Hondo up-date

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Hondo
Hondo Member Posts: 6,636 Member
Hi Family

Just a little up-date on how I have been doing for the passed few Months.

It looks like I finally got rid of that sinus infection that has been hurting me for the passed 8 Months; I am feeling good and having very light headaches now. In March my PET scan came back with a spot lit up as another possible recurring NPC; not a problem as this has been my story for the passed 6 years of having PET scans.

I did have to make a trip to the E/R about 6 days ago due to pains in the chest on the right side over the lung. The Doc in the E/R room did a C/T and X-ray but could not find any problems, so they gave me some pain meds to take. I believe I have more pills then Walgreens has, wish I could sell some of it back to them. Anyway the pain is down to almost nothing, just not too sure what it was.

As most of you know I have been unable to open my Jaw more then ½ inch, I have been living this way for almost 5 years now because my Oncal doc did not think I would live very long so he gave me no therapy to help with the jaw movement. I have used every device and trick in the book to get it open and nothing has worked for me. That is up until now; I am now using the Dynasplint system, yes is cost a lot but I think I am worth spending a little money on myself. Anyway I started with an opening of about 15mm and in just a little more then 4 weeks I am now almost up to almost 20mm, that mean I can now open my mouth 5mm more then I have in the last 5 years. I can eat better and clean my teeth better now that it opens a little more, my goal is to get it open to 40mm and get my teeth fixed.

Also like all of us I still have the Good and Bad days, but my Good days have been very good days. I don’t why but when I am having my good days I feel a joy with in myself that I just can’t explain. It makes me so happy I start singing even though I don’t have a voice to sing with anymore. But every now and then for some unexpected reason I cry, it is when I am at places like MD Anderson and I see all the people there in need of help and I feel so useless to do anything. Or if one of my dear friends here on CSN is hurting I find myself crying. But then I also find I start praying for them even while crying asking my savior to be with them and help them to see through the dark valley that I have lived in for so many years. I need to go as I am starting to cry again and can’t see the key board very well; to you my family God bless and be with each and everyone of you.

Joel4 / Frank10g I am praying for you both everyday and pray that you will not have to live in that dark valley as log as I have, just remember there is always hope.

Take care all
Hondo
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Comments

  • DJG1
    DJG1 Member Posts: 121
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    Good Report Hondo
    Hondo,
    I am so happy to hear that you sinus infections is gone and there is some positive news about the opening of your mouth. You deserve to have some good things your way. You are always the ROCK of this board. Know that I also pray for you daily and all those who need additional support. I hope things continue to improve for you. Thank you for all you do Hondo, you are truly a great person. Debbie
  • ratface
    ratface Member Posts: 1,337 Member
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    DJG1 said:

    Good Report Hondo
    Hondo,
    I am so happy to hear that you sinus infections is gone and there is some positive news about the opening of your mouth. You deserve to have some good things your way. You are always the ROCK of this board. Know that I also pray for you daily and all those who need additional support. I hope things continue to improve for you. Thank you for all you do Hondo, you are truly a great person. Debbie

    don't tell anyone
    but there are days I skip down the driveway and there are days I cry because some little stupid thing didn't work out right. I'm thankful for you though.
  • JUDYV5
    JUDYV5 Member Posts: 392
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    Great Report
    I am really glad things are going better for you. You have been such an inspiration.
    I am an emotional mess. I can go from "skipping" to crying in a breath. It is reassuring to know that I am not alone.
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
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    GOOD NEWS
    Good to hear some of your long term issues are being resolved.

    Here's to good health.

    Mike
  • Joel4
    Joel4 Member Posts: 263 Member
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    JUDYV5 said:

    Great Report
    I am really glad things are going better for you. You have been such an inspiration.
    I am an emotional mess. I can go from "skipping" to crying in a breath. It is reassuring to know that I am not alone.

    Hondo
    Hey man, so glad to hear that you got rid of that mother of all sinus infections.
    Hondo I take great heart in knowing that you are praying for me.
    Going through this I have been given a glimpse of how precious and fragile our health is. Not just life but health.
    When you have been through the fire like you have and then have a day where you feel great it is no suprise that you would be overcome with emotion because you know firsthand how special those moments are.
    Keep doing well and I love you brother!
  • sweetblood22
    sweetblood22 Member Posts: 3,228
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    GOOD NEWS
    Good to hear some of your long term issues are being resolved.

    Here's to good health.

    Mike

    Hondo
    Glad some of your issues are getting better. I too go from happy to crying in a nano second some days too. I think we can all understand that.

    Sending you much <3<3 and you are always in my prayers.
  • Pumakitty
    Pumakitty Member Posts: 652
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    Hondo
    I am glad you are getting relief from some of the pain. You are an amazing guy. Sending you hugs.

    Kathy
  • 3Mana
    3Mana Member Posts: 811
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    Welcome back!
    Hey Hondo,
    Welcome back! You sure have been through so much these past 5 years. But from what I've gotten out of reading your posts, you are a fighter, so please believe that there's some light at the end of the tunnel. I don't know if you remember me, but my husband Tom passed away a year ago on the 25th of March from lung cancer. So I was his caregiver, but only lasted 2 months.
    I agree with you about feeling sad & crying when reading some of these posts. There are so many of us who have lost our spouses or who are fighting this damn disease and it does get depressing sometimes to read them. But all of us whether we have cancer or have cared for someone & lost them understand how each of us feel. Please Hondo, know that we're here for you and don't want you to give up. Please take care and keep working on getting your mouth open to 40mm!!! I know you can do it! Carole
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
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    When Are We Going Fishing
    Congrats, bro....glad things have a positive turn for you occasionally.

    John
  • denistd
    denistd Member Posts: 597
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    Skiffin16 said:

    When Are We Going Fishing
    Congrats, bro....glad things have a positive turn for you occasionally.

    John

    Hondo
    God be with you Amigo
  • adventurebob
    adventurebob Member Posts: 691
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    Thanks Hondo
    So glad to hear the sinus infection is over. Great job with the jaw opener. It must be quite a difference and real solid progress. All kinds of fun foods can fit now huh? I get the good days/bad days thing. I seem to have good hours/bad hours some days. And then there's good weeks/bad weeks. Even good months/bad months now that I think about it. Nice to be here no matter what though. Always enjoy and appreciate your posts. Praying for you regularly. Nice to read they're answered.
    Bob
  • MarineE5
    MarineE5 Member Posts: 1,030 Member
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    Glad to hear
    Hondo,

    I am glad to hear that you got rid of that nasty sinus infection and happy to hear that you are working on improving the jaw expansion.

    I have to agree with all the others Hondo, you provide sound advice and are the Rock. You have been through allot and traveled several roads.

    My Best to You and Everyone Here
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
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    denistd said:

    Hondo
    God be with you Amigo

    Hondo
    Great to hear of the progress. Does make one wonder how well our systems are equipped to avoid such as infections, and the like, after all the rad damage. Seems our regualar Drs. should be especially aware of our post-treatment vulnerability to this sort of thing, and be more prone to giving us the antibiotics needed.

    As for the crying thing- truly does sadden me to the hilt every time I've gone to see the Onco, and am sitting in the lobby with those who have active C. All of us can step into their shoes, as we have been there. But I also realize some of those people do not have H&N, and their C doesn't have the success rate of our H&N. And it really is a sad thing, but also a good thing to be there and feel for them. And a Prayer.

    If any of us is deserving of a good break, Tim, it is you. And I hope Houston and your locals can help keep the physical for you moving Positively forward. Know the Lord is with you, now and forever.

    Believe

    kcass
  • Hondo
    Hondo Member Posts: 6,636 Member
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    DJG1 said:

    Good Report Hondo
    Hondo,
    I am so happy to hear that you sinus infections is gone and there is some positive news about the opening of your mouth. You deserve to have some good things your way. You are always the ROCK of this board. Know that I also pray for you daily and all those who need additional support. I hope things continue to improve for you. Thank you for all you do Hondo, you are truly a great person. Debbie

    Hi Debbie
    Thanks for your kind words my friend

    Hondo
  • Hondo
    Hondo Member Posts: 6,636 Member
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    ratface said:

    don't tell anyone
    but there are days I skip down the driveway and there are days I cry because some little stupid thing didn't work out right. I'm thankful for you though.

    Ratface

    I would love to have a photo of your skipping down the driveway in my office so when I feel sad I can look at it and smile.

    Thanks
    Hondo
  • Hondo
    Hondo Member Posts: 6,636 Member
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    JUDYV5 said:

    Great Report
    I am really glad things are going better for you. You have been such an inspiration.
    I am an emotional mess. I can go from "skipping" to crying in a breath. It is reassuring to know that I am not alone.

    Hi Judy

    My daughter tells me it is some kind of hormone imbalance from the radiation treatment, but every time I get checked they can’t find any problems, so I guess I will going on as I am.

    Thanks
    Hondo
  • Hondo
    Hondo Member Posts: 6,636 Member
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    Joel4 said:

    Hondo
    Hey man, so glad to hear that you got rid of that mother of all sinus infections.
    Hondo I take great heart in knowing that you are praying for me.
    Going through this I have been given a glimpse of how precious and fragile our health is. Not just life but health.
    When you have been through the fire like you have and then have a day where you feel great it is no suprise that you would be overcome with emotion because you know firsthand how special those moments are.
    Keep doing well and I love you brother!

    Joel
    Remember my brother that there are many just like me prayinh for you everyday. I will send you my contact info if you need call anytime.

    God bless and keep you while in his workshop
    Hondo
  • Hondo
    Hondo Member Posts: 6,636 Member
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    GOOD NEWS
    Good to hear some of your long term issues are being resolved.

    Here's to good health.

    Mike

    Hi Mike
    You like so many have giving me so much support while in some of my darkest moments, I will always be thankful to you.

    All the best
    Hondo
  • Hondo
    Hondo Member Posts: 6,636 Member
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    Hondo
    Glad some of your issues are getting better. I too go from happy to crying in a nano second some days too. I think we can all understand that.

    Sending you much <3<3 and you are always in my prayers.</p>

    Hi Sweet
    Thanks for the kind words and I do always enjoy your comments

    PS: I spoke to Daddy Mike yesterday and he is still doing well, just waiting on insurance to cove his teeth to get repaired.

    Thanks again
    Hondo
  • Hondo
    Hondo Member Posts: 6,636 Member
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    Pumakitty said:

    Hondo
    I am glad you are getting relief from some of the pain. You are an amazing guy. Sending you hugs.

    Kathy

    Hi Kathy
    Thanks so much and I still keep your Dad in my prayers hope he is still doing well.

    All the best
    Hondo