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Slimming World!!
Ok guys, I joined last week...needed to shift a few pounds and all I can say is that I love it!!! Is anyone else here doing it? It's not really a diet its just healthy eating but the joy of it I am never hungry woo hoo which is a bonus!! I even went out and bought a bike too......I am losing the run of myself but I want…
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One week post op
One week has passed (eight days to be exact) since my surgery, laparoscopic right nephrectomy. I am happy to report that aside from struggling a bit to get up from laying flat on the couch I am doing better than I ever imagined to be at this point. This was my first experience personally with surgery of any kind and as you…
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4 days post op
I'm 4 days post op, having had a radical nephrectomy of right kidney. Though I have had a fair amount of discomfort in my belly, it cannot compare to the lower back pain I'm having. I just wonder if this is normal. I'm getting around pretty good, making sure I don't sit too long or lay too long in one position and I'm…
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Any news on Inlyta?
I have been reading your post for the last few months and they give me a lot of encourgagement. This is the first time I have posted myself. I had my left kidney out in September 2011. 8 cm and had spread to 2 lymph nodes. reports came back papillary cancer. Not long after mets in the lungs. I have been on Avastin, Sutent,…
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new to kidney cancer (caregiver)
I am a caregiver to my mom (bestfriend) recently diagnosed with stage 4 renal cell cancer that has gone to the bone. She started on Votrient 2 weeks ago and her side affects are horrible vomiting, diarrhea, unbearable nausea,very weak and her blood pressure is going up mouth sores are just starting...she wants to stop the…
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Working/Job Search while dealing with smRCC
Medically, I have no evidence of cancer at the moment. However, I have pain from both my Naphrectomy and the wedge resection and am receiving care for the pain. (it is pretty severe at times). Professionally, my buisiness area is severely impacted by cuts in the federal budget. My company is contracting, eople around me…
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Questions about staging
Hi again everyone. I went to the dr on Monday and he said 80% chance it is cancer. I go tomorrow for a bone scan and chest x-ray for staging. Is it common to stage before surgery and the tumor has been diagnosed? What other staging tests should I have if it is cancer? Of course, surgery will be scheduled soon for a partial…
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Husky Throat??
Hi all I was just wondering if any of you had a very husky voice after the op?? I keep thinking that can happen after such a long anesthetic?? Anyone else had this? Eims x
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Nivolumab-Sutent Scan results
Great news today from the world of Nivolumab/Sutent. scan summaries for my remaining left adrenal gland tumor: 6 weeks scan-up 10% 12 week scan- down 30% 18 week scan today -down 50% Doctor feels like the delayed response is more consistent with an immunity response vs. the Sutent. i just found he site last week and…
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Anything new?
I've been off on my motorcycle for the better part of a week. Did I miss anything? Welcome new members. Great friends and info here. I see that there has been much interaction. Also glad to see this post is self perpetuating. Let's hear it for nivolumab trials. I hope everyone can benefit from the current research. Love…
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All shot up
An indoor shooting range near where I live made an offer to anyone who has or had cancer to bring their diagnosis to their range to shoot it. I went yesterday and brought my pre surgery report for my kidney cancer. My actual diagnosis is on a CD since it was a CT Scan. I used my Glock 23 40 caliber and put holes in it. I…
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Oncology Questions
Below is a copy of what I posted in another thread. Just got to thinking about oncology. Do I need to see an oncologist before surgery? How do I go about finding an oncologist that specializes in RCC? As the uro surgeon I will be seeing also does clinical trials, should I still get a second opinion? I've noticed some of…
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chat room
hi all i was wondering if anyone else had a problem accessing the chat rooms? i can never get in eims x
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Single kidney now has cancer - anyone?
morning, I'm new to the Kidney board - been on Esophageal (grandfather, father, and 2 uncles) and testicular(husband) for a couple years. My husband was born with a single kidney, had testicular cancer 9 years ago and kidney cancer was gound on recent CT scan. The tumor is in a precarious position between the renal artery,…
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Question about Size
Hello Everyone. 38 yo Male and a member of the club with a question about size. Seems my tumor was small 2.5 (Ct scan said 3.9). The pathology also said Stage 3a with renal sinus invasion and grade 3 (with the majority being grade 2.) My doctors seem to be giving me conflicting information. One is telling me that due to…
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Another success story !
I am now a survivor from this terrible cancer. Thank you all for all the support and prayers, They were heard & answered. I had a 3.4 cm. cancerous tumor on my lower left back side of my kidney, They went through my back. I had four holes, I had the di vinchi robotic operation done at the VA hospital in long beach CA on…
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Looking for input from both patients and caregivers - please!
Hi, I need answers! My husband diagnosed with RCC Feb., 2013. Tumor was large. They removed 2 ribs and he had 53 staples from from near belly button around to near his spine. Mets to both lungs, some ribs and femur. Developed a hernia along incision that cannot be repaired, but poses no danger (although is uncomfortable.)…
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All shot up
An indoor shooting range near where I live made an offer to anyone who has or had cancer to bring their diagnosis to their range to shoot it. I went yesterday and brought my pre surgery report for my kidney cancer. My actual diagnosis is on a CD since it was a CT Scan. I used my Glock 23 40 caliber and put holes in it. I…
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CT results back. Please give me your opinion...
As Ive explained in the past, the ultra sound said i had a 4cm x 2.5 x 2.5 renal lesion in left upper kidney. I just picked up the CT Scan and it gives a long list of what isn't there, like lung base lesion, anatomic cardiac lesion etc etc. But here's the kidney part: Conclusion: (Mind you-their report screws up by saying…
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I might quite possibly be joining this group on life's journey with kidney cancer.
Hi. My name is Carolyn and the last 5 days have made me search for info on kidney cancer. I went to the doctor last Thursday for left sided pain that wouldn't go away. I didn't know if it was colon pain or kidney pain. I have had left kidney stones and UTI's in the past. The doctor sent me for an ultrasound the next day.…
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I lurk no more
First I want to say thanks to everyone here who have posted. As a fairly new kidney cancer owner, I had lots of questions, doubts, fears that I found answered, and assuaged by your posts. My tumour was found accidentally by CT for a suspected kidney stone on Christmas Eve. It turned out the flank pain was shingles but in…
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How Long Does it Take?
Just wondering how long it takes till you start to feel normal after a partial robotic nephrectomy? I had my surgery on April 11th and had some setbacks with bleeding and had to have 13 coils put in around my kidney to stop bleeding. This was about 3 weeks after surgery. I still feel as if someone has taken all my insides…
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Planned CSN outage
CSN will be down for a couple of hours this morning beginning at 3:00 AM Eastern Time for planned maintenance. We apologize for any inconvenience. Best to all, greta aka Your CSN staff
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All you veterans!
My first follow up is tomorrow at 10:00. We will be discussing pathology and follow up cycles, etc. To refresh your memories, my path was as follows: T1b Nx Mx, Lower pole, right 4.5 cm, CCRCC, Fuhrman grade G-3. Proposed follow up is every 6 months with a CT on the 1 year anniversary, and each anniversary thereafter. My…
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Dealing with Pain with reduced kidney function
Ok, I am 1 year post nephrectomy, and 4 months post lung wedge resection. I have quite a bit of pain still -- from the lung resection, I have neropathy on the left side...On the right side, I have residual pain from the nephrectomy (something has not healed right). The problem is my kidney function has not returned to…
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Am I Getting the Right Treatment?
Really glad to find this forum. In brief, I was diagnosed in October 2008 and underwent a partial nephrectomy. After two years and some severe backaches, my annual CT Scan in 2011 showed that the RCC had spread to my adrenal gland and to my spine (golf ball sized tumor on my sacrum or tail bone). Two spinal surgeons…
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New to this board
I have been reading some of the blogs here and have found them very encouraging. I would like to thank everyone for sharing their stories. I am a 57 year old and was diagnosed the end of March with stage 4 RCC. After complaining to my GP about not feeling well, I went in for a chest x-ray where they found a node on my…
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CT Scan every single year for rest of life
Is a CT Scan neccessary every single year? A cancerous tumor was removed from my kidney in a partial nephractomy. My doctor says I need a CT Scan every year to see if it has returned. I have had a CT scan now every year for 7 years with no sign of recurrence of the cancer. I'm getting concerned that the radiation from the…
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I think I have kidney cancer and I'm desperate
Hello, My name is Fabrizio. I had an ultrasound last week and they found insidentally a 2cm mass they thought it was an angiomiolipoma and ordered a CT scan to confirm it. Instead the CT scan revealed a solid mass of 2.4 cm and they ssid they cannot explain its "origins"... I'm not sure what this means, from what I read…
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Post surgery stuff
Just had the partial robotic done to a 2 cm on the lower left kidney. Still have the 5 holes healing but wondering if the internal pain between the lower rib and I guess where the kidney sits is normal. At night you have to keep turning as its good for like a half hr before you need to turn over. Its been over a week now.…