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magic mouthwash
wondering if anyone has used this and how numb your mouth really gets from it. My mouth is extremly sore and i have lots of sores and its very dry, but i do not like numbing feeling it makes me sick. I keep gagging and coughing up flemlike is this normal? any suggestions or help?
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new to this website
Hello everyone, I am glad to have foung this website. I was diagnosed with laryngeal cancer on October 2nd, 2006 and have been looking for a place for support and to help out others as well. However, I was not able to find such a place until now. I actually enjoyed browsing through the discussions. I now know I am not…
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Side affects
About half way through mmy radiation treatment, I woke up one morning and both arms were tingling and numb like they were asleep. This tingling and numbness has spread to the rest of my body. I have been to 3 neurlogists and none of them have been able to offer any help. Has anyone else had this experience?
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Survivors
Hi. My name is Jenna. I am 19 years old and my father recently was diagnosed with esophageal cancer. My life has really done a complete 180 when I heard about this. My dad was always that guy that everyone loved to be around. He was always the one to make a joke and make everyone smile. I can't remember the last time I've…
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squamous cell carcinoma
Hi, this is my first time that I have ever even looked at a chat room but I'm at my end. My mother was diagnosed with Squamouse Cell Carcinoma on May 16, 2006. We live in a rural community and the clinic referred her to the University of Nebraska Medical Center. Her primary oncologist has been Dan Lydiatt. On June 1, 2006,…
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Squamous Cell Carcinoma
Hello, Ihave recently moved to Phoenixville, PA. after being treated in San Francisco for my condition. The doctors agreed that I should go home to my family and make the best of my time left. Well the expiration date has passed and I want to get in touch with a group, or someone in my area-a ten mile radius is fine- that…
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Radiation damage
My husband finished radiation and chemo 16months ago; had a radical neck dissection 13 months ago. However, he still has on-going radiation damage: 1. he has no saliva 2. his epiglottis doesn't close over so he can't swallow food 3. he has horrible, ever-present mucus that feels like glue in his mouth He's really depressed…
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Squamous Cell Carcinoma experiences?
My father is just recovering from 7-8 weeks of radiation and chemotherapy for Squamous Cell Carcinoma in his throat (tonsils and throat)... he is about 6-8 weeks out since last treatment. During this whole process he has lost about 60lbs. He is really struggling right now with managing his ravaged mouth. He has lots of…
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Problems from radiation
I had a cancerous parotid tumor removed in Dec. 2003, and radiation in 2004. This left me unable to hear from one ear, and this same ear also drains continually. I have had a tube inserted -- another hole opened by itself in the eardrum. I had my mastoid cleaned out -- no help. I think they are pulling at straws, but now…
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Dad has throat cancer--proposed treatment extreme?
My 87-year-old father has been diagnosed with throat cancer. He had an initial operation and was told "we got most of it." Recently hospitalized with double pneumonia and a rapid heart rate, he has gone home but the doctors want to begin a 6-week radiation regimen for the throat cancer in which a protective mask is made…
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patient advocate?
Has anyone used a patient advocate to assist with all of the logistics involved with making appointments, communicating with, interpreting advice, etc, with all of the necessary doctors (oncologist, radiologist, surgeon, etc.) If so, how does one find a patient advocate?
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cancer centers of america
does anyone have experience or information about Cancer Centers of America for treatment and care of esophageal cancer?
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very young patient
hi all, i just wanna tell you that i'm only 27 years old guy and had esophagus cancer and i went through surgery afew days ago and thank God that everything is good now.... i was at stage 1 as the doctors said and i'm waiting for the lab results to know if i will go through chemo or not.... i just wanna say that i didn't…
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tracheostomy questions
My Mom was diagnosed with tongue cancer in August 2006 and underwent a neck dissection w/ removal of lymph nodes on both sides in September. She has been through another surgery since then and has had a feeding tube and trach since September. I would really like to hear from other people about their own experiences w/ a…
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Radiation for sqamous cell in situ
My cancer is pre-invasive sqamous cell on right vocal cord. The chord has been stripped twice, and they thought that it had cleared, however 4 months later voice was playing up again. Another biopsy, and I was told it was back, but still only "in situ". Now they want me to have radiotherapy, but I am very concerned about…
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mucoepidermoid carcenoma
Has anyone had this type of cancer where the tumor was in the parotid gland? I had surgey in July where this was removed through the neck on the right side. I have since gone through chemo and radiation. I would like to find someone who has had this or a similar type of cancer/treatment to learn more about their…
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questions
Hi, first time signing in. I have so many questions that I don't now were to begin. For the brief version,I had a lump on my left side of my neck that was removed two weeks ago yesterday.It was diagnosed as squamous cell carcinoma.I had a P.E.T. scan done yesterday and it came up clean. My surgeon scheduled me to have my…
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Diagnosis
I was wondering if someone here could give me some advice on several conditions I have been having for a year now. First I suffered from fatigue and occasional pain in my lymph nodes (no swelling) in my face and neck over the past year associated with no other possible cold or flu symptoms. This went on and off over 9…
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Oropharyngeal cancer
Hi, I`m back! Well my CAT scan came back as was expected. Then I had to have a bone scan and PET scan. The results were not so bad. It is stage 1 right tonsil cancer but with no lymph node involvement. I had the surgery last Thursday (9/14th). They took both tonsils and they had to take more tissue around the right tonsil…
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Hi ... Tiffany here, continueing symptoms ...
Its been 4 months since my Radiation/ Chemotherapy treatments? and now I have swelling in my throat, extreme saliva, and dry mouth. I can't swallow food yet, and am still feeding with a "gravity tube" set-up in my tummy. I have horrible head and neck pain, and am on heavy medications to try and kill the pain ... the drugs…
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The Cure
Now that I have your attention: In this year of electing a president, all cancer survivors need to find the candidate who supports Cancer research-a-ie; stem cells, which could very well bring the cure to all cancer. The politics of cancer can kill you..of over 10,000 grants from the National Cancer Institute, only 500…
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The Cure
Now that I have your attention: In this year of electing a president, all cancer survivors need to find the candidate who supports Cancer research-a-ie; stem cells, which could very well bring the cure to all cancer. The politics of cancer can kill you..of over 10,000 grants from the National Cancer Institute, only 500…
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Looking for a Throat Cancer Survivor
My friend just lost his wife to throat cancer November 2006. 2 weeks ago, he was diagnosed with throat cancer and today was given only 2 months to live. BUT HE WANTS TO FIGHT! He is looking for someone who has survived this. Just this one person can make a difference to this man. Please reply soon. Thank you, all!
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esophijectamy(misspelled I know)
has anyone heard of new procedure using a piece of colon to lengthen makeshift esophogus to prevent lining erosion?
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Alternative therapies
hi my husband has EC spread to the brain we are thinking of travelling to San Diego to the issles centre.Has anyone recieved treatment there and how sucessfull was it?
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Spit Fistula (esophagostomy)
Hi Everyone, I was trying to find people who have had (or know people who have had) a spit fistula? (esophagostomy) Thank you in advance, misty
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My Dad
My Dad was diagnosed with EC about 8 months ago, his surgeon suggested chemo/radiation and then surgery. He went for surgery 2 months ago and is still not home yet. The first surgery was not a success as the chemo and radiation "fried" his tissues and the re-attachment of his espohagus to his stomach was not healing and…
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my father
my father (62) was just diagnosed with squamous cell carcinoma of the lower third of the esophagus. i was trying to understand the endoscopy report and as far as i know the bloodwork and cat scans revealed that the cancer has not spread to other organs but that it is "infilrating the stroma"...i'm assuming of the stomach.…
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Best place for treatment
My father, age 77, has just been diagnosed with Stage III esophogheal cancer and is undergoing chemo and radiation. We've been told that surgery is his best chance for survival, but we'd like to 1) get another opinion and don't know who to go to 2) find out what the best place would be for the surgery and 3) see if…
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New diagnosis with lots of questions
I am 23 years old and was diagnosed with tongue cancer back in August. On Sept. 8, 2006 I had the right half of my tongue removed and a neck disection with 41 lumph nodes removed. None of the lymph nodes came back with cancer. My treatment consists of 6.5 weeks of radiation with three chemo treatments of Cisplatnum at the…