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Surgery Done 4/29!!!
Hi, Sorry for my little absence as work, school & preparing for surgery was hectic. My surgery was done laparoscopically. Under my left breast my incisions look like -__- with a - right under my breast. I was in the hospital for 2 days and didn't get the best treatment. They never worried about me having a bowel movement…
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recently diagnosed with renal kidney cancer
I am terrified of the word cancer. Mine was accidentally found and now have had biopsey to find out it is renal cell. Now I have to wait till Nov 12 for surgery. The tumor is about 2 inches and I had no symptons. I also have fibromyalgia so my whole back always hurts. I feel like I've been handed a death sentence. I don't…
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Waiting time
Diagnosed with rcc April 5. Had an ultrasound for another reason which spotted a mass on my left kidney. CT scan followed a week later then my appointment with urologist. He wants to do a radical because even though mass is fairly small - around 4cm where it is positioned is his reasoning for radical. Problem is I haven't…
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Kidney Cysts
Hi Everyone, I have posted here before whenever I had concerns about my wife which Thank God turned to be a much better outcome in her case but here is my story now: 2 weeks ago I went for an Abdominal Ultrasound to rule out Gallbladder stones or inflammed liver as I was experincing some burning discomfort but instead,…
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Tired before treatment?
Just a quick question – I know that after surgery being fatigued is normal, but has anyone else noticed if they were more tired than normal before their surgery/treatment? Can kidney cancer make you tired? I’m just trying to figure out why I am so completely exhausted. Wondering if it’s just everyday stress compounded by…
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Pathology reports- clear cell with extensive rhabdoid features grade 4
Hello. I have posted previously here about my father and his kidney cancer spreading to the brain. We just now saw a specalist for the first time and was shocked to find out he actually has a rare subtype of renal cell cancer. Here is what the pathology report from his total nephrectomy in June 2012 says. & in case anyone…
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I don't know what to think
I need a little help with a report. Here is the history, I had RCC clear cell a 2.7 cm Stage 1 Grade 2 tumor removed by hand assisted laparoscopic surgery June 18th all clear margins, thought that was it. I would just have to keep and eye on it, scans every 6 months then every year after that. First CT scan November of…
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Lupus, Dysautonomia and kidney tumor...
Hi my name is Jackie and this is my first time visiting your forum. I was dx with Lupus after a sudden illness in 2009, which then led to brainstem/cervical surgery last July which then I was told I have severe hypermobility of my spine. I have had awful headaches, low grade fevers, night sweats, severe tachycardia and low…
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Cran1
hey cran1 just wondering how you are doing? hope you are ok. eims x
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Urine Leakage after partial nephrectomy?
Hello..I have been lurking on this board for about 4 months, when my husband was first diagnosed with a Tumor on his kidney,which resulted in a partial nephrectomy in late Feb. It was stage 1 cancer. He is back at work and doing great. He had his first CT scan today..all clear..expect the Dr said he has a small pool of…
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KIDNEY_ONC
ACOR'S List KIDNEY_ONC is now officially closed and no postings sent to it will appear there - they will be re-routed to be handled at the discretion of the Listowners (and, if appropriate, will doubtless appear on the sparkling new 'Smart Patients' website).
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Wilms tumor, 2cm.Do I have to undergo chemotherapy after partial nephrectomy?
I'm 29,i had wilm's as an adult.i had my partial nephrectomy last April 3,2013..my adult wilm's is stage 1,favorable histology..and its size is 2cm...I don't know if I should have an additional treatment for this...I have discussed this with my doctor but I don't think if he's sure..he referred me to another oncologist and…
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What's the longest anyone's been on Sutent successfully?
Nick is in his 3rd cycle on Sunitinib (Sutent). I was just wondering what it the longest that anyone has been on this drug with it working please? I keep hearing timescales like 8 months or a year and that kind of worries me as it is such a short time.
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Dumb Question...
Now that I have kidney cancer, what can I safely drink? I have both of my kidneys so far but since this whole cancer thing started up I have limited myself to water or water with Mio (flavoring) in it. I have had the occasional lemonade. I will stay away from liquor and beer. I used to drink coffee all morning then a soda…
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BLKJAK needs positive stories and good vibes!
My husband Brad will be starting on Votrient as soon as it arrives. He was diagnosed with Stage 4 Renal Cell Carcinoma. A 2cm mass in his left kidney has metastacized to his liver and several lymph nodes. We are praying for good results, few side effects, and many many more years together. He is nervous and needs some…
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Doea anyone have ideas to deal with emotion overload and how to be a supportive caregiver
There is a lot of information about RCC but what aout how to deal with the emotional side. Has anyone had panic attacks? Emotion overload? How do you handle this?
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Torisel for Chromophobe RCC
After bone mets were found and confirmed in a CT/MRI/Bone Scan progression - my oncologist is suggesting Torisel. I am moving forward while still investigating other paths... Has anyone had experience with this drug? PK
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I hate the Hubble telescope!
2 1/2 year scan passed without remarks = NED. My 2 lung nodules are now definitely classified as benign after no changes for almost 3 years. Thumbs up on that. Thas all dandy and nice of course, what I really need to vent about is that I HATE THAT "#%¤¤%&"% CYSTOSCOPY!!!! What did I do to deserve having the Hubble…
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I have just been told I have Kidney Cancer
I am a 43 year old American living over sea in Okinawa Japan. Two weeks ago, after a ER Visit, Dr.'s found a 2.5 cm tumor encased in my right Kidney. I have been told that it is Renal Cell Carcinoma, and it is stage T1a. I don't know anything about Cancer, much less Renal Cell Carcinoma. And to make matters worse, I am in…
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Torisel for Chromophobe RCC
After bone mets were found and confirmed in a CT/MRI/Bone Scan progression - my oncologist is suggesting Torisel. I am moving forward while still investigating other paths... Has anyone had experience with this drug? PK
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Measuring BP. Reliable devices?
Because I'm on this drug trial and one of the possible side effects can be increased blood pressure, I decided to buy a blood pressure machine and monitor it myself at home. The first machine I bought was an inexpensive automatic one at the local pharmacy. I think it was about $25. It was useless. The readings were all…
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surgery
Well surgery is tomorrow. Have to be there at 545 am! Fine by me just a little nervous i guess. Just drank 10oz of some magnesium lax...gross to say the least hahah. Take care all.
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Scared to death
just need to vent.. i learned 3/19/2013 that i have RCC and need surgeyr my tumor is small approx 1.5m. preparing for the surgery i am sceduled for pfts may 7th then will find out when the surgery will be and i am really scared.reading your comments have helped hindered me i need to know this stuff . think i am more scared…
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Joining the "club"
Hello everyone! I had my robotic partial nephrectomy on April 18th, 2013 and just saw the doctor yesterday for the path report. Renal Cell carcinoma, clear cell, T1a Grade 2, negative margins. The tumor was 3.2cm and completely contained in the kidney, thankfully. The note says additional tests will be performed to exclude…
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ACOR discontinued? New website?
I received an email from Gerald White today (because I'm on his email list from ordering his book and CD) that indicated that ACOR was being discontinued and a new website called www.smartpatients.com was taking its place? I have been meaning to join ACOR for some time, but hadn't gotten around to it. I was looking for…
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choices
Hi - I have previously posted about my brother, we are in the UK and his sutent appears to have stopped working (had done very well on it for a year). We are seeing his consultant on Wednesday to discuss next steps, and it would appear this is likely to be enverolimus. He had radical surgery, removal of kidney and massive…
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Thank you for helping me help my daddy
I wanted to thank all of you that have been on this forum for the past few months. I learned so much from all of you. Through this knowledge, I was able to ask the right questions when visiting the oncologist with my daddy - as a Southern girl we tend to call our dads "daddy" regardless of our age! Our journey with this…
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"Most Concerning for RCC"
Hi. Rich, 43, went doctor for stomach pains and after ultrasound and CT w/wo contrast, my GP calls and says I havecancer On March 28 around 7pm. Not what I expected to hear. I have an appt. on April 19, with Urologist and don't know what to expect. The mass is 2cm and I was hoping I may find some answers as to what I may…
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RCC Chromophobe bone metastasis...
My one year post kidney surgery CT scan showed a bone lesion on my pubic bone. I was then given an MRI, followed by a bone scan, followed by a biopsy of the pubic bone and one of another lesion in my shoulder - they confirmed that they are RCC cells. I am a male, 48 years old, my diagnosis was in January 2012, stage 4, my…
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everolimus - any experience?
Hi I am writing from the UK - my older brother was diagnosed with kidney cancer in September 2010 aged 55. He was told it was contained and that no treatment should be necessary once his kidney was removed. On that basis his surgery was delayed twice and he was not operated on until January 2011. We will never know if that…