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Beginning radiation on oxygen 24/7
Hi, I am new here and writing regarding my husband. He is 5'5" and weighs 113 pounds. He has lost 7 pounds in the last couple of months and has recently been diagnosed with alcohol-related dementia (mild)and cancer at the base of the tongue with one positive lymph node. We were told that radiation is his option and it has…
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First Chemo completed
I've had a pretty rough start to this journey (including a collapsed lung as a result of the mediport placement). I was hospitalized for a week with a chest tube which resulted in the doctors moving back my treatment start date. I did my first chemo (cisplatin) today and thankfully I feel pretty good (fingers crossed it…
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Angiogram in the Morning Up-Date Friday the 13th
Well my Heart doctor finally did it; He got me to agree to have an Angiogram. He says everything on the other test all looks OK. But with all the High and Low blood Pressure problems, pain, and fluid build up on the brain he thinks I should do this test to make sure the Heart and Kidney have no restrictions or blockages.…
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loss of voice
my husband struggles to speak these days. He is very hoarse and has trouble getting words out. It started this week and we have 7 more days of rads left. I hope this is just temporary damage and will return to normal soon. BTW - It started on Monday when they started keying in on the main tumor on his neck.
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Here we go again
Hello Everyone, Well my mom had her biopsy today and the silly surgeon comes out and says yes it looks like recurrent cancer, he's sure. This is the same surgeon who took a biopsy March 4th that came back negative at that time showing acute and chronic inflammation with necrosis of bone. The PET scan last month lit up in…
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Lacking confidence after treatment
Hello Everyone, My wife Connie finished her radiation treatments March 21, and she did a ct scan April 10th to check her cancer status. She also had a ct scan after chemo on Jan.10, that detected no tumors. We are cautiously optimistic. My question is why have her doctors not ordered a pet scan, I thought the pet was more…
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Tongue Reconstruction
I thought I was only going to have the base of my tongue reconstructed and found out my whole tongue is going to have be reconstructed. Has anyone had this done, what is it like afterwords as far as eating. Do you loose your taste and feeling or what? Help
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loosing layers of skin
My husband is on his 27th radiation and he his loosing layers of skin on his neck. We are putting Aquaphor cream on it. Any other suggestions?
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Keeping Score
I was sad to read the news: "Harmon Killebrew announced Friday that he no longer plans to fight his esophageal cancer and has settled in for the final days of his life, saddening friends and fans of the 74-year-old Hall of Fame slugger." But sadder to read the Yahoo link for it: "Hall of Famer Harmon Killebrew gives up…
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COFFEE and CSN - UPDATE
Man, was starting to get cranky from not being able to have my morning cup of Joe with my CSN buds and buddettes..... I think we are just getting so much traffic in the Head & Neck Forum, we're boggin the system, LOL.... ***UPDATE**** Our FaceBook was hacked for those of you that are our friends there... We are not stuck…
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another biopsy-please pray
Well friends, please pray for my mother, Pauline, as we go in the morning for another biopsy. so scared A couple of questions...have any of you heard of surgeons using some type of GPS sytem to guide them during surgery to the mass. Also it the pet scan is very bright in an area, does that mean its cancerous? This site is…
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The Latest PET/CT Results
In March I had my 7 month post treatment PET/CT scan which showed a hot spot at the site of the original tumor that was diagnosed as residual cancer, meaning they didn't get all the cancer with the chemo/rads. Recommendation was surgery to cut it out of the base of tongue. Not a great day. 2nd and 3rd opinions suggested…
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twice a day radiation
Has anyone had radiation twice a day. If so, how was youe experience?
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My husband does not care for his oncologist
My husband does not care for his oncologist and staff. The oncologist is very young and her onco nurse is not very friendly and the front desk staff are not very professional. I talked to the doctor today, my husband is in alot of pain and was taking more than prescribed and she basically talked down to me. I understand…
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PET Results
I wanted to check in and let everyone know. My PET Scan was all clear and i do not have to go back to see my Doc for 6 months. It is nice to be able to share some good news on here. I know we all have had some really hard moments and will continue to have those days, but there is hope and i am happy to share some good…
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Where in the World Are You and Who on Here is Close to You...
Just wanted to stick the Survivors Map up, for newbies and other survivors.... Take a few minutes and find yourself on the map, and especially others that might be close in location to you... Where in the World Are You If you need added on the map just let me know. Thoughts, Prayers and Happy Week-End, John
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Looking for information on experiences with Cetuximab
Hi there, I'm new to this journey, just had my second chemo and first radiation treatment today. I have been given cetuximab combined with radiation therapy and would really appreciate any information from someone who has experienced this combination. Can anyone enlighten me?
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Husband just diagnosed with SCC - Base of tongue
Wow, my head is spinning! My husband (55) had a lump on the left side of his throat for about two months. General MD thought it was a sinus infection and put him on antibiotics for several weeks. Finally, we got into an ENT. He suggested a biopsy which we did last Thursday. We met with the ENT doctor today and he has…
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New pix
Hi all: Been playing around with pictures again thanks to John's help. Anyway thought I'd run a test and see how this came out. THis pix is the last one I took of Charlie and it was about a month before we found out about his return of cancer. Anyway thought you'd like to see a closer up view w/o sunglasses. I'm working on…
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Happy Mother’s Day
To all you Mom’s going through treatment or has been through the fire already and to all Mother’s who are Caregivers taking care of us in need. You are the blessing of the Earth giving by God to Man and I thank you for your never ending giving. I know that without my caregiver Wife I could not have made it as far as I have…
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Please pray for my dad
hi guy, not sure whether u all remember me. i posted somewhere in Jan saying that the beast had invaded in the my dad lung but doc need us to go for biopsy to cfm. But after some discussion we decided not to go for it till recently my dad was dx with Pneumonia and again the doc strongly advise us to go for biopsy. well, we…
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please please give advice
Hello everyone, Well my mother had stage2-3 sinus cancer. She did radiation, completing it end of august 2010. her ct in november was clean. In Feb. her ct showed abnormality near original cancer area. Her radiologist said she was sure it was a recurrence. Her sinus surgeon said he did not know. He is her ENT and trained…
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Spitting up blood
My husband was spitting up blood this weekend and all of his gums are white. Is that the mouth soares I that I have heard people talking about? Any solutions?
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Hair loss
Okie dokie, here's another question for anyone who may have experienced it.....I had my last chemo January 18, 2011 and last radiation February 8th. I lost my hair along the radiation line and had some thinning after chemo, but did not lose all my hair. The last two weeks, my hair has started falling out again. Not just a…
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Pain Clinic
After surviving 3 surgeries, 30 rads,and right side facial paralysis for the last ten months, I now have moderate to severe pain in my eardrum, temple, jaw, and throat. This pain moves around and is sometimes an annoyance and is sometimes horrendous. My ENT says he is quite sure it is a TMJ disorder. Well, I sure don't…
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Michael Douglas
Michael Douglas will be on the View tomorrow May 9th, if anyone wants to watch. Sue
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New to site
Hi ya'll. I just joined CSN; wish I had found this site 2 months ago! I have 8 more radiation treatments left (out of 35) and can hardly wait to see this through. I am looking forward to having a sense of taste again, hopefully, and getting enough nutrition by mouth so the peg can come out. I too have moments of real…
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Fresh From the Salt - Tampa Bay Grouper
For all of my fishing buddies.... There is fishing after Chemo and Radiation.... This is my friends Blog on recent fishing trips. Some with me, some with others.... The cover is Josh, my buddy holding a double fisted pair of grouper. Our first double hook-up a few eeks ago. Fresh From the Salt If you scan through the older…
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swelling
My husband last rad and cemo treatments has been now around 5 weeks. He wants to know if anyone on this site as the experienced the swelling like he is? Under his chin is really swollen, and hard. If anybody has experienced this same thing about how long does this last? We have asked all the doctors and they always say "…
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First day of treatment....
Well I went in for my first day of treatment at University of North Carolina Cancer Hospital and met my ENT Doctor. He appeared to be a great guy and was able to identify my primary, right tonsil with small affected area BOT. Pre-Op is 16 May and surgery is scheduled for 24 May. My ENT Doc is going to be in touch with me…