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Needing an introduction to group for my mother-in-law
My Mother-in-Law is recovering from surgery and radiation for mouth cancer. She still, after some months, hasn't recovered her taste, and has been dealing with the expected depression. She recently tried to join an on-line discussion group, but was rebuffed as being a computer newbie (she is, but the reaction seems odd in…
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post-radiation dry mouth relief
Not sure if it will help anyone else but we have found that "Saliva Substitute" "Oral Balance" and "Oralube" type products have really been helping with his dry mouth problem. We got the first one at Walmart :)
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had tongue cancer one year ago....
hello, i had cancer of the tongue a year ago, i had surgery (7/2004), radiation and chemo (radiation & chemo ended in 11/2004). When they did surgery they removed about 30 lymph nodes from my neck and found cancer in 4 of them. I have had two MRIs and 2 PET scans and so far no more cancer. I still have dry mouth and eating…
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Questions regarding EC
My dad was told about 2 months ago he has EC at stage 4. It has spread to his lymph nodes, lungs and liver and there is a mass on this back. He has started chemo and it seems to be helping is pain and comfort level. Does anyone know anything about flax oil and the benefits for patients like him? Please help!
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One year Cancer Free after Rhinectomy & Palectomy.
I Just had to go this site after surviving radical Rhinectomy (total nose removal) & palectomy (Hard palate removal) after stage III sqaumous cell of the nasal septum. Still not sure what caused this cancer but I have found there is life after a stage III diagnosis. It is one year after the surgery and still have some…
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Financial Help???
I was wondering if anyone knew where a good place to get financial help??
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small cell esophogeal cancer
Help!! My mom has just been diagnosed with small cell carcinoma esophogeal cancer with metastesis to the bone. Does anyone have any experience with this type or esophogeal with bone metastesis?? Any information would be appreciated. My mom is only 61, and grandma to 2 young girls. She's got a lot more livin' to do!!
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Hello all, I am new to the group and
have not been diagnosed with oral cancer but have a big fear of it and I am worried that I could. I have been to my medical DR and he said that it looked like I got a swollen gland that is related to my jaw pain. I asked him if he thought it could be oral cancer and he said that he didn't think so. If I may ask, how many…
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Fatigue, months after radiation
My mother is in her late 70's and was diagnosed with SCC of the tongue. She had removal of the tumor and margins on her tongue along with a neck dissection in Dec. 2003. In late January, she began 33 radiation treatments of the tongue, neck and lymph nodes. She has dry mouth which wakes her up frequently during the night.…
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transplant bowel for esophagus
My dad has throat cancer and went through radiation and chemo last summer. In March of this year he had to have his larnyx removed because the cancer was back. Last week we learned the cancer has returned again and they are planning surgery next week to take a portion of his bowel and rebuild an esophagus after taking out…
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Halter Monitor
Has anyone that has had head and neck cancer had a halter monitor done? I have experienced four episodes of blacking out since I found out that I had cancer and yesterday the doctor told me that he wanted to do a halter monitor test on me so I am curious if anyone else with the same type of cancer as me has had this done…
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Parotid gland - diagnosis process
I am not yet positive that I have cancer, but so far all signs point to yes. I see my doctor Monday morning. Any words of wisdom during this stressful time? Thanks.
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bubbling liquid in throat after radiation, help!
Last week my husband completed his radiation for cancer of the larynx. The last two and a half weeks he had radiation twice a day. Along with the thick mucas, he is having difficulty with 'bubbling' in his throat. He says it's like someone poured peroxide down there. He can actually feel the sides of his throat bubbling.…
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G-tube
My husband has had his G-tube for 6 weeks post surgery and we start radiation on Thursday. He has started to have some bleeding around the tube..is this normal? We are not sure what to expect.....thanks for any help and words of wisdom for starting radiation....thanks for any help...sdawe
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Help! Dad just diagnosed with squamus cell - need some information!
My dad was diagnosed with squamus cell on the left side of neck - primary we think is right below it in the throat. He is having a PET scan on Friday. He is a very special case - he had Hodgkins Disease in the late seventies and went through radiation for that which got it. Since then he has had tons of medical issues the…
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eustachian tube repair after rad. trt.
Has anyone had, or heard about repair of the eustachian tube(s) after radiation treatment? Still with fluid filled ears 2 years out of treatment. Also, a neck that is becoming "wooden" to the touch. Thanks for any advice.
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Dueling Doctors
Here's one for you! This morning I had a radiology test on my ability (or inability) to swallow after 8 weeks since the end of my radiation. As it turns out, the upper sphincter in my esophogus is closed off and won't allow anything to pass. I was given one teaspoon of berium and told they "didn't need to see any more". It…
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Extreme congestion
I had a total larngectomy about a year ago. I have had the typical runny nose but as of late the congestion has become severe. Major headache and really stuffy. I've been using OTC congestion meds. No relief. Anyone have something they have found that works?
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My Uncle
My uncle battled throat cancer about seven years ago. He was fine until about four months ago. He started with a hoarse voice, so he headed to the doctors. It seems that his cancer is back and worse then ever. He is being moved to a hospice and is not expected to come out. I am very depressed about this whole situation. I…
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Nasopharynx Cancer
My father-in-law was diagnosed w/this cancer. He is currently undergoing chemo therapy treatments for the next 3 months. I am wondering if there are any precautions that should be taken while cleaning up after him? I have "heard" that many chemo patients are advised to not sleep next to their spouse until treatments are…
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shingles- whats going on!?
i had esophageal cancer and went through chemo and surgery. now i get tests done every 4-5 months. i suddenly got this burning rash and terrible back pains. the pain was worse than anything, including cancer, that i ever experienced. i was diagnosed with shingles and given heavy doses of codiene. i was told that this is…
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CyberKnife. New Hope
If you have been told that you have an inoperable tumor(s), please look into CyberKnife, This new treatment is painless, non-invasive, no side-effects, no frame required radiation surgery that is allowing previously inoperable tumors to be treated. For more info, go to www.cksociety.org. I do not work for CyberKnife or any…
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squamous cell carcinoma of the tongue
I am 27 years old and I was diagnosed with squamous cell carcinoma of the tongue on Feb.6,2003. At the time I was 8 1/2 months pregnant with my second daughter. I have never smoked. chewed tobacco, etc.. I wasn't a risk candidate. This all started out as an ulcer under my tongue 3 months before! My ENT dr. decided to wait…
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thick saliva
Hello, It has been four months from tongue recontruction surgery. The flap has schrunk and has a provided a gap between the teeth and the new tongue for fulids to puddle. All treatments are finished, no chemo (neg nodes!) but I did complete six weeks of radiation thearpy. This has created salivia with a rubber consistancy.…
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Head and Neck Success Stories
I'd like to start a thread on people that have good experiences and advice to share with others. I am 5 years removed from radiation and neck dissection for squamos cell carcinoma in the tonsil and lymph nodes in the neck. Went through all the struggles of feeding tube, getting over pain meds, eating, swallowing etc... I…
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CyberKnife. New Hope
If you have been told that you have an inoperable tumor(s), please look into CyberKnife, This new treatment is painless, non-invasive, no side-effects, no frame required radiation surgery that is allowing previously inoperable tumors to be treated. For more info, go to www.cksociety.org. I do not work for CyberKnife or any…
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anyone using salagen?
My rad-onc has offered me salagn to preserve salivary gland functioning during/after rad therapy, but his experience with it is mixed. Has anyone tried it?
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Cerebrospinal fluid leak from ear
I had nasopharyngeal carcinoma (stage IV - T2N3) in 2002, and I completed induction chemotherapy and IMRT radiation in 2003. I've done well since. Now I have a cerebrospinal fluid leak from my right ear. I have suffered no head trauma so I suppose the insult to my dura is probably from the radiation. Anyone else experience…
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Others with Parotid tumor and cancer
If you or someone close is dealing with Parotid tumors or cancer, you might like to visit a community of others in the same situation. The site "Parotid Hope" (www.parotidhope.com) has user forums and chat rooms where you can share, learn and connect. Hope this helps.
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Thyroid damage from radiation treatment
I am recovering from radition treatments to the throat and neck area. My Doctor now tells me that I have some throid damage from the treatment and my thyroid is only functioning at about 70%. Has anyone else expierienced this and what can I expect.