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Nasopharyngeal survivor: Hep Please!
I'm a 22 year-old Stage 4 Nasopharyngel carcinoma survivor. I have come a really long way since treatment ended in September 2005, but I am not satisfied with my progress at all. I had a g-tube placed pre-treatment, and had it removed way to soon so I had a second one placed. It's out now, but eating is a nightmare. I…
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Not sure if my dad has EC - help
My father has been having trouble with swallowing, specifically meat, for a while now, probably close to a year. He is a heavy smoker and drinker, which I have read is a major contributer to this type of cancer, for obvious reasons. He does not take care of himself, never goes to the doctor. I know what the symptoms are,…
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G-Tube Feeding Not Going Well
My father has been tube feeding since surgery in November. Initially it was horrible because he had an infection and couldn't keep any food in (diarreha). He's able to tolerate the food now but can only get 2-3 cans in each day because he feels full and starts to get bile in his throat. He's not maintaining his weight and…
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Removing scar tissue
I had cancer at the base of my tongue removed sucessesfully but it left scar tissue and i can not swallow food. Is there a Dr. that will remove the scar tissue? I live in Fl but will travel most any where. I do not want to live the rest of my life out of a feeding tube if I do not have too. Thanks before hand for any…
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Questions for Parotid Gland Cancer Survivors
I was diagnosed with Mucoidepidermoid Carcinoma of my left partotid gland (deep lobe). Last week my surgeon removed the whole gland, plus left side lymph nodes in my neck as a precaution. The pathology report showed the intermediate grade tumor was totally encapsulated-- none of the surrounding tissue removed showed…
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Pain in fingers and feet! Need your help Please!
I just finished my chemo treatments 3 and half months ago. I have pain in my finger tips and feet and toes. Feels like they are swollen and they hurt to the touch. Has anyone have these side effects and what did you do to ease the pain or get rid of them. Also myself wellbeing is way down. Lack of energy. They gave me…
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caring for mom 82 yrs of age
Mom has been diagnosed with scc on the base tongue and in lymph node. She is elderly and frail. She is about to go through radiation. Need help on how to help her get through this. Any advise most appreciated. Help!
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Surgery
Has anyone ever had surgery where they don't remove the whole esophagus? I have adenocarcinoma at the GE junction-why does the whole esophgus have to go?
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Need help dealing with sleeping
Hello Everyone, I am having a terrible time getting enough sleep every day and night. I have NPC cancer. I am 43 yrs old and just finshed radiation 3 weeks ago. My nose is clogged and my throat hurts which makes me cough alot. I can swallow water just fine. But when I want to sleep I can't because my nasal passage is not…
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No Saliva for Papa
After treatment for cnacer, my grnadfather can not produce any saliva. He has lost a ton of weight but it doing ok. For christmas i bought him a cookbook (well sort of) for pureed food. However, even pureed food is a little too thick. He mostly eats broth, ensure, and milkshakes. He even has to wash down the ensure with…
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depression
I am a year and a half out and man am I down...can't seem to pull myself out of this deep deep depression...no one seems to understand.....any one else having such a struggle?
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my story
I had neck disection surgery in December for cancer. I have posted some of the operation pictures and my story on my web page, www.outdoortexan.com . I also am trying to get into as many places as I can to educate people on smokeless tobacco.
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MY HUSBAND
Hi, My name is Ferne and my husband was diagnosed with esophagus cancer in March of 2004. He underwent chemo/radiation/surgery and as of now is cancer free. It is so scary worrying that it will show back up somewhere else! He has had some problems with his sugar lately, so we are getting that checked out. It is so hard to…
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survived for the 5th year
well, i would like to meet and make friends, have been lonely, and need a normal life back now. and would like to answer any question on chemo/radiation from my own experiences. come on, ask me, or at least be my friend.
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nasopharynx cancer
i'm 19 and i've recently been diagnosed with nasopharyngeal cancer. i'm starting radiation and chemo next week for 7 weeks. and then more chemo after. i guess i wonder what it will be like. what about fertility issues? they're recommending i take lupron to shut down my ovaries. has anyone taken that? they also said i could…
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Pain
Now that I am starting to heal after they replaced my jaw, I am in so much pain;still taking lotrel. Any suggestions?
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Squamous Cell Carcinoma
Hello, My husband has been diagnosed with SCC at the base of tongue and it has spread to one lymph node on the right. You all sound so brave - I am so scared for him... Yesterday we met with the tumor board and got quite morbid statistics as to the survival rate. The doctors advised against an operation on the back of…
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Erbitux and Tarceva rash help is here
I know there is a physician in Chicago that is becoming very well known at Northwestern hospital that specializes in the treatment of these rashes. He leads the research and the special clinic there called the SERIES clinic that treats these reactions.... Call or e mail him asap His contact information is below: Mario E…
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When it rains, it pours
I can hardly believe this is happening. We lost my mother-in-law to lung cancer in December, now I find out my father has esophageal cancer. We don't know what stage he's at yet. He has appointments next week with both an oncologist and a surgeon. Everything I've read on the web scares me to death. This cancer sounds very…
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neck disection
Anyone have any ideas as how to loosen my neck up after disection? I had the surgery 2 weeks ago due to mandibular cancer. Thanks!!
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donnie is doing okay
My husband Donnie went for his checkup (He finished all the chemo/radiation 2/27) and the doctor was so pleased with him. No bad side effects and getting ready to do physical therapy on his stomach soon. He has the G-tube but rarely used it. His throat was very sore but to swallow it hurt but he kept on. The week after all…
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God Has Blessed Us All!!
Hi, to those who do not know me I was diagnosed May of 2003, squamous cell carcinoma of the tonuge, stage 2. I just want to express my Blessings to each and everyone in this group. As I sit back and read the stories and the journeys that each one had been on, I have gained so much strength from all of you. I just want to…
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excessive mucous after radiation
My husband suffers from thick, stringy mucous. He received 38 treatments of radiation, 3 years ago, for tumor under his tongue. He has a feeding tube because he is enabled to swallow. He uses a suction machine all day and throughout the night to help get a short time of relief, but it begins again. He has used many…
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Hypercondriac?
Hey, i'm 17 i have no history of cancer in the family, i have a slightly tight throat which has been like this for a couple years now, but i have no diffuculty breathing, swallowing or eating, i have no lumps on the throat or neck and i do have a cough which comes and goes periodically and i am prone to ear infections…
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Mom just diagnosed, need help please!
I've been reading all the posts and I just want to thank you all for posting your experiences and advice - you all sound so amazingly strong. My mum was diagnosed with cancer of the pharynx last week, and unfortunately she's had the symptoms time, the tumour in her throat is 12 cm. She is stage 3, with no signs of it in…
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recovery
My husband finished 8 weeks of radiation with once weekly chemo the first week in December. He was diagnosed with a tumor on the base of his tongue and one lymph node involvment at the end of August. He has feeding tube and din't lose much weight. He still cannot eat, however. Around the first of January he developed a…
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Could it be?
Hello! I am a 30 year old mother of 3 beautiful, wonderful children, and hoping to add one more before our family is complete. I was diagnosed w/GERD in '97-'98, and have taken several different prescribed meds for it since. The meds have changed from time to time because I have been pregnant or nursing a child for all but…
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new and questions
Hey all! I'm new to the group. I finished up my treatments (35 IMRT radiation and 3 6 hour bouts with cisplatin) for cancer of the right tonsil and upper palate (T3N1M0) in January of 2005 I never had a feeding tube and consequently lost 40 of the 160 pounds that I carried on my frame. I've since gained back 10 pounds but…
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HRT and radiation - please help!
Ladies, or anyone - my mom is about to go through 7 weeks of radiation for cancer of the pharynx (stage 3), please does anyone have any information on radiation and hormone replacement therapy? Should she still be taking this? Is it safe to keep using it? Please help! Sandra
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phlegm in the neck after radiation
tamy wife has nasopharyngeal cancer and is cured 8 months ago. But there is a lot of phlegm around the neck, the phlegm is not in the airway or throat, it seems to be in between the glands. She has a very very hard time to suck it out but it formed back right away in minute. Sometime the phlegm moved to the back of her…