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Kidney Cancer

Been silent in the week since NED
A week ago I got scan results back, which gave no evidence of disease. This was my first NED; background diagnosed with RCC 5/1/2012; nephrectomy 6/19.2012: path: T1b (5.5 cm) grade 4 with Sarcomitoid differentiation. Six month scans showed a solitary 1cm mass on the lung( upper left lobe); wedge resection on 2/5/2013…
Hello, from the UK, advice& positivity needed
Hi Everyone, I've been lurking on this site since October last year when we found out my Dad had Kidney Cancer and have found everyones stories very inspirational when at times I have really needed to be positive about the future. Long story short, dad diagnosed at the time with stage 3 grade 4 but were warned very high…
New member here with possible kidney cancer, Got some questions about telling
The doc ordered a cat scan just before my gallbladder surgery. They found a 1.1 cm complicated cyst/solid mass with an attenuation of 32.5 in my left kidney and a 1.8cm cyst / solid mass on my right kidney with a attenuation of 38HU. I visited the urologists and cancer was the 5th word out of his mouth after introductions.…
New Fella with questions.
Don't really know how to start sooo I guess the beginnig. My name is Chris and Im 35 been in the Mil for 15 yrs working on jets. 1 day i woke up with orchitis and thay did a CT scan on me and than came the CALL. U all know the one Im talking about haha. Anyway went to see the Onc at Virtua and he seemed very capable. I…
Votrient
I have benn on Votrient for almost a month. So far other than a bit of nausea and diearea everything is OK but one thing. Nothing tastes right. Can't taste salt. Does this go away?
VEGF vs mTOR Inhibitors
I know I've asked this before, but I'm still puzzling over this. When I was looking at clinical trials, I took a look at the drugs currently the standard in metastatic disease, and for the most part it was VEGF's until they don't work, then try an mTOR inhibitor. When I asked the oncologists I know why that was the case (2…
Game Plan Set
Just found out that I am scheduled for a Open Partial Nephectomy on June 13th to remove my 2.5cm tumor. Because of my blood disorder, I will be admitted 1 week prior to surgery and they are planning on keeping me up to 3 weeks after, so basically a 1 month hospital stay.
Nivolumab/Ipilimumab Trial vs. Sutent?
Hi all, My mom was recently diagnosed with Kidney cancer. They removed her kidney about two weeks ago. The tumors have also spread to her lungs. She is 72 years old and in pretty good health otherwise. She is now weighing the choice between starting Sutent or entering a trial that combines Nivolumab and Ipilimumab. Is…
SUPPLEMENTS AND TKI DRUGS
As many of you know I am fortunate to have Hans Hammers, a nationally recognized expert in RCC,for my oncologist. Recently he responded to some questions from Susan Poteat on the ACOR KIDNEY-ONC site. While some may have already seen it (Neil) I know others not familiar with the site may have missed it. With Dr. Hammers…
hypermetabolic lymph nodes
Hi all. I had a radical nephrectomy in February for a 7.4 cm chromophobe carcinoma, stage 2a, confined to kidney. path report negative for necrotic areas and for sarcomatoid features. Recent PET scan shows "hypermetabolic" lymph nodes. My oncologist says this could be mets but more likely isn't because of no enlargement…
Torisel/Temsirolimus question
Hi all. For once, this question isn't for me. I have a family member who has advanced RCC. He is going to start treatment with torisel on Thursday, and I was wondering if there was anyone here who could tell us about any experiences they had with that particular drug. How bad were the side effects that you had or saw?…
Causes of Kidney Cancer?
Hello everyone and happy "day after the world ends!" I am doing some research online and doing some reading about the causes of kidney cancer. I really haven't found anything definitive. My urologist could not give me much information on it, except to say it was more common among men, smokers, and the elderly. I am none of…
Recently Diagnosed Renal Mass...
I'm a 30 year old male in Columbia, South Carolina. In September of 2012 I experienced painless gross hematuria, which was quite a shock. I visited a general practitioner who advised that given my youth and otherwise healthy condition, I likely had a severe urinary tract infection. I began a course of antibiotics, and the…
KIDNEY CANCER AND BONE CANCER
Hi All, Hope everyone is doing well. I had a question regarding recovery of rod placement in femur bone to support the femur bone. The bone had cancer found after the kidney was removed last year. All went well, surgery was done 1/15/2013 and I have been recovering ok. Lateley tho, the last few weeks or so, I have been…
*Nivolumab / Votrient Clinical Trial for One Putt (aka MDX 1106, BMS936558) UPDATE
May 6, 2013 Update John had his May 2 infusion and is back on schedule with Votrient dosage (800 mg) and Nivolumab infusion every three weeks. He has been experiencing some nausea over the past couple of weeks. Hard to believe but this Friday, May 10, will be John's one year anniversary in trial. On another…
Hello, My name is Brad and I have Kidney Cancer
Hello everyone. I have been lucky enough to have been adorned with Kidney Cancer. It was official on Monday April 15th. I have Stage IV Kidney Cancer. It's been sheer hell from the time I started having blood in my urine in March. I have since become good friends with anti-depressants and anti-anxiety meds in the past…
Close Hit
So I still have aches and pains they think are normal and some prostatitus I'm on antibiotics for a month for. You just hope they know what they are doing as its been a year since I've been back to work and I'd like to feel normal again one day. Best guess is the ureter stent they had in for weeks or the 2 months on…
Progress Report - Sutent Patients Take Note
Hi, all. Vin here with another update. First, a recap: Male, 43 years old. Diagnosed in April 2012 with advanced metastatic RCC (Stage 4/Grade 4). Primary tumor of 8cm in left kidney with mets in lungs (innumerable!), left adrenal, right kidney, right adrenal, and along the spine at T4. Radical nephrectomy on 5/25/2012…
Now Stage 4:(
My husband's scans are now showing three small mets to lungs. He will start Sutent as soon as it arrives. I am very concerned that with the 30% sarcomatoid that it will not be effective. He is not eligible for any clinical trials that his doctor feels would be beneficial due to a pulmonary embolism released by the primary…
NED
Prelimiary diagnosis July 2012 Partial Nephrectomy Nov 7 - Path results - T1a CT April 9 NED! now to focus on living and being healthy....
Fundraising for the Kidney Walk
Hi everyone, so I'm taking a leap of faith here by posting about this. Sept 15,2013 at the Rose Bowl in Pasadena, Ca I will be walking the event . I have formed a team and set a goal to raise at least $800. The Kidney Foundation helps people with any kind of Kidney disease for free when they can't afford treatment. Any…
Question?
Do we have a link on this forum to just talk about other stuff?? Like I am so excited because this weekend I am having a girls weekend with my sister Mare, 2 of my BFFs Laine Crosby and Linda Stirling and my amazing daughter Meghan...we are headed up near Baltimore to see " John Edward" and are making a weekend out of…
Cancer FREE 1 month anniversary
Hi everyone, so today is 1 month since I had my open radical to remove Raider(5lb tumor) and my right kidney amongst other tbings. I should be celebrating but I just got home from being in the hospital since Mon.. I started having pain and swelling Fri, by Sun I was stuck in bed and nauseous, Mon i was feeling like the…
S.F. Bay Area Support Group
OK, for those that live in the greater San Francisco Bay area.... FYI, today I was at Stanford today meeting up with the Vampire.. So, I did ask about a support group for those of us with Kidney Cancer... verified none (known) existed. So, I inquired about starting a KC group... Not sure it will happen.. but... gotta ask…
Apr 17 open partial nephrectomy
Hello! A week ago Friday I got the call from my PDr that the mass in the CT scan was confirmed by the mri. I have a mass that needs to come and have been told there is a 90% chance this is cancerous due to the rate of growth. I was shocked! I am have surgery on April 17, 2013 step days before my 40th birthday! WTF! I have…
Asking for best wishes
It may be unlucky, but I am asking for wishes, prayers, whatever for a NED for me. I have metastatic sarcomitoid RCC. RCC found May 1, 2012, Nephrectomy 6/19. Six month scans showed solitary lung met, which was removed 2/5. PET and CT yesterday, bone scan today followed by Dr. Appointment. I have never received a NED, but…
Really? Spam on the Cancer Board?
I just received a private message today from something that looks like an advertisement for a dating service. Getting spam messages from someone who claims to have read my profile and wants to have a relationship with me and I have to email her at some "yahoo" address for pics and more information. This is a cancer forum…
Some advice please
I received my results today, the tumour was a little larger than first indicated 4.3 x 3 x 2.3 cm. Non aggressive Fuhrman 3 There were no cancer cells found within the margins. I follow up with a CT TAP (Thorax, Abdomen, Pelvic) in September. Also intense lesions of chronic interstitial nephritis were found It was a little…
4 weeks after radical nephrectomy . . .
Hi First time I've posted on a forum like this, so be patient, please. I was diagnosed with a tumour on my left kidney in January. This was totally by accident (which seems to be the way with most of the renal cancers) when it came up in an ultrasound. After a CT scan, I was operated on exactly 4 weeks ago (18th March).…
Funny Bonz III
The agony of aging On the morning Daylight Savings Time ended, I stopped in to visit an aging friend. He was busy covering his penis with black shoe polish I said to him, "No! - You're supposed to turn your clock back".

Kidney Cancer

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