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Kidney Cancer

Need Advice - RCC Stage 3 - Adjuvant therapy - Clinical Trial - Pazopanib v/s Active Monitoring - An
Diagnosed 11/2011 - Open Partial 01/2012 - Pt3a - 2.5 cm clear cell, Fuhrman grade 2, renal vein invasion, am a high risk - with prognosis of 40% recurrence probability - Early 40's, with generally OK health (some back pain from a disc herniation - well managed, asthma - well managed) Options being given to me are (1)…
What I lack in experience I make up for with dumb questions...
I'm a recent inductee to cancer survivorship, and I'm bound to ask things that expose my ignorance. I had a left radical nephrectomy for renal cancer that was about 1/3 the size of my kidney in late 10/2019. So here goes: what should I expect from my oncologist? I know so far that I will get CT scans every 6 mos and blood…
Strange topic
Good afternoon, everybody! I have a question for the group. Today I renewed my driver's license and was asked if I wanted to continue to be an organ donor. "Absolutely!" was my response. But, I started thinking...I've been diagnosed with two (three if you count basal cell carcinoma (skin cancer)) different types of…
New Member - Intro and a Big Question - Searching for the Meaning of Life
Hello. I'm new to the forum. I'm a 47 year old female who was diagnosed with renal cancer October 23, 2018 when an incidental finding was made on an MRI I had for a back injury. Thank goodness for that. I spent my birthday getting a CT scan of my abdomen and a chest X-ray done. Luckily no mets or anything of concern aside…
What do bone mets feel like?
Can anyone describe what the pain from bone mets feels like? Having dull pain in my rib area that feels muscular but it has come and go over 5 or 6 weeks now...trying to figure out if I should contact my dr and get it checked out? The pain is not severe and if I hadn't had kidney cancer I wouldn't have thought so much…
Ultrasound or Ct
EditEd. I need Prayers and advice my 21 year daughter is having some night sweats and back pain. I am scared! The doctors refuse to do a CT scan. They said it was to risky for her age. I told them my history, but they still only would do an ultrasound. It was all clear thank GOD. But I’m still worried we have no answers.…
!0 years on Csn
In order to refresh my surgigal coping skills and help the nerbies I had ny Prostate out on 9/30. ON New Years eve I was told if I did not have my gallbldder out by the ebd of the year, I would die. I spennt New Year's eve with my surgeon having an open. She was a nice date. Will write more. icemantoo
17th PET/CT Scan
Been living with stage IV kidney cancer for 6+ years now. Just had my 17th PET/CT. New progression in soft tissues. Dang. So, Cabometyx out; Lenvatinib/Everolimus in. I was on Cabometyx for only 6 months. It was tough: I lost 35 lbs, dropping from 170 to 135, making me weak and unsteady. I'm looking forward to the short…
Waiting for Surgery (!)
Hi there. I just joined. I'm 44 years old and found out a few weeks ago that I have a solid 5 cm mass on my right kidney that appears to be localized, no metastases. Surgery is scheduled for Jan. 30, in 13 days. The plan is robotic surgery, the doc says he wants to try for a partial nephrectomy, but because it's located in…
Help with New Pathology Results
Hi all, About 18 months ago I had a partial nephrectomy, removing about 3/4's of my right Kidney. At that time after the kidney was removed and the mass( I believe it wass 5.7cm ) analyzed the pathology report showed findings consistant with oncocytoma, non-malignant. My specialist has been keeping an eye on the other…
Shoulder Pain 16 months post partial nephrectomy
Hello all - I had a partial nephrectomy in October of 2018 for RCC on my right kidney. Everything went well and I have been feeling great overall, however, in May of 2019 I began feeling pain in my shoulder. I attributed this to overuse due to weight lifting and exercise etc.... The pain would come and go so as it worsened…
Opinion on treatmenr
I have Chromophobe kidney cancer that has come back in my abdomen. Anyone out there have experience with treatments?
Checking-In
Hello all - it's been awhile so I figured that I'd check-in. Happy New Year! My two-year post bilateral partial nephrectomy appointment was in December 2019. The renal ultrasound showed something "suspicious" on the left kidney...so a CT abdomen/pelvis was ordered. CT confirmed surgical change only, just scar tissue.…
Prostatectomy 2 years ago and now this
2+ years after a prostatectomy and still showing a non-detectable PSA now I'm faced with a 4.6 cm mass in my right kidney. Consultation next week with my urologist as to which direction to go. Partial or total . Given my history I want it all gone but I suppose I should wait and see what he says. He called me early today…
Face flushing
Hi everyone. I have oncologist appt next week but gave been having bad face upper body flushing. Honestly is worrisome. I think I remember having before my surgery. Had hysterectomy in late 90's so not that. I'm 4 years out but insurance refuses ct scan This time. Said not needed. Anyone else get this with reoccurrence?…
Happy New Year!
Hello all. I haven't posted in a long time - sorry about that. I recently saw that Painter Girl (Ann) passed away a few weeks ago - so sad. We both started our cancer journey around the same time in March of 2018. I have been on Cabo for over a year now and the tumors have decreased in size and nothing new. I had SBRT in…
Hi everyone! Forgive my absence! Happy New Year!
Hello old friends and newbies! Wishing that the new year brings all good things, mainly health, love and peace! I dont come here often lately but CSN is very present always on my mind. I feel like Im living very very fast this last 10 months, Its difficult for me to even write a long message and make sense so forgive me!…
5 years ago
Hello everyone and seasons greetings! It has occured to me today that 5 years ago in December 2014 my husband had a surgery to remove kidney cancer. I still remember the date - December 15, the day doctors saved his life. He was Stage 1 Grade 1, clear cell, currently NED. Even had an unplanned/unscheduled NED in November -…
kidney cancer recurrence & survival rates
Hi, In March of 2017 I had a left nephrectomy and the removal of a tumor in the inferior vena cava. There was no follow up chemo and/or radiology. My doctors and I have been vigilant about doing 6 month MRIs and unfortunately, there has been a recurrence of the kidney cancer in lymphnodes on my right side. I will be…
Holiday Season is here
Wishing you and yours a relaxed and happy Holiday and New Year. In the past 13 years, I've learned to Not overdo and have the "if it doesn't get done, so what" attitude. Most importantly, I take care of myself, ensure my house is Healthy; but not necessarily totally neat and decorated. As a couple, we attend the kids…
Pembro/Cabo trial
I know I haven't been here in a while, and I wanted to check in. I had been on Votrient for over 18 months, and it was keeping my lung mets in check. My October scans showed growth in one of the Mets, and a new lesion on my L5. I stopped Votrient in November, and two weeks ago I completed radiation for the spinal met and…
Kidney Cancer - possible nodules in lungs.
Hello All, My father had kidney removed due to a renal mass of size 11cm × 8.2cm, and waiting for biopsy report. Also found multiple lung nodules with small one being 3mm and bigger one to be 7mm. We have a query metastasis, but worrying about the report outcome. As if now doctor have prescribed for immunosuprresant, and…
Trail closing -63 months NED
I dont post much anymore, but wanted to share this one, and actually get some feedback. I have been in a Sutent-Nivolumab trial since Feb 2013, I was stage IV with lung spots and an adrenal tumor. I have been NED since August 2014. I have continued to take Nivolumab infusions and 37.5 mg of sutent for maintenance since…
Vit C IV (Kidney Cancer)
Hey all, I’m trying to find Vit C IV. I am in the UK and would much rather one of my friends (a nurse) to admin it rather than going into a clinic where the cost has been considerably bumped up. If anyone knows, please get in touch. I’ve also researched that Tapioca, Camu Camu and other natural forms of vitamin c is more…
NED today!
So today I was cleared for another 4 months. God is so good. Whoop Whoop, Roar!!!
Sorry for being away so long!
I've just been so busy with work and family and not thinking much about cancer! I feel a little guilty. I had CT scans Tuesday and they were clean. It's the 5 year mark for me. It's been 5 years since my last tumor. I'm so happy and relieved to have made it to 5 years. Those of you Stage 4, I want you to know that it's…
Follow up blood work - concerned.
Hello, team. I'm not a doctor, and I don't pretend that any of you are. Some follow up bloodwork was done on me and I just want to compare notes. I have an upcoming appointment with my nephrologist. Background: I had a nephrectomy in March. Tests performed approximately two weeks ago: * Glucose - High 117 * Bun - 19 * eGFR…
All is well from Disneyland
yAs most of you are aware I had my surgery to remove my Prostate in Orlando back on September 30. Today I got the resuly of my 6 week post seugery PSA whych was undetectabl or for lack of a better worh, Ned. My wife thinks seeing a Urulogist regularly as a result of Kidney Cancer led to earlier detection and may have saved…
My dad.
i peed blood 3 years ago, had surgery and joined the club. It’s been up and down since. I wouldn’t have wished this on anyone. Tonight, I learned that my dad has been peeing blood for 4 months. Blood clots, same symptoms, everything. Saw the doc and tested normal, so no one did anything. He scans on Tuesday. I’m totally…
Husband check in, checkmate immunotherapy.
Husaand had scan two weeks ago. No new growth, srinkage of bone tumors. We are at 1.5 years. He is feeling better since we stopped the bone hardening additive. Blood work looks great.

Kidney Cancer

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