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NED today!
So today I was cleared for another 4 months. God is so good. Whoop Whoop, Roar!!!
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Sorry for being away so long!
I've just been so busy with work and family and not thinking much about cancer! I feel a little guilty. I had CT scans Tuesday and they were clean. It's the 5 year mark for me. It's been 5 years since my last tumor. I'm so happy and relieved to have made it to 5 years. Those of you Stage 4, I want you to know that it's…
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Follow up blood work - concerned.
Hello, team. I'm not a doctor, and I don't pretend that any of you are. Some follow up bloodwork was done on me and I just want to compare notes. I have an upcoming appointment with my nephrologist. Background: I had a nephrectomy in March. Tests performed approximately two weeks ago: * Glucose - High 117 * Bun - 19 * eGFR…
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All is well from Disneyland
yAs most of you are aware I had my surgery to remove my Prostate in Orlando back on September 30. Today I got the resuly of my 6 week post seugery PSA whych was undetectabl or for lack of a better worh, Ned. My wife thinks seeing a Urulogist regularly as a result of Kidney Cancer led to earlier detection and may have saved…
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My dad.
i peed blood 3 years ago, had surgery and joined the club. It’s been up and down since. I wouldn’t have wished this on anyone. Tonight, I learned that my dad has been peeing blood for 4 months. Blood clots, same symptoms, everything. Saw the doc and tested normal, so no one did anything. He scans on Tuesday. I’m totally…
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Husband check in, checkmate immunotherapy.
Husaand had scan two weeks ago. No new growth, srinkage of bone tumors. We are at 1.5 years. He is feeling better since we stopped the bone hardening additive. Blood work looks great.
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Newly diagnosed
Hi. My name is Mary and I was recently diagnosed with 7.5cm tumor on right kidney with small thrombus in renal vein (T3b stage?). I am 59 year old female. I am scheduled to have robotic assisted laparoscopic nephrectomy on Monday. It has been a crazy few months. I had gastric sleeve surgery in August, followed 3 weeks…
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I don't have too much to say at this point in my life
I didn't have lap or robotic surgery, no drugs or radiation, or a lot of the problems some of you have encountered. I hit the road the first time with Stage 4, T2N2M1 in 2006. Then had recurrences in single nodes in 2007 and 2008. Three major surgeries and monitoring since then. I'm still not enjoying the CT's with barium…
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NED!!!
Second year scans came clear.NED. Wanted to share the good news with the group. Thank you again for the all support and strength.
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I’m Back!
I joined the prostate cancer forum Fall 2009 just before my robotic, radical prostatectomy. My PSA was undetectable for 5 years. Then I ate some bad duck in late summer 2014, got campilobacter infection, caused renal failure, creatinine went to 6.7. After 4 days in ICU they decided to scan my kidneys to see if there was…
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Questions about robotic retroperitoneal partial nephrectomy
Hello, I am a woman in my 40s and recently found out I have a 2.2cm kidney tumor. It does not appear to have spread. The doctor said there is an 85% chance it’s cancerous but they won’t know until it’s removed so of course I’m hoping it is benign. The first surgeon I met with said he could not operate robotically due to…
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Iceman question.
What standing alone always lowers your kidney function,(GFR), but is a good thing to do? icemantoo
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22 months NED
Had my 3rd 6 month post-op scan today. Not one single thing in either kidney. Starting this journey, I had 4 in my right (they took one out) and 2 in my left. Happy news......EXCEPT....they think it's Mets to my C7-T1 area of my spine (neck) incidental find of course. MRI on Dec 2 and go from there. Rad Dr was pretty…
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NED !!!
4 years NED THANKS for all the support
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Breakthrough as scientists create a virus that can kill EVERY type of cancer
https://www.dailymail.co.uk/news/article-7664927/Breakthrough-scientists-create-new-cowpox-style-virus-kill-type-cancer.html Hope this is something we all have been waiting for! Let's stay healthy
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Video
Thank you icemantoo for the informative video. I have found that the more I know the less anxiety I have. In 2017 I had an MRI r/t microscopic blood in my urine in which a small 0.5 x 0.6 x 0.5 cm tumor on the lower pole of my left kidney was found (unrelated to the blood in my urine-which I recently found out has…
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lower back pain when sleeping flat
Before surgery, I was told I wouldn't be able to sleep on my regular bed, so I bought a reclining bed and I was sleeping on the reclining bed for a few weeks after surgery. As I start to feel better, I go back to my regular bed and sleep flat. However, every night when I sleep flat, I wake up with bad lower back pain. If I…
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Video for Newbies
https://vimeo.com/371401433?fbclid=IwAR1O4RIXwEE2g_-_H3AUEqey6b02kuU5CTST_c54G1jotHgCvKc_9g4oHy4 icemantoo
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NED!!
Latest scan Ned!!
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New Here
Hi everyone! I discovered this forum in search of how long it takes for cardio ability to return after a nephrectomy. On July 11, 2019 my entire left kidney was removed. Before that I was in great shape for a 57 yr old female. (No symptoms of cancer...discovered accidently) I started doing my weight and cardio workouts…
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NED
haven't been here in a while. Lots of life changes going on. Starting a new job next week and have been working on transitioning out of the old job. Happy to share with you all that my latest round of scans 9 months post surgery are NED! Doc is switching me to ultrasounds and chest x ray every 6 months instead of cat…
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spleen removal
Hi Its been awhile since I posted. My husband was diagnosed with Stage IV cancer in 2014. At first it was described as advanced and aggressive. He responded well to treatment and later was given a prognosis of 5 years. That was 5 years ago. He is still doing great for the most part. He has not worked in 4 years but he is…
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Recently diagnosed with rare Kidney Cancer
Hi I'm new to this, my name is Kate and I'm 25. I was having blood in my pee and some bloating/eating issues so I went to my family doctor where I found out I had a cyst on my ovary and while doing further tests for that they found a mass on my right kidney. I was then recommended to our state hospital where my doctor…
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Follow-up scans
Hi everyone, I just had my first follow-up visit with my doctor. Regarding follow-up scans, he asks me to do an ultrasound + chest X-ray every 6 months. This seems different from most posts I read here with frequent CT scans. Probably my doctor wants to avoid too much radiation and toxic dye on young patients? I wonder…
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Sooner than later
My Prostate surgery for November 12 has been moved up to September 30. Yikes, 1 week to go. icemantoo
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It's been a while..
Hey guys! Its been a while since I have been on this board. I was diagnosed in August 2017 with a 4.5 CM and had a partial Right Nephrectomy in September 2017. CCRCC Stage 1 Grade 2. Fast forward to last Thursday at my scans a small cyst that was being monitored for 2 years took up the dye. It seems there is a small 2.0 or…
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Hello everyone
Hi everyone, wishing you all the best and hoping you are doing well. Im sorry I don't visit or post as I once used to but ever snce my husband was diagnosed last March, we have been in a rollercoaster and just trying to live as normal a life as possible and everything related to "C" has taken so much space for us that at…
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2 years now...great news!
This week is my 2 year cancerversary-partial neph-stage 3. I had my scan yesterday and I'm still NED! It's a huge relief to make it to year 2 with no reoccurance. My doctor was thrilled and announced everything was clean the minute he walked in the room. He know's how awful the waiting and anticipation can be. Normally, I…
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Kidney Mass-- Frustrations and Questions
Hi everyone, I'm a 57-year old male and new to this board. My doctor found a small mass (2cm) in my right kidney about six months ago by accident (no symptoms) that is suspected to be Renal Carcinoma. I was set to have an ablation done a couple of weeks after that discovery, but my insurance (Blue Cross Blue Shield of…
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How sweet it is...
Haven't been here in a while. Busy with work and, quite frankly, that has been great. Had my follow up scans past Monday. Results in. No evidence of metastatic disease. Today's a glorious day. I'm going to take it off. Spend it playing Apex Legends and chilling out. I'm happy. Still feel that I need to be vigilant and…