Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

When do you start counting
When do you start counting when you find out you have cancer. Is it from the day to are told or from the day all of your procedures are completed.
I have tonsil cancer
I had tonsil cancer, stage 4a. I had a lump on the left side of neck. It was squamous cell cancer. Had radiation and chemo. Radiation scarring caused a problem with eating. I still have a feeding tube, also had a dissection on the left side of neck. I will know in three weeks after another larynscopy, this time through my…
www.TheSurvivorMovie.com
Got this from TereB but had to share. Most of you may have already seen it but if not it is definately worth a couple of minutes. God Bless...stay well..........JK
Neck dissection pain
Has anyone experienced pain and stiffness in shoulders after bilateral neck dissection? My husband's surgery was nine weeks ago. He has had severe neck tightness (like a noose or tight collar) and shoulder pain which is worse on the left side. He does physical therapy for range of motion in his shoulders. About a week ago…
Peg tube
I have a Peg tube for two years. Ratiation scarred my esophagus. Had the Peg replaced 2 times. First time was becaused it was getting clogged, and the second time was because if fell out. I had to go to the emergency room.
amifostine injections
i am starting radiation in 1 week and would like some feed back from people who have used amifostine to help with slaivary glands
Pirfenidone for radiation fibrosis
Has anyone heard of or been in a trial study for Pirfenidone in the treatment of radiation fibrosis? My husband has SEVERE fibrosis of the neck, shoulder, chest, now involving the vascular, (blood flow). His treatment for nasopharyngeal cancer ended in July 2003. He had heavy radiation, and not all people have fibrosis…
NASAL RECONSTRUCTION
Hello my husbando has undergone through to nasal operations and he doesn´t look well. He needs a third operation and I need to find one of the best in nasal reconstruction. Can somebody help me? please email me at vale20042005@hotmail.com
Wasn't a branch cleft cyst, primary was in tonsil, metast to lymph nodes in neck.
HEY SOCCERFREAKS & VINNY59....Finally have a plan. Found SCC in the left tonsil, laryngoscopy and endoscopy otherwise clear. Removed left tonsil and both adenoids. Could not get all the SCC at tonsil base but say it is easily treated in place. Called it Stage IV because it had already metast to lymph glands associated with…
Scans
After reading a number of recent posts here, I have some advice for all of us who are survivors of head/neck cancer. I submit it humbly. I had surg in oct of '05 for head/neck, wherein they replaced half of my tongue with part of my arm, along with some nerves from that same area. Basically, they cut the lower part of my…
aveolar rhabdomyosarcom
I was just recentyl diagnosed with what is an uncommon type of cancer. One which most is commonly found in children. I would love to know anything you can tell me about this or similar cancers. Frankly it's a little daunting to feel like a guinea pig because of the rarity of the problem.
financial assistance
does anyone know about getting financial assistance so i can continue dr. appt.I lost my job due to cut backs and cannot afford all the testing they do. last seen doc 10/2006. I have squamous cell carsinova. went through 7weeks of radical rad.onrside of neck but now need to see doc. but cannot afford it any help would be…
Trying to Eat Again - Any Advice Requested from those who have been there
Here is a message my husband who is in recovery posted on another board. I am helping him by trying to get more replies: Hi folks, > > I'm having trouble eating other than through my stomach tube. My > radiation/chemo ended April 18th for my Stage 3 basal tongue cancer, > and the cancer is gone, at least for the time…
Base of Tongue Cancer - Recovery ?
I was diagnosed with base of tongue cancer - stage IV - in May '07. I had radical neck dissection surgery and both tonsils and tonsil bed(s) removed and a small portion of the base of my tongue. I had 22 lymph nodes removed from the left side of my neck - none were cancerous. I am undergoing 33 radiation treatments -…
Carotid Body Tumor
Hello! I am new to the board. This month I was diagnosed with a Carotid Body Tumor. I am currently 25 years old. I am having surgery on the 3rd for removal & biopsy. I saw some older postings on the board and was seeking to hear about similiar experiences. Did you have complications? If so what? How old were you when you…
A Cancer Journal
Greetings from Vancouver... I'm a member of the colorectal discussion group and haven't posted here before. I've recently started a weblog where I'm sharing reflections, resources, and insights from my 3 year journey with metastatic colon cancer and recurrences. Todays post is on "Spontaneous Remission". Previous posts…
CSN Discussion Boards Changes on May 16, 2007
Dear CSN Members: On May 16, 2007, you will see some changes on the CSN discussion boards. To assist you in connecting with as many members as possible, who may have had similar experiences as yours, we will be reorganizing our discussion boards and merging this "Throat Cancer" discussion board with the "Head and Neck…
tarceva
my name is roser. i have tongue cancer which has spread to my lungs and lymph nodes. my doctors mentioned something about tarceva as an option. but i'm wondering if anyone has been treated in a clinical trial with tarceva.
doctor
hi you all! can any one tell me if you had a dr name micheal kaplan, he is a head and neck (ent) dr, and he is out of stanford. how is he? i hear he is very good, but i'm hoping to hear from some of you who had him as your dr. i am hoping that he will be my husbands dr. thankyou jackie.
Information, especially on eating
Last fall after my biannual endoscopic check up on my Barretts esophagus, I was told I had to come back in March to be rechecked, "just to be safe" as biopsy showed high grade displasia. After my March examination I was told to come back for an office visit on May 22 to "see what we will do". They had no other info to give…
Oral Mucosal Melanoma
Is there anyone else out there that has experienced this rare type of canacer?
fighting esophageal cancer
I am a 63 year old male who was in excellent health until I was diagnosed with esophageal cancer. I had surgery on Oct. 12, 2006 and did very well. I was told that I had passed the "leak test" and was given liquids. Within two hours I was rushed to ICU because I had a leak that was not seen. I got through it and finally…
Dad 59 has esophagus cancer
My dad was recently diagnosed (Early April) with esophagus cancer in its early stage. His doctor recommended that he have an esophagectomy. He is scheduled to have the surgery next week and is currently running a series of tests to make sure that cancer hasnt spread to the rest of his body, having heart tests, etc. As…
leatrile/treatments
have anyone heard of leatrile treatments sounds very promising to me. thinking of having this treatment, since inop cancer and can't do radiation again and chemo does not seem to be helping. i appreciate any info or advice. thankyou Jackie.
My Mother
My mother was operated for Stage 3 (T4 N1 M0) Squamous esophagus cancer on 5th of april 07 and had some complications during the surgery . So the joining of the rest of the esophagus with the stomach has not been done . Doctors say that it will done after 4 -6 weeks . But currently she is having breathing problem . Doctors…
Hemiglossectomy
I had a hemiglossectomy in February of 2004 which took away nearly half of my tongue and part of the back of my throat. The first cancer surgery was in 1983. I have had several smaller tongue surgeries until the massive Hemiglossectomy. My problems are I cannot swallow, am on a feeding tube for all my food and speech is…
CSN Discussion Boards Changes on May 16, 2007
Dear CSN Members: On May 16, 2007, you will see some changes on the CSN discussion boards. To assist you in connecting with as many members as possible, who may have had similar experiences as yours, we will be reorganizing our discussion boards and merging the "Esophageal Cancer," "Mouth Cancer," and "Throat Cancer"…
CSN Discussion Boards Changes on May 16, 2007
Dear CSN Members: On May 16, 2007, you will see some changes on the CSN discussion boards. To assist you in connecting with as many members as possible, who may have had similar experiences as yours, we will be reorganizing our discussion boards and merging this "Mouth Cancer" discussion board with the "Head & Neck Cancer"…
CSN Discussion Boards Changes- Effective May 16, 2007
Dear CSN Members: On May 16, 2007, you will see some changes on the CSN discussion boards. To assist you in connecting with as many members as possible, who may have had similar experiences as yours, we will be reorganizing our discussion boards and merging this "Esophageal Cancer" discussion board with the "Head & Neck…
Problem with sleeping
I have had 30 radiation treatments for throat cancer. I have survived the daytime mucous battle but I haven't been so lucky with the nightime battle. I fall asleep very quickly but I am awaken in 3 to 4 hrs by the mucous build up in my throat which makes it difficult to breath. I drink ginger ale to help break up the…

Head and Neck Cancer

Discussion List

Discussion Boards