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half way check up
My husband went to rads today and the first words from his doctors mouth was "awesome" The tumor is shrinking and looking good so far.. I really needed some good news today!!!!
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we are so confused...went to mayo for 2nd opinion
We are at mayo getting my moms 2nd opinion. The drs at home said that my moms stage 4a base of tongue cancer with mets to bilateral nodes (a couple measuring 2Cm) was treatable even curable. The primary tumor according to home is 5cmx4cmx2cm. Our 1st appt at MAYO was with the oncologist who said that it was treatable even…
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Another all clear, well kinda, the sequel
Well had the biopsies done yesterday and ENT man says it is b9. Or, with a big smile on his face the actual prognosis was, 95% sure. Go to see him Friday to get that other 5%. So, sounds good to me. NED! Steve
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Hondo up-date
Hi Family Just a little up-date on how I have been doing for the passed few Months. It looks like I finally got rid of that sinus infection that has been hurting me for the passed 8 Months; I am feeling good and having very light headaches now. In March my PET scan came back with a spot lit up as another possible recurring…
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"Just keep me wondering' "
(Allman Brothers Band reference) GastroPod ran me off to a joint that could do some blood work, so he would have it at 11AM for our meeting. If things weren't scary before, they aren't now. So what? Um, I DID buy two cases of beer today and intend to enjoy them completely, so bear with me or not. Thing is, when I went in…
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"Monday, Monday, can't trust that day" (the sequel)
(The Mamas and the Papas reference) I highly recommend not answering the phone on Monday. I answered the phone on Monday. (I seldom take my own advice.) It was GastroPod! Wow! Within an hour of arriving home from CATScanDu, here was GastroPod on the phone. That is a rather worrisome development to me. Perhaps I have been…
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Clean scan after surgery for tongue cancer, but now canker sore problem
Hi, everyone. I haven't been on here for a while, but I truly hope you are all well. You are all in my thoughts and prayers. I had my first scan after surgery/radiation for my tongue cancer on April 12 and it came back clean. I was so excited and as soon as I got the news, I decided I would go back to work this week. But…
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Yet Another All Clear
My Husband finished 7 weeks of Chemo and Radiation the middle of Jan. and had his 1st scan on Fri. and it was ALL CLEAR ! Needless to say we are doing the happy dance right now. I want to thank all of you wonderful people for your all of the information that you give so freely. I didnt post much but was on here daily…
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One Year Ago
Well, three days from today will mark the first anniversary of that dreaded phone call when the nurse said "Roger, you have cancer in your parotid gland". I don't think I will ever forget that phone call. It was much worse than the one I received almost exactly one year prior to that when the Doc said "Roger you have a…
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switched from cispaltin to taxil and carboplatin
Well we went for our 2nd round of chemo and his kidney levels are to low. At first they said he would get half the dosage and then changed their mind completely. He will be having the tax and carbo for the next 2 weeks and then they will see if he can get his last dose in cisplatin. So frustrated my husband is 4A and he…
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It was shrinking...
My hubby's tumor really shrunk after the first round of chemo, second round coming up in 6 days. The tumor is getting larger again, I noticed the other day and he noticed after shaving this morning. Is this normal, does it mean the chemo isn't working? He feels good this week though, he was able to work a full day…
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Do you know...
Hi all, A few hours ago I read about quercetin and vitamin C posted in this forum and when I looked for it again it disappeared. If you had posted that information or if anyone knows how to PM the poster, could you please PM me? Thanks, Frank
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I hate dry mouth!
Has anyone tried ethyol to combat dry mouth? Brian
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Stage 4 metastisized cancer survivors
Hello, Are there any stage 4 survivors out there that the cancer has metastasized? My husband Tony has stage 4b squamous cell cancer that has spread to his lungs. He has received radiation, cisplatin and eurbitux. The cancer is now gone in his throat but has spread in his lungs. We would love to hear from those that beat…
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90 pet scan tomorrow
Hello Everyone.. It is hard to believe it's been 90 days since treatment ended already. I am going for my pet tomorrow and can't wait to get the week behind me. Have a great night all !! Paul
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Swollen Tongue Before treatment starts
My mom was just diagnosed 2 weeks ago with Stage 4a base of tongue cancer. The tumor is 5cmx4cmx2cm. We are leaving for Mayo Clinic Monday for a 2nd opinion. However, if she sticks her tongue out it is noticably swollen on the left side (the side that the tumor affects). She said today her tongue feels more swollen and…
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"Monday, Monday, can't trust that day"
(The Mamas and the Papas reference) Yesterday was Easter Sunday, and despite the fact I am not a religious person, I was for whatever reason amped up for the day. This is all the more curious because there were not really going to be a bunch of the usual suspects at the house. My daughter and her hub and the kids, for…
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Number of lymph nodes with metastisis
My husband seems to have had a lot of involved lymph nodes in comparison to others here They removed 70 nodes and said at least 14 were involved. Mostly I read people here have 2 or 4 lymphs involved. He had a clear PET scan concerning metastisis elsewhere. I don't know if the number is a discouraging fact or if they go in…
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"And tonight's the longest night"
(ELO reference) I guess there are four or five days that still sort of haunt me, although I am getting better with them as I am really starting to get this eating thing down. Christmas and Thanksgiving of course, require a great deal of patience and, can I say it, fortitude, on my part. Some people just don't get it, this…
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My fathers diagnosis earlier this afternoon......depressing to say the least
Hello all. I am writing to all of you out there to try and lift my families spirits. Accompainied with myself, my sister, my niece, my stepmother, my wife and my father, my father was diagnosed with stage 4 squamous cell carcinoma directly from the specialist. It is in his neck, lymph nodes specifically, a very small spot…
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"And if I said to you tomorrow"
(Led Zeppelin reference) So I went to my 10AM appointment, to get the surprise CT scan and when I got there I was not the one surprised. Surprise! The lady at the desk said my appointment was for 12PM. I said, "Hmmm...I am sure they told me 10AM." She said, "Hmmm, let me check." And then she said, "Oh, you were supposed to…
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Clearblue Update and three questions.
Just wanted to update, for those who have been in contact ."We" are now three weeks post RADS.(35 sessions + 5/7 weekly sessions Erbitux.) 2ND degree burns are healing , but tonge is scorched and eating is zero because anything burns, including water. 1.Is there such a thing as a non-burney eadible? Really a frustratingly…
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Salivary Gland Cancer
Looking for anyone who has salivary gland cancer, or specifically basal cell adenocarcinoma of the submandibular gland. I know it's rare, but looking for someone to share experiences with. thanks
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Constipation
I have a problem with constipation I think it's the ensure that I use in my feeding tube is there anything I can use along with the ensure that will help. The over the counter laxatives are two harsh can anyone help I need some relif fast. Robert
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PEG Pain
Hi All...My husband has had 1 chemo and 7 rads. All is going well so far with this (I know it is early). His main problem has been the pain associated with his stomach. He had the PEG put in on March 24, which he is not using yet. Since then, he has had back issues, occasional sharp pain in his right thigh and continual…
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Started Treatment at MGH
Hi Folks, I posted the last time at the end of March when I told you that the attempted trans oral robotic surgery didn't work out (tumor to big to get out with clean margins - .8 mm - that's a lot to territory for my small larynx so they left it in). I've got Stage IV supraglottic cancer with three lymph nodes, both…
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tooth pain after a year from rads
Hope everyone is doing well, I went back to work, someone hired me, and I'm trying this out, I recently, been having teeth issues, I have a capp thats been aching, and most of my teeth are very sensitive, I know alot had to do with the radiation, but the pain is getting worst. Can anyone tell me will I lose, or will the…
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More questions..
I met with the medical oncologist today who confirmed Stage IV SCC (HPV+). He said the treatment course would be 7 weeks of radiation with chemo (cisplatin) on weeks 1,4, and 7. Sounds very similar to some of the courses I've read on here... so now here comes the questions. He did not bring up the use of a PEG tube, so I…
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A Few Questions
Hi All, Ron asked me to post a few questions for him. He is now 3 weeks post treatment and he is not able to swallow and uses the peg tube 100%. He is still having lots of thick mucous which he has to spit out. Sorry to be gross, I don't know how else to say it. He also can not speak very well and when he does his voice is…
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"I'm BACK in the saddle again"
(Aerosmith reference) To be completely honest, when my death sentence was commuted (the lung thing), it took awhile to get over, to be sure, but I think I came to think of myself as not just lucky but even indestructible, even immune. Of late, and over the course of the last year or so, no matter what has transpired, and…