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Head and Neck Cancer

Biopsy Today
Today my doctor performed the biopsy of the mass in my nasopharynx. Trips to the OR are never fun but it went well and I'm thankful for all of the great staff at Strong Hospital. Dr. Vandersloot said that the mass appeared smaller than it did several days ago when he found it during a routine scope. He went on to say that…
Bob's Scan Result's...
Well all is good clean Scan except the Lung...they are not worried about it another Scan in 6 month's..they Biopsied Bob before and they say it is the Mississippi Spore/Fungus anyone else heard of this?? Both his ENT and ONCO Dr told him about this Spore/Fungus and asked him if he was near the Mississippi and our Cabin is…
PET scan results - excellent!
Jim's six-month post-treatment PET scan showed no cancer anywhere! Praise the Lord!
Sleep
I still have my Peg tube going on 6 mounts 5 mounts after Rad my thing now is I cain't sleep 1 1/2 hours last night do you think I am tube feeding to late or what.
My scan outcome!
Well after three month's & a dirty pet/ct scan wich showed a nodule in my neck & two nodes in my Lower left lobe in my lung. We did a watch & waiit & a follow up ct scan it came back all clear. I just about fainted! I have been praying so hard & was so depressed I thought I would have to be committed!I had two bad cough &…
NED!
Had a CAT-scan yesterday. Results came back today. The Med-Onc did not use the term "NED", but said I'm "all clear". No evidence of the cancer at the primary BOT site, and the neck mass is gone. It is now a little more than two months since my last treatment. The last radiation was Feb. 7 and last chemo was Jan. 25. Still…
ACUPUNCTURE AND OR AURICULAR THERAPY FOR DRY MOUTH
Has anyone had any success with Acupuncture and or Auricular Therapy for dry mouth?? Thanks Mike
"So tell me, grey seal, how does it feel"
(Elton John reference, for a friend) I am not exactly sure what to say. Nearly a month since the dilation, which at the time and in the first week after seemed like a great thing, and now I am sort of worried about me. I do not usually confess such things, but this is real life and it is early in the morning and I have…
Osteoradionecrosis (ORN) and hyperbaric therapy (HBO)
Hi! My radiation and chemo treatment ended 9/2009 for squamous-cell on the base of my tongue. I've lost 50-90% of my saliva production, and I've never recovered the ability to taste sweetness. A few months ago I experienced pain in my lower inner gum. Eventually, a piece of bone pushed it's way out through my gum. An oral…
I checked online and can't find an answer.
When we where talkng to the rad doctor he said my husband has multiple lymph node along with a walnut sized tumor and we needed to start therapy ASAP, because the lymphnodes were starting to develope holes. I am sure it's not good, but I want to know exactly what that means..Anyone got some good answers for me.
Week of May 9 Oral Head and Neck Cancer Awareness Week
The Week of May 9 is National Head and Neck Cancer Awareness week...just thought I would pass it along...
speaking problem after surgery
hi everyone i was diagonsed with carotid body tumor, i under went a surgery on 23rd of march 2011. but after sergury I was having swallowing and speaking problems. the swallowing problem got better but my speaking is a bit of a problem my volume is very low. just wondering if any one could help me with it or if any one had…
Something is working
The Lung Doc said the tumor was 1/4 of its orginal size. Something is working. - Judy
6 MONTH SCOPE AND EXAM IS CLEAN
I just had my 6 month scope and physical exam and all is good. ENT says I am "ahead of the curve" in regards to my healing. I have a chest CT and Neck CT scheduled for June 13th. The chest CT is to compare with a previous scan that showed a small something that the Thoracic Surgeon was convinced is scar tissue from…
Good News
My husband went for his check up this week and all scans were clear!!! What great news! He had a radical neck dissection last May. Thought I should post this, its always good to hear good news about a survivor. I know I love to read about good results , it gives me hope. So hope this helps give others hope :)
Bob's Scan Result's...
Well all is good clean Scan except the Lung...they are not worried about it another Scan in 6 month's..they Biopsied Bob before and they say it is the Mississippi Spore/Fungus anyone else heard of this?? Both his ENT and ONCO Dr told him about this Spore/Fungus and asked him if he was near the Mississippi and our Cabin is…
When do they check your status?
I was wondering my husband is on his third weeks of rads and goes for his second round of chemo on Monday. Do they check during treatment to see if the tumor is shrinking. We were advised to not have surgery first because he would loose part of his jaw and most/all of his tongue. I sure hope this treatment works. He may…
2nd belly button and more good news
Today the doctors removed the lymph nodes on the left side of my neck. (hurray)!!! It went exceedingly well. The Doctor made the comment that the nodes were not grown attached to the surrounding tissue. I am going to take that to mean that the cancer had not grown through the nodes into the adjacent tissue. Also he was…
Radiation and root canals
I know this is a really stupid question, but I have to ask... I'm 54, and I've never had a root canal in my life (lot's of fillings as a kid, though). I had radiation for base of the tongue cancer in 2009. Almost immediately after my radiation treatment concluded, I needed a root canal. I didn't have any pain, because I…
Starting third weekd of rads and his throat is killing him.
My husband is on his 3rd week of rads and his throat is starting to tighteng up and he is having trouble swallowing food and pills. The doctor put him on morphine today and I believe the magic mouth wash. Will the narrowing of the throat get worse?
Lack of Knee Jerk Reflex - Thyroid Related - Another Radiation Side Effect
****Just Googled It****** I had this happen recently during my annual physical...thought it was strange that my knee reflexes no longer responded to the MD's rubber hammer tap... He told me it was a symptom from the malfunctioning Thyroid...go figure. I would never thought it could effect something like that, weird huh...…
heading back to MI
Hi, My husband and I are headed back to Monroe, Mi. We have been here in Ocala, Fl since October when we found out that he had throat cancer. We have been through all the Rad treatments and Cemo, all the test. We want to go home, so tired of all this. The first of May he has his first Pet scan we don't care how it will…
Post Radiation Fatigue
I am starting to have a noticeable increase in fatigue and constipation 8 months post radiation therapy (without chemo). I was lucky to have only barely Stage II Cancer of the larynx. I am able to eat without difficulty and have maintained weight. I am seeing a couple of doctors over the next two weeks; and I know there…
Superthread????
Where can I find the superthread for head and neck patients/caregivers?
Base of Tongue cancer
My mom is 65 yrs old. She was just recently diagnosed with Stage 4a squamous cell carcinoma of the base of the tongue. The tumor is 5cmx4cmx2cm and is on the left base of the tongue and extends into the tonsil region (the tonsil was clear). She has been having throat and jaw pain for 3 yrs and has been to the doctor 10…
Radiation and root canals
I know this is a really stupid question, but I have to ask... I'm 54, and I've never had a root canal in my life (lot's of fillings as a kid, though). I had radiation for base of the tongue cancer in 2009. Almost immediately after my radiation treatment concluded, I needed a root canal. I didn't have any pain, because I…
Another all clear, well kinda
Hey everyone, Saw the scope master today and got the all clear! But, he said my tongue looked too thick at the back. So here we go again for a Panendoscopy to "look around", and if needed do some biopsies. He said my scan lit up at a 4, so he just wants to make sure. Yeah O.K. He also said my anxiety level about this…
Extension of NJ Temp Disability Benefits
Hello, Does anyone know how to receive additional NJ State benefits once the 26 weeks of temp disability benefits end (I was told no extension). My husband is still very weak, cannot eat, and barely talks and so cannot return to work, he needs about another 3 months. The SS or disability benefits don't apply because you…
SIU School of Medicine in Springfield (Dr Robbins) for 2nd opinion base tongue cancer
Has anyone ever went to Dr Robbins in Springfield, IL for a 2nd opinion or treatment for cancer of the base tongue?
Odd side effect? My tongue is killin me...
I was wondering if any of you have advice for my most recent side effect. I just finished my second week of rads. I have been able to tolerate the pain in my throat relatively well, but my tongue is another story. It feels like I poured boiling water over it and it really effects my eating experience :) and sleeping. Has…

Head and Neck Cancer

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