-
Radiation "exit wound" hair loss/regrowth
Hey kids! I'm two months out from end of radiation and chemo,and the radiation (in addition to making a very weird growth/bald pattern in my beard) left a large bald spot at the base of my neck, from the hairline up probably 2" x 2". Looks like I started having convulsions in the middle of a haircut! Any experiences with…
-
PET Scan
Hi to all of my friends!!! Sorry I haven't posted but it is good to finally get a chance to be here again. Had a Pet last Friday and now comes the wait. I have something going on in my neck and I can feel it so I am pretty worried. I have terrible problems with the atrophy in my right shoulder, and of course I still think…
-
Clinical Trial for newbies only-No previous treatment
Anyone just starting out and not yet treated this would be a great clinical trial to get involved in and potentially increase your chance of survival. It's called, :IT-MATTERS phase III Global Clinical trial for head and Neck cancer". 1-703-506-9460 or www.cel-sci.com or visit clinical trials.gov NCT number NCT01265. It's…
-
Check up Time - Of COURSE I Found a Lump
I mentioned it at my appointment Friday; my doc said it's common for us (H&N patients) to develop odd neck lumps here and there after treatment, and that it's probably nothing (lump sticks out on left side of front of throat - just next to where my "firm" area from dissection is). But I overheard the injection nurse tell…
-
My husband will not eat
My husband has no desire to eat. He amy eat a few bites of dinner and that is it for the entire day. He is drinking water. I have ensure and Carnation breakfast shakes. But, all he wants to do is sleep. I know he needs the rest. But, he needs to eat as well. No feeding tube at this time.. Is this normal.
-
Newbie
I want to say thank you to everyone for all the helpful information on here. I've been reading through posts for days now soaking in all the great information. I was just diagnosed with SCC (HPV+) with bilateral lymph nodes involved. From what I've been able to find, I'm guessing it will be Stage IV. The ENT surgeon told…
-
Bragging - Ignore If You're Feeling Sorry for Yourself at All
OK - just finished a whine, so time to focus on what's good. Couple weeks ago, I was bummed because I ordered country fried steak at a restaurant, and couldn't eat it. No shinola, Sherlock - been a long time since I could. But I had a wild hare, so I went for it - you all know how it is. I didn't even think about it before…
-
chemo/nutrition
My hubby is 6 days in on his chemo, which he is getting for 9 weeks. I am worried about his food intake, seems like everyday he can consume less and less food. The only thing that seems to taste good to him are popsicles. I have been reading the posts about peg tubes and I am wondering if peg tubes are put in place during…
-
For Frank10g
Frank just wondering how you are doing it’s been a week sense your last up-date, and I am getting a little worried. Hopping all is well Hondo
-
Ear Noise
Hi there everyone. 3 WEEKS POST RADs (35+ 5 weeks erbitux) Wifey complaining of a dull kind of "grinding/thud noise" in her ear. Had an ENT "look in ears" check up, and said everything is clear, no blockage. visible? ANY FURTHER suggestions? Happy Easter to you good folk Clear
-
How many of you have been stuck in bed during treatment or recovery and have watched shows that u wo
I watched everything, Teen mom, zeke and Luther,Dr.Phil, naurto,I carley.lol tell me some of yours.
-
vocal cord scarring
I don’t see too much about vocal cord scarring post radiation therapy on this site so my situation might not be common with us. I still thought I might share this with you in case anyone else has similar problems and just has not spoken up yet. I am a bedside RN in a hospital but I am constantly finding out new stuff about…
-
Losing weight
Tried to quite the feeding machine and lost 7 pounds since last Saturday. I can not drink enough carnation breakfast drink in a day to maintain my weight. I need 6 cans a day and only get about 3 or 4. I feel to bloated. I went 7 months with nothing by mouth till Saturday. How long till the bloating feeling goes away?…
-
Waiting......
I just realized that it is only 9AM into a Saturday and I am already two beers into the day. That is very, very unlike me. I am very stressed because I am waiting for the results of my Thursday MRI scan and I am having lots of facial/ear pain that is making me very apprehensive of the results. I am a generally positive…
-
Cisplatin...2 or 3 treatments
First of all, thank you to all of you for "existing" on this site. Coming here has truly helped us begin our battle with this cancer. My husband, Andy, was diagnosed with tonsil/base of tongue cancer. He had robotic surgery to remove his tumor and a neck dissection. He has completed 23(out of 30)of his radiation treatments…
-
Radiation?
I was diagnosed with scc 2/17/11 right tonsil, had a tonsillectomy+, modified right neck dissection at Mayo clinic on 3/4/11. Right tonsil tumor 4.8 cm hpv+, left tonsil clean, 39 nodes removed, one node tumor 2.8cm no extracapsular ext., other nodes neg. Surgeon is not recommending rad. and wants to see me every three…
-
I need help and advise ( SASH and SOCCERFREAK)
Hello everybody. Well, I went in for results of biopies Monday. NOT GOOD. My ENT says that everyone came back positive. That's about 7-8 he did. Side of tongue, BOT, voice box, palette etc. SOOOO, he says my choices are to opt for quality of life, live at home with hospice care and chemo. Till God says enough...come home.…
-
Am I the only one terrified of the nasal scope?
Hello everyone...I am new to csn and appreciate all the positive feedback. I finished my radiation and chemo on 2/01. I was diagnosed with stage 4 scc of the tonsils with one node involved.I am feeling better these days but wish my taste would come back faster. I have a huge appetite but can't taste to much yet. It is…
-
hiccups for 5 hours straight
My husband has had the hiccups for the last 5 hours. Has anyone else suffered from this? If so, what did you do to make them go away?
-
An update on Ron
Sorry for not posting as the last few weeks have been a blur. Ron has been in and out of the ER and clinic for hydration and nutrition problems. He has lost 27lbs and is down to 165 this morning. We have a Joey pump and a suction machine. He is only able to do 4 cans of the isosource per day and about 2 bottles of water.…
-
(First of the Chemo)Husband with SCC and constipation from pain meds
Hello everyone, I am thankful to have found this website. My 40 yr.old husband was diagnosed with stage 4 SCC with unknown primary about 5 weeks ago, he underwent lots of testing and a tonsilectomy with other biopsies. His right lymphnode seems to be the place of action right now measuring in at 61/2 centimeters. He had…
-
Mouth Odor Post Left mandibulectomy
My father had his left mandible and his left upper and lower jaw taken out and cheek reconstructed with a muscle form his right thight. he is 2.5 weeks post surgery now he is able to talk and his trac is out. However, he has a very noticable mouth odor when he talks ven after mouth washing with baking soda and salt water.…
-
Confused and Lost ...in my celebration of life.
I'm new to the discussion board, but not to cancer. First diagnosed in Dec. 2009 and had surgery on the base of the tongue. Then a reoccurance in May 2010, which resulted in another surgery and radiation for 7 1/2 weeks. Both lesions (also HPV-16 positive) were luckily Stage I. The reason for my post is that I am…
-
Finally I got to meet NED
Hello to All, Yesterday I was introduced to NED. After the introduction NED and I went to Louisville Ky to see my favorite band RUSH to celebrate. Peace to All Mike
-
Only week one...nausea and fatigue...does it get better?
I dint expect the first week to be so challenging. I am 38 and had my hpv+ tonsil and lymph nodes removed a couple weeks ago. This week I started the "clean up"...looking forward to 35 rads and 3 cisplatin over 7 weeks. The doc said the that the first two weeks would be easy, but the nausea and fatigue have me coming home…
-
Vomiting/Diarrhea--6 Weeks After Treatment
Hi Everyone, This site is great and full of helpful info. I just joined. My husband, 45 yrs old, finished 33 radiation treatments with 3 chemo rounds for SCC stage 4 in tonsils. He went to Sloan Kettering. My question is that he is now 6 weeks after treatment and he is now suddenly vomiting/diarrhea and cramping. He does…
-
Dental Appointment
Nearly two years post and all is good, no cavities or work to be done.....hoping it will last for a long time. Because I don't like dentists.... (nothing personal...well ya maybe kinda). Best, John
-
question about finding a new job while in remission of cancer?
Hey Guys I don't know if you guys would be able to help me or not but if I was to go out and find a new job and get a interview do I have to say anything about my cancer status etc.... since I have doctor visits for next 3 years? Thanks Tim.
-
Soup or Thread....Superthread
Dawn, you are doing great on the Superthread..... It's coming along nicely and beginning to look really polished....are you sure you are doing this all on your iPhone...dang girl, that's impressive...just imagine if you had a computer, LOL.... Best Bud, John
-
Pet/Cat scan question
I had stage 4 tongue cancer and cancer in my lyphnodes now they say i am cancer free but i did not have a pet or cat scan all they did was x rays of my chest. They said that i had to much swelling in the other parts of my body to do the other test. They said that with my cancer the next place to have cancer was the lungs.…