-
My Husband's 3-Year Scan Results
NED!!!!!!!!!!!!! He was stage 3, grade 3 when his kidney was removed 3 years ago. That was such a dark time and you guys really helped me get through it!! I just love you guys!!
-
New and conflicted about surgeon options
Hi everyone, What a wonderful community this is! I’m blown away by how much people support each other on this difficult journey. A little about me – I’m a 45 y.o. female, live in Atlanta, and I just joined this forum. I have a 4.5cm septated cyst on my right kidney, presumably localized. I am scheduled for a robotic…
-
Need answers
I will be having my only kidney removed next month.Lost right one to cancer 20 years ago.I do have HBP,CHF,Afib.I am 72 years old.I need to know about the effect of dialasys with my medications,Also need to know how much liquids I can consume & is there a strict diet I must use.Thanks for any information given.I am sure…
-
NED!
Just had my 4 year scan, labs and checkup. Happy to say that I'm ned! Just wanted to share my news and I'm wishing ned visits all around! Kim
-
3cm Tumor right kidney Cryoablation
Hello all, I just had a cryoablation for my 3cm size of kidney tumor in the right. The procedure took 2 hours and then after, Doctor told me that they did snoball (i dont know if this the right word) and they were able to insert 3 needles. Did anyone had this procedure and whats the chances of having cancer cells be killed…
-
New, neurotic and terrified.
Hi everyone Habe been lurking for a few days and noticed how lovely and supportive you all are. I suppose I’m looking for some of your expertise and reassuranc. My story - I am 50 year old female, went for ultrasound 3 weeks ago for suspected kidney stones. A solid mass found on right kidney and fast forward to CT which I…
-
In Need of Some of Your Support
Oh, it's scan time again for my husband and I am a mess. I am trying to hide it for him and the kids but it is extra tough this year. I haven't really talked about it before but our son has many health issues and I just keep thinking "How will I be able to care for him without my husband?" or "How can I grow old alone?".…
-
Lung nodules , when to worry ?
In 2 weeks I will have my 2-year scan after my partial nephrectomy... it has been a ride of emotions... I am still very scary every time I am facing this situation. In my last 2 scans, they are mentioning the presence of very tiny lung nodules but "benign": 7/31/19 Lungs and airways: Central airways are patent. Stable 3 no…
-
Medicare and PET scans for kidney cancer folks
I'm on medicare, with a supplemental policy to cover what medicare won't. I've had 3 or 4 PET scans in the past and my doctor wants another one this week because the cancer has decided to move into my right lung. For a couple of reasons, my doctor wants the PET scan this time (I've had many, many CT scans over my 7-year…
-
Need Advice - RCC Stage 3 - Adjuvant therapy - Clinical Trial - Pazopanib v/s Active Monitoring - An
Diagnosed 11/2011 - Open Partial 01/2012 - Pt3a - 2.5 cm clear cell, Fuhrman grade 2, renal vein invasion, am a high risk - with prognosis of 40% recurrence probability - Early 40's, with generally OK health (some back pain from a disc herniation - well managed, asthma - well managed) Options being given to me are (1)…
-
What I lack in experience I make up for with dumb questions...
I'm a recent inductee to cancer survivorship, and I'm bound to ask things that expose my ignorance. I had a left radical nephrectomy for renal cancer that was about 1/3 the size of my kidney in late 10/2019. So here goes: what should I expect from my oncologist? I know so far that I will get CT scans every 6 mos and blood…
-
Strange topic
Good afternoon, everybody! I have a question for the group. Today I renewed my driver's license and was asked if I wanted to continue to be an organ donor. "Absolutely!" was my response. But, I started thinking...I've been diagnosed with two (three if you count basal cell carcinoma (skin cancer)) different types of…
-
New Member - Intro and a Big Question - Searching for the Meaning of Life
Hello. I'm new to the forum. I'm a 47 year old female who was diagnosed with renal cancer October 23, 2018 when an incidental finding was made on an MRI I had for a back injury. Thank goodness for that. I spent my birthday getting a CT scan of my abdomen and a chest X-ray done. Luckily no mets or anything of concern aside…
-
What do bone mets feel like?
Can anyone describe what the pain from bone mets feels like? Having dull pain in my rib area that feels muscular but it has come and go over 5 or 6 weeks now...trying to figure out if I should contact my dr and get it checked out? The pain is not severe and if I hadn't had kidney cancer I wouldn't have thought so much…
-
Ultrasound or Ct
EditEd. I need Prayers and advice my 21 year daughter is having some night sweats and back pain. I am scared! The doctors refuse to do a CT scan. They said it was to risky for her age. I told them my history, but they still only would do an ultrasound. It was all clear thank GOD. But I’m still worried we have no answers.…
-
!0 years on Csn
In order to refresh my surgigal coping skills and help the nerbies I had ny Prostate out on 9/30. ON New Years eve I was told if I did not have my gallbldder out by the ebd of the year, I would die. I spennt New Year's eve with my surgeon having an open. She was a nice date. Will write more. icemantoo
-
17th PET/CT Scan
Been living with stage IV kidney cancer for 6+ years now. Just had my 17th PET/CT. New progression in soft tissues. Dang. So, Cabometyx out; Lenvatinib/Everolimus in. I was on Cabometyx for only 6 months. It was tough: I lost 35 lbs, dropping from 170 to 135, making me weak and unsteady. I'm looking forward to the short…
-
Waiting for Surgery (!)
Hi there. I just joined. I'm 44 years old and found out a few weeks ago that I have a solid 5 cm mass on my right kidney that appears to be localized, no metastases. Surgery is scheduled for Jan. 30, in 13 days. The plan is robotic surgery, the doc says he wants to try for a partial nephrectomy, but because it's located in…
-
Help with New Pathology Results
Hi all, About 18 months ago I had a partial nephrectomy, removing about 3/4's of my right Kidney. At that time after the kidney was removed and the mass( I believe it wass 5.7cm ) analyzed the pathology report showed findings consistant with oncocytoma, non-malignant. My specialist has been keeping an eye on the other…
-
Shoulder Pain 16 months post partial nephrectomy
Hello all - I had a partial nephrectomy in October of 2018 for RCC on my right kidney. Everything went well and I have been feeling great overall, however, in May of 2019 I began feeling pain in my shoulder. I attributed this to overuse due to weight lifting and exercise etc.... The pain would come and go so as it worsened…
-
Opinion on treatmenr
I have Chromophobe kidney cancer that has come back in my abdomen. Anyone out there have experience with treatments?
-
Checking-In
Hello all - it's been awhile so I figured that I'd check-in. Happy New Year! My two-year post bilateral partial nephrectomy appointment was in December 2019. The renal ultrasound showed something "suspicious" on the left kidney...so a CT abdomen/pelvis was ordered. CT confirmed surgical change only, just scar tissue.…
-
Prostatectomy 2 years ago and now this
2+ years after a prostatectomy and still showing a non-detectable PSA now I'm faced with a 4.6 cm mass in my right kidney. Consultation next week with my urologist as to which direction to go. Partial or total . Given my history I want it all gone but I suppose I should wait and see what he says. He called me early today…
-
Face flushing
Hi everyone. I have oncologist appt next week but gave been having bad face upper body flushing. Honestly is worrisome. I think I remember having before my surgery. Had hysterectomy in late 90's so not that. I'm 4 years out but insurance refuses ct scan This time. Said not needed. Anyone else get this with reoccurrence?…
-
Happy New Year!
Hello all. I haven't posted in a long time - sorry about that. I recently saw that Painter Girl (Ann) passed away a few weeks ago - so sad. We both started our cancer journey around the same time in March of 2018. I have been on Cabo for over a year now and the tumors have decreased in size and nothing new. I had SBRT in…
-
Hi everyone! Forgive my absence! Happy New Year!
Hello old friends and newbies! Wishing that the new year brings all good things, mainly health, love and peace! I dont come here often lately but CSN is very present always on my mind. I feel like Im living very very fast this last 10 months, Its difficult for me to even write a long message and make sense so forgive me!…
-
5 years ago
Hello everyone and seasons greetings! It has occured to me today that 5 years ago in December 2014 my husband had a surgery to remove kidney cancer. I still remember the date - December 15, the day doctors saved his life. He was Stage 1 Grade 1, clear cell, currently NED. Even had an unplanned/unscheduled NED in November -…
-
kidney cancer recurrence & survival rates
Hi, In March of 2017 I had a left nephrectomy and the removal of a tumor in the inferior vena cava. There was no follow up chemo and/or radiology. My doctors and I have been vigilant about doing 6 month MRIs and unfortunately, there has been a recurrence of the kidney cancer in lymphnodes on my right side. I will be…
-
Holiday Season is here
Wishing you and yours a relaxed and happy Holiday and New Year. In the past 13 years, I've learned to Not overdo and have the "if it doesn't get done, so what" attitude. Most importantly, I take care of myself, ensure my house is Healthy; but not necessarily totally neat and decorated. As a couple, we attend the kids…
-
Pembro/Cabo trial
I know I haven't been here in a while, and I wanted to check in. I had been on Votrient for over 18 months, and it was keeping my lung mets in check. My October scans showed growth in one of the Mets, and a new lesion on my L5. I stopped Votrient in November, and two weeks ago I completed radiation for the spinal met and…