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Incision Area
Hi Everybody: My question is just a curious one. It has been 7 weeks since my laproscopic radical nephrectomy. I am a small person...109lbs, yet my incision from naval down is still very puffy which prevents me from wearing my regular clothes. Does any one know if this will eventually go away, must I exercise that area…
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Further scan coming up
I am having a CT scan tomorrow and will see oncologist for results on Friday (Australian time). Getting a little (lot) nervous than any previous scan I have had due to last scan in March revealing metastatic disease and getting scared there will be more little nasties rearing their ugly heads. Just putting it out there for…
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newbie caretaker needing some guidance
Hey all, first off I want to thank all of you that have posted your stories on this board. It has really helped me the past few weeks. My mom was diagnosed with breast cancerin 1999, she had a double masectomy along with a tranflap. Those were the hardest times for my family seeing how I was only 9 at the time. This year…
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Oncology?
Hi all, I had an incidental finding of a complex mass on my right kidney, "likely RCC", in early May, while working in OH. I immediately flew home to Oklahoma thinking I would see an oncologist but was instead advised to see a urologist. I'm 2 weeks post-op following a radical nephrectomy. A partial was not an option given…
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Well..... looks like I'm in for the long haul
Went to see my oncologist yesterday and the results from my MRI showed the RCC has spread to my liver. She was seeing tumor experts at a meeting today and they will discuss what treatment I should start with. Her first choice is the IV infusion Temsirolimus since my blood workup suggests this would be the most aggressive…
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Collecting duct
Did anyone have their tumor in or halfway in the collecting duct? There really isn't any research out there on it...
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Update - Kidney Cancer Treatments
I had my PET/CT Scan with contrast done last Friday. It was a really bad day, whatever could have gone wrong went wrong. We arrived at Georgetown Hospital at 9:20 am and left there at 4:40 pm. The best part of the day was that all the test were finally able to be done. My last scan was in March with no defintative cancer…
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Got my results
Before Tuesday we called it my "oddly shaped tennis ball" Now we call it my "Cancer ball"... I got my MRI results Tuesday - I have cancer. It was a roller coaster of Bad news/Good news... Bad news: I have cancer. Good News: They are pretty sure it is contained in my left kidney. Bad news: Its in the collecting ducts of the…
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New member
In March I went to the dr. because of urinary tract infection. The dr. suggested seeing a urologist because he said uti's were uncommon in men. I agreed to this and the urologist done a cystoscopy and ultra sound. The ultra sound revealed a 4cm. growth on the right kidney so a ct scan was ordered to further evaluate. After…
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Pet Scan Anxiety!
New member. 66 year old, male. Had partial via robotic surgery on May 13, 2013, which removed 4.5 tumor. Pathology report says Grade 4, Stage 1 sarcomatoid RCC. Father died of same disease, but mine was discovered early because of a freak fall in the woods. Have seen oncologist and he ordered Pet/chest CT, which is set for…
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Sarcomatoid?
My surgeon says path report showed small % of my 4.5 tumor was sarcomitoid. He referred me to oncologist who says, like surgeon, that he thinks they "got it all" but has ordered Pet/CT scan for Wednesday 6/19. Oncologist says the sarcomitoid aspemothered my tumor makes him "nervous" and that is why he ordered PET. Anyone…
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Update-Kidney Cancer Treatments
Great news evereyone, I am clear for right now!! My new visit will be in October, but right now I am 4 months closer to that 5 year mark! Thank you everyone for the prayers and words of encouragement. This is like talking to family members that know exactly what I am feeling! Feeling wonderful today! I do apologize for…
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Bye for 10 days!!!
well all i am off on hols for 10 days so i won't be on here but keep that candle burning for me!!! ill miss you but i promise i will have lots of good food and wine for all of you....you all take care of yourselves and i will see you when i get back.. eims x
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Happy Father's Day
Happy Father's Day to all the Dads out there.....have a great day. Eims x
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Sarcomatoid?
My surgeon says path report showed small % of my 4.5 tumor was sarcomitoid. He referred me to oncologist who says, like surgeon, that he thinks they "got it all" but has ordered Pet/CT scan for Wednesday 6/19. Oncologist says the sarcomitoid aspemothered my tumor makes him "nervous" and that is why he ordered PET. Anyone…
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Anti-angiogenesis / Regenerative Medicine (Print a Kidney)
Some of you may have already seen these videos but if you not I invite you to watch them, they are very informative. The first one from Dr William Li has convinced me it’s time to have no junk food in my diet and start eating my berries and fruit. (I really did eat very healthy before I got cancer - hell my wife is a…
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Great news
Wow, I got fabulous news. For six months I have been told I probably have kidney cancer, 95% certainty. Underwent a partial right nephrectomy six weeks ago and a very tough recuperation. Yesterday was my six week check up and the path report. I felt sick. After waiting forty five minutes, he finally called me in, I sat…
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My first 6 month checkup...tomorrow!
Well, it has been just a touch over 6 months since they took my right kidney. Recovery went very well and I have been running 5x a week for a few weeks now. I am thinking about it a bit (the checkup that is) but I am not really nervous or scared. I need to ask my doc a few questions about lifestyle. I just want to get it…
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tomorrow - 1 year anniversary....
Tomorrow is my 1 year anniversary [ 06/12/2012 ] where I received the call from my Internist's office that she needed to speak with me that afternoon [ I had a CT scan - long story as to why ]. I remember her telling me, "these things are sometimes benign'. She even called a local surgeon and asked of he could do a…
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Not ready to check out yet
My ENT doctor ordered a CT of the chest because of some upper resperitory issues I was having. A few days later I get one of those familiar calls from the nurse that the doctor wants to go over my CT results with me. Asking questions of the nurse was hopeless. Anyway I got a copy of the report and it seemed normal to me .…
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Oklahoma
I appreciate that this site is related to cancer, but after having watched the news coverage of the tragic events that are unfolding in Oklahoma, following the tornado. I just wanted to express my thoughts and sympathies to all those effected. Djinnie
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Slimming World!!
Ok guys, I joined last week...needed to shift a few pounds and all I can say is that I love it!!! Is anyone else here doing it? It's not really a diet its just healthy eating but the joy of it I am never hungry woo hoo which is a bonus!! I even went out and bought a bike too......I am losing the run of myself but I want…
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One week post op
One week has passed (eight days to be exact) since my surgery, laparoscopic right nephrectomy. I am happy to report that aside from struggling a bit to get up from laying flat on the couch I am doing better than I ever imagined to be at this point. This was my first experience personally with surgery of any kind and as you…
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4 days post op
I'm 4 days post op, having had a radical nephrectomy of right kidney. Though I have had a fair amount of discomfort in my belly, it cannot compare to the lower back pain I'm having. I just wonder if this is normal. I'm getting around pretty good, making sure I don't sit too long or lay too long in one position and I'm…
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Any news on Inlyta?
I have been reading your post for the last few months and they give me a lot of encourgagement. This is the first time I have posted myself. I had my left kidney out in September 2011. 8 cm and had spread to 2 lymph nodes. reports came back papillary cancer. Not long after mets in the lungs. I have been on Avastin, Sutent,…
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new to kidney cancer (caregiver)
I am a caregiver to my mom (bestfriend) recently diagnosed with stage 4 renal cell cancer that has gone to the bone. She started on Votrient 2 weeks ago and her side affects are horrible vomiting, diarrhea, unbearable nausea,very weak and her blood pressure is going up mouth sores are just starting...she wants to stop the…
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Working/Job Search while dealing with smRCC
Medically, I have no evidence of cancer at the moment. However, I have pain from both my Naphrectomy and the wedge resection and am receiving care for the pain. (it is pretty severe at times). Professionally, my buisiness area is severely impacted by cuts in the federal budget. My company is contracting, eople around me…
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Questions about staging
Hi again everyone. I went to the dr on Monday and he said 80% chance it is cancer. I go tomorrow for a bone scan and chest x-ray for staging. Is it common to stage before surgery and the tumor has been diagnosed? What other staging tests should I have if it is cancer? Of course, surgery will be scheduled soon for a partial…
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Husky Throat??
Hi all I was just wondering if any of you had a very husky voice after the op?? I keep thinking that can happen after such a long anesthetic?? Anyone else had this? Eims x
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Nivolumab-Sutent Scan results
Great news today from the world of Nivolumab/Sutent. scan summaries for my remaining left adrenal gland tumor: 6 weeks scan-up 10% 12 week scan- down 30% 18 week scan today -down 50% Doctor feels like the delayed response is more consistent with an immunity response vs. the Sutent. i just found he site last week and…