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Da Vinci 3 days ago...new guy reporting
Hello All, Just ran into this site while looking for post op hints. They caught my 2.5 cm mass on lower left Kidney a few months ago by accident and suggested go with removal by robotics at my age of 53. I had no one family ever had cancer, barely smoked and still do sports. They said just bad luck dude. Spent past 2…
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Da Vinci 3 days ago...new guy reporting
Hello All, Just ran into this site while looking for post op hints. They caught my 2.5 cm mass on lower left Kidney a few months ago by accident and suggested go with removal by robotics at my age of 53. I had no one family ever had cancer, barely smoked and still do sports. They said just bad luck dude. Spent past 2…
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Another hurdle
I am just back from the oncologist after completeing radiation on spine mets and ultrasound of thyroid nodule. I need to have a fine needle biopsy of the thyroid on Monday. Appears possible that it is meta static disease which I understand is unusual for RCC but also could be a new primary. Also have a small (8mm) growth…
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Treatment Conference
Hi All..! OK, I almost named this thread Cross Polination, but to keep it on the serious side.. well.. you all know.. Overall I am a relative newbie here, and I forgot to mention one thing I was told about Kidney Cancer and Treatments. My first Oncologist told me there is a group of top RCC Doctors (from all over the…
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Thank you
I have been reading quite a number if posts over the last few days and am amazed by the amount of knowledge and postive words on this site. I have been miserable since metastatic disease has been diagnosed, but find the stories of you wonderful people here very uplifting and do a lot for the dark moments I have. That's not…
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Rash from Votrient?
Ready to start the 3rd month of Votrient. Other than the diarrhea and things don’t taste right OK so far. I did notice a rash starting on my right hip. Votrient can cause a rash. Is there anything I can put on it to help? Not that itchy yet but that may change.
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Stage1 Grade2
Just got back from the Doc's. Clear cell Stage 1 and Grade 2. 1.6cm in size. Doc says Ill cya in 6 months.. Funny how it flys by so quickly.
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25th infusion
I had my 25th infusion of MDX-1106 yesterday. My Dr. asked me, " Do you have any pain?" nope. "Night sweats?" nope. "diarrhea?" nope. "Constipation?" nope. "Fatigue?" nope."Mouth sores?" nope. Then she says, "I'll have to write that patient complains of feeling too good." Then I got my hug. I hope I can do this every 3…
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Update on Michael ****'s surgery
Hello from Michael **** thru his spouse. He is out of surgery. Everything went well. No "shark bite." Kidney larger than expected but they think tumor is contained. Will know for sure after pathology. But he is okay and will be up and walking this afternoon if all goes well, we go home tomorrow. Thanks to all of you for…
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Seeking any information on RCC
First a little background on myself. I am a 48 year old male and was diagnosed with stage IV RCC September 2012. I went to the orthopedist in August 2012 because I thought I had injured my shoulder while working on my sons car. The orthopedist said it wasn't an injury and sent me for further test. Dozens of xrays, scans…
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John's One Year Anniversary on Nivolumab - Votrient Trial
Congratulations to my husband, John (aka one putt) on his one year anniversary (May 10) in the Nivolumab-Votrient trial at Hopkins. It's hard to believe it's been an entire year! With a 58% reduction in tumor burden in this first year, know I'm hoping and praying for many more!!!! Congratulations! XOXOXOXO
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Going to the surgeon
I am going to the surgeon today to find out what they are going to do and my aftercare. I was told that I had cancer 1 1/2 weeks ago and had to have radical nephrectomy right away. I'm still a little stunned to say the least, but my family is more devastated than I am. What should I expected to hear today? /
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Chronic Tiredness
hi all, how is everyone doing? i just have a question....i have started suffering with chronic tiredness in the afternoon again....the last time i felt like this was before my op in january...am i worrying about nothing? i have been taking vitamins and supplements but they seem to be having the opposite effect!! any advice…
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Blood work tomorrow...
I know my blood pressure is higher since starting on Votrient. I'm hoping my liver and the Votrient have been playing nicely together. I'm a little nervous that something will be off and they'll have to take me off Votrient for some reason. I start my official third week on Votrient and I have no side effects to report.…
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In the morning . . .
I officially become a Kidney Cancer Survivor cause that sucker is coming out! Who wants the first dance? Check in is at 6:00 am EDST! Woot! Talk to you all soon! Michael
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Questions
I had a laprascopic partial nephrectomy on April 11th and was told everything went well. Came home on April 13th. April 24th was taken to ER by ambulance for severe urinary track bleeding. Catherized and sent home. On the 27th back to ER unable to urinate at all - catherized and put on continuous irrigiation. After two…
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Pathology Report!! As good as it gets, so I am told........
So, as most of you know I had my surgery (total radical nephrectomy) on 4/29/13 and I have my pathology report. Below are the findings: 1. Renal Cell Carcinoma, clear cell type 2. Fuhrman Nuclear Grade 2 out of 4 3. Size: 4.7cm / I was informed by my Urologist that images taken (CT Scan/MRI) showed a larger tumor size…
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Happy mothers day
So I had my surgery Thursday and everything went "flawlessly" I had probably the best possible surgical team I could have asked for. I am about a day behind as far as recovery goes due to very bad neasuea from the anesthesia. I came home yesterday, best mothers day present ever!! I will say this, though I am feeling much…
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.
I have been reading your post for the last few months and they give me a lot of encourgagement. This is the first time I have posted myself. I had my left kidney out in September 2011. 8 cm and had spread to 2 lymph nodes. reports came back papillary cancer. Not long after mets in the lungs. I have been on Avastin, Sutent,…
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Kidney Tumor
Hi, I just found out I have approximately a 2 in growth in the center of my left kidney. This site has helped me release myself from the fear and take action. Thank you! The urologist that I was referred to was not very informative, I'm wondering if any of you have suggestions about what type of questions to ask. I have…
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What do you wish you had done . . . ?
Okay folks, I am 72 hours out from my surgery. It is a hand assist radical laparoscopic procedure on the right kidney. The surgeon reassessed and it is 5.6 cm instead of the 4 cm they first noted. He was looking at the same CT that was used originally so there's no chance for growth. But on to the question. What do you…
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Surgery Done 4/29!!!
Hi, Sorry for my little absence as work, school & preparing for surgery was hectic. My surgery was done laparoscopically. Under my left breast my incisions look like -__- with a - right under my breast. I was in the hospital for 2 days and didn't get the best treatment. They never worried about me having a bowel movement…
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recently diagnosed with renal kidney cancer
I am terrified of the word cancer. Mine was accidentally found and now have had biopsey to find out it is renal cell. Now I have to wait till Nov 12 for surgery. The tumor is about 2 inches and I had no symptons. I also have fibromyalgia so my whole back always hurts. I feel like I've been handed a death sentence. I don't…
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Waiting time
Diagnosed with rcc April 5. Had an ultrasound for another reason which spotted a mass on my left kidney. CT scan followed a week later then my appointment with urologist. He wants to do a radical because even though mass is fairly small - around 4cm where it is positioned is his reasoning for radical. Problem is I haven't…
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Kidney Cysts
Hi Everyone, I have posted here before whenever I had concerns about my wife which Thank God turned to be a much better outcome in her case but here is my story now: 2 weeks ago I went for an Abdominal Ultrasound to rule out Gallbladder stones or inflammed liver as I was experincing some burning discomfort but instead,…
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Tired before treatment?
Just a quick question – I know that after surgery being fatigued is normal, but has anyone else noticed if they were more tired than normal before their surgery/treatment? Can kidney cancer make you tired? I’m just trying to figure out why I am so completely exhausted. Wondering if it’s just everyday stress compounded by…
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Pathology reports- clear cell with extensive rhabdoid features grade 4
Hello. I have posted previously here about my father and his kidney cancer spreading to the brain. We just now saw a specalist for the first time and was shocked to find out he actually has a rare subtype of renal cell cancer. Here is what the pathology report from his total nephrectomy in June 2012 says. & in case anyone…
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I don't know what to think
I need a little help with a report. Here is the history, I had RCC clear cell a 2.7 cm Stage 1 Grade 2 tumor removed by hand assisted laparoscopic surgery June 18th all clear margins, thought that was it. I would just have to keep and eye on it, scans every 6 months then every year after that. First CT scan November of…
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Lupus, Dysautonomia and kidney tumor...
Hi my name is Jackie and this is my first time visiting your forum. I was dx with Lupus after a sudden illness in 2009, which then led to brainstem/cervical surgery last July which then I was told I have severe hypermobility of my spine. I have had awful headaches, low grade fevers, night sweats, severe tachycardia and low…
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Cran1
hey cran1 just wondering how you are doing? hope you are ok. eims x