-
Blood work tomorrow...
I know my blood pressure is higher since starting on Votrient. I'm hoping my liver and the Votrient have been playing nicely together. I'm a little nervous that something will be off and they'll have to take me off Votrient for some reason. I start my official third week on Votrient and I have no side effects to report.…
-
In the morning . . .
I officially become a Kidney Cancer Survivor cause that sucker is coming out! Who wants the first dance? Check in is at 6:00 am EDST! Woot! Talk to you all soon! Michael
-
Questions
I had a laprascopic partial nephrectomy on April 11th and was told everything went well. Came home on April 13th. April 24th was taken to ER by ambulance for severe urinary track bleeding. Catherized and sent home. On the 27th back to ER unable to urinate at all - catherized and put on continuous irrigiation. After two…
-
Pathology Report!! As good as it gets, so I am told........
So, as most of you know I had my surgery (total radical nephrectomy) on 4/29/13 and I have my pathology report. Below are the findings: 1. Renal Cell Carcinoma, clear cell type 2. Fuhrman Nuclear Grade 2 out of 4 3. Size: 4.7cm / I was informed by my Urologist that images taken (CT Scan/MRI) showed a larger tumor size…
-
Happy mothers day
So I had my surgery Thursday and everything went "flawlessly" I had probably the best possible surgical team I could have asked for. I am about a day behind as far as recovery goes due to very bad neasuea from the anesthesia. I came home yesterday, best mothers day present ever!! I will say this, though I am feeling much…
-
.
I have been reading your post for the last few months and they give me a lot of encourgagement. This is the first time I have posted myself. I had my left kidney out in September 2011. 8 cm and had spread to 2 lymph nodes. reports came back papillary cancer. Not long after mets in the lungs. I have been on Avastin, Sutent,…
-
Kidney Tumor
Hi, I just found out I have approximately a 2 in growth in the center of my left kidney. This site has helped me release myself from the fear and take action. Thank you! The urologist that I was referred to was not very informative, I'm wondering if any of you have suggestions about what type of questions to ask. I have…
-
What do you wish you had done . . . ?
Okay folks, I am 72 hours out from my surgery. It is a hand assist radical laparoscopic procedure on the right kidney. The surgeon reassessed and it is 5.6 cm instead of the 4 cm they first noted. He was looking at the same CT that was used originally so there's no chance for growth. But on to the question. What do you…
-
Surgery Done 4/29!!!
Hi, Sorry for my little absence as work, school & preparing for surgery was hectic. My surgery was done laparoscopically. Under my left breast my incisions look like -__- with a - right under my breast. I was in the hospital for 2 days and didn't get the best treatment. They never worried about me having a bowel movement…
-
recently diagnosed with renal kidney cancer
I am terrified of the word cancer. Mine was accidentally found and now have had biopsey to find out it is renal cell. Now I have to wait till Nov 12 for surgery. The tumor is about 2 inches and I had no symptons. I also have fibromyalgia so my whole back always hurts. I feel like I've been handed a death sentence. I don't…
-
Waiting time
Diagnosed with rcc April 5. Had an ultrasound for another reason which spotted a mass on my left kidney. CT scan followed a week later then my appointment with urologist. He wants to do a radical because even though mass is fairly small - around 4cm where it is positioned is his reasoning for radical. Problem is I haven't…
-
Kidney Cysts
Hi Everyone, I have posted here before whenever I had concerns about my wife which Thank God turned to be a much better outcome in her case but here is my story now: 2 weeks ago I went for an Abdominal Ultrasound to rule out Gallbladder stones or inflammed liver as I was experincing some burning discomfort but instead,…
-
Tired before treatment?
Just a quick question – I know that after surgery being fatigued is normal, but has anyone else noticed if they were more tired than normal before their surgery/treatment? Can kidney cancer make you tired? I’m just trying to figure out why I am so completely exhausted. Wondering if it’s just everyday stress compounded by…
-
Pathology reports- clear cell with extensive rhabdoid features grade 4
Hello. I have posted previously here about my father and his kidney cancer spreading to the brain. We just now saw a specalist for the first time and was shocked to find out he actually has a rare subtype of renal cell cancer. Here is what the pathology report from his total nephrectomy in June 2012 says. & in case anyone…
-
I don't know what to think
I need a little help with a report. Here is the history, I had RCC clear cell a 2.7 cm Stage 1 Grade 2 tumor removed by hand assisted laparoscopic surgery June 18th all clear margins, thought that was it. I would just have to keep and eye on it, scans every 6 months then every year after that. First CT scan November of…
-
Lupus, Dysautonomia and kidney tumor...
Hi my name is Jackie and this is my first time visiting your forum. I was dx with Lupus after a sudden illness in 2009, which then led to brainstem/cervical surgery last July which then I was told I have severe hypermobility of my spine. I have had awful headaches, low grade fevers, night sweats, severe tachycardia and low…
-
Cran1
hey cran1 just wondering how you are doing? hope you are ok. eims x
-
Urine Leakage after partial nephrectomy?
Hello..I have been lurking on this board for about 4 months, when my husband was first diagnosed with a Tumor on his kidney,which resulted in a partial nephrectomy in late Feb. It was stage 1 cancer. He is back at work and doing great. He had his first CT scan today..all clear..expect the Dr said he has a small pool of…
-
KIDNEY_ONC
ACOR'S List KIDNEY_ONC is now officially closed and no postings sent to it will appear there - they will be re-routed to be handled at the discretion of the Listowners (and, if appropriate, will doubtless appear on the sparkling new 'Smart Patients' website).
-
Wilms tumor, 2cm.Do I have to undergo chemotherapy after partial nephrectomy?
I'm 29,i had wilm's as an adult.i had my partial nephrectomy last April 3,2013..my adult wilm's is stage 1,favorable histology..and its size is 2cm...I don't know if I should have an additional treatment for this...I have discussed this with my doctor but I don't think if he's sure..he referred me to another oncologist and…
-
What's the longest anyone's been on Sutent successfully?
Nick is in his 3rd cycle on Sunitinib (Sutent). I was just wondering what it the longest that anyone has been on this drug with it working please? I keep hearing timescales like 8 months or a year and that kind of worries me as it is such a short time.
-
Dumb Question...
Now that I have kidney cancer, what can I safely drink? I have both of my kidneys so far but since this whole cancer thing started up I have limited myself to water or water with Mio (flavoring) in it. I have had the occasional lemonade. I will stay away from liquor and beer. I used to drink coffee all morning then a soda…
-
BLKJAK needs positive stories and good vibes!
My husband Brad will be starting on Votrient as soon as it arrives. He was diagnosed with Stage 4 Renal Cell Carcinoma. A 2cm mass in his left kidney has metastacized to his liver and several lymph nodes. We are praying for good results, few side effects, and many many more years together. He is nervous and needs some…
-
Doea anyone have ideas to deal with emotion overload and how to be a supportive caregiver
There is a lot of information about RCC but what aout how to deal with the emotional side. Has anyone had panic attacks? Emotion overload? How do you handle this?
-
Torisel for Chromophobe RCC
After bone mets were found and confirmed in a CT/MRI/Bone Scan progression - my oncologist is suggesting Torisel. I am moving forward while still investigating other paths... Has anyone had experience with this drug? PK
-
I hate the Hubble telescope!
2 1/2 year scan passed without remarks = NED. My 2 lung nodules are now definitely classified as benign after no changes for almost 3 years. Thumbs up on that. Thas all dandy and nice of course, what I really need to vent about is that I HATE THAT "#%¤¤%&"% CYSTOSCOPY!!!! What did I do to deserve having the Hubble…
-
I have just been told I have Kidney Cancer
I am a 43 year old American living over sea in Okinawa Japan. Two weeks ago, after a ER Visit, Dr.'s found a 2.5 cm tumor encased in my right Kidney. I have been told that it is Renal Cell Carcinoma, and it is stage T1a. I don't know anything about Cancer, much less Renal Cell Carcinoma. And to make matters worse, I am in…
-
Torisel for Chromophobe RCC
After bone mets were found and confirmed in a CT/MRI/Bone Scan progression - my oncologist is suggesting Torisel. I am moving forward while still investigating other paths... Has anyone had experience with this drug? PK
-
Measuring BP. Reliable devices?
Because I'm on this drug trial and one of the possible side effects can be increased blood pressure, I decided to buy a blood pressure machine and monitor it myself at home. The first machine I bought was an inexpensive automatic one at the local pharmacy. I think it was about $25. It was useless. The readings were all…
-
surgery
Well surgery is tomorrow. Have to be there at 545 am! Fine by me just a little nervous i guess. Just drank 10oz of some magnesium lax...gross to say the least hahah. Take care all.