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Urine Leakage after partial nephrectomy?
Hello..I have been lurking on this board for about 4 months, when my husband was first diagnosed with a Tumor on his kidney,which resulted in a partial nephrectomy in late Feb. It was stage 1 cancer. He is back at work and doing great. He had his first CT scan today..all clear..expect the Dr said he has a small pool of…
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KIDNEY_ONC
ACOR'S List KIDNEY_ONC is now officially closed and no postings sent to it will appear there - they will be re-routed to be handled at the discretion of the Listowners (and, if appropriate, will doubtless appear on the sparkling new 'Smart Patients' website).
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Wilms tumor, 2cm.Do I have to undergo chemotherapy after partial nephrectomy?
I'm 29,i had wilm's as an adult.i had my partial nephrectomy last April 3,2013..my adult wilm's is stage 1,favorable histology..and its size is 2cm...I don't know if I should have an additional treatment for this...I have discussed this with my doctor but I don't think if he's sure..he referred me to another oncologist and…
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What's the longest anyone's been on Sutent successfully?
Nick is in his 3rd cycle on Sunitinib (Sutent). I was just wondering what it the longest that anyone has been on this drug with it working please? I keep hearing timescales like 8 months or a year and that kind of worries me as it is such a short time.
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Dumb Question...
Now that I have kidney cancer, what can I safely drink? I have both of my kidneys so far but since this whole cancer thing started up I have limited myself to water or water with Mio (flavoring) in it. I have had the occasional lemonade. I will stay away from liquor and beer. I used to drink coffee all morning then a soda…
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BLKJAK needs positive stories and good vibes!
My husband Brad will be starting on Votrient as soon as it arrives. He was diagnosed with Stage 4 Renal Cell Carcinoma. A 2cm mass in his left kidney has metastacized to his liver and several lymph nodes. We are praying for good results, few side effects, and many many more years together. He is nervous and needs some…
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Doea anyone have ideas to deal with emotion overload and how to be a supportive caregiver
There is a lot of information about RCC but what aout how to deal with the emotional side. Has anyone had panic attacks? Emotion overload? How do you handle this?
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Torisel for Chromophobe RCC
After bone mets were found and confirmed in a CT/MRI/Bone Scan progression - my oncologist is suggesting Torisel. I am moving forward while still investigating other paths... Has anyone had experience with this drug? PK
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I hate the Hubble telescope!
2 1/2 year scan passed without remarks = NED. My 2 lung nodules are now definitely classified as benign after no changes for almost 3 years. Thumbs up on that. Thas all dandy and nice of course, what I really need to vent about is that I HATE THAT "#%¤¤%&"% CYSTOSCOPY!!!! What did I do to deserve having the Hubble…
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I have just been told I have Kidney Cancer
I am a 43 year old American living over sea in Okinawa Japan. Two weeks ago, after a ER Visit, Dr.'s found a 2.5 cm tumor encased in my right Kidney. I have been told that it is Renal Cell Carcinoma, and it is stage T1a. I don't know anything about Cancer, much less Renal Cell Carcinoma. And to make matters worse, I am in…
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Torisel for Chromophobe RCC
After bone mets were found and confirmed in a CT/MRI/Bone Scan progression - my oncologist is suggesting Torisel. I am moving forward while still investigating other paths... Has anyone had experience with this drug? PK
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Measuring BP. Reliable devices?
Because I'm on this drug trial and one of the possible side effects can be increased blood pressure, I decided to buy a blood pressure machine and monitor it myself at home. The first machine I bought was an inexpensive automatic one at the local pharmacy. I think it was about $25. It was useless. The readings were all…
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surgery
Well surgery is tomorrow. Have to be there at 545 am! Fine by me just a little nervous i guess. Just drank 10oz of some magnesium lax...gross to say the least hahah. Take care all.
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Scared to death
just need to vent.. i learned 3/19/2013 that i have RCC and need surgeyr my tumor is small approx 1.5m. preparing for the surgery i am sceduled for pfts may 7th then will find out when the surgery will be and i am really scared.reading your comments have helped hindered me i need to know this stuff . think i am more scared…
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Joining the "club"
Hello everyone! I had my robotic partial nephrectomy on April 18th, 2013 and just saw the doctor yesterday for the path report. Renal Cell carcinoma, clear cell, T1a Grade 2, negative margins. The tumor was 3.2cm and completely contained in the kidney, thankfully. The note says additional tests will be performed to exclude…
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ACOR discontinued? New website?
I received an email from Gerald White today (because I'm on his email list from ordering his book and CD) that indicated that ACOR was being discontinued and a new website called www.smartpatients.com was taking its place? I have been meaning to join ACOR for some time, but hadn't gotten around to it. I was looking for…
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choices
Hi - I have previously posted about my brother, we are in the UK and his sutent appears to have stopped working (had done very well on it for a year). We are seeing his consultant on Wednesday to discuss next steps, and it would appear this is likely to be enverolimus. He had radical surgery, removal of kidney and massive…
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Thank you for helping me help my daddy
I wanted to thank all of you that have been on this forum for the past few months. I learned so much from all of you. Through this knowledge, I was able to ask the right questions when visiting the oncologist with my daddy - as a Southern girl we tend to call our dads "daddy" regardless of our age! Our journey with this…
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"Most Concerning for RCC"
Hi. Rich, 43, went doctor for stomach pains and after ultrasound and CT w/wo contrast, my GP calls and says I havecancer On March 28 around 7pm. Not what I expected to hear. I have an appt. on April 19, with Urologist and don't know what to expect. The mass is 2cm and I was hoping I may find some answers as to what I may…
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RCC Chromophobe bone metastasis...
My one year post kidney surgery CT scan showed a bone lesion on my pubic bone. I was then given an MRI, followed by a bone scan, followed by a biopsy of the pubic bone and one of another lesion in my shoulder - they confirmed that they are RCC cells. I am a male, 48 years old, my diagnosis was in January 2012, stage 4, my…
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everolimus - any experience?
Hi I am writing from the UK - my older brother was diagnosed with kidney cancer in September 2010 aged 55. He was told it was contained and that no treatment should be necessary once his kidney was removed. On that basis his surgery was delayed twice and he was not operated on until January 2011. We will never know if that…
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Dreams
I have been having the oddest dreams since being diagnosed with Stage IV RCC. The dreams might be classified as nightmares. In the past I would be able to wake myself and remind myself that they are only dreams, but now I can't seem to shake them. Weird dreams - like borrowing my friend's classic convertible and then…
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Excercise after radical nephrectomy
Hi there. I am on my 13th week of recovery from my right nephrectomy. i am back to work (office work only) but i am gaining weight. i am already overweight and i wanted to shed those pounds. anyone here knows what excersise i can engage in? i still have pain in my incision and flank. thanks for you time :)
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Surgery - Round #2
Tomorrow I am going through Round #2 of surgery to remove the kidney flakes from my lung. After they removed the kidney and abdominal wall mass, they told me to recover and then they would start on the lungs. Recovery has been great so far. I think I overdid it a few times such as walking 3 hours on the fitness trail and…
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3 Days Post-Op Robotic Partial Nephrectomy Questions
Update from "Renal Mass at 23!?" Hello Everyone! I had my surgery Thursday the 18th in the morning. They removed a 2x3cm tumor from the right kidney. She said it was a little deep in the kidney and affected the area that filters so they had to repair that a little bit. But everything else went well. Because of that I was…
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DaVinci 'Robotic' issues....
This is just an FYI - A story I came across. We've had multiple threads on this forum talking about 'Robotic Surgery' so I wanted to pass this along as an FYI. There are certainly traditional surgeries with complications and issues as well.…
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Anyone Interested??
ok i have been thinking about this for a few weeks now but would any of you lovely people out there in kidney cancer land like to meet up?? we could maybe arrange a little meeting somewhere in the middle for everyone? i know its a bit crazy but hey ho why not?? well i have put it out there to see what everyone thinks!!!…
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The war rages on, but a battle is won (Good news)
Hello, friends. Today I had my first CT scan since starting on Sutent (2 cycles). (Background - 42yo male, Stage 4/Grade 4 mRCC to lungs, thoracic spine, rt kidney. Radical neph on left kidney/adrenal 5/25/12). Here's the update, and quotes are lifted directly from the scan report. "Significant improvement" of the lung…
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We miss you Paula
We all miss you immensely. Please come back to us. Here is hoping that you are here under another name and will read this. FLY.
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Hi All! Checking in!
I've chosen to stay away for a bit to get my head right and to get ready for my surgery. I now wonder why I decided to stay away. I think it was the fact that I was making OTHER PEOPLE uncomfortable (like my wife and grand daughter) in researching and chatting with everyone. They convinced me that I was becoming obsessed…