at least yearly by a Uro. Besides a regular DRE and PSI he runs other tests and takes a better history in a search for Prostate Cancer. I think it helped for me in dectecting it before it otherwusewould of. icemantoo
-
I might have to join a new board
Ecerything's ok with the remaining kidney., but rhe Prostate valve on the plumbing is suspicious and I am having a biopsy on July 26. icemantoo
-
Metastasis to spine now
Hi, I had bad news last Thursday. After hurting in lower back, I went to doctor thinking I had bladder infection, so the doctor sent me over for CT scan , it showed a spot on my lower spine L5. Then sent over to get MRI and it showed 3.8 x 3 cm mass. Four different doctors said that day it looked like kidney cancer. The…
-
Todd?
Hello, haven't heard from Todd for a while, wonder how is he... Did anyone heard about him?
-
Two year scans coming up
Hi All! Been about a year since I have been on. I do that for my own sanity and anxiety, but boy it's good to see so many of you still active and posting and seem to be doing well! I am of course nervous for my 2 year scans on Friday and thought I'd check in and see how everyone was doing and look for some words of…
-
HLRCC or type 2 papillary??
Hi, I’m new and looking to see if there is anyone else with HLRCC or type 2 papillary kidney cancer on this forum. It’s rare and difficult to find research, information, or others to connect with for advice so I thought I’d give this a try. I had surgery 3.5 years ago to remove tumor, kidney, adrenal gland, and part of…