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Lower back pain
Hey all. Quick question. I have 2 weeks till surgery and can't wait to get it done. However since I I've been diagnosed I have been having lower back pain constantly. Feels better when I jog, it also doesn't get worse at night. Both the urologist and Onc don't think it's related. And you can see where they imaged my lower…
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Robotic Surgery
Has anyone hear had robotic surgery for a mass on their kidney. I am having this done on Thursday and would appreciate any info anyone can give me. I will be having it done at the University of Chicago Medical Center.
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Wearing Stabilisers
I go for my first post op appointment from having my partial nephrectomy on Thursday. I have to admit to feeling a bit wobbly, I am wishing it was not on my to do list, but there it is right at the top and underscored. I know that the first tumour I had ten years ago was slow growing. It is only since coming across this…
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Chuck Started the Nivolumba/IPI Trial Today
Hello all... We met with Chuck's Oncologist.. today to go over the scans from last Thursday prior to starting the trial... The liver mass shows a large percentage of growth since his last scan.. that scan had showed a large amount of necrosis(death) it is now on the move again.. so he is no longer thought to have a partial…
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Home from Robotic Surgery
Had robotic surgery on Thursday April 11th and they removed 40% of my left kidney. I came home Sunday April 13th. I don't feel real great - paiin and exhausted. Had a hip replacement last November and it was a piece of cake compared to this. I just want to sleep. Have diminished lung capacity so that was a problem for a…
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Hospice- 6 to 10 days to go....
Father had RCC on 9/2008. Stage 3/4 at the time. Treatments were good and kept cancer at bay for years.
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Spread straight to the brain
Hi, I am new here. My father (57) was diangosed with renal cell carcinoma last June and had a total left nephrectomy. The tumor was incased in the kidney and showed no signs of spread, lymph nodes were removed to be careful but they came out negative. The tumor was starting to go up the vein but the Urologist seemed…
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Prognosis
Seems that I get slightly different answers depending on who I ask and what I read, so here goes to all you laymen :-) T2N0M0 7,6 cm Grade 2 nephrectomy August 2010 just had my fifth check/scan without any indications of a relapse or spreading 45 years old and generally very good health My urologist says Im now so much…
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Renal Mass at 23!?
Hello everyone! This place is so friendly and welcoming and I've enjoyed reading your posts, so I decided to join. But mostly because I would like the next young person like myself to have as much information available to them as possible. At the end of January, I saw a chiropractor who took an Xray and found a…
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Anyone here dealing with Fibromyalgia on top of nephrectomy??
Hi all! I am now 3 weeks post surgery left radical nephrectomy, a 4cm clear cell carcinoma, contained, doctor feels they got it all so very grateful for that relief. Prior to this unexpected finding of kidney cancer, I had been on about an 8 yr quest from doctor to doctor to figure out my chronic pain, post exertion…
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Still terrified
Hi everyone, thank you for all of advice!!! I go to the doctors on friday to get blood results.. I am still terrified!! I have also leaned that where I love In New Brunswick that there really isn't any drug coverage for kidney cancer because it is a rare cancer.. If this does turn out to be kidney cancer and it spreads I…
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Good results on first scans
Hi everyone, Just want to share the good news. After having my nephrectomy done last Jan 30 with a 11 cm tumor, my bone scan and CT scan results are all normal.. Depsite being diagnosed as stage 3, i am positive and trusting God that i will win this battle. I will be doing my baseline tests every three months and keeping…
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a little pick me up!!
hi everyone, i am just feeling a little all over the place at the moment and i just wanted to touch base with all of you brilliant people!! i was feeling ok well as ok as you can feel after going through what most of us have gone through. i went to see my doc the other day just to ask a couple of questions and i suppose he…
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Changed Start date...Now Monday
We spent yesterday getting Chucks testing done for the trial..based on the information gathered and on prior patient response we now start the trial Monday April 15...when his oncologist gets back...we are not sure of the dosing yet because its randomized. . But we will know prior to starting.Chucks scans showed no new…
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Newbie
I have just joined this forum today. There does not appear to be anything here in Australia that offers similar experiences. My story started in May 2011 when I had an ultrasound for occasional pain in my right side. This was immediately up with a CT scan which revealed a 20cm mass on my right kidney. Radical nephrectomy…
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Of course!
I had my MRI yesterday and they released the images on disc to me – BIG mistake lol Of course as soon as I got home I popped that disk in and deployed my super awesome secret ninja skills and took a look at all my nifty insides and of course I have no idea what I am looking at lol So of course I started Google’ing’ kidney…
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CAT tap?
hi all, has anyone ever had a cat tap done as a follow up? i thought they said cat scan but i saw my gp on friday and he said no it was a cat tap??!! also did anyone suffer with a dodgey back after surgery? eims x
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Update
Hi all I went to the doctors yesterday, my blood work was normal and all my urine test came back normal except that I have 50 occult blood in my Urine. The doctor says that he isn't to concerned. I am still worried!!!! I am suppose to go see a urologist but that appointment is probably gonna be a ways down the road.. The…
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Encouragement
My story is getting old. But there are always so many new people. NOW STOP IT AND GO AWAY! NO MORE KIDNEY CANCER!!!!!!!! Sorry, I exhaled and it came out loud. What I want to say is hang tough. Force yourself to fight. Too many give up. That bugs me to no end. Unfortunately some fight and lose. I cry about that. Way to sad…
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Not kidney, but cancer got one more family member this morning
My husband called about 7:30 this morning to let me know that Joe, our "other" in law, died this morning of metastatic melanoma. Joe was our daughter-in-law's uncle; and over the past several years we have become good friends of he and his wife. (and here's where the small world thing happens- Joe and Dave played football…
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NED
Got results today from my recent CT Scan of the Pelvis, Abdomen, and Chest = NED :) The anxiety of this process every 4 months is horrible. Driving to the Dr., waiting to see the doctor, is the worst feeling. They found, what the radiologist said looks like a "Goiterous Left Lobe" of the Thyroid Gland - My ONC Dr ordered…
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He fought the good fight!!!
Quite a few of you know my husband's cancer history. Well he fought the good fight that ended about 10:12 last night. Please keep our family in your thoughts in the coming days and weeks.
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A new thread, a new chance, and I hope a new quality of life. Goodbye MPDL3280A. I sure wont miss
We are never ever ever EVER getting back together!! When I think about the quality of my life over the past 2-3 weeks, I understand giving up. In fact if MDPL hadn't broken up with me. I would have broken up with it! I was reduced to a sleeping princess (escaping the twisted reality that had become MY reality) and a…
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Happy Easter
Just wanted to wish everyone a nice easter weekend....hope you all have a lovely time. Eims x
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MY EXPERIENCE WITH VOTRIENT...SIDE EFFECTS ECT.
hi all... just wanted to share my husbands experience with Votrient so far hes been takeing it for about 2 months now...his hair turned gray, the roots that is...his beard was gray, untill he shaved when it turned back to its normal color and the third time he shaved it was back to gray...and he is haveing itchy and…
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Wait and see
Well, I finally got a call back from the doctor with the results of the MRI. The results came back indicating that it is cancer and not just a cyst. His suggestion due to my age (41) and the fact that the cancer is small and can be easily removed is to get it taken out. So I will be going in for a robotic partial…
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I am terrified!!!
Hi, I know I probably shouldn't be on here because I haven't been diagnosed with cancer yet!! This nightmare all started 2 weeks ago as I am so so so scared!!! I thought I had a uti and was put on 3 different types of antibiotics.. Te symptoms are gone now but there is still microscopic blood and a trace amount of protein…
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E-Patient Dave - good read
Robin Martinez, royalty/moderator at the Kidney-Onc (ACOR) site, posted the below link published by the British Medical Journal. I recall e-patient Dave being one of the internet bright spots when John was first diagnosed, and I thought it might be worthwhile to post here for those who are unfamiliar with e-patient Dave.…
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Newbie Intro
Hi All..! I figured that since I was already posting here.. I would introduce myself and share a few things about me and my RCC tale.. First, I am a male, 59, well.. in a few days I will get to turn 60.. Born in Detroit, Mi and been living in Cal since 1975. Not much of a medical history of sorts until now... Like some /…
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Update
Not really sure of the protocol – if this should be a new thread or if I should have continued with my other post – if the later, sorry! Results of today’s Dr. appt. : 1) The “mass” is almost as big as (looked bigger to me but Hey ( Duck Dynasty ref.) )my kidney 2) MRI scheduled for next week (Wed.) to determine…