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Superthread????
Where can I find the superthread for head and neck patients/caregivers?
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Base of Tongue cancer
My mom is 65 yrs old. She was just recently diagnosed with Stage 4a squamous cell carcinoma of the base of the tongue. The tumor is 5cmx4cmx2cm and is on the left base of the tongue and extends into the tonsil region (the tonsil was clear). She has been having throat and jaw pain for 3 yrs and has been to the doctor 10…
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Radiation and root canals
I know this is a really stupid question, but I have to ask... I'm 54, and I've never had a root canal in my life (lot's of fillings as a kid, though). I had radiation for base of the tongue cancer in 2009. Almost immediately after my radiation treatment concluded, I needed a root canal. I didn't have any pain, because I…
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Another all clear, well kinda
Hey everyone, Saw the scope master today and got the all clear! But, he said my tongue looked too thick at the back. So here we go again for a Panendoscopy to "look around", and if needed do some biopsies. He said my scan lit up at a 4, so he just wants to make sure. Yeah O.K. He also said my anxiety level about this…
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Extension of NJ Temp Disability Benefits
Hello, Does anyone know how to receive additional NJ State benefits once the 26 weeks of temp disability benefits end (I was told no extension). My husband is still very weak, cannot eat, and barely talks and so cannot return to work, he needs about another 3 months. The SS or disability benefits don't apply because you…
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SIU School of Medicine in Springfield (Dr Robbins) for 2nd opinion base tongue cancer
Has anyone ever went to Dr Robbins in Springfield, IL for a 2nd opinion or treatment for cancer of the base tongue?
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Odd side effect? My tongue is killin me...
I was wondering if any of you have advice for my most recent side effect. I just finished my second week of rads. I have been able to tolerate the pain in my throat relatively well, but my tongue is another story. It feels like I poured boiling water over it and it really effects my eating experience :) and sleeping. Has…
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Need good dentist
I live in Utah and I really want a dentist with experience with radiation to the mouth. If anyone know anyone in Logan, Ogden, or Salt lake city utah I would love information. Or if you ask one of your doctors. I've heard so many great things about Dr. Anderson and I'm curious if he would know anyone in Utah. I'm just…
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My Friend NED
After an excruciating wait of 7 whole days, my onc today told me that my recent MRI was NED. Yeehah! Please visualize me doing my 'happy dance'. It ain't pretty, but it is heartfelt. I had been having some severe cheek and ear pain the last couple of weeks and, of course, I was thinking the worst about 'the beast'. So, I…
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Ebert speaks
I think I promised to quit doing this since I don't like it when other people do, but this was just so evocative that I have to post the link. Please know in advance that it is a 'speech' by Roger Ebert and friends at a TED convention, and that some of it may seem to be more about technology than what might be of most…
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Throat feels swollen on the inside
I had a neck disection on 3/28/11. I feel like the inside of my throat is swollen and I'm being choked. It doesn't look swollen on the outside. Is anyone else having this problem? Any suggestions on what can help?
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My first Rad Day
Well, finally all my small partial soft palate surgery is cover with new soft tissues and ,it give the rad doc the okay to start my tx. Yesterday was my first day, little nervouse but very confident in my team and in the "Trilogy Machine" that will do the job.The mask was little tight at first since it was made a month ago…
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Feeling Cranky.
I feel the most moody and cranky I have felt in a long long time. Wednesday the 13th is the anniversay of learning of Mark's cancer. Could this be making me feel this way?? Kim
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I feel like I know you already...
Hello everyone...for the past six weeks I have been searching on line for the right place to learn from and ask questions. I think this is it! Just from "creeping" (as our kids say about checking out facebook) I feel like I know many of you. My husband has just started treatment for tonsil cancer - his first chemo…
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HIGH ANTI OXIDANT DRINKS / JUICES
Has or is anyone buying any type of high Anti Oxidant drinks "off the shelf" at grocery or supplement store? I have a friend at my gym who is a Monavie distributor and says it is the best. I just don't want to get caught up in any type of high priced "snake oil" stuff. I am also not real interested in juicing fruits and…
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Many Thanks to All My Friends Here!
Hey Everyone, I am not a very eloquent writer nor am I able to convey my feelings as well as many of you do here. However I do want to let every one of you know how important a role each of you has played in the last year of my life. From coming to the aid of those that are down (myself included) to celebrating the little…
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PEG Tube 101
My wife is a Wound/Ostomy/Continence Nurse (WOCN), commonly referred to in my part of the country for whatever reason as an ET nurse. My doctors knew her well preceding my introduction to them, and took her advice regarding my wound care, and expected her to continue that care when I came home. Me, I had a PEG tube for…
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Can you smell and taste the burn from radiation?
Connie was telling me today that she thinks she has a burnt taste in her throat, she also said she thought she could smell this sensation also. She is now 3 weeks out of radiation and eats completely with her peg, we have talked about her trying some chicken and stars soup but so far we have just talked about it. She has…
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Congrats!! It's a ....TONSIL
Moms primary was discovered in right tonsil after tonsillectomy. We got the news today and are very happy! Mom was more upset that we missed Michael Douglas by 5 minutes today haha Radiation will start in about 4 weeks ...and chemotherapy? Apparently it's up to us!! I'm pretty sure my mom is going to refuse it but she was…
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Cisplatin and Kidney problems - next chemo on the 25th kinda scared
My husband went into the hospital Monday with only 20% kidney function. He had chemo on the 4th. By the 8th he was heading down hill fast and on Monday he could hardly walk to the restroom. Like I said I took him to the doctor Monday and they admitted him right away and started IV Fluids. He was released this morning and…
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LINK's 101 - How to make one...
For those that are interested and want to play with LINK's. I posted a photo of the code to one in my expressions...use the one with the blue background. I tried to do it awhile back, but it didn't display all of the code and now I can't delete or modify it... It's much easier to make that to try and explain it, LOL....…
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Cured?????
Hi Everyone! I am on my way to my scans at Mt Sinai. I was found NED in November 2010, so this will be my first scan since that wonderful news. I received a call yesterday that although I am scheduled for a PET/CT, my insurance company denied the PET stating it was not medically necessary. I was shocked, and as I spoke…
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Food and drink
I had left and right neck dissection and 95% of my tongue removed and replaced in July 2010. Along with chemo and radiation. The doctors let me start eating soft food about 2 weeks ago. Food taste about the same as it used too but nothing i drink taste good. Why does food taste about the same and drink taste so different?…
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Update from the ENT doctor apt today.
Well the visit didnt go very well and as you all remember couple weeks back I asked about the blood in my heavy mucus. Well I showed a picture of the mucus with blood in it to my ent doctor and I told him I had I have been hacking small traces of blood up for a month. He told me I could have bronchitis or possible lung…
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Head & Neck Screening
I thought I would share with you an article that appeared in our local newspaper today. THey are going to do Head & Neck screening at the Minor League Baseball game Monday night for free. This is the first time I have ever noticed any attention to Head & Neck Cancers. It is nice to see some progress. This patient had only…
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Our Neighbor
About a month ago, our neighbor came to the door to ask Glenn some questions. It turns out he's had a "swollen" gland in his neck for "a while". Long story short, he has SCC with an unknown primary. Just like Glenn and just about exactly 1 year after Glenn's diagnosis. We were shocked, to say the least. He came home from…
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rmkbrad checking in
Well the swelling in my neck has went down a little since my neck dicestion, I have a growth on my left ear tragus that is very painful. Last week I went to Reno to see a ENT and this guy really bumbed me out, I started to talk to him about my neck and how I am developing lympedema and would like some therapy for it and…
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My One Year Exam
It was supposed to be a happy one but not quite. I was diagnosed SCC unknown primary one year ago this week and had a left neck dissection one week later with no radiation. Every six weeks I have gone in for a scoping and exam. Several months ago they had me go in for a BOT biopsy for something suspicous which turned out…
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Need Advice
Hey guys! My mom and I need some help. Have anyone of you experienced a complete change in personality after finishing treatment. My dad finished in June of 2010 and during the last couple of months has changed completly. He is very angry with my mother and yells at her all the time. He has no interest in doing anything…
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how do you deal with depression and anxiety when...
how do you deal with depression and anxiety when your family and friends all tell you not to worry? tell you Not to stress? tell you not to cry when all you want to do is either cry or scream about your cancer? I have held it together these past 8 months of treatment and the 3 weeks I was back at work January 31 to Feb…