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NED Update

kdot2003
kdot2003 CSN Member Posts: 143
in Head and Neck Cancer #1

Hi, 

If anyone remembers I had a glowing subpectoral lymph node at my three months scan.  Not sure if I posted here but 6 weeks later (two weeks ago) my CT was negative.  I really am NED :)  I elected to keep my port until my 6 month scan is negative.  I guess its kind of a safety thing for me.   Still having dry mouth of course.  Going to consultation on the 16th for acupuncture.  Started taking Astragalus, Zinc, L-Glutamine, and Culturelle Probiotics for my limping immune system.  Still working and doing pretty good :).  

Karen

Stage 4a Left Pyriform Sinus Cancer (Hypopharyngeal)

 

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Comments

  • the_wife
    the_wife CSN Member Posts: 184
    #2
    YAAAAAY!!!!!! Congratulations

    YAAAAAY!!!!!! Congratulations, Karen!!! May your NED be the first of many more to come!

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  • CivilMatt
    CivilMatt CSN Member Posts: 4,725 Member
    #3
    congratulations

     

    Karen,

    You were stage IVa, you are now NED.

    Keep working on your immune system, it is your best defense.

    Matt

     

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  • wmc
    wmc CSN Member Posts: 1,804
    #4
    That is great news Karen

    Congratulations on the NED.  Celebrate every milestone and every accomplishment.

     

    Bill

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  • swopoe
    swopoe CSN Member Posts: 492
    #5
    Congratulations on the NED!!

    Congratulations on the NED!!

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  • Hondo
    Hondo CSN Member Posts: 6,636 Member
    #6
    Mr. NED

     

    Great news that I love to hear, keep positive and focus on being well, Congratulations

     

     

     

    Tim

     

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  • Raddude
    Raddude CSN Member Posts: 84
    edited May 2016 #7
    Wonderful News

    sounds like you are doing all the right things. I take zinc sulfate and l-glutamine too and it helps. Also did acupunture which had benefits. Now I am doing hormone therapy coupled with vitamin b12 shots have increased my energy level a great deal.

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  • phrannie51
    phrannie51 CSN Member Posts: 4,716
    #8
    Whoo Hoo!!!!!

    My favorite words ever in this world....No Evidence of Disease!!  You go girl!

    p

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  • MrsBD
    MrsBD CSN Member Posts: 617 Member
    #9
    Happy News

    NED is a wonderful thing to hear. Acupuncture saved my salivary glands during the radiation treatment.  I hope you will experience the same benefits I did.

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  • Duggie88
    Duggie88 CSN Member Posts: 760 Member
    #10
    Karen

    That is good news, heal on it keeps getting better.

          Jeff

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  • Barbaraek
    Barbaraek CSN Member Posts: 631 Member
    #11
    Best news of my day!

    So glad to hear you are NED Karen. That xerostomia is a B***h. Let us know if the acupuncture helps. Husband has something called ALTENS which was acupuncture like nerve stim with electrodes. It didn't do anything for him so I'm trying to talk him into the real deal acupuncture.

    barb K. in Buffalo

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  • kdot2003
    kdot2003 CSN Member Posts: 143
    #12
    Thank You for the kind words.

    Thank You for the kind words.  I will let you know if the Acupuncture helps at all.

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  • Kenny-
    Kenny- CSN Member Posts: 99 Member
    #13
    congrats kdot!!

    Congrats! We were through (about the same) journey. very happy for the news! 

     

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