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twice a day radiation
Has anyone had radiation twice a day. If so, how was youe experience?
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My husband does not care for his oncologist
My husband does not care for his oncologist and staff. The oncologist is very young and her onco nurse is not very friendly and the front desk staff are not very professional. I talked to the doctor today, my husband is in alot of pain and was taking more than prescribed and she basically talked down to me. I understand…
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PET Results
I wanted to check in and let everyone know. My PET Scan was all clear and i do not have to go back to see my Doc for 6 months. It is nice to be able to share some good news on here. I know we all have had some really hard moments and will continue to have those days, but there is hope and i am happy to share some good…
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Where in the World Are You and Who on Here is Close to You...
Just wanted to stick the Survivors Map up, for newbies and other survivors.... Take a few minutes and find yourself on the map, and especially others that might be close in location to you... Where in the World Are You If you need added on the map just let me know. Thoughts, Prayers and Happy Week-End, John
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Looking for information on experiences with Cetuximab
Hi there, I'm new to this journey, just had my second chemo and first radiation treatment today. I have been given cetuximab combined with radiation therapy and would really appreciate any information from someone who has experienced this combination. Can anyone enlighten me?
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Husband just diagnosed with SCC - Base of tongue
Wow, my head is spinning! My husband (55) had a lump on the left side of his throat for about two months. General MD thought it was a sinus infection and put him on antibiotics for several weeks. Finally, we got into an ENT. He suggested a biopsy which we did last Thursday. We met with the ENT doctor today and he has…
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New pix
Hi all: Been playing around with pictures again thanks to John's help. Anyway thought I'd run a test and see how this came out. THis pix is the last one I took of Charlie and it was about a month before we found out about his return of cancer. Anyway thought you'd like to see a closer up view w/o sunglasses. I'm working on…
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Happy Mother’s Day
To all you Mom’s going through treatment or has been through the fire already and to all Mother’s who are Caregivers taking care of us in need. You are the blessing of the Earth giving by God to Man and I thank you for your never ending giving. I know that without my caregiver Wife I could not have made it as far as I have…
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Please pray for my dad
hi guy, not sure whether u all remember me. i posted somewhere in Jan saying that the beast had invaded in the my dad lung but doc need us to go for biopsy to cfm. But after some discussion we decided not to go for it till recently my dad was dx with Pneumonia and again the doc strongly advise us to go for biopsy. well, we…
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please please give advice
Hello everyone, Well my mother had stage2-3 sinus cancer. She did radiation, completing it end of august 2010. her ct in november was clean. In Feb. her ct showed abnormality near original cancer area. Her radiologist said she was sure it was a recurrence. Her sinus surgeon said he did not know. He is her ENT and trained…
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Spitting up blood
My husband was spitting up blood this weekend and all of his gums are white. Is that the mouth soares I that I have heard people talking about? Any solutions?
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Hair loss
Okie dokie, here's another question for anyone who may have experienced it.....I had my last chemo January 18, 2011 and last radiation February 8th. I lost my hair along the radiation line and had some thinning after chemo, but did not lose all my hair. The last two weeks, my hair has started falling out again. Not just a…
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Pain Clinic
After surviving 3 surgeries, 30 rads,and right side facial paralysis for the last ten months, I now have moderate to severe pain in my eardrum, temple, jaw, and throat. This pain moves around and is sometimes an annoyance and is sometimes horrendous. My ENT says he is quite sure it is a TMJ disorder. Well, I sure don't…
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Michael Douglas
Michael Douglas will be on the View tomorrow May 9th, if anyone wants to watch. Sue
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New to site
Hi ya'll. I just joined CSN; wish I had found this site 2 months ago! I have 8 more radiation treatments left (out of 35) and can hardly wait to see this through. I am looking forward to having a sense of taste again, hopefully, and getting enough nutrition by mouth so the peg can come out. I too have moments of real…
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Fresh From the Salt - Tampa Bay Grouper
For all of my fishing buddies.... There is fishing after Chemo and Radiation.... This is my friends Blog on recent fishing trips. Some with me, some with others.... The cover is Josh, my buddy holding a double fisted pair of grouper. Our first double hook-up a few eeks ago. Fresh From the Salt If you scan through the older…
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swelling
My husband last rad and cemo treatments has been now around 5 weeks. He wants to know if anyone on this site as the experienced the swelling like he is? Under his chin is really swollen, and hard. If anybody has experienced this same thing about how long does this last? We have asked all the doctors and they always say "…
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First day of treatment....
Well I went in for my first day of treatment at University of North Carolina Cancer Hospital and met my ENT Doctor. He appeared to be a great guy and was able to identify my primary, right tonsil with small affected area BOT. Pre-Op is 16 May and surgery is scheduled for 24 May. My ENT Doc is going to be in touch with me…
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My Fathers udate after surgery yesterday....pretty good so far
Well, the surgery has came and went. The Doc. wanted to take the infected lymph nodes out of both the right and left side of the neck, but after he opened my father up, he found one of the lymph nodes wrapped around the juggler vein. With that being said, he had to remove his juggler vein in order to get 1 of the 5 nodes…
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New products
Well, at least they are new to me. Anyone tried something called "Pill Glide"?? Yea, I know....sounds like something from a dope addict amusement park. But anyway, it's a swallowing spray that you spray on your tongue and it really does help in getting the larger pills down the ole throat. It's sugar-free, dye-free, and…
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A beverage that might be worth a try when everything is burning....
I know some of us spoke about this first beverage before, but we've had a lot of new people join, so thought I would mention it. One of the things that I could actually tolerate drinking when everything else burned, (even water) was flat, room temp, MUG rootbeer. This was a tip from the hematologist oncologist. It has to…
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Question for everyone on board
How long have you been cancer free?
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Unsolicited Personal Email
I received a suspicious email to my personal email account at 4:00AM last night. It references CSN.CANCER.ORG as finding and reading my profile. Wanting to get to know me, send a photo, etc.... Has anyone else received any emails like this. I know that I've posted my email on here a few times in conversations... Anyways,…
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Anyone able to avoid PEG and feeding tube?
I'm just looking for some light. I'm in my second week of rads, which will last 7 weeks. Im eating regularly, but the taste has definitely changed for nearly everything, including water. I eat six times a day and understand that nourishment is necessary even if it doesn't feel great. This all being said, the nurses at the…
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Little off topic: anybody know anything about Saccharomyces boulardii?
It is a active yeast to help control diarrhea. any thoughts?
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I started waving at passing airplanes
and am really starting to enjoy it. You see I do a little jogging just to help with the anxiety. Scans in two weeks so this is always an anxious time. Anyway, I live rather close to an airport and the planes take off nearby. By the time they get over my residential street, I'm sure someone looking out, can still make out a…
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xylitol for dry mouth!!!
Hey folks, hope all is well tonight!! Just wanted to share some info. I know most of you use Biotene that has some xylitol in it; but it doesn't specify how much. We should be getting about 5-6gm a day!!I find that chewing gum really helps with the dry mouth and it helps exercise the jaw!! I'm using a xylitol gum that has…
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Cisplatin and 5 fu for concurrent chemo/rad for BOT?
My mom has decided to stay local for her treatment since my dad is sick too....The oncologist here said she would have 7 wks rads with cisplatin and 5 fu on wks 1 4 and 7....Did anyone else have fu 5 as part of their chemo/rad treatment?
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CT results!
Went today to get my CT scan results from last week and they came back clean :) of course I knew they would! Next thing they want to do is test my thyroid to make sure it's functioning right since I'm oh so very tired all the time lol. Anywho nothing exciting, just thought I would share!
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mom's helpers
No doubt the mask is daunting! I too had to take anti-anxiety pills at first, Roz. I had never had any problem with claustrophia before, it was really a form of panic. Good idea to ask for help with the sleeping thing. I have been staying up reading most of the nights, so maybe little 'helpers' are in order here. Thank…