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Spot open at BIDMC for the Nivolumab + Ipilimumab trial
Well, apparently I flunked entry into the phase one clinical trial. I always thought of myself as an over-achiever but apparently when it comes to growing metastatic cancer, I am an under performer! Yep, after having a MRI of the head, MRI of the abdominal, MRI of the pelvic region, CT of the chest, a Chest x-ray, EKG and…
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Ipilimumab
I'm wondering if anyone knows anything about this drug as it pertains to kidney cancer. I was told there was a story about this on the news a few days ago in which there was a claim that it had cured someone of kidney cancer (in addition to very promising results with stage 4 melanoma!). I'm having a hard time finding a…
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Is this something I need to truly worry about?
Hi, I'm new here :) . I've been reading for a while (here and the Thyroid cancer forum), and have learned so much from ya'll :) . Anyway, I was hoping I could get some imput from the expert patients here. A little backstory: * July 2012- diagnosed with metastatic FVPTC * Sept 2012-completion Thyroidectomy * Dec 2012-had…
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New Kid on the Block
Hello All; Well, 7/24/12 is gonna be my day of reckoning. I will be going under the knife @ USC's Keck Medical Center for left kidney, radical nephrectomy, and left leg fibula modification, due to metastatic Renal Cell cancer in the upper knuckle. It's going to be a 6-7 hour tag-team surgery in one OR. But, let me fill you…
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26th infusion
Just keeping a running post of my "Living with cancer." threads. Awesome. Next scan in a couple weeks. They are always soooo.... important. I am a lucky man. Hang in everybody. FLY. Fox loves you!
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Nick's Remaining Kidney & Blood Pressure Issues
We had to see a cardiologist about Nick's blood pressure. His BP has not been controlled with either Amlodopine, Felodipine, Ramipril or Losartan although at least with the Losartan there were no side effects. However finally the Oncologist suggested that Nick should see a cardiologist - this was during his 3rd cycle of…
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Partial Pathology
I live too far away to get a full report in my hand for a few days BUT here is the news as reported this morning: Clear Cell Renal Carcinoma; Negative Margins; Fully encapsulated. No lymphs taken. Awaiting word on staging! Follow up every 3 months with a CT yearly til further notice! I think I'll take it! As I get more…
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Bad few Days :-(
Hey all, i have been doing really well mentally and physically but I seem to have hit a bit of a wall the last few days. I know its to be expected but it is really starting to get me down because I thought I was flying it!! My mood has changed too and I get really cranky and that is not like me at all. Anyway I just wanted…
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New guy with renal cell carcinoma saying hello
Hi: I was told on May 2nd that I have a 1/2" RCC on my right kidney. At age 67 it's the first cancer discovered in or on my body. My oncologist/surgeon asked me if I wanted to schedule surgery for a partial or if I want to wait 6 months for another scan to see what progression, if any, has occured. She thinks going in with…
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Da Vinci 3 days ago...new guy reporting
Hello All, Just ran into this site while looking for post op hints. They caught my 2.5 cm mass on lower left Kidney a few months ago by accident and suggested go with removal by robotics at my age of 53. I had no one family ever had cancer, barely smoked and still do sports. They said just bad luck dude. Spent past 2…
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Da Vinci 3 days ago...new guy reporting
Hello All, Just ran into this site while looking for post op hints. They caught my 2.5 cm mass on lower left Kidney a few months ago by accident and suggested go with removal by robotics at my age of 53. I had no one family ever had cancer, barely smoked and still do sports. They said just bad luck dude. Spent past 2…
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Another hurdle
I am just back from the oncologist after completeing radiation on spine mets and ultrasound of thyroid nodule. I need to have a fine needle biopsy of the thyroid on Monday. Appears possible that it is meta static disease which I understand is unusual for RCC but also could be a new primary. Also have a small (8mm) growth…
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Treatment Conference
Hi All..! OK, I almost named this thread Cross Polination, but to keep it on the serious side.. well.. you all know.. Overall I am a relative newbie here, and I forgot to mention one thing I was told about Kidney Cancer and Treatments. My first Oncologist told me there is a group of top RCC Doctors (from all over the…
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Thank you
I have been reading quite a number if posts over the last few days and am amazed by the amount of knowledge and postive words on this site. I have been miserable since metastatic disease has been diagnosed, but find the stories of you wonderful people here very uplifting and do a lot for the dark moments I have. That's not…
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Rash from Votrient?
Ready to start the 3rd month of Votrient. Other than the diarrhea and things don’t taste right OK so far. I did notice a rash starting on my right hip. Votrient can cause a rash. Is there anything I can put on it to help? Not that itchy yet but that may change.
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Stage1 Grade2
Just got back from the Doc's. Clear cell Stage 1 and Grade 2. 1.6cm in size. Doc says Ill cya in 6 months.. Funny how it flys by so quickly.
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25th infusion
I had my 25th infusion of MDX-1106 yesterday. My Dr. asked me, " Do you have any pain?" nope. "Night sweats?" nope. "diarrhea?" nope. "Constipation?" nope. "Fatigue?" nope."Mouth sores?" nope. Then she says, "I'll have to write that patient complains of feeling too good." Then I got my hug. I hope I can do this every 3…
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Update on Michael ****'s surgery
Hello from Michael **** thru his spouse. He is out of surgery. Everything went well. No "shark bite." Kidney larger than expected but they think tumor is contained. Will know for sure after pathology. But he is okay and will be up and walking this afternoon if all goes well, we go home tomorrow. Thanks to all of you for…
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Seeking any information on RCC
First a little background on myself. I am a 48 year old male and was diagnosed with stage IV RCC September 2012. I went to the orthopedist in August 2012 because I thought I had injured my shoulder while working on my sons car. The orthopedist said it wasn't an injury and sent me for further test. Dozens of xrays, scans…
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John's One Year Anniversary on Nivolumab - Votrient Trial
Congratulations to my husband, John (aka one putt) on his one year anniversary (May 10) in the Nivolumab-Votrient trial at Hopkins. It's hard to believe it's been an entire year! With a 58% reduction in tumor burden in this first year, know I'm hoping and praying for many more!!!! Congratulations! XOXOXOXO
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Going to the surgeon
I am going to the surgeon today to find out what they are going to do and my aftercare. I was told that I had cancer 1 1/2 weeks ago and had to have radical nephrectomy right away. I'm still a little stunned to say the least, but my family is more devastated than I am. What should I expected to hear today? /
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Chronic Tiredness
hi all, how is everyone doing? i just have a question....i have started suffering with chronic tiredness in the afternoon again....the last time i felt like this was before my op in january...am i worrying about nothing? i have been taking vitamins and supplements but they seem to be having the opposite effect!! any advice…
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Blood work tomorrow...
I know my blood pressure is higher since starting on Votrient. I'm hoping my liver and the Votrient have been playing nicely together. I'm a little nervous that something will be off and they'll have to take me off Votrient for some reason. I start my official third week on Votrient and I have no side effects to report.…
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In the morning . . .
I officially become a Kidney Cancer Survivor cause that sucker is coming out! Who wants the first dance? Check in is at 6:00 am EDST! Woot! Talk to you all soon! Michael
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Questions
I had a laprascopic partial nephrectomy on April 11th and was told everything went well. Came home on April 13th. April 24th was taken to ER by ambulance for severe urinary track bleeding. Catherized and sent home. On the 27th back to ER unable to urinate at all - catherized and put on continuous irrigiation. After two…
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Pathology Report!! As good as it gets, so I am told........
So, as most of you know I had my surgery (total radical nephrectomy) on 4/29/13 and I have my pathology report. Below are the findings: 1. Renal Cell Carcinoma, clear cell type 2. Fuhrman Nuclear Grade 2 out of 4 3. Size: 4.7cm / I was informed by my Urologist that images taken (CT Scan/MRI) showed a larger tumor size…
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Happy mothers day
So I had my surgery Thursday and everything went "flawlessly" I had probably the best possible surgical team I could have asked for. I am about a day behind as far as recovery goes due to very bad neasuea from the anesthesia. I came home yesterday, best mothers day present ever!! I will say this, though I am feeling much…
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I have been reading your post for the last few months and they give me a lot of encourgagement. This is the first time I have posted myself. I had my left kidney out in September 2011. 8 cm and had spread to 2 lymph nodes. reports came back papillary cancer. Not long after mets in the lungs. I have been on Avastin, Sutent,…
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Kidney Tumor
Hi, I just found out I have approximately a 2 in growth in the center of my left kidney. This site has helped me release myself from the fear and take action. Thank you! The urologist that I was referred to was not very informative, I'm wondering if any of you have suggestions about what type of questions to ask. I have…
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What do you wish you had done . . . ?
Okay folks, I am 72 hours out from my surgery. It is a hand assist radical laparoscopic procedure on the right kidney. The surgeon reassessed and it is 5.6 cm instead of the 4 cm they first noted. He was looking at the same CT that was used originally so there's no chance for growth. But on to the question. What do you…