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chemo and confusion
My Dad is on his third shot at chemo after an esophagectomy in Nov. 03. The first two were too toxic for him. This one - something derived from the ewe plant - seems to be easier on him physically, but mentally it is taking a beating on him. He is extremely fatigued, confused and occasionally paranoid. He is taking…
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sore throat...cancer again???
As you guys probably know, my friend was diagnosed in APril 04 of tonsil cancer, stage 4. He had chemo and radiation and in Nov by the grace of God he was given the all clear from his pet scan results. He is suffering from depression, I can't get him to reach out to anyone or go for help. The dry mouth is really bad and he…
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Saliva Substitutes
My mother was diagnosed 10 years ago, and like many others, the majority of her salivary glands do not function. She has tried a saliva substitute (I'm afraid I don't know which, but it came in a spray bottle), but gave up on it because it was causing her functioning glands to unload any fluids they had, and causing all…
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basaloid squamous cell carcinoma
i cant seem to find much info on this particular cancer it started in the piriform(sp) sinus and spread to his larynx now he has 9 hot spots from a pet scan in his lings. i am 28 and he is only 42. any advice would bw greatly apprecited, we have 2 small children and need advice on how to deal with them.
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newly diagnosed, afraid of chemo
HI, i recently had to have surgery to remove my right eye due to cancer of the lacrimal gland, now will face radiation and chemo, I don't know what to expect! Help! The radiation will be to the orbital area where my right eye was. Please share any experiences you have had which you think will help me get ready emotionally…
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Recurrant tongue cancer
My husband was diagnosed with T4 Squamous Cell Carninorma on the tongue in February this year. They removed 40% of his tongue and about 2 dozens of lymph nodes from his neck. Since there was one lymph node that had cancer cells, they did the radiation (IMRT) treatment in July. We just found out that the cancer is back on…
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cancer??
hello. i am so scared right now. i have had pain between my shoulder blades for 7 days. i had pain of food going down my esophagus for 2 days. the pain was very intense. the first day when i swallowed solids, i could feel the food going down and it hurt. by the time it got to the center of my chest it was very painful. the…
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No Saliva - HELP!
I am writing for a friend who does not have internet access. She had cancer of the tongue and as a result of the radiation her salivary glands no longer function. She has a hard time finding things to eat that don't "taste like sand". Does anyone else out there have this problem and have any suggestions or recipes? Thank…
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Refusing cancer treatment
Hi Has anyone turned down treatment for oral cancer or had the treatment and decided they wish they had not interested in hearing the views of anyone as oral cancer is a nasty treatment with horrible side effects
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second time around
this is my second time around with throat cancer. I did the surgery and radiation the first time.Now there is only very radical treatments left and i dont want to do it. I really dont want to live with out my togune or vocal cords.
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Drooling after tongue amputation
My husband recently had all but the base of his tongue amputated after being cancer free for nearly nineteen years (a replacement flap was created using tissue from his arm). He is constantly trying to keep from drooling on himself and everything around him. I know he is frustrated by this. Does the drooling ever go away?…
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Taste
Can anyone tell me how long after the end of treatment for nasopharyngeal cancer does the taste at least resemble what you used to have. I just finished treatment (the chemo part)a little over a month but finished Radiation about3 months ago. My cancer is gone although I just took an MRI and that was clear and now I take a…
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throat cancer soreness
Hello is anyone out there?
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cold after larynx cancer
Hi, my names Judy. My last radiation treatment for both breast and larynx cancer was 2 years ago Dec 13. I have recently had a crummy cold, and I can hardly talk. I had an area of concern 2 months ago where the area I was treated was "puffy" or had some fluid according to the Cat Scan, no worrysome signs. I am now back to…
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speech synthesizer
I am a post op(June 2003)total glosectomy and larygectomy patient who has been trying to get a Dynawrite speech synthesizer to try to get back to a somewhat normal life.My insurance company denied my request because my cancer was not "accidental",as if we all plan such things.I am not eligible for Medicare or Medicaid and…
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throat pain/swallowing
my mom was dx with lung cancer 6 weeks ago. She is going through radiation and chemo. She is having so much trouble swallowing and nothing seems to help. She has tried the magic mouthwash and that helps only for a few minutes. Even water burns so bad she can't drink it. If anyone has any suggestions we would appreciate…
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HELP!! Mom wants to stop treatment!
My mom was recently diagnosed with T1 N4 base of toungue cancer. She's 2 1/2 weeks into a 5 week course of IMRT radiation and 1 day/week chemo. Her throat is swollen almost shut and the pain killers arent helping. She wants to stop treatment because of the pain its causing her. Anyone have suggestions how to help her…
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Anyone have experience with any of this????
I have an interesting story. in the early 90's, my mom had a lymph node in her neck that kept swelling and swelling. Years went by, and finally in 1996 they removed it. It was full of stage 3 squamous cell carcinoma, poorly differentiated. She went to sloan-kettering and had a radical neck dissection to find no other…
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bumps on tongue
I am 14 months out of my last treatment for base of tongue cancer. I recieved 35 radiations and 5 kemos. I've noticed some small bumps on my tongue toward the back. I talked to my companies nurse and she didn't feel that it was anything serious and I also talked to my family doctor and she didn't think it was anything…
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Squamous Cell - Nasal
Hello everyone. First, thanks for sharing so much. I am new to the site. My Father is diagnosed with Squamous Cell, mostly in the nasal and sinus areas. First PET tomorrow. Dr's say that surgery is not an option as it would be too damaging to facial struture. He just learned of this last week and is currently in the "why…
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Neck Disaction / Radiation / swollen face, chin & neck
Hello everyone. Again thanks in advance to all who may responde. My husband had a tumor removed on his left ear and also had a neck disection. He underwent 33 treatments of radiation, while he was getting radiated he had some swelling. It has been 4 weeks now and almost all the swelling dissapear, except that a couple of…
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MRI and now PET Scan
Today I had an MRI. It came back clean with no evidence of Cancer Now they want me to have a PET Scan. Is this unusual after treatment is completed and the MRI comes out clean? My Doctor assured me that he was very happy with the results of my treatment and the outcome of the MRI. Also, I have to be sedated during an…
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violently sick with feeding tube
My son was diag.with Sqamous cell carcinoma in the left tonsil in 4/1998. He had chemo and radiation trt. In 1/2001, cancer returned and he had radical neck disection performed. He is unable to swallow, and requires feeding tube permanently. In 3/2001 to present he becomes violently sick at times from the feeding. He is…
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Looking for people who understand
Hi. I am so glad that I found this website. I've thought for a while that it would help me cope being connected with people who have the same illness. I am 23 and I was diagnosed with stage 3 lateral border tongue cancer in nov 02. I have a short smoking history 4 yrs. I went to my dentist twice with a lesion and he said…
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looking for survivors of parotid cancer (mucoepidermal carcinoma)
hello, my husband who is 43 was diagnosed 4 months ago with a high grade parotid cancer. He was told that the only effective treatment was surgery (with removal of ear, facial nerve and jaw). At this point he was told that chemotherapy would be ineffective for this type of cancer and that radiotherapy wasn't possible in…
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tongue cancer surgery and swallowing
When part of your tongue is removed due to tongue cancer, can you swallow water? saliva? medications?
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Neck/Head Radiation - Side effects - Remedies - HELP
I was wondering if anyone knows about something to help with the sores in the mouth. My husband is in the middle of his treatment (33 total) and has a lot of sores. Any input to aliviate the simptoms will be appreciated. How about nausea? sore throat? Thank you all in advance. Jessica Egge
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Clogged mastoid from radiation
Has anyone out there had to have their mastoid drained months after completing neck radiation? My ear has been clogged since 4 weeks into my radiation treatment. I have already had a tube inserted into my eardrum for drainage, but it has not taken care of the problem. I am now scheduled to have my mastoid drained in two…
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radiation
what are the normal limits of exposure to radiation in the neck and throat areas
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radiation
How much radiation can you recieve without permanant damage of some type