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Nasopharyngeal tumour radiotherapy effects
I have just joined CSN, my first post, I had NPC diagnosis recently, and have started radiotherapy for nasopharynx recently, here in London. this is Not the first time, because I had tonsil cancer SCC 7 years ago and went through the chemoradiation followed by neck dissection. This time no obvious symptoms but for last…
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Ending week three - throat becoming an issue
47 year old male with SCC base of tongue stage III, HPV+. Just ending week three of daily radiation. Chemo is every three weeks and I get hit with the second round next week. I've actually been doing really well up to this point. I'm 20 pounds over my average weight, I work full-time, I eat normally and go out to eat…
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Scanxiety
My husband will have his first post treatment scan this coming Saturday. Everything seems fine ... he's healing well, eating well, no lumps or bumps. Just an occasional sore spot in his throat and a bout of thrush. However I'm getting really nervous about this scan. They only do a CT scan at this hospital unless they see…
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Chemo Type 1 Diabetic PEG Tube
PEG Tube placement Wed Aug 2, Cisplatin Mon AM Aug 7, Rads 5 days a week, began vomiting Tues Aug 8, 1:30AM, PEG tube infected at placement site, began 2 tpes of antibiotics, hospitalized for acute kidney failure for 4 days, as of today (5 days out of hospital): able to eat small amounts of oatmeal, hamburger patties,…
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First Week of Treatment Down
Well, I started my treatment last week for SCC base of the tongue (stage 3, approx .5" square tumor, HPV+ with multiple nodes on both sides of neck, 47yrs old, no drinking, no smoking). Doing the 3 mega doses of chemo (Cisplatin) with daily radiation to equal 35. Day one of chemo was nightmare. I had met several people who…
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Nasopharyngeal Cancer
Looking for some fellow fighters/survivors. I was diagnosed with NPC last May at the age of 39. I completed treatment in late October and am now just trying to recover from the harshness of the treatment. I have never talked with anyone else who has been diagnosed with this rare disease and would love to know that I am not…
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Please help im going crazy i beleive i have ORAL SCC but no one is picking it up
Can anyone here tell me if i am in the right place im going crazy i have signs in my mouth that look bad but oral surgeon, ENT , Dentist all said nothing is wrong :-( I would love to share some photos of what i see and if anyone else is going throuh this Thanks
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4th Time Around
The cancer is back... so angry!
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LAST RADIATION TREATMENT TODAY
THIRTY FIFTH AND FINAL TREATMENT TODAY My brother drove me to treatment today. Evelyn, Ann, and Carolyn met us there. I had my treatment and then I gave the techs gifts I brought for them. Some peace rock paintings that I did last year. They seemed to like them. Then we did the ringing of the bell ceremony. I was given a…
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Full on laryngectomy with bi lateral lymph removely
Hi I had this radical surgery after recurrence from previous RT treatment, six weeks ago tomorrow. i am still very swollen lower face and neck with almost solid Edema in those areas. My mouth is equally swollen and swallowing even saliva is damn nigh impossible drs say it's a time thing but just wondering if anyone has…
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Diet cures cancer
I know some people are well-meaning but it really burns me up when I am told that this or that supplement will cure cancer. Or someone saying, "I have a friend who had pancreatic cancer and he drank this supplement and voila, 2 or 3 years later he is alive and doing well." All the radiation and chemo Buzz had did not cure…
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Tongue biopsy pain
I'm having a really bad day. I had my tongue biopsied on Monday and I've had the usual pain that one would expect but today seems to be particularly bad. I'm a chronic pain patient and therefore I take narcotics on a daily basis for the pain of the two diseases I have. My pain management doctor that prescribes my narcotics…
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Post Surgery/Clean PET - recommended radiation treatment?
Hi, Just to be clear, I am not asking about whether she should do radiation - she will, but what kind, and if anyone has a big problem with a somehwat short delay? My fiancee got oral cancer again (12 years after vanquishing it from her tongue the first time - this time in the mandible/tongue/part of throat) stage 4 and…
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Pain following oral radiation
Hello everyone. I'm new on this chat board and am need of advice.. My sister finished 6 weeks of grueling oral radiation 3 months ago . She no longer has sores/ulcers or any dental issues but is still experiencing excruiating pain in her mouth. Has anyone else gone through this? How long does the pain last? Thank you!
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Bump on inside of lip
Hi All - I have a scare that I am really quite concerned about and was looking for information that might help put me at ease. I have been an on and off dipper (chewing tobacco) user for 6-7 years, I'm 27 years old. It was actually to the point where I had stopped for a long time (~6 months) and then relapsed a couple of…
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Mucoepidermoid Carcinoma
It has been confirmed today that I have a 2cm tumor on the base of my tounge!!! I am 25 & have to young children & just cannot believe this is happening to me. I have smoked in the past but never alot (1 or 2 a day) & not for the last 3yrs. The good news is that they Drs think it is a low grade tumor & slow growing, they…
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Annual Scan - NED
One year down ..... one year anniversary of surgery (4/20/16) followed by the completion of 33 radiation and 6 chemo treatments (7/15/16) for Stage IVA tonsil cancer. PET scan performed yesterday with NED results given today. Still have various side effects to deal with but I will take this news anytime they can dish it…
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Teeth issues
Hi, my dad is 4 years post treatment for stage 4a tonsil with chemo and radiation. He has had root canals and shaved some teeth down (so as not to pull them) but tonight his bottom front tooth just fell out. The dentist we saw here on Staten Island did not recommend the oxygen chamber. What can I do for this? how can I…
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1 year out, and 4th NED
Just to give hope to others who are unfortunate to join this group, I had my 4th three month checkup and received the all clear. I was told that I could now switch to every six months. Was happy about that, but then got scared that I'll be waiting much longer to get checkups. Still, I do worry about the number of Ct Scans…
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new here
Hi everyone, I am new here and am so grateful to have found this forum with so many wonderful people. I was diagnosed with squamous cell carcinoma of the tongue on March 16th of this year. Towards the end of January I found a spot on my tongue that I thought was a canker sore. After giving it a couple of weeks and it not…
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So worried foreigner... need an advice
Hello everyone! I've been in a terrible crisis in last couple of days. Can't sleep, can't work, can't think normally. I have a feeling I'm doomed, somehow. Let me tell you my story. I am an young adult, almost 27 years old but i've made a terrible mistake in my life, unfortunately. Unfortunately, once again, I've…
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Feeding tube bleeding
Hi, I have been taking care of my mom who has been on an uphill battle with tongue cancer. She has had a feeding tube for the past five months. She is in constant pain in the area directly around the entrance into her body. She has always had some stuff (some blood and other discharge) but tonight when she changed the…
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Is this normal procedure?
Hello, everyone. My husband has BOT (base of tongue) cancer and is in his 5th week of 7 weeks of radiation, 5 days a week. He is doing fairly well - usual side effects - sore throat, no taste, fatigue, mucous, etc. He sees the Radiation Oncology Dr. once a week after his radiation treatment. At this checkup, the Dr. always…
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Do humidifiers help at night with dry mouth?
Getting ready to start my daily rads next week and i'm trying to get everything ready. I'm wondering if a humidifier on my nightstand next to my bed might help with dry mouth? Amazon has a well rated Honeywell for basically 50% off right now - making it $18. Anyone try a humidifier? If so, thoughts? Thanks!
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newbie to radiation treatment
Hi - I will be starting radiation next week. I have tonsil cancer on one side & my doctor wants to do radiation on each side, although no indication of cancer to the other side. Is this the norm? Anyone else have this two sided treatment? Thanks for any help!
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Dry Mouth 5 Weeks Out
Hello! I haven't been on here in a while. My husband is almost 6 weeks out of treatmet and doing very well. His one month check-up was great and he is healing nicely. He is eating just about everything. He is noticing some tightness in his jaw so I told him to be sure to stretch it every day. One thing he is just starting…
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pain following oral radiation
Hello everyone. My sister had 6 weeks of daily oral radiation that ended on April 2017. 3 months later,with no sores,ulcers or dental problems she is still complaining of severe pain .Has anyone else experienced this and how long does the pain last? Thank you!
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NED, NED, NED!! What a lovely name!
My husband's scan showed No Evidence of Disease!!! We are over the moon! Thanks for all of the prayers and good vibes. It all helps! What a gift we have been given.
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1 week post treatment
Well, I did it. Made it through 7 weeks of hell, but hell continues for me. I know it takes a few weeks to start feeling better, but I seem to be getting worse. 1 day after treatment I needed a blood transfusion due to some low blood counts. My throat and tongue are as sore as ever. Then today, I had yet another blood…
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throat dilations and other problems
I recently had my second dilation done and a week later I still could not eat. So after going back to the doctor I now have a fungus in my throat that is making it difficult to swallow. has this ever happened to anyone? And if so how long before you could eat? I love losing the weight but I'm dying for some real food.…