New to all this and having feelings

Fizziwiz
Fizziwiz Member Posts: 42

So I am new to all this and scared to death. I went to the ED and they found at 5.3cm x 5.3cm x3.5cm mass on my right kidney and 6.7 cmx 5.3cm x4 .5 cm mass on my right ovary. They will be coming out on May 13, and nobody has said anything about them being connected or oncology or anything! There will be no presurgical biopsy, they just need to come out and I'll be tested after the surgery. But I am really scared. 

The pain is unlike anything I've ever experienced. 

Is this standard operating procedure?

thank you all

«13

Comments

  • MDCinSC
    MDCinSC Member Posts: 574
    Hang in there!

    Fizziwiz,

    I can't speak wiith any authority at all except to say you are in a whole new place.  My surgery is the day after yours.  Welcome to this site!  You will find sensitive and caring people here.  You will find support, wisdom and an occasional laugh too.

    What you are feeling, as far as I can tell, is perfectly normal.  Here is the place to find someone who understands and will listen and support you when no one else in your life gets it.

    I am sorry that you have the need to be here, but I welcome you and offer my hand as a friend.

    Michael

  • Eims
    Eims Member Posts: 423
    hi fizziwiz,
    i was diagnosed

    hi fizziwiz,

    i was diagnosed last december with the mass on my left kidney.  Surgery is the first option for rcc....I was never referred to oncology either because they just do their thing first!!  Honestly you will have good and bad days until your surgery but remember you can do this and your are stronger than you think.  Organisation is key for after your surgery because you will be limited to what you can do.  You will be fine but I do know how scary it is.  All of us here have had some degree of surgery/treatment and everyone here will look after you!!  Any questions and between everyone here you will get an answer ;-)

    Eims x

  • MDCinSC
    MDCinSC Member Posts: 574
    Eims said:

    hi fizziwiz,
    i was diagnosed

    hi fizziwiz,

    i was diagnosed last december with the mass on my left kidney.  Surgery is the first option for rcc....I was never referred to oncology either because they just do their thing first!!  Honestly you will have good and bad days until your surgery but remember you can do this and your are stronger than you think.  Organisation is key for after your surgery because you will be limited to what you can do.  You will be fine but I do know how scary it is.  All of us here have had some degree of surgery/treatment and everyone here will look after you!!  Any questions and between everyone here you will get an answer ;-)

    Eims x

    Amen!

    Well said Eims!

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    Not fun

    Fizziwiz,

    Anything more than the Kidney Cancer at one time is above my paygrade. However with respect to the Kidney your tumor is relatively small , At 4cm or less the rate of recurrance is as close to zero. Yours is probably close to that. When Kidney Cancer spreads it usually first goes to the lung. I am unaware of any cases on this board where Kideny Cancer spread to the ovary or vice xersa.

    Please look at  the ED visit as your lucky day. Without that visit the tumor(s) would have continued to grow. At 6.7cm on the Kidney  it is almost always malignant, So just take the positive attitude that you are going to kick that Cancer on the **** and get rid of it.

    With respect to the Ovary you may want to ask that question on a different board. I know that many times large masses theere are not malignant.

    Obviously with 2 surgeries at once you are going to have to allow a longer time to recover.

    You may have to wait over a year or more rather than only 6 or 9 months after surgery for that roller coaster ride.

     

    Icemantoo

  • PK_Chicago
    PK_Chicago Member Posts: 58
    Yes - it's a whirlwind!

    I had gotten a CT scan for a colon issue and was told there was a 14.5cm mass in my left kidney.  I immediately went to the hospital and started to undergo antibiotic treatment to calm my colon. 5 days later a kidney removed and a colon resection! In many cases removel is treatment.

    Since then I've had my thyroid removed and am about to start treatment for a few bone mets - I've never felt anything the whole time - very healthy considering...

    The best advice to you is to not put your life on hold - I find it best to live in small "sprints" - surgery, recovery, scans, etc. don't try to think about everything at once! 

    Good luck!!!

    PK

    PS: I've found this forum to be the best source of information - you'll find people with the exact same issues. It's a great source for asking questions and vetting things the Doctors tell you!

  • Fizziwiz
    Fizziwiz Member Posts: 42
    MDCinSC said:

    Hang in there!

    Fizziwiz,

    I can't speak wiith any authority at all except to say you are in a whole new place.  My surgery is the day after yours.  Welcome to this site!  You will find sensitive and caring people here.  You will find support, wisdom and an occasional laugh too.

    What you are feeling, as far as I can tell, is perfectly normal.  Here is the place to find someone who understands and will listen and support you when no one else in your life gets it.

    I am sorry that you have the need to be here, but I welcome you and offer my hand as a friend.

    Michael

    Thank Zhou so much for your

    Thank Zhou so much for your words and friendship. It is nice to know I am not alone. 

  • Fizziwiz
    Fizziwiz Member Posts: 42
    Eims said:

    hi fizziwiz,
    i was diagnosed

    hi fizziwiz,

    i was diagnosed last december with the mass on my left kidney.  Surgery is the first option for rcc....I was never referred to oncology either because they just do their thing first!!  Honestly you will have good and bad days until your surgery but remember you can do this and your are stronger than you think.  Organisation is key for after your surgery because you will be limited to what you can do.  You will be fine but I do know how scary it is.  All of us here have had some degree of surgery/treatment and everyone here will look after you!!  Any questions and between everyone here you will get an answer ;-)

    Eims x

    Eims
    the support I already

    Eims

    the support I already have received has lifted me up. 

    i am not alone. 

    Thank you so much

  • Djinnie
    Djinnie Member Posts: 945
    It is a life changing experience

    I know how frightening it is to discover you may have cancer. It suddenly seems as if you have misplaced your life. The good thing for you is that everything is moving very quickly to remove both masses. Have they done an ultrasound and determined that the mass on your ovary is not fluid filled? ie. cyst, they can cause severe pain.

    When I was in my early thirties I was diagnosed with mouth cancer, I was terrified as the doctors were not sure if they could cure it. I was fortunate enough to have very successful laser surgery. Then a few years later it was discovered I had early stages of bowel cancer, it runs in my family, once again I was lucky it was caught in time. I was on a roll then as later in 2003 they found a tumour on my right kidney, it was completely removed by Radiofrequency  ablation. I then had a fairly quiet time until this year when a new tumour was discovered on the old site, it was removed by partial nephrectomy.

    The point I am trying to make is that yes it is frightening but not necessarily the end of the world. There is life after cancer, yours has been caught early, try to remain positive. This sort of experience teaches you to come out and fight and you will it is instinctive.

    All the best

     

    Djinnie x

     

  • Fizziwiz
    Fizziwiz Member Posts: 42
    icemantoo said:

    Not fun

    Fizziwiz,

    Anything more than the Kidney Cancer at one time is above my paygrade. However with respect to the Kidney your tumor is relatively small , At 4cm or less the rate of recurrance is as close to zero. Yours is probably close to that. When Kidney Cancer spreads it usually first goes to the lung. I am unaware of any cases on this board where Kideny Cancer spread to the ovary or vice xersa.

    Please look at  the ED visit as your lucky day. Without that visit the tumor(s) would have continued to grow. At 6.7cm on the Kidney  it is almost always malignant, So just take the positive attitude that you are going to kick that Cancer on the **** and get rid of it.

    With respect to the Ovary you may want to ask that question on a different board. I know that many times large masses theere are not malignant.

    Obviously with 2 surgeries at once you are going to have to allow a longer time to recover.

    You may have to wait over a year or more rather than only 6 or 9 months after surgery for that roller coaster ride.

     

    Icemantoo

    Thank you, iceman. 
    are you

    Thank you, iceman. 

    are you saying that recovery could be a year? I was sure not told that long! 

  • Fizziwiz
    Fizziwiz Member Posts: 42
    Djinnie said:

    It is a life changing experience

    I know how frightening it is to discover you may have cancer. It suddenly seems as if you have misplaced your life. The good thing for you is that everything is moving very quickly to remove both masses. Have they done an ultrasound and determined that the mass on your ovary is not fluid filled? ie. cyst, they can cause severe pain.

    When I was in my early thirties I was diagnosed with mouth cancer, I was terrified as the doctors were not sure if they could cure it. I was fortunate enough to have very successful laser surgery. Then a few years later it was discovered I had early stages of bowel cancer, it runs in my family, once again I was lucky it was caught in time. I was on a roll then as later in 2003 they found a tumour on my right kidney, it was completely removed by Radiofrequency  ablation. I then had a fairly quiet time until this year when a new tumour was discovered on the old site, it was removed by partial nephrectomy.

    The point I am trying to make is that yes it is frightening but not necessarily the end of the world. There is life after cancer, yours has been caught early, try to remain positive. This sort of experience teaches you to come out and fight and you will it is instinctive.

    All the best

     

    Djinnie x

     

    Wow, the support here is

    Wow, the support here is amazing. 

    I am going slow, one step at a time and trying to stay in the moment. 

    Thank you for the encouragement!!

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    Fizziwiz said:

    Thank you, iceman. 
    are you

    Thank you, iceman. 

    are you saying that recovery could be a year? I was sure not told that long! 

    fIZZ,

     

    NO THE RECOVERY FOR NORMAL ACTIVITIES FOR THE KIDNEY CANCER ALONE IS 2 TO 6 WEEKS. OBVIOUSLY LONGER FOR 2 SURGERIES.

     

    My suggestion of a year was for extreme activities like Bungie jumping or going on a large Roller Coaster.

     

     

    Icemantoo

  • foxhd
    foxhd Member Posts: 3,181 Member
    Fizziwiz said:

    Wow, the support here is

    Wow, the support here is amazing. 

    I am going slow, one step at a time and trying to stay in the moment. 

    Thank you for the encouragement!!

    Fizziwiz

    First, what kind of name is that? Anyway, You'll be fine. Trust your health care providers. Learn what questions to ask. Stay motivated. Do not let it get you down. Lots of support here.

  • Fizziwiz
    Fizziwiz Member Posts: 42
    icemantoo said:

    fIZZ,

     

    NO THE RECOVERY FOR NORMAL ACTIVITIES FOR THE KIDNEY CANCER ALONE IS 2 TO 6 WEEKS. OBVIOUSLY LONGER FOR 2 SURGERIES.

     

    My suggestion of a year was for extreme activities like Bungie jumping or going on a large Roller Coaster.

     

     

    Icemantoo

    Thanks for clarifying

    Phew!

    thankfully, I just did my annual coaster quota. 

     

    I am very grateful for the answers, clarifications, and honesty here. 

    Thank you, ice

  • pinkstar
    pinkstar Member Posts: 53
    Hi,In 2007 my tumor was

    Hi,

    In 2010 my tumor was 2.6cm & in 2013 prior to surgery it was 5.6cm. That is still relatively small and I had no metastizing (spreading). I will get all copies of my pathology reports next week, as I will be 1 week post op off a total radical nephrectomy tomorrow. My adrenal gland was clear but my Dr still took it out for precautionary measures. I am grateful that he did. Have the surgery and try not to worry. I hardly had any pain and the recovery process has been managable. Take care & good luck!!

    Donna

  • MDCinSC
    MDCinSC Member Posts: 574
    pinkstar said:

    Hi,In 2007 my tumor was

    Hi,

    In 2010 my tumor was 2.6cm & in 2013 prior to surgery it was 5.6cm. That is still relatively small and I had no metastizing (spreading). I will get all copies of my pathology reports next week, as I will be 1 week post op off a total radical nephrectomy tomorrow. My adrenal gland was clear but my Dr still took it out for precautionary measures. I am grateful that he did. Have the surgery and try not to worry. I hardly had any pain and the recovery process has been managable. Take care & good luck!!

    Donna

    Congratz Donna

    Congratz on being one week post-op!  Evidently you are doing well!  That is great to hear!  I'll be following your progress! LOL I have my surgery a week from tomorrow!  I'm anxious to get it done!

    Was yours laparascopic or open? LOL I'mlooking for barometers for what to expect! Laughing

    Bon Chance on the path reports!

    Michael

  • GSRon
    GSRon Member Posts: 1,303 Member
    MDCinSC said:

    Congratz Donna

    Congratz on being one week post-op!  Evidently you are doing well!  That is great to hear!  I'll be following your progress! LOL I have my surgery a week from tomorrow!  I'm anxious to get it done!

    Was yours laparascopic or open? LOL I'mlooking for barometers for what to expect! Laughing

    Bon Chance on the path reports!

    Michael

    Not bad

    As you have heard, you WILL get through it...  Actually for me (and many others) the fear is far worse than the reality...  I had major surgery as the RCC had spread in to the Renal Vein.. and that took 8 1/2 hours.. but the second day I was up and walking (shuffling is more accurate) and all my bodily functions were working just fine...  Try to think of you walking OUT of the hospital... and stop to smell the flowers along the way...  I know, easy to say hard to do.. but you CAN do it..!

    Be Well..

    Ron

  • Djinnie
    Djinnie Member Posts: 945
    MDCinSC said:

    Congratz Donna

    Congratz on being one week post-op!  Evidently you are doing well!  That is great to hear!  I'll be following your progress! LOL I have my surgery a week from tomorrow!  I'm anxious to get it done!

    Was yours laparascopic or open? LOL I'mlooking for barometers for what to expect! Laughing

    Bon Chance on the path reports!

    Michael

    What type of surgery

    Hi Michael,

    What type of surgery are you having? I had robotic surgery for a partial nephrectomy. As this was my second time in the same area I was expecting problems from adhesions. I had six incisions and bearing in mind it must have been like speghetti junction inside, there was very little pain. It was sore but not really painful. I had a little nausea on the first day, but you feel so groggy you don't really notice it. 

    I was up and walking around on day three, which obviously helps with bodily functions. Also the French don't hold back on the onion soup, so that cleared the way so to speak. The most uncomfortable thing for me was the bloating, so sitting was not the most relaxing position. Getting up and moving carefully around helps everything to slide back into place and eases the pressure. Everyone is different of course but for me it took about ten days for the abdomen pressure to ease. I am just under 6 weeks post op and apart from not doing any heavy lifting I have no problems. I don't even have a twinge.

    I wish you all the best with your op,  it will soon be behind you.

     

    Djinnie

     

  • MDCinSC
    MDCinSC Member Posts: 574
    Djinnie said:

    What type of surgery

    Hi Michael,

    What type of surgery are you having? I had robotic surgery for a partial nephrectomy. As this was my second time in the same area I was expecting problems from adhesions. I had six incisions and bearing in mind it must have been like speghetti junction inside, there was very little pain. It was sore but not really painful. I had a little nausea on the first day, but you feel so groggy you don't really notice it. 

    I was up and walking around on day three, which obviously helps with bodily functions. Also the French don't hold back on the onion soup, so that cleared the way so to speak. The most uncomfortable thing for me was the bloating, so sitting was not the most relaxing position. Getting up and moving carefully around helps everything to slide back into place and eases the pressure. Everyone is different of course but for me it took about ten days for the abdomen pressure to ease. I am just under 6 weeks post op and apart from not doing any heavy lifting I have no problems. I don't even have a twinge.

    I wish you all the best with your op,  it will soon be behind you.

     

    Djinnie

     

    Hand Assist Laparascopic.

    After meeting my urologist and seeing the size of her hands I am comforted! Laughing Glad yours went so well!  I'll try modeling after you!

  • Djinnie
    Djinnie Member Posts: 945
    Surgery

    Hi Fizziwiz,

    You may have left already, but I wanted to wish you all the best for your surgery tomorrow. We will all be thinking of you and sending you positive thoughts.

    Let us know how you got on once you feel up to posting.

     

    All the best

     

    Djinnie x

  • MDCinSC
    MDCinSC Member Posts: 574
    Good luck Tomorrow!

    I pray all will be well for you and we will get postiive reports back from you right away!

    Blaze a postive trail and leave lots of cookie crumbs for me to follow Tuesday Laughing

     

    Michael