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NED (in the time of COVID-19)
When I scheduled these scans six months ago, never in a million years would I have imagined that it'd be in the middle of a worldwide pandemic with social distancing and self-quarantining. The handful of people in the waiting room were super upbeat and chatty. I think being self-quarantined has made them all punchy for…
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Had partial open nephrectomy 6 months ago and still have swelling and intermittent pain
Some background: 16 years ago I was diagnosed with a 12cm tumor in my kidney. At the time I had no health insurance and not able to get any (due to being a diabetic, pre-existing condition), was depressed from the loss of a child a year before and basically thought well this is it for me, so I decided to do nothing and…
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food/nutrition
SO- now that my BF's kidney is removed we battle the question of what to eat? I have been looking up super foods and what to eat, what to avoid however, I'ld like to know what everyone's oppinion is and suggestions and or recipes? I made a super broth for him and slowly adding fresh carrots, chicken, etc. This morning he…
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Tele-Med conference
The Covid-19 has forced new procedures on the local clinics. Our county in Oregon has, thus far, had no positive tests. But Drs' have changed how they deal with things like an Oncology check. Last week, I was screened between the the entry doors before being admitted for labs. Today was my follow up by computer to my cell…
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Hello Iceman, how are you?
Hello Iceman, how is your recovery from the condition and surgery? I hope all is well with you and your family under the pandemic!
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NED
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Mets to brain
Hello All, New to site. Just wanted to let you know my situation . Had my left kidney removed April 2017. In October 2019 it metastasized to my brain. Had two tumors removed successfully by an excellent neurosurgeon. My last MRI and cut scan were clean. That was around Xmas. Next scans will take place late April. Moved to…
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Has to be asked: COVID-19 and neph
Has to be asked, and I'm sure that survivors of other types of cancers probably have it worse than us. Way worse. But I've been wondering how people like us, with only one kidney, would do with this entire COVID-19 debacle. I mean, taking the recommended precautions here, as much as I can. But I still have one kidney doing…
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Thank you all!
Hi remember me the crazy Swede? I just want to say thank you for being there for me when i really really needed it. I dont thnk i could have made it if you guys and girls didnt listened to one hysterical lady and gave me all of your wisdom. Im still hysterical And trying not to think so much cancer and thats why you dont…
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Are We Back up
Is the site back up? Did we lose any content?
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My Husband's 3-Year Scan Results
NED!!!!!!!!!!!!! He was stage 3, grade 3 when his kidney was removed 3 years ago. That was such a dark time and you guys really helped me get through it!! I just love you guys!!
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New and conflicted about surgeon options
Hi everyone, What a wonderful community this is! I’m blown away by how much people support each other on this difficult journey. A little about me – I’m a 45 y.o. female, live in Atlanta, and I just joined this forum. I have a 4.5cm septated cyst on my right kidney, presumably localized. I am scheduled for a robotic…
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Need answers
I will be having my only kidney removed next month.Lost right one to cancer 20 years ago.I do have HBP,CHF,Afib.I am 72 years old.I need to know about the effect of dialasys with my medications,Also need to know how much liquids I can consume & is there a strict diet I must use.Thanks for any information given.I am sure…
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NED!
Just had my 4 year scan, labs and checkup. Happy to say that I'm ned! Just wanted to share my news and I'm wishing ned visits all around! Kim
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3cm Tumor right kidney Cryoablation
Hello all, I just had a cryoablation for my 3cm size of kidney tumor in the right. The procedure took 2 hours and then after, Doctor told me that they did snoball (i dont know if this the right word) and they were able to insert 3 needles. Did anyone had this procedure and whats the chances of having cancer cells be killed…
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New, neurotic and terrified.
Hi everyone Habe been lurking for a few days and noticed how lovely and supportive you all are. I suppose I’m looking for some of your expertise and reassuranc. My story - I am 50 year old female, went for ultrasound 3 weeks ago for suspected kidney stones. A solid mass found on right kidney and fast forward to CT which I…
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In Need of Some of Your Support
Oh, it's scan time again for my husband and I am a mess. I am trying to hide it for him and the kids but it is extra tough this year. I haven't really talked about it before but our son has many health issues and I just keep thinking "How will I be able to care for him without my husband?" or "How can I grow old alone?".…
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Lung nodules , when to worry ?
In 2 weeks I will have my 2-year scan after my partial nephrectomy... it has been a ride of emotions... I am still very scary every time I am facing this situation. In my last 2 scans, they are mentioning the presence of very tiny lung nodules but "benign": 7/31/19 Lungs and airways: Central airways are patent. Stable 3 no…
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Medicare and PET scans for kidney cancer folks
I'm on medicare, with a supplemental policy to cover what medicare won't. I've had 3 or 4 PET scans in the past and my doctor wants another one this week because the cancer has decided to move into my right lung. For a couple of reasons, my doctor wants the PET scan this time (I've had many, many CT scans over my 7-year…
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Need Advice - RCC Stage 3 - Adjuvant therapy - Clinical Trial - Pazopanib v/s Active Monitoring - An
Diagnosed 11/2011 - Open Partial 01/2012 - Pt3a - 2.5 cm clear cell, Fuhrman grade 2, renal vein invasion, am a high risk - with prognosis of 40% recurrence probability - Early 40's, with generally OK health (some back pain from a disc herniation - well managed, asthma - well managed) Options being given to me are (1)…
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What I lack in experience I make up for with dumb questions...
I'm a recent inductee to cancer survivorship, and I'm bound to ask things that expose my ignorance. I had a left radical nephrectomy for renal cancer that was about 1/3 the size of my kidney in late 10/2019. So here goes: what should I expect from my oncologist? I know so far that I will get CT scans every 6 mos and blood…
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Strange topic
Good afternoon, everybody! I have a question for the group. Today I renewed my driver's license and was asked if I wanted to continue to be an organ donor. "Absolutely!" was my response. But, I started thinking...I've been diagnosed with two (three if you count basal cell carcinoma (skin cancer)) different types of…
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New Member - Intro and a Big Question - Searching for the Meaning of Life
Hello. I'm new to the forum. I'm a 47 year old female who was diagnosed with renal cancer October 23, 2018 when an incidental finding was made on an MRI I had for a back injury. Thank goodness for that. I spent my birthday getting a CT scan of my abdomen and a chest X-ray done. Luckily no mets or anything of concern aside…
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What do bone mets feel like?
Can anyone describe what the pain from bone mets feels like? Having dull pain in my rib area that feels muscular but it has come and go over 5 or 6 weeks now...trying to figure out if I should contact my dr and get it checked out? The pain is not severe and if I hadn't had kidney cancer I wouldn't have thought so much…
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Ultrasound or Ct
EditEd. I need Prayers and advice my 21 year daughter is having some night sweats and back pain. I am scared! The doctors refuse to do a CT scan. They said it was to risky for her age. I told them my history, but they still only would do an ultrasound. It was all clear thank GOD. But I’m still worried we have no answers.…
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!0 years on Csn
In order to refresh my surgigal coping skills and help the nerbies I had ny Prostate out on 9/30. ON New Years eve I was told if I did not have my gallbldder out by the ebd of the year, I would die. I spennt New Year's eve with my surgeon having an open. She was a nice date. Will write more. icemantoo
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17th PET/CT Scan
Been living with stage IV kidney cancer for 6+ years now. Just had my 17th PET/CT. New progression in soft tissues. Dang. So, Cabometyx out; Lenvatinib/Everolimus in. I was on Cabometyx for only 6 months. It was tough: I lost 35 lbs, dropping from 170 to 135, making me weak and unsteady. I'm looking forward to the short…
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Waiting for Surgery (!)
Hi there. I just joined. I'm 44 years old and found out a few weeks ago that I have a solid 5 cm mass on my right kidney that appears to be localized, no metastases. Surgery is scheduled for Jan. 30, in 13 days. The plan is robotic surgery, the doc says he wants to try for a partial nephrectomy, but because it's located in…
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Help with New Pathology Results
Hi all, About 18 months ago I had a partial nephrectomy, removing about 3/4's of my right Kidney. At that time after the kidney was removed and the mass( I believe it wass 5.7cm ) analyzed the pathology report showed findings consistant with oncocytoma, non-malignant. My specialist has been keeping an eye on the other…
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Shoulder Pain 16 months post partial nephrectomy
Hello all - I had a partial nephrectomy in October of 2018 for RCC on my right kidney. Everything went well and I have been feeling great overall, however, in May of 2019 I began feeling pain in my shoulder. I attributed this to overuse due to weight lifting and exercise etc.... The pain would come and go so as it worsened…